For profit healthcare is a crime against humanity

There's a bunch of us that I've found on here and instagram!

I would rather have a catheter than being stuck living with about 1/4 of my body feeling like its pressed up against a hot stove without being able to get away from it, but yeah I'll take his growing awareness.

Hi! Stumbled across your profile while doing a search on erythromelalgia. I'm assuming it did not spread to your stumps?

Wow, I also diagnosed my erythromelalgia and autism myself. I got an official confirmation from a pain doctor on the EM after I took my research and proof to her (within 2 minutes she had confirmed) and my therapist and psychiatrist agree with mild autism.

Including the fundraiser link. They have the option of buying the shirt or just donating.

A woman commented that her son had a severe case and he killed himself 3 weeks ago. On her page she had posted a fundraiser for funeral expenses. He had planned out his last message to be released upon his death, and his friend put it on a shirt to raise money. He was obviously a beautiful person.

This is just some seriously sickening shit. Seriously racist shit.

I encourage not sitting quietly for a fecking thing anymore!

This is his first time really dealing with hospitals in this capacity and I've been helping him advocate for himself. I just wish he had gone to the doctor sooner.

And I will employ a death doula because I'm terrified of what the great beyond has in store. Maybe this sounds nonchalant but my disease is so severe that my doctors are genuinely sad for me and they know they can't do anything further to help. I should have let my cervical cancer kill me in 2019.

I would pay so much money just for one day without this pain. I never expected this disease to spread beyond its "boundaries" and things are worsening fast. If an infusion doesn't help I'm going to talk to a new org in Switzerland.

I ordered a BedJet to try, and a dog cooling pad! Because my feet are so bad (my right foot especially), it's traveled up my legs and now my lower right leg burns when I sleep too. I'm hoping to hear back by the end of the month from the pain clinic in SLC to hopefully get a lidocaine infusion there