Pearl Avery
@pearlavery.bsky.social
Grandmother mother wife and PhD candidate @BU #IBD #GASTRO #ANP #Medsmanagement #DigitalHealth views my own #NHSCEP @CrohnsColitisuk Nurse @BJNursing GI/IBDNurse 2018 #NHS 🌈
Reposted by Pearl Avery
Read more ⬇️ #RCN25
Mental health wait times in A&E a ‘scandal in plain sight’, says RCN | News | Royal College of Nursing
We're calling for significant investment in mental health nursing, as an RCN Freedom of Information request shows at least 1.3 million people have presented to A&E in a mental health crisis in the las...
www.rcn.org.uk
May 13, 2025 at 1:48 PM
Read more ⬇️ #RCN25
Thank you Helen xx
December 6, 2024 at 9:36 PM
Thank you Helen xx
Your experience is why the campaign to improve and speed up diagnosis matters so much. !!!
December 6, 2024 at 7:32 PM
Your experience is why the campaign to improve and speed up diagnosis matters so much. !!!
I hope that you recover soon !
December 6, 2024 at 7:29 PM
I hope that you recover soon !
Such a horrible feeling not being able to do the things we expect of ourselves and that society expects of us !
December 6, 2024 at 7:22 PM
Such a horrible feeling not being able to do the things we expect of ourselves and that society expects of us !
So important to share the truth that some people live with!!! #IBD #Crohn’sdisease
December 6, 2024 at 7:12 PM
So important to share the truth that some people live with!!! #IBD #Crohn’sdisease
So sorry to hear your journey has been so difficult
December 6, 2024 at 7:06 PM
So sorry to hear your journey has been so difficult
Reposted by Pearl Avery
Finally, I started infliximab infusions - absolutely brilliant - but had to stop because surgery for #CrohnsAbscesses left me with open wounds so I can't sit down to get to hospital (transport) or for the infusions (3hrs). So, back to square one.
Waiting to hear what's next.
#CrohnsColitis
Waiting to hear what's next.
#CrohnsColitis
December 6, 2024 at 6:58 PM
Finally, I started infliximab infusions - absolutely brilliant - but had to stop because surgery for #CrohnsAbscesses left me with open wounds so I can't sit down to get to hospital (transport) or for the infusions (3hrs). So, back to square one.
Waiting to hear what's next.
#CrohnsColitis
Waiting to hear what's next.
#CrohnsColitis
Reposted by Pearl Avery
My truth? 17 years of symptoms; 17 years of dismissal by medicos resulting in scarring that is now irreversible.
Not until my private insurance (through my employer) and the death of an uncle from colon cancer was I taken seriously and was tested. Final diagnosis: #CrohnsColitis
Not until my private insurance (through my employer) and the death of an uncle from colon cancer was I taken seriously and was tested. Final diagnosis: #CrohnsColitis
December 6, 2024 at 6:58 PM
My truth? 17 years of symptoms; 17 years of dismissal by medicos resulting in scarring that is now irreversible.
Not until my private insurance (through my employer) and the death of an uncle from colon cancer was I taken seriously and was tested. Final diagnosis: #CrohnsColitis
Not until my private insurance (through my employer) and the death of an uncle from colon cancer was I taken seriously and was tested. Final diagnosis: #CrohnsColitis
Reposted by Pearl Avery
Various meds over the years that didn't work. Steroids for flares resulting in #Type2Diabetes
Best thing I did during that time was have my periods stopped (thank you Mirena coil) as that reduced the number of flares.
Left England, relocated to Scotland. Was assigned my first #IBDNurse
Best thing I did during that time was have my periods stopped (thank you Mirena coil) as that reduced the number of flares.
Left England, relocated to Scotland. Was assigned my first #IBDNurse
December 6, 2024 at 6:58 PM
Various meds over the years that didn't work. Steroids for flares resulting in #Type2Diabetes
Best thing I did during that time was have my periods stopped (thank you Mirena coil) as that reduced the number of flares.
Left England, relocated to Scotland. Was assigned my first #IBDNurse
Best thing I did during that time was have my periods stopped (thank you Mirena coil) as that reduced the number of flares.
Left England, relocated to Scotland. Was assigned my first #IBDNurse