Pearl Avery
@pearlavery.bsky.social
Grandmother mother wife and PhD candidate @BU #IBD #GASTRO #ANP #Medsmanagement #DigitalHealth views my own #NHSCEP @CrohnsColitisuk Nurse @BJNursing GI/IBDNurse 2018 #NHS 🌈
Pinned
Pearl Avery
@pearlavery.bsky.social
· Oct 3
@ukibdnrn.bsky.social is proud to support the advice service working group in this project understating advice service provision in the UK now this is open to all #IBD Nurses not just service leads we need to hear from you all !!!
forms.cloud.microsoft/r/peWjupJjr5
forms.cloud.microsoft/r/peWjupJjr5
The working group ☎️ aim to understand the advice service provision in the UK now this is open to all #IBD Nurses not just service leads we need to hear from you all 🙏 92 already 💥 keep them coming ✔️
Deadline 31st October 2025. 📆
Don’t put it off do it now 👇
forms.cloud.microsoft/r/peWjupJjr5o
Deadline 31st October 2025. 📆
Don’t put it off do it now 👇
forms.cloud.microsoft/r/peWjupJjr5o
October 4, 2025 at 12:41 PM
The working group ☎️ aim to understand the advice service provision in the UK now this is open to all #IBD Nurses not just service leads we need to hear from you all 🙏 92 already 💥 keep them coming ✔️
Deadline 31st October 2025. 📆
Don’t put it off do it now 👇
forms.cloud.microsoft/r/peWjupJjr5o
Deadline 31st October 2025. 📆
Don’t put it off do it now 👇
forms.cloud.microsoft/r/peWjupJjr5o
@ukibdnrn.bsky.social is proud to support the advice service working group in this project understating advice service provision in the UK now this is open to all #IBD Nurses not just service leads we need to hear from you all !!!
forms.cloud.microsoft/r/peWjupJjr5
forms.cloud.microsoft/r/peWjupJjr5
October 3, 2025 at 6:16 AM
@ukibdnrn.bsky.social is proud to support the advice service working group in this project understating advice service provision in the UK now this is open to all #IBD Nurses not just service leads we need to hear from you all !!!
forms.cloud.microsoft/r/peWjupJjr5
forms.cloud.microsoft/r/peWjupJjr5
#WorldIBDDay it takes courage #ibdawareness to talk about the hidden symptoms of #IBD and courage to live with the conditions Crohn's & Colitis UK crohnsandcolitis.org.uk/get-involved.... Have many ways you can support awareness #Courage
World IBD Day
On 19 May, we come together for World IBD Day. It is an opportunity to shine a light on Crohn’s and Colitis and the impact these lifelong conditions have on people’s lives.
crohnsandcolitis.org.uk
May 19, 2025 at 5:31 AM
#WorldIBDDay it takes courage #ibdawareness to talk about the hidden symptoms of #IBD and courage to live with the conditions Crohn's & Colitis UK crohnsandcolitis.org.uk/get-involved.... Have many ways you can support awareness #Courage
Reposted by Pearl Avery
Read more ⬇️ #RCN25
Mental health wait times in A&E a ‘scandal in plain sight’, says RCN | News | Royal College of Nursing
We're calling for significant investment in mental health nursing, as an RCN Freedom of Information request shows at least 1.3 million people have presented to A&E in a mental health crisis in the las...
www.rcn.org.uk
May 13, 2025 at 1:48 PM
Read more ⬇️ #RCN25
Reposted by Pearl Avery
New data shows that A&E waits for those in a mental health crisis have risen substantially.
Additionally, the mental health workforce has not grown enough to keep up with demand for services.
Hear from members at #RCN25 on how this impacts them and those they care for.
#MentalHealthAwarenessWeek
Additionally, the mental health workforce has not grown enough to keep up with demand for services.
Hear from members at #RCN25 on how this impacts them and those they care for.
#MentalHealthAwarenessWeek
May 13, 2025 at 1:48 PM
New data shows that A&E waits for those in a mental health crisis have risen substantially.
Additionally, the mental health workforce has not grown enough to keep up with demand for services.
Hear from members at #RCN25 on how this impacts them and those they care for.
#MentalHealthAwarenessWeek
Additionally, the mental health workforce has not grown enough to keep up with demand for services.
Hear from members at #RCN25 on how this impacts them and those they care for.
#MentalHealthAwarenessWeek
#HappyInternationalnursesday to colleagues old and new its a privalge to be a nurse the career & opportunities I've had have been amazing now as a highly trained professional who also cares about the people I support grateful to support others in their journey when ever I can #RCN25 @rcn.org.uk
May 12, 2025 at 5:30 PM
#HappyInternationalnursesday to colleagues old and new its a privalge to be a nurse the career & opportunities I've had have been amazing now as a highly trained professional who also cares about the people I support grateful to support others in their journey when ever I can #RCN25 @rcn.org.uk
Well I’ve kept it to myself for a while but I’m now very happy to share that I’m taking up the role of IBD Nursing lead with #Crohns&ColitisUK their #IBDNursing programme has supported my own advancing nursing journey so it’s fantastic to be able to support other #IBDnurses
a close up of a white dog wearing a flower crown .
ALT: a close up of a white dog wearing a flower crown .
media.tenor.com
April 22, 2025 at 5:35 PM
Well I’ve kept it to myself for a while but I’m now very happy to share that I’m taking up the role of IBD Nursing lead with #Crohns&ColitisUK their #IBDNursing programme has supported my own advancing nursing journey so it’s fantastic to be able to support other #IBDnurses
This report speaks for itself highlights the challenges faced by patients it’s clear the state of the #NHS impacts the ability to Deliver the #IBDUK standards #Facethefacts @IBDUKTEAM @rthonwesstreeting.bsky.social investing in diagnosis & management improves outcomes
ibduk.org/reports/2024...
ibduk.org/reports/2024...
2024 IBD UK Report: The State of IBD Care in the UK | IBD UK
ibduk.org
December 12, 2024 at 7:48 PM
This report speaks for itself highlights the challenges faced by patients it’s clear the state of the #NHS impacts the ability to Deliver the #IBDUK standards #Facethefacts @IBDUKTEAM @rthonwesstreeting.bsky.social investing in diagnosis & management improves outcomes
ibduk.org/reports/2024...
ibduk.org/reports/2024...
listening to the #ibduk report sobering information on delays in diagnosis worse in #crohnsdisease due to subtle presentation recommending the use of what’s up with my gut in primary care #FacetheFacts #IBDUK #CrohnsandColitisUK
www.whatsupwithmygut.org.uk
www.whatsupwithmygut.org.uk
The path to a correct diagnosis | What's up with my gut?
Worried about symptoms? Find support through diagnostic pathways for lower gastrointestinal (GI) symptoms. For adults, parents, and healthcare professionals.
www.whatsupwithmygut.org.uk
December 12, 2024 at 6:39 PM
listening to the #ibduk report sobering information on delays in diagnosis worse in #crohnsdisease due to subtle presentation recommending the use of what’s up with my gut in primary care #FacetheFacts #IBDUK #CrohnsandColitisUK
www.whatsupwithmygut.org.uk
www.whatsupwithmygut.org.uk
#IBD people can you help
Are you age 16-18yrs living with Crohn’s Disease and moving from paediatric to adult care? Do you want to shape the future of care? We are looking for people to take part in a 40min zoom interview to of transition services. If interested please contact karen.kemp@mft.nhs.uk
December 11, 2024 at 8:43 PM
#IBD people can you help
Reposted by Pearl Avery
Are you age 16-18yrs living with Crohn’s Disease and moving from paediatric to adult care? Do you want to shape the future of care? We are looking for people to take part in a 40min zoom interview to of transition services. If interested please contact karen.kemp@mft.nhs.uk
December 11, 2024 at 2:41 PM
Are you age 16-18yrs living with Crohn’s Disease and moving from paediatric to adult care? Do you want to shape the future of care? We are looking for people to take part in a 40min zoom interview to of transition services. If interested please contact karen.kemp@mft.nhs.uk
Can you help !!!
Are you age 16-18yrs living with Crohn’s Disease and moving from paediatric to adult care? Do you want to shape the future of care? We are looking for people to take part in a 40min zoom interview to of transition services. If interested please contact karen.kemp@mft.nhs.uk
December 11, 2024 at 8:42 PM
Can you help !!!
It’s easy to forget the challenges #IBD patient’s face when it comes to the routine things in life we all have aspiration to work live provide for our families it’s not so easy with #Longtermhealthconditions
#Society makes it hard to function @bottomlineibd.bsky.social how can we help change this
#Society makes it hard to function @bottomlineibd.bsky.social how can we help change this
December 11, 2024 at 6:52 AM
It’s easy to forget the challenges #IBD patient’s face when it comes to the routine things in life we all have aspiration to work live provide for our families it’s not so easy with #Longtermhealthconditions
#Society makes it hard to function @bottomlineibd.bsky.social how can we help change this
#Society makes it hard to function @bottomlineibd.bsky.social how can we help change this
Reposted by Pearl Avery
Finally, I started infliximab infusions - absolutely brilliant - but had to stop because surgery for #CrohnsAbscesses left me with open wounds so I can't sit down to get to hospital (transport) or for the infusions (3hrs). So, back to square one.
Waiting to hear what's next.
#CrohnsColitis
Waiting to hear what's next.
#CrohnsColitis
December 6, 2024 at 6:58 PM
Finally, I started infliximab infusions - absolutely brilliant - but had to stop because surgery for #CrohnsAbscesses left me with open wounds so I can't sit down to get to hospital (transport) or for the infusions (3hrs). So, back to square one.
Waiting to hear what's next.
#CrohnsColitis
Waiting to hear what's next.
#CrohnsColitis
Reposted by Pearl Avery
My truth? 17 years of symptoms; 17 years of dismissal by medicos resulting in scarring that is now irreversible.
Not until my private insurance (through my employer) and the death of an uncle from colon cancer was I taken seriously and was tested. Final diagnosis: #CrohnsColitis
Not until my private insurance (through my employer) and the death of an uncle from colon cancer was I taken seriously and was tested. Final diagnosis: #CrohnsColitis
December 6, 2024 at 6:58 PM
My truth? 17 years of symptoms; 17 years of dismissal by medicos resulting in scarring that is now irreversible.
Not until my private insurance (through my employer) and the death of an uncle from colon cancer was I taken seriously and was tested. Final diagnosis: #CrohnsColitis
Not until my private insurance (through my employer) and the death of an uncle from colon cancer was I taken seriously and was tested. Final diagnosis: #CrohnsColitis
Reposted by Pearl Avery
Various meds over the years that didn't work. Steroids for flares resulting in #Type2Diabetes
Best thing I did during that time was have my periods stopped (thank you Mirena coil) as that reduced the number of flares.
Left England, relocated to Scotland. Was assigned my first #IBDNurse
Best thing I did during that time was have my periods stopped (thank you Mirena coil) as that reduced the number of flares.
Left England, relocated to Scotland. Was assigned my first #IBDNurse
December 6, 2024 at 6:58 PM
Various meds over the years that didn't work. Steroids for flares resulting in #Type2Diabetes
Best thing I did during that time was have my periods stopped (thank you Mirena coil) as that reduced the number of flares.
Left England, relocated to Scotland. Was assigned my first #IBDNurse
Best thing I did during that time was have my periods stopped (thank you Mirena coil) as that reduced the number of flares.
Left England, relocated to Scotland. Was assigned my first #IBDNurse
This #CrohnsandColitisAwarenessWeek has been a reminder to me why I campaign and advocate for #IBD patients and on that note I’m delighted to have been voted to the #N-ECCO committee for 25-28 #IBDEducation done globally.
December 6, 2024 at 6:54 PM
This #CrohnsandColitisAwarenessWeek has been a reminder to me why I campaign and advocate for #IBD patients and on that note I’m delighted to have been voted to the #N-ECCO committee for 25-28 #IBDEducation done globally.
Naughty elf and gorgeous kid want to be a #CrohnsandColitisNurse @CrohnsColitisUK she put my lanyard on and said she was off to work … The elf well not sure what he’s up to !!
December 4, 2024 at 10:06 PM
Naughty elf and gorgeous kid want to be a #CrohnsandColitisNurse @CrohnsColitisUK she put my lanyard on and said she was off to work … The elf well not sure what he’s up to !!
Reposted by Pearl Avery
Next week sees the start of #CrohnsandColitisawarenessweek
It’s a crucial opportunity to share facts about #IBD #crohnandcolitisuk are not here yet but as one of the nurse specialists they have supported m I’ll share their message in this nice positive space #TellyourIBDTruth I’m listening 👂
It’s a crucial opportunity to share facts about #IBD #crohnandcolitisuk are not here yet but as one of the nurse specialists they have supported m I’ll share their message in this nice positive space #TellyourIBDTruth I’m listening 👂
November 27, 2024 at 8:04 PM
Next week sees the start of #CrohnsandColitisawarenessweek
It’s a crucial opportunity to share facts about #IBD #crohnandcolitisuk are not here yet but as one of the nurse specialists they have supported m I’ll share their message in this nice positive space #TellyourIBDTruth I’m listening 👂
It’s a crucial opportunity to share facts about #IBD #crohnandcolitisuk are not here yet but as one of the nurse specialists they have supported m I’ll share their message in this nice positive space #TellyourIBDTruth I’m listening 👂
December 1, 2024 at 8:35 AM
Literally just thinking how the PhD process is a training tool and that the end result thesis or publications is just a part of the outputs and @stearnslab.bsky.social post popped up on my feed
“The product of your education is not your thesis, it’s yourself“
@annarogers.bsky.social on why not to rely on LLM AI to write for you in graduate school. hackingsemantics.xyz/2024/writing/
@annarogers.bsky.social on why not to rely on LLM AI to write for you in graduate school. hackingsemantics.xyz/2024/writing/
On AI-assisted writing in graduate school
What is the proper role of AI ‘assistance’ in graduate student writing? It depends on what you mean by ‘graduate’.
hackingsemantics.xyz
December 1, 2024 at 8:27 AM
Literally just thinking how the PhD process is a training tool and that the end result thesis or publications is just a part of the outputs and @stearnslab.bsky.social post popped up on my feed