Pat Mattinson
@patmattinson.bsky.social
Love rugby, especially Scotland & Harlequins. Admin for the AntiSynthetase Syndrome Support group on Facebook for patients worldwide
Reposted by Pat Mattinson
Review explores the impact of rare genetic variants on the understanding and treatment of autoimmune and autoinflammatory diseases, with a focus on systemic lupus erythematosus and Behçet syndrome
In ACR Open Rheumatology
doi.org/10.1002/acr2...
#Medsky
In ACR Open Rheumatology
doi.org/10.1002/acr2...
#Medsky
February 20, 2025 at 9:04 PM
Review explores the impact of rare genetic variants on the understanding and treatment of autoimmune and autoinflammatory diseases, with a focus on systemic lupus erythematosus and Behçet syndrome
In ACR Open Rheumatology
doi.org/10.1002/acr2...
#Medsky
In ACR Open Rheumatology
doi.org/10.1002/acr2...
#Medsky
Reposted by Pat Mattinson
Weekly recap in ACR journals #Medsky
Nat'l Academies’ Dx Criteria for Long COVID: Concerns for rheum community
doi.org/10.1002/art....
Proteomic profiling of large-vessel vasculitis spectrum
doi.org/10.1002/art....
Physician views of tobacco cessation strategies for RA pts
doi.org/10.1002/acr....
Nat'l Academies’ Dx Criteria for Long COVID: Concerns for rheum community
doi.org/10.1002/art....
Proteomic profiling of large-vessel vasculitis spectrum
doi.org/10.1002/art....
Physician views of tobacco cessation strategies for RA pts
doi.org/10.1002/acr....
January 25, 2025 at 1:34 PM
Weekly recap in ACR journals #Medsky
Nat'l Academies’ Dx Criteria for Long COVID: Concerns for rheum community
doi.org/10.1002/art....
Proteomic profiling of large-vessel vasculitis spectrum
doi.org/10.1002/art....
Physician views of tobacco cessation strategies for RA pts
doi.org/10.1002/acr....
Nat'l Academies’ Dx Criteria for Long COVID: Concerns for rheum community
doi.org/10.1002/art....
Proteomic profiling of large-vessel vasculitis spectrum
doi.org/10.1002/art....
Physician views of tobacco cessation strategies for RA pts
doi.org/10.1002/acr....
Reposted by Pat Mattinson
Establishing a widely accepted definition of Long COVID to facilitate clinical care and research is an urgent priority. Notes From the Field in Arthritis & Rheumatology examines the clinical utility of the National Academies’ Diagnostic Criteria for Long COVID
doi.org/10.1002/art....
#Medsky
doi.org/10.1002/art....
#Medsky
January 20, 2025 at 1:52 PM
Establishing a widely accepted definition of Long COVID to facilitate clinical care and research is an urgent priority. Notes From the Field in Arthritis & Rheumatology examines the clinical utility of the National Academies’ Diagnostic Criteria for Long COVID
doi.org/10.1002/art....
#Medsky
doi.org/10.1002/art....
#Medsky
Reposted by Pat Mattinson
Did your child lose their book collection in the Los Angeles fires? Are you a teacher at a school that lost its library or your classroom library? Whether you need one book or a whole library, we can replace your books. 📚
Everyone else, please boost this post so we can connect with those in need. 🙏
Everyone else, please boost this post so we can connect with those in need. 🙏
January 16, 2025 at 3:35 PM
Did your child lose their book collection in the Los Angeles fires? Are you a teacher at a school that lost its library or your classroom library? Whether you need one book or a whole library, we can replace your books. 📚
Everyone else, please boost this post so we can connect with those in need. 🙏
Everyone else, please boost this post so we can connect with those in need. 🙏
Reposted by Pat Mattinson
Patients’ Voices Ring Out. New feature in The Rheumatologist on getting patients with rheumatic disease involved in clinical research
www.the-rheumatologist.org/article/pati...
www.the-rheumatologist.org/article/pati...
January 12, 2025 at 1:38 PM
Patients’ Voices Ring Out. New feature in The Rheumatologist on getting patients with rheumatic disease involved in clinical research
www.the-rheumatologist.org/article/pati...
www.the-rheumatologist.org/article/pati...
Reposted by Pat Mattinson
Still looking for an organisation to help us do something which should be simple – show an inspiring video about Parkinson’s to a live audience without charging us £4000 youtube.com/playlist?lis...
January 9, 2025 at 11:13 AM
Still looking for an organisation to help us do something which should be simple – show an inspiring video about Parkinson’s to a live audience without charging us £4000 youtube.com/playlist?lis...
Reposted by Pat Mattinson
I am aware that there has been papers and talk recently about “imposter” qualitative research participants. This is probably a controversial question but is anyone seeing the same issues in people applying to be patient and public partners in research? Any strategies to deal with this? #PPIE
January 5, 2025 at 6:54 PM
I am aware that there has been papers and talk recently about “imposter” qualitative research participants. This is probably a controversial question but is anyone seeing the same issues in people applying to be patient and public partners in research? Any strategies to deal with this? #PPIE
Reposted by Pat Mattinson
Submissions are invited for the 2026 Themed Issue of Arthritis Care & Research:
→ Pain Science and Therapy in Rheumatic Disease ←
Deadline for submission is March 31, 2025
More info at acr.tw/3BdUiX6
→ Pain Science and Therapy in Rheumatic Disease ←
Deadline for submission is March 31, 2025
More info at acr.tw/3BdUiX6
January 4, 2025 at 10:12 PM
Submissions are invited for the 2026 Themed Issue of Arthritis Care & Research:
→ Pain Science and Therapy in Rheumatic Disease ←
Deadline for submission is March 31, 2025
More info at acr.tw/3BdUiX6
→ Pain Science and Therapy in Rheumatic Disease ←
Deadline for submission is March 31, 2025
More info at acr.tw/3BdUiX6
Reposted by Pat Mattinson
In the Scleroderma Lung Study II, circulating KL-6 levels predicted progressive pulmonary fibrosis in patients treated with MMF or CYC
In Arthritis Care & Research
doi.org/10.1002/acr....
In Arthritis Care & Research
doi.org/10.1002/acr....
January 2, 2025 at 1:38 PM
In the Scleroderma Lung Study II, circulating KL-6 levels predicted progressive pulmonary fibrosis in patients treated with MMF or CYC
In Arthritis Care & Research
doi.org/10.1002/acr....
In Arthritis Care & Research
doi.org/10.1002/acr....
Reposted by Pat Mattinson
Analysis of two prior genome-wide myositis studies and a large myositis dataset identified novel genetic regions associated with idiopathic inflammatory myopathies
In Arthritis & Rheumatology
doi.org/10.1002/art....
In Arthritis & Rheumatology
doi.org/10.1002/art....
December 18, 2024 at 9:07 PM
Analysis of two prior genome-wide myositis studies and a large myositis dataset identified novel genetic regions associated with idiopathic inflammatory myopathies
In Arthritis & Rheumatology
doi.org/10.1002/art....
In Arthritis & Rheumatology
doi.org/10.1002/art....
@mariankeyes.bsky.social Are you there?!💃🏻🕺🏻
December 7, 2024 at 6:47 PM
@mariankeyes.bsky.social Are you there?!💃🏻🕺🏻
Reposted by Pat Mattinson
Reposted by Pat Mattinson
VERY VERY VERY VERY VERY EXCITING NEWS!!!!!!!!!!!!!!!!!!!
December 3, 2024 at 10:47 AM
VERY VERY VERY VERY VERY EXCITING NEWS!!!!!!!!!!!!!!!!!!!
Reposted by Pat Mattinson
Great article by @gracedent.bsky.social about the gift of sobriety at Christmas. It’s great that more public figures are talking about their positive sober stories.
www.theguardian.com/lifeandstyle...
#sobriety #sober #recovery #soberlife #addiction #soberliving #soberaf #alcoholfree
www.theguardian.com/lifeandstyle...
#sobriety #sober #recovery #soberlife #addiction #soberliving #soberaf #alcoholfree
December 2, 2024 at 7:30 AM
Great article by @gracedent.bsky.social about the gift of sobriety at Christmas. It’s great that more public figures are talking about their positive sober stories.
www.theguardian.com/lifeandstyle...
#sobriety #sober #recovery #soberlife #addiction #soberliving #soberaf #alcoholfree
www.theguardian.com/lifeandstyle...
#sobriety #sober #recovery #soberlife #addiction #soberliving #soberaf #alcoholfree
Reposted by Pat Mattinson
I wrote this today about Christmas food being full of ghosts. Is it ok with Aunt Beat (dead, 1991) to not buy Colmans Bread Sauce? Will my dead father want this Dairy Milk? Is it ok to give myself a break? OF COURSE NOT. www.theguardian.com/lifeandstyle...
Grace Dent’s joyeux Noël: ‘It’s time I made some new Christmas memories – in small, French steps’
No amount of joining the Christmas supermarket scrum will recreate the sight of my mam’s hands on the trolley
www.theguardian.com
November 29, 2024 at 1:07 PM
I wrote this today about Christmas food being full of ghosts. Is it ok with Aunt Beat (dead, 1991) to not buy Colmans Bread Sauce? Will my dead father want this Dairy Milk? Is it ok to give myself a break? OF COURSE NOT. www.theguardian.com/lifeandstyle...
Reposted by Pat Mattinson
Are any noodles worth a 90 minute wait on a draughty Soho street? Possibly. Noodle Inn scenes. www.theguardian.com/food/2024/no...
Noodle Inn, London W1: ‘Queue, order, pay, get out’ – restaurant review | Grace Dent on restaurants
The food is utterly delicious, but this viral sensation is run like a military operation to deal with the daily stampede
www.theguardian.com
November 23, 2024 at 9:40 PM
Are any noodles worth a 90 minute wait on a draughty Soho street? Possibly. Noodle Inn scenes. www.theguardian.com/food/2024/no...
Reposted by Pat Mattinson
Thanks to everyone who came by my poster on #HealthLiteracy & outcomes in #InflammatoryArthritis at #ACR24
Great to connect with rheumatologists, researchers & patients from around the world, focussing on #SocialDeterminantsOfHealth
Full abstract can be found here: acrabstracts.org/abstract/hea...
Great to connect with rheumatologists, researchers & patients from around the world, focussing on #SocialDeterminantsOfHealth
Full abstract can be found here: acrabstracts.org/abstract/hea...
November 20, 2024 at 1:06 PM
Thanks to everyone who came by my poster on #HealthLiteracy & outcomes in #InflammatoryArthritis at #ACR24
Great to connect with rheumatologists, researchers & patients from around the world, focussing on #SocialDeterminantsOfHealth
Full abstract can be found here: acrabstracts.org/abstract/hea...
Great to connect with rheumatologists, researchers & patients from around the world, focussing on #SocialDeterminantsOfHealth
Full abstract can be found here: acrabstracts.org/abstract/hea...
Reposted by Pat Mattinson
This article reviews the fundamental features of myositis, including recent updates in terminology and consensus guidelines for idiopathic inflammatory myopathies.
ajronline.org/doi/10.2214/...
ajronline.org/doi/10.2214/...
November 15, 2024 at 3:04 PM
This article reviews the fundamental features of myositis, including recent updates in terminology and consensus guidelines for idiopathic inflammatory myopathies.
ajronline.org/doi/10.2214/...
ajronline.org/doi/10.2214/...
Reposted by Pat Mattinson
Experimental myositis: an optimised version of C-protein-induced myositis https://www.biorxiv.org/content/10.1101/2024.05.18.593723v1
Experimental myositis: an optimised version of C-protein-induced myositis https://www.biorxiv.org/content/10.1101/2024.05.18.593723v1
Introduction: Inflammatory myopathies (IM) are a group of severe autoimmune diseases, sharing some s
www.biorxiv.org
May 21, 2024 at 12:16 AM
Experimental myositis: an optimised version of C-protein-induced myositis https://www.biorxiv.org/content/10.1101/2024.05.18.593723v1
Reposted by Pat Mattinson
Severe acute myositis and myocarditis upon initiation of six-weekly Pembrolizumab post-COVID-19 mRNA vaccination https://www.medrxiv.org/content/10.1101/2023.11.24.23296021v1
Severe acute myositis and myocarditis upon initiation of six-weekly Pembrolizumab post-COVID-19 mRNA vaccination https://www.medrxiv.org/content/10.1101/2023.11.24.23296021v1
We describe three cases of critical acute myositis with myocarditis occurring within 22 days of each
www.medrxiv.org
November 28, 2023 at 5:29 AM
Severe acute myositis and myocarditis upon initiation of six-weekly Pembrolizumab post-COVID-19 mRNA vaccination https://www.medrxiv.org/content/10.1101/2023.11.24.23296021v1
Reposted by Pat Mattinson
I am my wife's care-taker. She suffers from myositis and always need help. We have made significant modifications at home such as a go-chair an aluminum ramp and various grab-bars and handles. I am looking for a lift to get her into my f150 pickup. Does anyone have any suggestions?
November 18, 2024 at 1:27 PM
I am my wife's care-taker. She suffers from myositis and always need help. We have made significant modifications at home such as a go-chair an aluminum ramp and various grab-bars and handles. I am looking for a lift to get her into my f150 pickup. Does anyone have any suggestions?
Reposted by Pat Mattinson
Summary of clinical features of Anti-MDA5 Juvenile Dermatomyositis, presented by Dr. Lisa Rider at #ACR24
⭐️ Systemic features, mild muscle disease, polyarthritis, cutaneous manifestations
⭐️Risk of ILD
⭐️Biomarkers to monitor disease activity
#ACRambassador #myositis #RheumSky
⭐️ Systemic features, mild muscle disease, polyarthritis, cutaneous manifestations
⭐️Risk of ILD
⭐️Biomarkers to monitor disease activity
#ACRambassador #myositis #RheumSky
November 17, 2024 at 3:52 PM
Summary of clinical features of Anti-MDA5 Juvenile Dermatomyositis, presented by Dr. Lisa Rider at #ACR24
⭐️ Systemic features, mild muscle disease, polyarthritis, cutaneous manifestations
⭐️Risk of ILD
⭐️Biomarkers to monitor disease activity
#ACRambassador #myositis #RheumSky
⭐️ Systemic features, mild muscle disease, polyarthritis, cutaneous manifestations
⭐️Risk of ILD
⭐️Biomarkers to monitor disease activity
#ACRambassador #myositis #RheumSky
Reposted by Pat Mattinson
And I found this old tweet from @philipcrobinson from the first @ACRheum I attended in 2016, and it reminds me of why we do what we do, and what this program is about
@jyazdanymd.bsky.social
@profbeckyg.bsky.social
@nicoladalbeth.bsky.social
@jyazdanymd.bsky.social
@profbeckyg.bsky.social
@nicoladalbeth.bsky.social
November 20, 2024 at 2:38 AM
And I found this old tweet from @philipcrobinson from the first @ACRheum I attended in 2016, and it reminds me of why we do what we do, and what this program is about
@jyazdanymd.bsky.social
@profbeckyg.bsky.social
@nicoladalbeth.bsky.social
@jyazdanymd.bsky.social
@profbeckyg.bsky.social
@nicoladalbeth.bsky.social
Reposted by Pat Mattinson
#PPIE hive mind. If you are a public contributor or a researcher involving people what is the hrly rate you cost Public contributor co apps in grant applications? Standard £25 or enhanced £40? What do you consider to make this decision eg responsibility, expertise, role etc?
November 18, 2024 at 2:37 PM
#PPIE hive mind. If you are a public contributor or a researcher involving people what is the hrly rate you cost Public contributor co apps in grant applications? Standard £25 or enhanced £40? What do you consider to make this decision eg responsibility, expertise, role etc?