Osaca
Osaca
@osaca.bsky.social
https://twitter.com/Osaca_ME
Life on pause due to Long Covid and ME/CFS-advocate and patient
Reposted by Osaca
Betroffene von #MECFS haben mit der #LemonChallengeMECFS 🍋 eine Initiative ins Leben gerufen, die ins Bewusstsein rufen soll, was sonst oft gar nicht sichtbar ist. Dabei unterstütze ich gern. Denn solche Aktionen erinnern uns daran: Es geht nicht nur um Zahlen oder Diagnosen. Es geht um Menschen.
February 18, 2025 at 10:54 AM
Reposted by Osaca
Our rapid response to the recent BMJ systematic review, according to which CBT and GET are probably effective for Long COVID, is now online:

www.bmj.com/content/387/...
Long COVID needs real therapeutics: time to move past disproven approaches
www.bmj.com
December 4, 2024 at 11:43 AM
Reposted by Osaca
It’s striking that some of the most promising research on debilitating Long Covid was funded by a small patient group using the $5 million they got from @vitalik.ca — in cryptocurrency!

That's why @patientled.bsky.social is my choice for this year's donation guide.

Great way to make a difference.
November 26, 2024 at 5:25 PM
Reposted by Osaca
Hallo, wir sind jetzt auch hier.

Wir setzen uns für die Belange und Versorgung von #MECFS-Kranken ein und informieren über neue Entwicklungen aus der Medizin, Forschung und Politik.

Wir freuen uns über einen regen Austausch.

Das Team der Deutschen Gesellschaft für ME/CFS
October 14, 2023 at 12:42 PM
Reposted by Osaca
The reCOVer-trial with #BC007 for #LongCOVID at the UK-Erlangen is finally starting this autumn.

Furthermore, the UK-Erlangen will now be one of the German clinical centers of the Phase II clinical trial with #BC007 from BerlinCures.

www.augenklinik.uk-erlangen.de/aktuelles/na...
October 10, 2023 at 7:43 AM
Last roll call: You want to see more #ME/CFS research? You’re in the UK?

Join the world’s largest ME/CFS study today: www.decodeme.org.uk.

bsky.app/profile/tomk...
#pwME
October 9, 2023 at 2:06 PM
Studie zu kognitiven Problemen bei Long Covid.

Vor allem Aufmerksamkeit und das episodische Gedächtnis waren schlechter und vor allem durch Fatigue, nur indirekt durch Depression, erklärbar. Benutzt wurden unteranderem die FLEI scale und der Stroop test.

onlinelibrary.wiley.com/doi/full/10....
October 8, 2023 at 7:17 PM
Reposted by Osaca
Bitte RT und helfen, Forschung für #MECFS zu finanzieren

⚠️ Bonus bis morgen (Sonntag):

Felix Beilharz verdoppelt jede Spende an die Lost Voices Stiftung dafür!
www.linkedin.com/posts/felixb...

Jeder Euro (bis 1.000€) = doppelter Einsatz!

🚀 🚀

👉 Hier spenden:
www.betterplace.org/de/projects/...
"Wir geben Menschen mit ME/CFS und Post-Covid ME/CFS eine Stimme" – Lost Voices Stiftung – bett...
Die Lost Voices Stiftung setzt sich für Menschen ein, die an der neuroimmunologischen Erkrankung Myalgische Enzephalomyelitis/ Chronisches Fatigue Syndrom ME/CFS oder Post-Covid ME/CFS erkrankt sind.
www.betterplace.org
October 7, 2023 at 12:02 PM
Douglas Fraser:

My "LC-Optimize" Study is now starting in Canada, USA, Brazil and Zambia!

A multi-centered cohort study to Identify Long-COVID Sub-Phenotypes to personalize therapeutic interventions. AI integration of patient clinical, proteomic and metabolomic data!

Stay tuned for updates!
October 4, 2023 at 5:33 PM
Reposted by Osaca
Our paper has been published in Mayo Clinic Proceedings! This is a Concise Clinical Review, meaning it MUST be short, with a limited number of pages and citations. Drs. Grach, Ganesh, and Chon and I worked very hard to pare it down to the essentials. www.mayoclinicproceedings.org/article/S002...
Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic disease often preceded by infection. There has been increased interest in ME/CFS recently because of its significant...
www.mayoclinicproceedings.org
October 3, 2023 at 11:07 PM
Studie zu den Effekten der Impfung bei Patienten mit Long Covid zeigt eine Reduktion von EBV IgM, CMV IgG und IgM Titern und niedrigeren IgG Subklassen 2 und 4.

Resultate könnten auf eine Unterbrechung des viralen Cross-Talk bei Patienten mit Long-COVID deuten.

www.nature.com/articles/s41...
Effect of monovalent COVID-19 vaccines on viral interference between SARS-CoV-2 and several DNA viru...
npj Vaccines - Effect of monovalent COVID-19 vaccines on viral interference between SARS-CoV-2 and several DNA viruses in patients with long-COVID syndrome
www.nature.com
September 30, 2023 at 10:46 AM
New preprint: Impact of extended-course oral nirmatrelvir/ritonavir (Paxlovid) in established Long COVID: Case series and research considerations
www.researchsquare.com/article/rs-3...
September 20, 2023 at 3:18 PM
Study identifies a molecule that may be behind COVID-19 brain fog www.news-medical.net/news/2023092...
September 20, 2023 at 3:09 PM