NF2 BioSolutions UK & Europe
@nf2biosolutionsuk.bsky.social
Volunteer, patient led charity. Dedicated to NF2 Research. Raising awareness through advocacy, support & hope. Fundraising for new treatments or a cure to NF2 Schwannomatosis.
We’ve come a long way, and the NF2 community made it possible.
We are now doing Safety Studies, funded by a competitive $700,000 NIH award. The next milestone: fund manufacturing.
Donate today:
Donate from the US: buff.ly/rTTfNEn
#ENDNF2 #NF2 #schwannomatosis
We are now doing Safety Studies, funded by a competitive $700,000 NIH award. The next milestone: fund manufacturing.
Donate today:
Donate from the US: buff.ly/rTTfNEn
#ENDNF2 #NF2 #schwannomatosis
December 2, 2025 at 7:11 PM
We’ve come a long way, and the NF2 community made it possible.
We are now doing Safety Studies, funded by a competitive $700,000 NIH award. The next milestone: fund manufacturing.
Donate today:
Donate from the US: buff.ly/rTTfNEn
#ENDNF2 #NF2 #schwannomatosis
We are now doing Safety Studies, funded by a competitive $700,000 NIH award. The next milestone: fund manufacturing.
Donate today:
Donate from the US: buff.ly/rTTfNEn
#ENDNF2 #NF2 #schwannomatosis
We are working to use AAV9 gene therapy to deliver a healthy NF2 gene to the cells where it’s needed most.
With your support, we can move this therapy into safety studies and, ultimately, clinical trials.
Here you can donate: buff.ly/kkNPGAI
#NF2 #schwannomatosis #ENDNF2
With your support, we can move this therapy into safety studies and, ultimately, clinical trials.
Here you can donate: buff.ly/kkNPGAI
#NF2 #schwannomatosis #ENDNF2
December 2, 2025 at 7:10 PM
We are working to use AAV9 gene therapy to deliver a healthy NF2 gene to the cells where it’s needed most.
With your support, we can move this therapy into safety studies and, ultimately, clinical trials.
Here you can donate: buff.ly/kkNPGAI
#NF2 #schwannomatosis #ENDNF2
With your support, we can move this therapy into safety studies and, ultimately, clinical trials.
Here you can donate: buff.ly/kkNPGAI
#NF2 #schwannomatosis #ENDNF2
Do you want to learn more about how the AAV9-NF2 gene therapy works?
Watch the full webinar with Kathrin Meyer (Principal Investigator), Gary Brenner (Researcher & Physician), and Krizelle Alcantara (Researcher & Scientific Board Member). Watch it here: buff.ly/ItGk33Y
#NF2 #schwannomatosis
Watch the full webinar with Kathrin Meyer (Principal Investigator), Gary Brenner (Researcher & Physician), and Krizelle Alcantara (Researcher & Scientific Board Member). Watch it here: buff.ly/ItGk33Y
#NF2 #schwannomatosis
December 2, 2025 at 7:09 PM
Do you want to learn more about how the AAV9-NF2 gene therapy works?
Watch the full webinar with Kathrin Meyer (Principal Investigator), Gary Brenner (Researcher & Physician), and Krizelle Alcantara (Researcher & Scientific Board Member). Watch it here: buff.ly/ItGk33Y
#NF2 #schwannomatosis
Watch the full webinar with Kathrin Meyer (Principal Investigator), Gary Brenner (Researcher & Physician), and Krizelle Alcantara (Researcher & Scientific Board Member). Watch it here: buff.ly/ItGk33Y
#NF2 #schwannomatosis
Support NF2 BioSolutions from anywhere in the world.
We partner with international orgs that provide local tax benefits for donors in:
Canada, Italy, Belgium, Greece, Germany, United Kingdom, France, Spain, Canada, and the United Kingdom
Donate here buff.ly/E1zdeKX
#NF2 #schwannomatosis
We partner with international orgs that provide local tax benefits for donors in:
Canada, Italy, Belgium, Greece, Germany, United Kingdom, France, Spain, Canada, and the United Kingdom
Donate here buff.ly/E1zdeKX
#NF2 #schwannomatosis
December 2, 2025 at 7:08 PM
Support NF2 BioSolutions from anywhere in the world.
We partner with international orgs that provide local tax benefits for donors in:
Canada, Italy, Belgium, Greece, Germany, United Kingdom, France, Spain, Canada, and the United Kingdom
Donate here buff.ly/E1zdeKX
#NF2 #schwannomatosis
We partner with international orgs that provide local tax benefits for donors in:
Canada, Italy, Belgium, Greece, Germany, United Kingdom, France, Spain, Canada, and the United Kingdom
Donate here buff.ly/E1zdeKX
#NF2 #schwannomatosis
NF2 BioSolutions accelerates research worldwide to bring innovative treatments to NF2 patients. All of this leads to our flagship program: the AAV9-NF2 gene therapy.
Donate from the US: buff.ly/kkNPGAI
#endnf2 #genetherapy #nf2biosolutions #givingtuesday #donate #schwannomatosis
Donate from the US: buff.ly/kkNPGAI
#endnf2 #genetherapy #nf2biosolutions #givingtuesday #donate #schwannomatosis
December 2, 2025 at 7:07 PM
NF2 BioSolutions accelerates research worldwide to bring innovative treatments to NF2 patients. All of this leads to our flagship program: the AAV9-NF2 gene therapy.
Donate from the US: buff.ly/kkNPGAI
#endnf2 #genetherapy #nf2biosolutions #givingtuesday #donate #schwannomatosis
Donate from the US: buff.ly/kkNPGAI
#endnf2 #genetherapy #nf2biosolutions #givingtuesday #donate #schwannomatosis
Did you know your donation to NF2 BioSolutions could be doubled or even tripled?
Many employers offer corporate matching programs that match your charitable contributions. A quick message to your HR/corporate social responsibility office could instantly multiply your impact. #ENDNF2 #schwannomatosis
Many employers offer corporate matching programs that match your charitable contributions. A quick message to your HR/corporate social responsibility office could instantly multiply your impact. #ENDNF2 #schwannomatosis
December 2, 2025 at 7:06 PM
Did you know your donation to NF2 BioSolutions could be doubled or even tripled?
Many employers offer corporate matching programs that match your charitable contributions. A quick message to your HR/corporate social responsibility office could instantly multiply your impact. #ENDNF2 #schwannomatosis
Many employers offer corporate matching programs that match your charitable contributions. A quick message to your HR/corporate social responsibility office could instantly multiply your impact. #ENDNF2 #schwannomatosis
NF2 BioSolutions are on a similar path, working to bring gene therapy to families impacted by NF2. Let’s use this as inspiration.
Together, we can turn the promise of gene therapy into reality for NF2 families. But we need your help.
Donate today to support the next chapter in NF2 gene therapy:
Together, we can turn the promise of gene therapy into reality for NF2 families. But we need your help.
Donate today to support the next chapter in NF2 gene therapy:
November 30, 2025 at 3:28 PM
NF2 BioSolutions are on a similar path, working to bring gene therapy to families impacted by NF2. Let’s use this as inspiration.
Together, we can turn the promise of gene therapy into reality for NF2 families. But we need your help.
Donate today to support the next chapter in NF2 gene therapy:
Together, we can turn the promise of gene therapy into reality for NF2 families. But we need your help.
Donate today to support the next chapter in NF2 gene therapy:
A rare disease community has done it, let’s follow their lead
Now it’s our turn.
NF2 BioSolutions is on the path to bring gene therapy to families affected by NF2-SWN. We’re building momentum, but we need YOU.
Donate today: buff.ly/kkNPGAI
#ENDNF2 #NF2 #schwannomatosis
Now it’s our turn.
NF2 BioSolutions is on the path to bring gene therapy to families affected by NF2-SWN. We’re building momentum, but we need YOU.
Donate today: buff.ly/kkNPGAI
#ENDNF2 #NF2 #schwannomatosis
November 30, 2025 at 3:27 PM
A rare disease community has done it, let’s follow their lead
Now it’s our turn.
NF2 BioSolutions is on the path to bring gene therapy to families affected by NF2-SWN. We’re building momentum, but we need YOU.
Donate today: buff.ly/kkNPGAI
#ENDNF2 #NF2 #schwannomatosis
Now it’s our turn.
NF2 BioSolutions is on the path to bring gene therapy to families affected by NF2-SWN. We’re building momentum, but we need YOU.
Donate today: buff.ly/kkNPGAI
#ENDNF2 #NF2 #schwannomatosis
Big step forward in the gene therapy world and an example we can follow
We at NF2 BioSolutions are on a similar path, working to bring gene therapy to families impacted by NF2. Let’s use this as inspiration.
Donate to support the next chapter for NF2: buff.ly/kkNPGAI
#NF2 #schwannomatosis #ENDNF2
We at NF2 BioSolutions are on a similar path, working to bring gene therapy to families impacted by NF2. Let’s use this as inspiration.
Donate to support the next chapter for NF2: buff.ly/kkNPGAI
#NF2 #schwannomatosis #ENDNF2
November 30, 2025 at 10:47 AM
Big step forward in the gene therapy world and an example we can follow
We at NF2 BioSolutions are on a similar path, working to bring gene therapy to families impacted by NF2. Let’s use this as inspiration.
Donate to support the next chapter for NF2: buff.ly/kkNPGAI
#NF2 #schwannomatosis #ENDNF2
We at NF2 BioSolutions are on a similar path, working to bring gene therapy to families impacted by NF2. Let’s use this as inspiration.
Donate to support the next chapter for NF2: buff.ly/kkNPGAI
#NF2 #schwannomatosis #ENDNF2
Other rare disease communities are paving the way and so can we.
NF2 families can achieve the same. We are working to bring NF2-SWN gene therapy to clinical trials, but we can only move forward with your support.
Donate today: buff.ly/kkNPGAI
#ENDNF2 #schwannonmatosis
NF2 families can achieve the same. We are working to bring NF2-SWN gene therapy to clinical trials, but we can only move forward with your support.
Donate today: buff.ly/kkNPGAI
#ENDNF2 #schwannonmatosis
November 28, 2025 at 2:28 PM
Other rare disease communities are paving the way and so can we.
NF2 families can achieve the same. We are working to bring NF2-SWN gene therapy to clinical trials, but we can only move forward with your support.
Donate today: buff.ly/kkNPGAI
#ENDNF2 #schwannonmatosis
NF2 families can achieve the same. We are working to bring NF2-SWN gene therapy to clinical trials, but we can only move forward with your support.
Donate today: buff.ly/kkNPGAI
#ENDNF2 #schwannonmatosis
Other rare disease communities are reaching gene therapy trials and so can we.
NF2 BioSolutions is working to bring the first NF2-SWN gene therapy to clinical trials.Every donation helps us move towards life-changing treatment for NF2: buff.ly/fQ5TmaY
NF2 BioSolutions is working to bring the first NF2-SWN gene therapy to clinical trials.Every donation helps us move towards life-changing treatment for NF2: buff.ly/fQ5TmaY
November 27, 2025 at 2:37 PM
Other rare disease communities are reaching gene therapy trials and so can we.
NF2 BioSolutions is working to bring the first NF2-SWN gene therapy to clinical trials.Every donation helps us move towards life-changing treatment for NF2: buff.ly/fQ5TmaY
NF2 BioSolutions is working to bring the first NF2-SWN gene therapy to clinical trials.Every donation helps us move towards life-changing treatment for NF2: buff.ly/fQ5TmaY
Christmas parties can be emotionally & physically challenging for people with NF2
*hearing loss
*fatigue
*social anxiety
*lack of public awareness.
* loud music
* flashing lights
* flashing lights
* Fatigue
please be that person or those people who comfort and include!
#endNF2 #schwannomatosis
*hearing loss
*fatigue
*social anxiety
*lack of public awareness.
* loud music
* flashing lights
* flashing lights
* Fatigue
please be that person or those people who comfort and include!
#endNF2 #schwannomatosis
November 27, 2025 at 9:08 AM
Christmas parties can be emotionally & physically challenging for people with NF2
*hearing loss
*fatigue
*social anxiety
*lack of public awareness.
* loud music
* flashing lights
* flashing lights
* Fatigue
please be that person or those people who comfort and include!
#endNF2 #schwannomatosis
*hearing loss
*fatigue
*social anxiety
*lack of public awareness.
* loud music
* flashing lights
* flashing lights
* Fatigue
please be that person or those people who comfort and include!
#endNF2 #schwannomatosis
A 3-year-old has astounded doctors with his progress after becoming the 1st person in the world to receive a ground-breaking gene therapy.
Oliver has a rare condition called Hunter syndrome - or MPSII - which causes progressive damage to the body & brain.
🧪🧬 #medsky
www.bbc.co.uk/news/article...
Oliver has a rare condition called Hunter syndrome - or MPSII - which causes progressive damage to the body & brain.
🧪🧬 #medsky
www.bbc.co.uk/news/article...
Hunter syndrome: Boy with rare condition amazes doctors after world-first gene therapy
Oliver has an inherited condition called Hunter syndrome, which causes progressive damage to the body and brain.
www.bbc.co.uk
November 24, 2025 at 11:35 AM
Reposted by NF2 BioSolutions UK & Europe
NF2 lacking exon 11 isoform induced by antisense gene therapy is able to recover partially merlin deficiency on NF2-related Schwannomatosis iPSC-derived spheroid model https://www.biorxiv.org/content/10.1101/2025.11.14.688164v1
November 15, 2025 at 2:32 AM
NF2 lacking exon 11 isoform induced by antisense gene therapy is able to recover partially merlin deficiency on NF2-related Schwannomatosis iPSC-derived spheroid model https://www.biorxiv.org/content/10.1101/2025.11.14.688164v1
Reposted by NF2 BioSolutions UK & Europe
Neurosurgery registrar at Northern Care Alliance NHS Abdurrahman Islim has co-led research looking at a tool to predict whether the most common type of brain tumour, meningioma, will grow or cause symptoms, to help clinicians make better-informed decisions. jamanetwork.com/journals/jam...
A Clinical Tool to Identify Incidental Meningioma for Early Outpatient Management
This cohort study examines the utility of the novel Incidental Meningioma: Prognostic Analysis Using Patient Comorbidity and Magnetic Resonance Imaging Tests tool for predicting the risk of incidental...
jamanetwork.com
November 21, 2025 at 9:07 AM
Neurosurgery registrar at Northern Care Alliance NHS Abdurrahman Islim has co-led research looking at a tool to predict whether the most common type of brain tumour, meningioma, will grow or cause symptoms, to help clinicians make better-informed decisions. jamanetwork.com/journals/jam...
We are not after your money here!, we just want a nomination so that our charity is in with a chance of winning a £1000 donation in the 12 days of giving #MovementforGoodAwards
Nominate us here:
movementforgood.com
Charity Name: NF2 BIOSOLUTIONS UK
Charity Number: 1189618
#ENDNF2 #schwannomatosis
Nominate us here:
movementforgood.com
Charity Name: NF2 BIOSOLUTIONS UK
Charity Number: 1189618
#ENDNF2 #schwannomatosis
November 18, 2025 at 10:01 AM
We are not after your money here!, we just want a nomination so that our charity is in with a chance of winning a £1000 donation in the 12 days of giving #MovementforGoodAwards
Nominate us here:
movementforgood.com
Charity Name: NF2 BIOSOLUTIONS UK
Charity Number: 1189618
#ENDNF2 #schwannomatosis
Nominate us here:
movementforgood.com
Charity Name: NF2 BIOSOLUTIONS UK
Charity Number: 1189618
#ENDNF2 #schwannomatosis
CTNI-50. UPDATED RESULTS ON BRIGATINIB TREATMENT FOR PROGRESSIVE TUMORS IN PATIENTS WITHNF2-RELATED SCHWANNOMATOSIS: A SUB-STUDY OF THE INTUITT-NF2 TRIAL
#ENDNF2 #NF2 #schwannomatosis
academic.oup.com/neuro-oncolo...
#ENDNF2 #NF2 #schwannomatosis
academic.oup.com/neuro-oncolo...
CTNI-50. UPDATED RESULTS ON BRIGATINIB TREATMENT FOR PROGRESSIVE TUMORS IN PATIENTS WITHNF2-RELATED SCHWANNOMATOSIS: A SUB-STUDY OF THE INTUITT-NF2 TRIAL
AbstractINTRODUCTION. Brigatinib is an oral ALK inhibitor that inhibits multiple tyrosine kinases. We previously published outcomes of patients with NF2-re
academic.oup.com
November 17, 2025 at 12:45 PM
CTNI-50. UPDATED RESULTS ON BRIGATINIB TREATMENT FOR PROGRESSIVE TUMORS IN PATIENTS WITHNF2-RELATED SCHWANNOMATOSIS: A SUB-STUDY OF THE INTUITT-NF2 TRIAL
#ENDNF2 #NF2 #schwannomatosis
academic.oup.com/neuro-oncolo...
#ENDNF2 #NF2 #schwannomatosis
academic.oup.com/neuro-oncolo...
Exciting Announcement!!!
NF2-SWN update: Bacteria-based immunotherapy by Brenner & Mekalanos is advancing with clinical-grade product and Phase 1/2 trial plans.
Learn more here:
buff.ly/2BBPCM1
#ENDNF2 #NF2 #schwannomatosis
NF2-SWN update: Bacteria-based immunotherapy by Brenner & Mekalanos is advancing with clinical-grade product and Phase 1/2 trial plans.
Learn more here:
buff.ly/2BBPCM1
#ENDNF2 #NF2 #schwannomatosis
November 16, 2025 at 9:10 PM
Exciting Announcement!!!
NF2-SWN update: Bacteria-based immunotherapy by Brenner & Mekalanos is advancing with clinical-grade product and Phase 1/2 trial plans.
Learn more here:
buff.ly/2BBPCM1
#ENDNF2 #NF2 #schwannomatosis
NF2-SWN update: Bacteria-based immunotherapy by Brenner & Mekalanos is advancing with clinical-grade product and Phase 1/2 trial plans.
Learn more here:
buff.ly/2BBPCM1
#ENDNF2 #NF2 #schwannomatosis
Reposted by NF2 BioSolutions UK & Europe
I just nominated our charity NF2 BIOSOLUTIONS UK in the Movement for good awards.
Please nominate them too on this link & share to your networks - thanks
We could win £1000 towards our research. #ENDNF2 #schwannomatosis #NF2
movementforgood.com/index.php?cn...
Please nominate them too on this link & share to your networks - thanks
We could win £1000 towards our research. #ENDNF2 #schwannomatosis #NF2
movementforgood.com/index.php?cn...
I just nominated a charity to win £1,000. You can nominate your favourite too.
I just nominated a charity to win £1,000..
movementforgood.com
November 10, 2025 at 8:48 PM
I just nominated our charity NF2 BIOSOLUTIONS UK in the Movement for good awards.
Please nominate them too on this link & share to your networks - thanks
We could win £1000 towards our research. #ENDNF2 #schwannomatosis #NF2
movementforgood.com/index.php?cn...
Please nominate them too on this link & share to your networks - thanks
We could win £1000 towards our research. #ENDNF2 #schwannomatosis #NF2
movementforgood.com/index.php?cn...
Who is joining us wearing christmas jumpers?
Join the fun & raise a bit of money for your favourite charity (thats us btw!!).
Spread the word, get your office, co-workers, family, friends etc involved for a small donation and sprinkle a little magic our way!.
#ENDNF2 #schwannomatosis #NF2
Join the fun & raise a bit of money for your favourite charity (thats us btw!!).
Spread the word, get your office, co-workers, family, friends etc involved for a small donation and sprinkle a little magic our way!.
#ENDNF2 #schwannomatosis #NF2
November 13, 2025 at 10:04 AM
Who is joining us wearing christmas jumpers?
Join the fun & raise a bit of money for your favourite charity (thats us btw!!).
Spread the word, get your office, co-workers, family, friends etc involved for a small donation and sprinkle a little magic our way!.
#ENDNF2 #schwannomatosis #NF2
Join the fun & raise a bit of money for your favourite charity (thats us btw!!).
Spread the word, get your office, co-workers, family, friends etc involved for a small donation and sprinkle a little magic our way!.
#ENDNF2 #schwannomatosis #NF2
To Send or not to Send cards?
If you have decided to donate to charity this year instead of sending christmas cards, it would be great if you could consider us.
Donate here: www.peoplesfundraising.com/donation/nf2...
We thank you for considering us.
#endNF2 #NF2awareness #schwannomatosis #ENDNF2
If you have decided to donate to charity this year instead of sending christmas cards, it would be great if you could consider us.
Donate here: www.peoplesfundraising.com/donation/nf2...
We thank you for considering us.
#endNF2 #NF2awareness #schwannomatosis #ENDNF2
November 11, 2025 at 1:34 PM
To Send or not to Send cards?
If you have decided to donate to charity this year instead of sending christmas cards, it would be great if you could consider us.
Donate here: www.peoplesfundraising.com/donation/nf2...
We thank you for considering us.
#endNF2 #NF2awareness #schwannomatosis #ENDNF2
If you have decided to donate to charity this year instead of sending christmas cards, it would be great if you could consider us.
Donate here: www.peoplesfundraising.com/donation/nf2...
We thank you for considering us.
#endNF2 #NF2awareness #schwannomatosis #ENDNF2
I just nominated our charity NF2 BIOSOLUTIONS UK in the Movement for good awards.
Please nominate them too on this link & share to your networks - thanks
We could win £1000 towards our research. #ENDNF2 #schwannomatosis #NF2
movementforgood.com/index.php?cn...
Please nominate them too on this link & share to your networks - thanks
We could win £1000 towards our research. #ENDNF2 #schwannomatosis #NF2
movementforgood.com/index.php?cn...
I just nominated a charity to win £1,000. You can nominate your favourite too.
I just nominated a charity to win £1,000..
movementforgood.com
November 10, 2025 at 8:48 PM
I just nominated our charity NF2 BIOSOLUTIONS UK in the Movement for good awards.
Please nominate them too on this link & share to your networks - thanks
We could win £1000 towards our research. #ENDNF2 #schwannomatosis #NF2
movementforgood.com/index.php?cn...
Please nominate them too on this link & share to your networks - thanks
We could win £1000 towards our research. #ENDNF2 #schwannomatosis #NF2
movementforgood.com/index.php?cn...
1. Donate to research peoplesfundraising.com/.../nf2-bios...
2. Christmas shopping on EasyFundraising easyfundraising.org.uk/causes/nf2bi...
3. Nominate us in the Movement for Good Awards. [charity number 1189618] movementforgood.com/index.php
AWARENESS * RESEARCH * HOPE
#endNF2 #schwannomatosis
2. Christmas shopping on EasyFundraising easyfundraising.org.uk/causes/nf2bi...
3. Nominate us in the Movement for Good Awards. [charity number 1189618] movementforgood.com/index.php
AWARENESS * RESEARCH * HOPE
#endNF2 #schwannomatosis
November 9, 2025 at 12:04 PM
1. Donate to research peoplesfundraising.com/.../nf2-bios...
2. Christmas shopping on EasyFundraising easyfundraising.org.uk/causes/nf2bi...
3. Nominate us in the Movement for Good Awards. [charity number 1189618] movementforgood.com/index.php
AWARENESS * RESEARCH * HOPE
#endNF2 #schwannomatosis
2. Christmas shopping on EasyFundraising easyfundraising.org.uk/causes/nf2bi...
3. Nominate us in the Movement for Good Awards. [charity number 1189618] movementforgood.com/index.php
AWARENESS * RESEARCH * HOPE
#endNF2 #schwannomatosis
Trustees’ Week 2025 is from 3 to 7 November 2025. We recognize their contributions and achievements.
4 of our trustees are NF2 patients themselves of our patient led charity. 3 of our trustees care for family member with NF2.
Find out more:
nf2biosolutions.org/nf2-biosolut...
#NF2 #schwannomatosis
4 of our trustees are NF2 patients themselves of our patient led charity. 3 of our trustees care for family member with NF2.
Find out more:
nf2biosolutions.org/nf2-biosolut...
#NF2 #schwannomatosis
November 7, 2025 at 12:56 PM
Trustees’ Week 2025 is from 3 to 7 November 2025. We recognize their contributions and achievements.
4 of our trustees are NF2 patients themselves of our patient led charity. 3 of our trustees care for family member with NF2.
Find out more:
nf2biosolutions.org/nf2-biosolut...
#NF2 #schwannomatosis
4 of our trustees are NF2 patients themselves of our patient led charity. 3 of our trustees care for family member with NF2.
Find out more:
nf2biosolutions.org/nf2-biosolut...
#NF2 #schwannomatosis
Trustees Kim & Grace had the most amazing day on Thursday at Cambridge Rare Disease Network RareSummit 25.
We hope to bring you all the details very soon, lots to digest from the day.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2
We hope to bring you all the details very soon, lots to digest from the day.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2
November 7, 2025 at 12:35 PM
Trustees Kim & Grace had the most amazing day on Thursday at Cambridge Rare Disease Network RareSummit 25.
We hope to bring you all the details very soon, lots to digest from the day.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2
We hope to bring you all the details very soon, lots to digest from the day.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2