NF2 BioSolutions UK & Europe
@nf2biosolutionsuk.bsky.social
Volunteer, patient led charity. Dedicated to NF2 Research. Raising awareness through advocacy, support & hope. Fundraising for new treatments or a cure to NF2 Schwannomatosis.
We’ve come a long way, and the NF2 community made it possible.
We are now doing Safety Studies, funded by a competitive $700,000 NIH award. The next milestone: fund manufacturing.
Donate today:
Donate from the US: buff.ly/rTTfNEn
#ENDNF2 #NF2 #schwannomatosis
We are now doing Safety Studies, funded by a competitive $700,000 NIH award. The next milestone: fund manufacturing.
Donate today:
Donate from the US: buff.ly/rTTfNEn
#ENDNF2 #NF2 #schwannomatosis
December 2, 2025 at 7:11 PM
We’ve come a long way, and the NF2 community made it possible.
We are now doing Safety Studies, funded by a competitive $700,000 NIH award. The next milestone: fund manufacturing.
Donate today:
Donate from the US: buff.ly/rTTfNEn
#ENDNF2 #NF2 #schwannomatosis
We are now doing Safety Studies, funded by a competitive $700,000 NIH award. The next milestone: fund manufacturing.
Donate today:
Donate from the US: buff.ly/rTTfNEn
#ENDNF2 #NF2 #schwannomatosis
We are working to use AAV9 gene therapy to deliver a healthy NF2 gene to the cells where it’s needed most.
With your support, we can move this therapy into safety studies and, ultimately, clinical trials.
Here you can donate: buff.ly/kkNPGAI
#NF2 #schwannomatosis #ENDNF2
With your support, we can move this therapy into safety studies and, ultimately, clinical trials.
Here you can donate: buff.ly/kkNPGAI
#NF2 #schwannomatosis #ENDNF2
December 2, 2025 at 7:10 PM
We are working to use AAV9 gene therapy to deliver a healthy NF2 gene to the cells where it’s needed most.
With your support, we can move this therapy into safety studies and, ultimately, clinical trials.
Here you can donate: buff.ly/kkNPGAI
#NF2 #schwannomatosis #ENDNF2
With your support, we can move this therapy into safety studies and, ultimately, clinical trials.
Here you can donate: buff.ly/kkNPGAI
#NF2 #schwannomatosis #ENDNF2
Do you want to learn more about how the AAV9-NF2 gene therapy works?
Watch the full webinar with Kathrin Meyer (Principal Investigator), Gary Brenner (Researcher & Physician), and Krizelle Alcantara (Researcher & Scientific Board Member). Watch it here: buff.ly/ItGk33Y
#NF2 #schwannomatosis
Watch the full webinar with Kathrin Meyer (Principal Investigator), Gary Brenner (Researcher & Physician), and Krizelle Alcantara (Researcher & Scientific Board Member). Watch it here: buff.ly/ItGk33Y
#NF2 #schwannomatosis
December 2, 2025 at 7:09 PM
Do you want to learn more about how the AAV9-NF2 gene therapy works?
Watch the full webinar with Kathrin Meyer (Principal Investigator), Gary Brenner (Researcher & Physician), and Krizelle Alcantara (Researcher & Scientific Board Member). Watch it here: buff.ly/ItGk33Y
#NF2 #schwannomatosis
Watch the full webinar with Kathrin Meyer (Principal Investigator), Gary Brenner (Researcher & Physician), and Krizelle Alcantara (Researcher & Scientific Board Member). Watch it here: buff.ly/ItGk33Y
#NF2 #schwannomatosis
Support NF2 BioSolutions from anywhere in the world.
We partner with international orgs that provide local tax benefits for donors in:
Canada, Italy, Belgium, Greece, Germany, United Kingdom, France, Spain, Canada, and the United Kingdom
Donate here buff.ly/E1zdeKX
#NF2 #schwannomatosis
We partner with international orgs that provide local tax benefits for donors in:
Canada, Italy, Belgium, Greece, Germany, United Kingdom, France, Spain, Canada, and the United Kingdom
Donate here buff.ly/E1zdeKX
#NF2 #schwannomatosis
December 2, 2025 at 7:08 PM
Support NF2 BioSolutions from anywhere in the world.
We partner with international orgs that provide local tax benefits for donors in:
Canada, Italy, Belgium, Greece, Germany, United Kingdom, France, Spain, Canada, and the United Kingdom
Donate here buff.ly/E1zdeKX
#NF2 #schwannomatosis
We partner with international orgs that provide local tax benefits for donors in:
Canada, Italy, Belgium, Greece, Germany, United Kingdom, France, Spain, Canada, and the United Kingdom
Donate here buff.ly/E1zdeKX
#NF2 #schwannomatosis
NF2 BioSolutions accelerates research worldwide to bring innovative treatments to NF2 patients. All of this leads to our flagship program: the AAV9-NF2 gene therapy.
Donate from the US: buff.ly/kkNPGAI
#endnf2 #genetherapy #nf2biosolutions #givingtuesday #donate #schwannomatosis
Donate from the US: buff.ly/kkNPGAI
#endnf2 #genetherapy #nf2biosolutions #givingtuesday #donate #schwannomatosis
December 2, 2025 at 7:07 PM
NF2 BioSolutions accelerates research worldwide to bring innovative treatments to NF2 patients. All of this leads to our flagship program: the AAV9-NF2 gene therapy.
Donate from the US: buff.ly/kkNPGAI
#endnf2 #genetherapy #nf2biosolutions #givingtuesday #donate #schwannomatosis
Donate from the US: buff.ly/kkNPGAI
#endnf2 #genetherapy #nf2biosolutions #givingtuesday #donate #schwannomatosis
Did you know your donation to NF2 BioSolutions could be doubled or even tripled?
Many employers offer corporate matching programs that match your charitable contributions. A quick message to your HR/corporate social responsibility office could instantly multiply your impact. #ENDNF2 #schwannomatosis
Many employers offer corporate matching programs that match your charitable contributions. A quick message to your HR/corporate social responsibility office could instantly multiply your impact. #ENDNF2 #schwannomatosis
December 2, 2025 at 7:06 PM
Did you know your donation to NF2 BioSolutions could be doubled or even tripled?
Many employers offer corporate matching programs that match your charitable contributions. A quick message to your HR/corporate social responsibility office could instantly multiply your impact. #ENDNF2 #schwannomatosis
Many employers offer corporate matching programs that match your charitable contributions. A quick message to your HR/corporate social responsibility office could instantly multiply your impact. #ENDNF2 #schwannomatosis
NF2 BioSolutions are on a similar path, working to bring gene therapy to families impacted by NF2. Let’s use this as inspiration.
Together, we can turn the promise of gene therapy into reality for NF2 families. But we need your help.
Donate today to support the next chapter in NF2 gene therapy:
Together, we can turn the promise of gene therapy into reality for NF2 families. But we need your help.
Donate today to support the next chapter in NF2 gene therapy:
November 30, 2025 at 3:28 PM
NF2 BioSolutions are on a similar path, working to bring gene therapy to families impacted by NF2. Let’s use this as inspiration.
Together, we can turn the promise of gene therapy into reality for NF2 families. But we need your help.
Donate today to support the next chapter in NF2 gene therapy:
Together, we can turn the promise of gene therapy into reality for NF2 families. But we need your help.
Donate today to support the next chapter in NF2 gene therapy:
A rare disease community has done it, let’s follow their lead
Now it’s our turn.
NF2 BioSolutions is on the path to bring gene therapy to families affected by NF2-SWN. We’re building momentum, but we need YOU.
Donate today: buff.ly/kkNPGAI
#ENDNF2 #NF2 #schwannomatosis
Now it’s our turn.
NF2 BioSolutions is on the path to bring gene therapy to families affected by NF2-SWN. We’re building momentum, but we need YOU.
Donate today: buff.ly/kkNPGAI
#ENDNF2 #NF2 #schwannomatosis
November 30, 2025 at 3:27 PM
A rare disease community has done it, let’s follow their lead
Now it’s our turn.
NF2 BioSolutions is on the path to bring gene therapy to families affected by NF2-SWN. We’re building momentum, but we need YOU.
Donate today: buff.ly/kkNPGAI
#ENDNF2 #NF2 #schwannomatosis
Now it’s our turn.
NF2 BioSolutions is on the path to bring gene therapy to families affected by NF2-SWN. We’re building momentum, but we need YOU.
Donate today: buff.ly/kkNPGAI
#ENDNF2 #NF2 #schwannomatosis
Big step forward in the gene therapy world and an example we can follow
We at NF2 BioSolutions are on a similar path, working to bring gene therapy to families impacted by NF2. Let’s use this as inspiration.
Donate to support the next chapter for NF2: buff.ly/kkNPGAI
#NF2 #schwannomatosis #ENDNF2
We at NF2 BioSolutions are on a similar path, working to bring gene therapy to families impacted by NF2. Let’s use this as inspiration.
Donate to support the next chapter for NF2: buff.ly/kkNPGAI
#NF2 #schwannomatosis #ENDNF2
November 30, 2025 at 10:47 AM
Big step forward in the gene therapy world and an example we can follow
We at NF2 BioSolutions are on a similar path, working to bring gene therapy to families impacted by NF2. Let’s use this as inspiration.
Donate to support the next chapter for NF2: buff.ly/kkNPGAI
#NF2 #schwannomatosis #ENDNF2
We at NF2 BioSolutions are on a similar path, working to bring gene therapy to families impacted by NF2. Let’s use this as inspiration.
Donate to support the next chapter for NF2: buff.ly/kkNPGAI
#NF2 #schwannomatosis #ENDNF2
Other rare disease communities are paving the way and so can we.
NF2 families can achieve the same. We are working to bring NF2-SWN gene therapy to clinical trials, but we can only move forward with your support.
Donate today: buff.ly/kkNPGAI
#ENDNF2 #schwannonmatosis
NF2 families can achieve the same. We are working to bring NF2-SWN gene therapy to clinical trials, but we can only move forward with your support.
Donate today: buff.ly/kkNPGAI
#ENDNF2 #schwannonmatosis
November 28, 2025 at 2:28 PM
Other rare disease communities are paving the way and so can we.
NF2 families can achieve the same. We are working to bring NF2-SWN gene therapy to clinical trials, but we can only move forward with your support.
Donate today: buff.ly/kkNPGAI
#ENDNF2 #schwannonmatosis
NF2 families can achieve the same. We are working to bring NF2-SWN gene therapy to clinical trials, but we can only move forward with your support.
Donate today: buff.ly/kkNPGAI
#ENDNF2 #schwannonmatosis
Other rare disease communities are reaching gene therapy trials and so can we.
NF2 BioSolutions is working to bring the first NF2-SWN gene therapy to clinical trials.Every donation helps us move towards life-changing treatment for NF2: buff.ly/fQ5TmaY
NF2 BioSolutions is working to bring the first NF2-SWN gene therapy to clinical trials.Every donation helps us move towards life-changing treatment for NF2: buff.ly/fQ5TmaY
November 27, 2025 at 2:37 PM
Other rare disease communities are reaching gene therapy trials and so can we.
NF2 BioSolutions is working to bring the first NF2-SWN gene therapy to clinical trials.Every donation helps us move towards life-changing treatment for NF2: buff.ly/fQ5TmaY
NF2 BioSolutions is working to bring the first NF2-SWN gene therapy to clinical trials.Every donation helps us move towards life-changing treatment for NF2: buff.ly/fQ5TmaY
Christmas parties can be emotionally & physically challenging for people with NF2
*hearing loss
*fatigue
*social anxiety
*lack of public awareness.
* loud music
* flashing lights
* flashing lights
* Fatigue
please be that person or those people who comfort and include!
#endNF2 #schwannomatosis
*hearing loss
*fatigue
*social anxiety
*lack of public awareness.
* loud music
* flashing lights
* flashing lights
* Fatigue
please be that person or those people who comfort and include!
#endNF2 #schwannomatosis
November 27, 2025 at 9:08 AM
Christmas parties can be emotionally & physically challenging for people with NF2
*hearing loss
*fatigue
*social anxiety
*lack of public awareness.
* loud music
* flashing lights
* flashing lights
* Fatigue
please be that person or those people who comfort and include!
#endNF2 #schwannomatosis
*hearing loss
*fatigue
*social anxiety
*lack of public awareness.
* loud music
* flashing lights
* flashing lights
* Fatigue
please be that person or those people who comfort and include!
#endNF2 #schwannomatosis
We are not after your money here!, we just want a nomination so that our charity is in with a chance of winning a £1000 donation in the 12 days of giving #MovementforGoodAwards
Nominate us here:
movementforgood.com
Charity Name: NF2 BIOSOLUTIONS UK
Charity Number: 1189618
#ENDNF2 #schwannomatosis
Nominate us here:
movementforgood.com
Charity Name: NF2 BIOSOLUTIONS UK
Charity Number: 1189618
#ENDNF2 #schwannomatosis
November 18, 2025 at 10:01 AM
We are not after your money here!, we just want a nomination so that our charity is in with a chance of winning a £1000 donation in the 12 days of giving #MovementforGoodAwards
Nominate us here:
movementforgood.com
Charity Name: NF2 BIOSOLUTIONS UK
Charity Number: 1189618
#ENDNF2 #schwannomatosis
Nominate us here:
movementforgood.com
Charity Name: NF2 BIOSOLUTIONS UK
Charity Number: 1189618
#ENDNF2 #schwannomatosis
Exciting Announcement!!!
NF2-SWN update: Bacteria-based immunotherapy by Brenner & Mekalanos is advancing with clinical-grade product and Phase 1/2 trial plans.
Learn more here:
buff.ly/2BBPCM1
#ENDNF2 #NF2 #schwannomatosis
NF2-SWN update: Bacteria-based immunotherapy by Brenner & Mekalanos is advancing with clinical-grade product and Phase 1/2 trial plans.
Learn more here:
buff.ly/2BBPCM1
#ENDNF2 #NF2 #schwannomatosis
November 16, 2025 at 9:10 PM
Exciting Announcement!!!
NF2-SWN update: Bacteria-based immunotherapy by Brenner & Mekalanos is advancing with clinical-grade product and Phase 1/2 trial plans.
Learn more here:
buff.ly/2BBPCM1
#ENDNF2 #NF2 #schwannomatosis
NF2-SWN update: Bacteria-based immunotherapy by Brenner & Mekalanos is advancing with clinical-grade product and Phase 1/2 trial plans.
Learn more here:
buff.ly/2BBPCM1
#ENDNF2 #NF2 #schwannomatosis
Who is joining us wearing christmas jumpers?
Join the fun & raise a bit of money for your favourite charity (thats us btw!!).
Spread the word, get your office, co-workers, family, friends etc involved for a small donation and sprinkle a little magic our way!.
#ENDNF2 #schwannomatosis #NF2
Join the fun & raise a bit of money for your favourite charity (thats us btw!!).
Spread the word, get your office, co-workers, family, friends etc involved for a small donation and sprinkle a little magic our way!.
#ENDNF2 #schwannomatosis #NF2
November 13, 2025 at 10:04 AM
Who is joining us wearing christmas jumpers?
Join the fun & raise a bit of money for your favourite charity (thats us btw!!).
Spread the word, get your office, co-workers, family, friends etc involved for a small donation and sprinkle a little magic our way!.
#ENDNF2 #schwannomatosis #NF2
Join the fun & raise a bit of money for your favourite charity (thats us btw!!).
Spread the word, get your office, co-workers, family, friends etc involved for a small donation and sprinkle a little magic our way!.
#ENDNF2 #schwannomatosis #NF2
To Send or not to Send cards?
If you have decided to donate to charity this year instead of sending christmas cards, it would be great if you could consider us.
Donate here: www.peoplesfundraising.com/donation/nf2...
We thank you for considering us.
#endNF2 #NF2awareness #schwannomatosis #ENDNF2
If you have decided to donate to charity this year instead of sending christmas cards, it would be great if you could consider us.
Donate here: www.peoplesfundraising.com/donation/nf2...
We thank you for considering us.
#endNF2 #NF2awareness #schwannomatosis #ENDNF2
November 11, 2025 at 1:34 PM
To Send or not to Send cards?
If you have decided to donate to charity this year instead of sending christmas cards, it would be great if you could consider us.
Donate here: www.peoplesfundraising.com/donation/nf2...
We thank you for considering us.
#endNF2 #NF2awareness #schwannomatosis #ENDNF2
If you have decided to donate to charity this year instead of sending christmas cards, it would be great if you could consider us.
Donate here: www.peoplesfundraising.com/donation/nf2...
We thank you for considering us.
#endNF2 #NF2awareness #schwannomatosis #ENDNF2
1. Donate to research peoplesfundraising.com/.../nf2-bios...
2. Christmas shopping on EasyFundraising easyfundraising.org.uk/causes/nf2bi...
3. Nominate us in the Movement for Good Awards. [charity number 1189618] movementforgood.com/index.php
AWARENESS * RESEARCH * HOPE
#endNF2 #schwannomatosis
2. Christmas shopping on EasyFundraising easyfundraising.org.uk/causes/nf2bi...
3. Nominate us in the Movement for Good Awards. [charity number 1189618] movementforgood.com/index.php
AWARENESS * RESEARCH * HOPE
#endNF2 #schwannomatosis
November 9, 2025 at 12:04 PM
1. Donate to research peoplesfundraising.com/.../nf2-bios...
2. Christmas shopping on EasyFundraising easyfundraising.org.uk/causes/nf2bi...
3. Nominate us in the Movement for Good Awards. [charity number 1189618] movementforgood.com/index.php
AWARENESS * RESEARCH * HOPE
#endNF2 #schwannomatosis
2. Christmas shopping on EasyFundraising easyfundraising.org.uk/causes/nf2bi...
3. Nominate us in the Movement for Good Awards. [charity number 1189618] movementforgood.com/index.php
AWARENESS * RESEARCH * HOPE
#endNF2 #schwannomatosis
Trustees’ Week 2025 is from 3 to 7 November 2025. We recognize their contributions and achievements.
4 of our trustees are NF2 patients themselves of our patient led charity. 3 of our trustees care for family member with NF2.
Find out more:
nf2biosolutions.org/nf2-biosolut...
#NF2 #schwannomatosis
4 of our trustees are NF2 patients themselves of our patient led charity. 3 of our trustees care for family member with NF2.
Find out more:
nf2biosolutions.org/nf2-biosolut...
#NF2 #schwannomatosis
November 7, 2025 at 12:56 PM
Trustees’ Week 2025 is from 3 to 7 November 2025. We recognize their contributions and achievements.
4 of our trustees are NF2 patients themselves of our patient led charity. 3 of our trustees care for family member with NF2.
Find out more:
nf2biosolutions.org/nf2-biosolut...
#NF2 #schwannomatosis
4 of our trustees are NF2 patients themselves of our patient led charity. 3 of our trustees care for family member with NF2.
Find out more:
nf2biosolutions.org/nf2-biosolut...
#NF2 #schwannomatosis
Trustees Kim & Grace had the most amazing day on Thursday at Cambridge Rare Disease Network RareSummit 25.
We hope to bring you all the details very soon, lots to digest from the day.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2
We hope to bring you all the details very soon, lots to digest from the day.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2
November 7, 2025 at 12:35 PM
Trustees Kim & Grace had the most amazing day on Thursday at Cambridge Rare Disease Network RareSummit 25.
We hope to bring you all the details very soon, lots to digest from the day.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2
We hope to bring you all the details very soon, lots to digest from the day.
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2
Our charity is in its 4th year sponsoring PhD students looking for a solution to NF2.
Big thanks to all that have donated to get us this far. Joanne Ward & Clare delivering presentations on the years work.
Presentations by our PI Omar Pathmanaban and PhD student Reygn Done #schwannomatosis #ENDNF2
Big thanks to all that have donated to get us this far. Joanne Ward & Clare delivering presentations on the years work.
Presentations by our PI Omar Pathmanaban and PhD student Reygn Done #schwannomatosis #ENDNF2
November 6, 2025 at 10:00 AM
Our charity is in its 4th year sponsoring PhD students looking for a solution to NF2.
Big thanks to all that have donated to get us this far. Joanne Ward & Clare delivering presentations on the years work.
Presentations by our PI Omar Pathmanaban and PhD student Reygn Done #schwannomatosis #ENDNF2
Big thanks to all that have donated to get us this far. Joanne Ward & Clare delivering presentations on the years work.
Presentations by our PI Omar Pathmanaban and PhD student Reygn Done #schwannomatosis #ENDNF2
Everyone within
NF2BioSolutions
and
nf2biosolution1
has lived experience of NF2. That makes us very unique and we have a very unique & knowledgeable insight into NF2.
Lived experience offers genuine authentic insights that are often more impactful than second-hand information
#schwannomatosis
NF2BioSolutions
and
nf2biosolution1
has lived experience of NF2. That makes us very unique and we have a very unique & knowledgeable insight into NF2.
Lived experience offers genuine authentic insights that are often more impactful than second-hand information
#schwannomatosis
October 24, 2025 at 1:28 PM
Everyone within
NF2BioSolutions
and
nf2biosolution1
has lived experience of NF2. That makes us very unique and we have a very unique & knowledgeable insight into NF2.
Lived experience offers genuine authentic insights that are often more impactful than second-hand information
#schwannomatosis
NF2BioSolutions
and
nf2biosolution1
has lived experience of NF2. That makes us very unique and we have a very unique & knowledgeable insight into NF2.
Lived experience offers genuine authentic insights that are often more impactful than second-hand information
#schwannomatosis
There is no better time to support our charity.
Research is key to developing new treatments and to finding a cure for those affected by NF2.
You can support our charity by donating, getting involved in fundraising.
Donate via our website
nf2biosolutions.org/nf2-biosolut...
#endNF2 #schwannomatosis
Research is key to developing new treatments and to finding a cure for those affected by NF2.
You can support our charity by donating, getting involved in fundraising.
Donate via our website
nf2biosolutions.org/nf2-biosolut...
#endNF2 #schwannomatosis
October 18, 2025 at 9:30 AM
There is no better time to support our charity.
Research is key to developing new treatments and to finding a cure for those affected by NF2.
You can support our charity by donating, getting involved in fundraising.
Donate via our website
nf2biosolutions.org/nf2-biosolut...
#endNF2 #schwannomatosis
Research is key to developing new treatments and to finding a cure for those affected by NF2.
You can support our charity by donating, getting involved in fundraising.
Donate via our website
nf2biosolutions.org/nf2-biosolut...
#endNF2 #schwannomatosis
October 15, 2025 at 9:51 AM
Today 10th October is World Mental Health Day. We have been talking a lot recently about awareness of our mental health with a rare & NF2 Diagnosis. A day to talk about mental health. To show everyone that mental health matters. And let people know that it’s okay to ask for help #schwannomatosis
October 10, 2025 at 8:08 AM
Today 10th October is World Mental Health Day. We have been talking a lot recently about awareness of our mental health with a rare & NF2 Diagnosis. A day to talk about mental health. To show everyone that mental health matters. And let people know that it’s okay to ask for help #schwannomatosis
it is a sad fact that NF2 can reduce life expectancy due to complications from central nervous system tumours, including VS, meningiomas, and ependymomas. It is very much dependant upon mutation type and tumour burden. But there is hope for the future with more and more research #schwannomatosis
October 8, 2025 at 9:17 AM
it is a sad fact that NF2 can reduce life expectancy due to complications from central nervous system tumours, including VS, meningiomas, and ependymomas. It is very much dependant upon mutation type and tumour burden. But there is hope for the future with more and more research #schwannomatosis