Nandini
@nandini0306.bsky.social
🇨🇦🍁Mother. Healthcare Professional. Advocate for Children living with Long Covid.
Founder, Children's Long Covid Network (CLCN)
Parent Advocate
Outspoken views on Children's Long Covid/Post Covid Condition research, care, and treatment.
Founder, Children's Long Covid Network (CLCN)
Parent Advocate
Outspoken views on Children's Long Covid/Post Covid Condition research, care, and treatment.
🚩This was recently shared with us by a parent and it's deeply disturbing. It appears that this hospital has a troubling pattern in its approach to children living with complex illnesses. Also reportedly being separated from parents for extended questioning- serious ethical & safeguarding concerns.
November 10, 2025 at 2:32 AM
🚩This was recently shared with us by a parent and it's deeply disturbing. It appears that this hospital has a troubling pattern in its approach to children living with complex illnesses. Also reportedly being separated from parents for extended questioning- serious ethical & safeguarding concerns.
To my fellow Canadian parents with children living with Long COVID: the Children's Long COVID Network submitted a complaint to the CBC Ombudsman. Please consider sending your own personal letters to CBC to amplify our collective voice.
November 8, 2025 at 5:00 PM
To my fellow Canadian parents with children living with Long COVID: the Children's Long COVID Network submitted a complaint to the CBC Ombudsman. Please consider sending your own personal letters to CBC to amplify our collective voice.
The Pathogenesis specific to Pediatrics- from the Yale webinar today.
Its NOT rare in children!
Its NOT rare in children!
May 15, 2025 at 4:55 PM
The Pathogenesis specific to Pediatrics- from the Yale webinar today.
Its NOT rare in children!
Its NOT rare in children!
Listen to Dr. Okunola speak about the overlooked reality of LC & other post viral conditions.
podcasts.apple.com/ca/podcast/l...
In a nutshell....
podcasts.apple.com/ca/podcast/l...
In a nutshell....
April 10, 2025 at 7:05 PM
Listen to Dr. Okunola speak about the overlooked reality of LC & other post viral conditions.
podcasts.apple.com/ca/podcast/l...
In a nutshell....
podcasts.apple.com/ca/podcast/l...
In a nutshell....
In the honor of International LC Awareness - The Calgary Tower in Alberta Canada was lit up in teal.
Peace to all those living life with LC. My daughter is 14 and is in her 4th year of LC. @longcovid-adri.bsky.social @jvipondmd.bsky.social
Peace to all those living life with LC. My daughter is 14 and is in her 4th year of LC. @longcovid-adri.bsky.social @jvipondmd.bsky.social
March 17, 2025 at 2:40 AM
In the honor of International LC Awareness - The Calgary Tower in Alberta Canada was lit up in teal.
Peace to all those living life with LC. My daughter is 14 and is in her 4th year of LC. @longcovid-adri.bsky.social @jvipondmd.bsky.social
Peace to all those living life with LC. My daughter is 14 and is in her 4th year of LC. @longcovid-adri.bsky.social @jvipondmd.bsky.social
Today I am here to say that the Children's Long Covid Network (CLCN) group is formed.
March 15, 2025 at 4:52 PM
Today I am here to say that the Children's Long Covid Network (CLCN) group is formed.
Long Covid in children is REAL! Thank you Dr. Danilo Buonsenso for showing that Long Covid is an organic, biological, & vascular illness in children. It's not Psychosomatic! For example, POTS is not being taught to docs in medical schools-one of a key diagnostic!
November 21, 2024 at 3:13 PM
Long Covid in children is REAL! Thank you Dr. Danilo Buonsenso for showing that Long Covid is an organic, biological, & vascular illness in children. It's not Psychosomatic! For example, POTS is not being taught to docs in medical schools-one of a key diagnostic!
Looking forward to the #DemystifyingLongCOVID conference in Barcelona (and online) today and tomorrow. Dr. Danilo Buonsenso will be speaking on Long Covid in Children who also recently hosted the first International Pediatric LC Meeting last week in Rome.
November 21, 2024 at 12:48 PM
Looking forward to the #DemystifyingLongCOVID conference in Barcelona (and online) today and tomorrow. Dr. Danilo Buonsenso will be speaking on Long Covid in Children who also recently hosted the first International Pediatric LC Meeting last week in Rome.
A room full of interdisciplinary experts with so much compassion & drive to help children living with Long Covid across the world! Thank you @surf4children for making Canada a part of it. We have ALOT of work to do!! @CanCovSoc @ChiefSciCan @GovCanHealth @CPHO_Canada
November 15, 2024 at 6:53 PM
A room full of interdisciplinary experts with so much compassion & drive to help children living with Long Covid across the world! Thank you @surf4children for making Canada a part of it. We have ALOT of work to do!! @CanCovSoc @ChiefSciCan @GovCanHealth @CPHO_Canada
Here in Rome to attend the first International Pediatric Long Covid meeting. Dr. Danilo Buonsenso has given power to the true essence of what an Interdisciplinary collaboration will look like on Nov 15th. A meeting that will move beyond the boundaries of individual disciplines!
November 14, 2024 at 12:28 PM
Here in Rome to attend the first International Pediatric Long Covid meeting. Dr. Danilo Buonsenso has given power to the true essence of what an Interdisciplinary collaboration will look like on Nov 15th. A meeting that will move beyond the boundaries of individual disciplines!