#DemystifyingLongCOVID
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profhelenward.bsky.social
Patient-led Research Collaborative reports survey on the impact of reinfection on long COVID risks.
Gina Assad and Leticia Soares @patientled.bsky.social
Conclusions - reducing reinfections is really important but sadly not taken seriously in public health policies
#demystifyinglongcovid
November 21, 2024 at 4:24 PM
apresj20.bsky.social
🧵👇

💥Conférence internationale #Demystifyinglongcovid J2💥

📢 Dr Fanny Brunet présente l'importance de bien prendre en compte les #MPE pour les patients atteints de #CovidLong

👉les Malaises Post Effort touchent plus de 50% des patients atteints de Covid Long
Our experience at the Saint-Maurice Hospital • Multidisciplinary rehabilitation program to manage fatigue, PEM, cognitive impairment and reduced aerobic exercise capacity. • 4-step examination : • Complete examination by a nurse and a physician specialized in rehabilitation, evaluation with several scales (hospital anxiety and depression scale, Chalder fatigue scale, pain diagnostic questionnaire (DN4 or digital pain scale), physical evaluation (10-meter walk test and 1-minute sit-to-stand test) • Sport coach evaluates the patient's physical skills : balance (single leg stance test), strength (30-second chair-stand test), aerobic physical capacity (2-minute step test), fatigue (Pichot's scale) • Neuropsychologist evaluates the patient's cognitive skills : memory (short term and long term), speech, executive functions and attention span • Nurse and occupational therapist evaluate how the patient deals with fatigue
December 8, 2023 at 4:08 PM
apresj20.bsky.social
🧠 Nous avons aussi reviewé les abstracts de la conférence #DemystifyingLongCovid où nous siégeons au conseil scientifique.
October 9, 2025 at 10:45 AM
apresj20.bsky.social
📢 L'association #ApresJ20 à la conférence internationale "Demystifying Long COVID", c'est aujourd'hui !

#ApresJ20 #DemystifyingLongCovid
@Academic_MedEdu

🧵 ⬇️
November 21, 2024 at 10:17 AM
rutgerwalls.bsky.social
One day Long Covid will be cured thanks to people like these (and many others not in the picture)
#demystifyinglongcovid
November 22, 2024 at 8:18 AM
nandini0306.bsky.social
Looking forward to the #DemystifyingLongCOVID conference in Barcelona (and online) today and tomorrow. Dr. Danilo Buonsenso will be speaking on Long Covid in Children who also recently hosted the first International Pediatric LC Meeting last week in Rome.
November 21, 2024 at 12:48 PM
apresj20.bsky.social
🙏Nous tenons à remercier chaleureusement les chercheurs & médecins venus d’Europe🇪🇺 et des Etats-Unis🇺🇸 pour partager les avancées scientifiques de cette année sur le #CovidLong.

#DemystifyingLongCovid #ApresJ20
November 23, 2024 at 9:09 AM
profhelenward.bsky.social
Very interesting talk on autonomic dysfunction and Long Covid from Nicola Montano which is thought to explain (some or all ?of) the tachycardia, fatigue and breathlessness and many other symptoms #demystifyinglongcovid
November 21, 2024 at 2:30 PM
apresj20.bsky.social
2eme jour de Conférence internationale #DemystifyingLongCovid à Madrid !

💥Gros programme pour cette journée, à suivre à partir de 9h💥

#ApresJ20 #CovidLong
#LongCovid
Programme du 8/12 de la conférence sur le Covid long en Espagne Programme du 8/12 de la conférence sur le Covid long en Espagne Programme du 8/12 de la conférence sur le Covid long en Espagne
December 8, 2023 at 7:11 AM
apresj20.bsky.social
📌Notre association participe à la conférence internationale pour représenter la parole des patients adultes & enfants en 🇫🇷 en terme de :
➡️ #reconnaissance
➡️ #communication
➡️ #soin
➡️ #recherche

#CovidLong #ApresJ20 #DemystifyingLongCOVID
🧵👇
DEMYSTIFYING LONG COVID INTERNATIONAL CONFERENCE 2023 HYBRID MEETING JOIN US AT THE FOREFRONT OF LONG COVID-19 RESEARCH THE INTERNATIONAL CONFERENCE 2023 IS HERE! #DEMYSTIFYINGLONGCOVID
November 21, 2023 at 8:29 AM
profhelenward.bsky.social
Another key slide from this great talk (from the Peluso article), looking at targets for identifying potential treatments. #demystifyinglongcovid
November 21, 2024 at 1:41 PM
apresj20.bsky.social
#CovidLong #LongCovid #RechercheParticipative #InnovationSanté #ApresJ20 #DemystifyingLongCovid #Collaboration
#LongCovidCompanion
November 21, 2024 at 10:17 AM
profhelenward.bsky.social
Interesting to compare the detailed investigations, assessment and follow-up of people with Long COVID presented from other countries at #demystifyinglongcovid . UK guidelines seem rather minimal by comparison
www.nice.org.uk/guidance/ng1...
3 Investigations and referral | COVID-19 rapid guideline: managing the long-term effects of COVID-19 | Guidance | NICE
www.nice.org.uk
November 22, 2024 at 1:28 PM
profhelenward.bsky.social
This was all predictable. But not planned for in pandemic preparedness
Danny Altmann presenting at #demystifyinglongcovid
November 22, 2024 at 7:40 AM
apresj20.bsky.social
🙌Le Dr Michael Peluso de @polybio.bsky.social a présenté les résultats de l'étude Long-Term Impact of Infection with Novel Coronavirus (LIINC) de l'UCSF, soutenue par PolyBio, lors de la conférence internationale #DemystifyingLongCOVID de 2024.
En voici les grandes lignes:

#ApresJ20
December 16, 2024 at 8:39 AM
apresj20.bsky.social
#DemystifyingLongCovid
📅 21-22/11/2024

📢Information importante :
les patients atteints de #CovidLong peuvent s'inscrire GRATUITEMENT pour assister à la conférence en distanciel :

🔗 virology.eventsair.com/long-covid-i...

👉Sélectionnez : "Patient - Virtual Participation"

#ApresJ20
October 31, 2024 at 1:09 PM
apresj20.bsky.social
🧵👇

💥Conférence internationale #Demystifyinglongcovid J2💥

📢 Chiara Di gravio présente l'effet du #CovidLong sur le #travail !
Slide conclusions Healthcare workers and people who feared loss of income from time off work were more likely to develop Long COVID • Participants with Long COVID and those working part time/self-employed were more likely to have to reduce their hours of work because of their health • These findings demonstrate the unequal impact of employment on COVID-19 and of Long COVID on future employment • There is a need for long-term support for those working in sectors who have been disproportionately impacted
December 8, 2023 at 4:10 PM
agniaurum.bsky.social
@buonsenso.bsky.social
Amazing dedication & expertise! So refreshing to hear your presentation on #DemystifyingLongCOVID
November 21, 2024 at 3:22 PM
lecureuil.bsky.social
Covid is not a mild illness.
Prof. Salmon-Ceron

#DemystifyingLongCovid
Slide titled 'Covid is not a mild illness,' On the left, the heading reads 'Potentially severe respiratory illness for high risk patients,' with bullet points stating: Severely immunocompromised, Age over 70, Other risk factors such as obesity, diabetes, high blood pressure, heart or respiratory failure, and chronic liver disease. On the right, the heading reads 'Long Covid, a chronic disease in predisposed patients,' with bullet points mentioning: Possible genetic background, High number of symptoms during acute Covid, High BMI, Low or absent SARS-CoV-2 antibody titers after Covid, Prevalence of 4–10% with Omicron. At the bottom, a note states, 'Literature shows that letting SARS-CoV-2 settle in the body and getting multiple reinfections are harmful for every infection.' On the right side of the image, Prof. Salmon is standing behind a lectern, delivering a presentation. The slide is part of a recorded video with a progress bar below.
November 22, 2024 at 11:12 AM
apresj20.bsky.social
💥🗣️This morning, Pauline Oustric, representing our association, and Chantal Britt, representing Long Covid Europe, brought the voice of #LongCovid patients to the international conference #DemystifyingLongCovid in Madrid 🎤💥

🙏🙏🙏👏👏👏
#CovidLong #ApresJ20
@chantalbritt.bsky.social
👇👇
Pauline Oustric and Chantal Britt
December 9, 2023 at 10:19 AM
apresj20.bsky.social
🎥 Retrouvez les vidéo, diapositives et photos de la 1ère conférence #DemystifyingLongCovid de décembre 2023 ici :
Demystifying Long COVID International Conference 2023 | AME
academicmedicaleducation.com
May 27, 2024 at 7:59 AM
apresj20.bsky.social
🧵👇

💥Conférence internationale #Demystifyinglongcovid J2💥

📢 Pr Dominique Salmon Ceron présente 4 piliers pour la prise en charge des patients atteints de #CovidLong :

1️⃣ Il existe des traitements symptomatiques pour traiter/soulager les symptômes (SAMA, neuro, POTS ...)
Dominique Salmon Ceron presentant une Slide à la conférence
December 8, 2023 at 4:05 PM
profhelenward.bsky.social
Looking forward to the #DemystifyingLongCOVID conference in Barcelona and online starting tomorrow. I’ll be posting some updates here rather than in the other place, but I’ll advertise them on there… @Academic_MedEdu need to get on here too!
November 20, 2024 at 10:42 AM
apresj20.bsky.social
💪Merci et bravo à Pauline Oustric et Chantal Britt d'avoir porté la voix des patients à la conférence internationale #DemystifyingLongCovid !

#CovidLong
#LongCovid
#ApresJ20
🧵👇👇👇
Pauline Oustric et Chantal Britt a la conférence
December 9, 2023 at 10:10 AM
profhelenward.bsky.social
Conclusion of Morgan Bomsel’s fascinating talk on viral reservoirs in megakaryocytes and platelets and potential mechanisms for long COVID. Need further work with appropriate controls

#demystifyinglongcovid
November 22, 2024 at 8:27 AM