1/x - Asked for a bone density scan based on personal history and MKS increased risk of osteoporosis. My PCP ordered a traditional scan (spine/hips) but with more research prior to the scan, I realized it should’ve targeted areas where pain was periodically felt. #47XXY #Klinefelter

Rehoboth Beach, Delaware,
2019

Met with a neurologist regarding my near-lifelong migraines. Her theory: Lower testosterone (and higher estrogen as a result) made me much more susceptible to migraine episodes.

There will never come a day when Rainbow Sprinkles don’t spark joy in my soul. #Intersex #Nonbinary #47XXY

5/2 - (cont) This is what patient and provider teamwork looks like. We discussed treatment for ADHD based on my newly understood biology and implemented a plan with a much higher degree of confidence than previous trial and error approaches. #47XXY #Klinefelter

4/29 Insight: This DOES change who I am. Imagine not truly knowing yourself and then suddenly being given the ability to see the full picture of yourself, every answer, after 40+ years of feeling “different” no matter how much people tried to make you feel accepted. What would that do to you? #47XXY

4/28 - Same pattern as the last couple of days. Minute-by-minute, things keep clarifying and my life makes incrementally more sense both mentally and physiologically. I am being revealed. #47XXY #Rebirth

Kintsugi is the Japanese art of repairing broken pottery with gold, highlighting the cracks rather than hiding them — making the object more beautiful for having been broken. #XXY #Rebirth

Simplest explanation I can come up with to help my older relatives understand XY/XXY:

“Along with snakes, snails and puppy dog tails, genetically I also have a dash of sugar and spice and everything nice.”

April 23 marked the first time I was validated for feeling something was different about me, identifying the proper cause, and getting the right answer. ONE out of 50 cells on an extended postnatal karyotype showed 47, XXY.