Jayme Kryss
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mymksjourney.bsky.social
Jayme Kryss
@mymksjourney.bsky.social
Learning about Mosaic Klinefelter Syndrome (MKS) and adjusting course after my later-in-life confirmation.
(46,XY/47,XXY Mosaic)
Intersex; They/Them 🏳️‍🌈
1/x - Asked for a bone density scan based on personal history and MKS increased risk of osteoporosis. My PCP ordered a traditional scan (spine/hips) but with more research prior to the scan, I realized it should’ve targeted areas where pain was periodically felt. #47XXY #Klinefelter
May 17, 2025 at 1:56 PM
Rehoboth Beach, Delaware,
2019
May 14, 2025 at 12:56 PM
Met with a neurologist regarding my near-lifelong migraines. Her theory: Lower testosterone (and higher estrogen as a result) made me much more susceptible to migraine episodes.
May 13, 2025 at 6:44 PM
There will never come a day when Rainbow Sprinkles don’t spark joy in my soul. #Intersex #Nonbinary #47XXY
May 6, 2025 at 4:56 PM
5/2 - (cont) This is what patient and provider teamwork looks like. We discussed treatment for ADHD based on my newly understood biology and implemented a plan with a much higher degree of confidence than previous trial and error approaches. #47XXY #Klinefelter
May 2, 2025 at 4:18 PM
4/29 Insight: This DOES change who I am. Imagine not truly knowing yourself and then suddenly being given the ability to see the full picture of yourself, every answer, after 40+ years of feeling “different” no matter how much people tried to make you feel accepted. What would that do to you? #47XXY
April 29, 2025 at 3:28 PM
4/28 - Same pattern as the last couple of days. Minute-by-minute, things keep clarifying and my life makes incrementally more sense both mentally and physiologically. I am being revealed. #47XXY #Rebirth
April 28, 2025 at 2:27 PM
Kintsugi is the Japanese art of repairing broken pottery with gold, highlighting the cracks rather than hiding them — making the object more beautiful for having been broken. #XXY #Rebirth
April 27, 2025 at 9:01 PM
Simplest explanation I can come up with to help my older relatives understand XY/XXY:

“Along with snakes, snails and puppy dog tails, genetically I also have a dash of sugar and spice and everything nice.”
April 26, 2025 at 10:49 PM
April 23 marked the first time I was validated for feeling something was different about me, identifying the proper cause, and getting the right answer. ONE out of 50 cells on an extended postnatal karyotype showed 47, XXY.
April 25, 2025 at 1:30 PM