Jayme Kryss
@mymksjourney.bsky.social
Learning about Mosaic Klinefelter Syndrome (MKS) and adjusting course after my later-in-life confirmation.
(46,XY/47,XXY Mosaic)
Intersex; They/Them 🏳️🌈
(46,XY/47,XXY Mosaic)
Intersex; They/Them 🏳️🌈
Pinned
Jayme Kryss
@mymksjourney.bsky.social
· Apr 25
April 23 marked the first time I was validated for feeling something was different about me, identifying the proper cause, and getting the right answer. ONE out of 50 cells on an extended postnatal karyotype showed 47, XXY.
Reposted by Jayme Kryss
"Sex Matters" twists the point of "assigned at birth" language. Sex is an assignment for everyone. For intersex people, it can be violent. But there is no "true sex" beyond a doctor looking at a baby's body and guessing. That guess may or may not align with other sex traits like chromosomes/gonads.
Sex Matters tries to use Intersex trauma to invalidate trans language.
"Journalists should therefore avoid the phrase “assigned at birth”. It appropriates the traumatic history of these infants to prop up false claims about the supposed malleability or non-binary nature of sex."
"Journalists should therefore avoid the phrase “assigned at birth”. It appropriates the traumatic history of these infants to prop up false claims about the supposed malleability or non-binary nature of sex."
June 11, 2025 at 6:58 PM
"Sex Matters" twists the point of "assigned at birth" language. Sex is an assignment for everyone. For intersex people, it can be violent. But there is no "true sex" beyond a doctor looking at a baby's body and guessing. That guess may or may not align with other sex traits like chromosomes/gonads.
5/28: I’m continuing to deal with a PCP who only half accepts my requests for screening/treatments. If this is what I have to look forward to with her as a provider, time to change? #47XXY #medicalgaslighting #Klinefelter #intersex
May 28, 2025 at 1:20 PM
5/28: I’m continuing to deal with a PCP who only half accepts my requests for screening/treatments. If this is what I have to look forward to with her as a provider, time to change? #47XXY #medicalgaslighting #Klinefelter #intersex
1/x - Asked for a bone density scan based on personal history and MKS increased risk of osteoporosis. My PCP ordered a traditional scan (spine/hips) but with more research prior to the scan, I realized it should’ve targeted areas where pain was periodically felt. #47XXY #Klinefelter
May 17, 2025 at 1:56 PM
1/x - Asked for a bone density scan based on personal history and MKS increased risk of osteoporosis. My PCP ordered a traditional scan (spine/hips) but with more research prior to the scan, I realized it should’ve targeted areas where pain was periodically felt. #47XXY #Klinefelter
Rehoboth Beach, Delaware,
2019
2019
May 14, 2025 at 12:56 PM
Rehoboth Beach, Delaware,
2019
2019
Met with a neurologist regarding my near-lifelong migraines. Her theory: Lower testosterone (and higher estrogen as a result) made me much more susceptible to migraine episodes.
May 13, 2025 at 6:44 PM
Met with a neurologist regarding my near-lifelong migraines. Her theory: Lower testosterone (and higher estrogen as a result) made me much more susceptible to migraine episodes.
Reposted by Jayme Kryss
The 10th of May is Klinefelter Syndrome Awareness Day 💙 I’m proud to share my story and raise awareness for the 1 in 600 people born with XXY chromosomes. We are Intersex. We are valid, we matter, and we deserve understanding. #KlinefelterSyndrome #XXY
www.healthdirect.gov.au/klinefelter-...
www.healthdirect.gov.au/klinefelter-...
May 9, 2025 at 12:01 PM
The 10th of May is Klinefelter Syndrome Awareness Day 💙 I’m proud to share my story and raise awareness for the 1 in 600 people born with XXY chromosomes. We are Intersex. We are valid, we matter, and we deserve understanding. #KlinefelterSyndrome #XXY
www.healthdirect.gov.au/klinefelter-...
www.healthdirect.gov.au/klinefelter-...
5/9 - Wild is the following: Given how complicated my intersex diagnosis and nonbinary identity are (for me) I sought out and found a Queer-literate therapist. My current (now former therapist) required constant education during sessions - taking away from actual therapy. // 1/x
May 9, 2025 at 11:52 AM
5/9 - Wild is the following: Given how complicated my intersex diagnosis and nonbinary identity are (for me) I sought out and found a Queer-literate therapist. My current (now former therapist) required constant education during sessions - taking away from actual therapy. // 1/x
Reposted by Jayme Kryss
Advocating for yourself at the doctor's is tough. Help us & @fenwayhealth.bsky.social create a new advocacy tool for intersex people during medical visits. If you are intersex & 18+, fill out the interest form by May 19! Participants receive a $150 gift card per focus group. 📝 bit.ly/intersexfocus
May 7, 2025 at 1:12 PM
Advocating for yourself at the doctor's is tough. Help us & @fenwayhealth.bsky.social create a new advocacy tool for intersex people during medical visits. If you are intersex & 18+, fill out the interest form by May 19! Participants receive a $150 gift card per focus group. 📝 bit.ly/intersexfocus
5/7 - Today’s an initial consult with a potential new provider specializing in trauma and Queer identities.
Here’s a Pro Tip from a human who has done this for 4 decades:
When it is time to leave your current therapist, and you’re financially able, do it. // 1/x
Here’s a Pro Tip from a human who has done this for 4 decades:
When it is time to leave your current therapist, and you’re financially able, do it. // 1/x
May 7, 2025 at 11:31 AM
5/7 - Today’s an initial consult with a potential new provider specializing in trauma and Queer identities.
Here’s a Pro Tip from a human who has done this for 4 decades:
When it is time to leave your current therapist, and you’re financially able, do it. // 1/x
Here’s a Pro Tip from a human who has done this for 4 decades:
When it is time to leave your current therapist, and you’re financially able, do it. // 1/x
There will never come a day when Rainbow Sprinkles don’t spark joy in my soul. #Intersex #Nonbinary #47XXY
May 6, 2025 at 4:56 PM
There will never come a day when Rainbow Sprinkles don’t spark joy in my soul. #Intersex #Nonbinary #47XXY
5/6: Pondering - What does it actually mean to be genetically intersex, especially when everyone keeps insisting (directly or otherwise) that a penis still makes you a “man”? I don’t feel like a “man” or a “woman.” Never have. 1/x
May 6, 2025 at 1:39 PM
5/6: Pondering - What does it actually mean to be genetically intersex, especially when everyone keeps insisting (directly or otherwise) that a penis still makes you a “man”? I don’t feel like a “man” or a “woman.” Never have. 1/x
5/4 - There’s still a sense of denial because something so perfect as a diagnosis cannot be possible. I am working to embrace it, but the work to accept that I finally have answers in this rare condition is still facing an emotional rollercoaster. #47XXY #Klinefelter #Rebirth
May 4, 2025 at 11:24 PM
5/4 - There’s still a sense of denial because something so perfect as a diagnosis cannot be possible. I am working to embrace it, but the work to accept that I finally have answers in this rare condition is still facing an emotional rollercoaster. #47XXY #Klinefelter #Rebirth
5/2 - I let my psychiatrist know about my recent diagnosis well in advance of today’s appointment and as I expected, he researched it before I arrived, but also acknowledged my weeks of efforts to educate myself made me more generally knowledgeable. #47XXY #Klinefelter
May 2, 2025 at 4:18 PM
5/2 - I let my psychiatrist know about my recent diagnosis well in advance of today’s appointment and as I expected, he researched it before I arrived, but also acknowledged my weeks of efforts to educate myself made me more generally knowledgeable. #47XXY #Klinefelter
5/2 - Today I meet with a psychiatrist to reevaluate a lifetime of misunderstandings regarding prescribed psychtropic meds. LS/MKS can cause emotional dysregulation before trauma and other issues influence depression.
#47XXY #Klinefelter #Rebirth
#47XXY #Klinefelter #Rebirth
May 2, 2025 at 10:57 AM
5/2 - Today I meet with a psychiatrist to reevaluate a lifetime of misunderstandings regarding prescribed psychtropic meds. LS/MKS can cause emotional dysregulation before trauma and other issues influence depression.
#47XXY #Klinefelter #Rebirth
#47XXY #Klinefelter #Rebirth
5/1 - Today’s journey starts with researching diagnostic dissonance – emotional resistance to a major diagnosis caused by identity disruption, fear, or trauma defense, even when intellectually accepted. (A form of protective denial.)
#47XXY #Klinefelter #Rebirth
#47XXY #Klinefelter #Rebirth
May 1, 2025 at 10:00 AM
5/1 - Today’s journey starts with researching diagnostic dissonance – emotional resistance to a major diagnosis caused by identity disruption, fear, or trauma defense, even when intellectually accepted. (A form of protective denial.)
#47XXY #Klinefelter #Rebirth
#47XXY #Klinefelter #Rebirth
4/30 - TIL: Genetic deficiencies can exist on one cell line but not the other (47 XXY but not 46 XY) in the same person. A standard one time screening may not catch it for this reason. #47XXY #Klinefelter
May 1, 2025 at 12:31 AM
4/30 - TIL: Genetic deficiencies can exist on one cell line but not the other (47 XXY but not 46 XY) in the same person. A standard one time screening may not catch it for this reason. #47XXY #Klinefelter
4/29 Insight: This DOES change who I am. Imagine not truly knowing yourself and then suddenly being given the ability to see the full picture of yourself, every answer, after 40+ years of feeling “different” no matter how much people tried to make you feel accepted. What would that do to you? #47XXY
April 29, 2025 at 3:28 PM
4/29 Insight: This DOES change who I am. Imagine not truly knowing yourself and then suddenly being given the ability to see the full picture of yourself, every answer, after 40+ years of feeling “different” no matter how much people tried to make you feel accepted. What would that do to you? #47XXY
Insight (4/27): The hardest thing so far about receiving a diagnosis I suspected for years but didn’t pursue?
Knowing how much easier my life could have been without social misperceptions and medical misunderstandings.
I’m grieving over decades of being punished for being biologically hamstrung.
Knowing how much easier my life could have been without social misperceptions and medical misunderstandings.
I’m grieving over decades of being punished for being biologically hamstrung.
April 27, 2025 at 8:42 PM
Insight (4/27): The hardest thing so far about receiving a diagnosis I suspected for years but didn’t pursue?
Knowing how much easier my life could have been without social misperceptions and medical misunderstandings.
I’m grieving over decades of being punished for being biologically hamstrung.
Knowing how much easier my life could have been without social misperceptions and medical misunderstandings.
I’m grieving over decades of being punished for being biologically hamstrung.
Simplest explanation I can come up with to help my older relatives understand XY/XXY:
“Along with snakes, snails and puppy dog tails, genetically I also have a dash of sugar and spice and everything nice.”
“Along with snakes, snails and puppy dog tails, genetically I also have a dash of sugar and spice and everything nice.”
April 26, 2025 at 10:49 PM
Simplest explanation I can come up with to help my older relatives understand XY/XXY:
“Along with snakes, snails and puppy dog tails, genetically I also have a dash of sugar and spice and everything nice.”
“Along with snakes, snails and puppy dog tails, genetically I also have a dash of sugar and spice and everything nice.”
4/26 Insights: Trying to figure out the contradiction in 46,XY/47,XXY.
It’s starting as male, but having XX temper development to soften the edges and add a bit of the feminine.
Along with snakes, snails and puppy dog tails, genetically it’s also a dash of sugar and spice and everything nice.
It’s starting as male, but having XX temper development to soften the edges and add a bit of the feminine.
Along with snakes, snails and puppy dog tails, genetically it’s also a dash of sugar and spice and everything nice.
April 26, 2025 at 9:09 AM
4/26 Insights: Trying to figure out the contradiction in 46,XY/47,XXY.
It’s starting as male, but having XX temper development to soften the edges and add a bit of the feminine.
Along with snakes, snails and puppy dog tails, genetically it’s also a dash of sugar and spice and everything nice.
It’s starting as male, but having XX temper development to soften the edges and add a bit of the feminine.
Along with snakes, snails and puppy dog tails, genetically it’s also a dash of sugar and spice and everything nice.
Insights (4/25): Nearly every part of my fckd up 🧠 and mental health history can be tied back to MKS.
My soul was never the problem.
I wish I could tell my child-self all of this.
My soul was never the problem.
I wish I could tell my child-self all of this.
April 26, 2025 at 1:34 AM
Insights (4/25): Nearly every part of my fckd up 🧠 and mental health history can be tied back to MKS.
My soul was never the problem.
I wish I could tell my child-self all of this.
My soul was never the problem.
I wish I could tell my child-self all of this.
Call this evening (4/25/25) from the Genetic Counselor. She explained GC’s aren’t supposed to diagnose; but she agreed I could stop the process where I am based on the evidence available.
On one hand, a relief. On the other, I need one more test now to confirm. It’s an itch I have to scratch.
On one hand, a relief. On the other, I need one more test now to confirm. It’s an itch I have to scratch.
April 25, 2025 at 10:11 PM
Call this evening (4/25/25) from the Genetic Counselor. She explained GC’s aren’t supposed to diagnose; but she agreed I could stop the process where I am based on the evidence available.
On one hand, a relief. On the other, I need one more test now to confirm. It’s an itch I have to scratch.
On one hand, a relief. On the other, I need one more test now to confirm. It’s an itch I have to scratch.