My Name'5 Doddie Foundation
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mndoddie5.bsky.social
My Name'5 Doddie Foundation
@mndoddie5.bsky.social
130 followers 79 following 110 posts
Our vision: a world free of MND 💙💛
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mndoddie5.bsky.social
On the third anniversary of Doddie's death, we’re officially launching sign ups for Doddie Aid 2026 with the announcement that Hamish Weir is captaining Team Scotland - keeping his Dad’s legacy alive and pushing for a cure for MND.

Get signed up now 👉 app.doddieaid.com
November 26, 2025 at 8:13 AM
mndoddie5.bsky.social
We have invested almost £3m to help MND clinical trial centres recruit the staff they need.

When Doddie was diagnosed, he was frustrated at the lack of clinical trials in the UK. Today’s landscape is significantly different and we’re proud to support that 👇
www.myname5doddie.co.uk/whats-on/art...
November 18, 2025 at 4:06 PM
mndoddie5.bsky.social
It was great to visit @patrickalfrynlewis.bsky.social's lab with Nick, who lives with MND, and hear about the work that's been done with funding through our Catalyst Award.

Thank you to everyone helping us support MND research 💙💛

Read the full story here 👇
www.myname5doddie.co.uk/whats-on/art...
November 11, 2025 at 12:12 PM
mndoddie5.bsky.social
As Scottish Rugby celebrates 100 years of Murrayfield, they’re asking fans to choose the defining moment in the stadium’s history!

For us, there’s only one 💙💛 Doddie’s unforgettable match ball delivery in 2017 - a moment that inspired the nation.

Vote here 👉 scottishrugby.org/murrayfieldm...
November 6, 2025 at 4:35 PM
mndoddie5.bsky.social
We’ve spent £2 million on nine new MND research projects through our Advancing Treatments and Catalyst Awards, which all aim to accelerate the search for effective treatments 🔬

Find out more about the projects here 👇
www.myname5doddie.co.uk/whats-on/art...
November 5, 2025 at 12:59 PM
mndoddie5.bsky.social
Taking My Name’5 Doddie to new heights⛰️

Father & son duo Robert and Daniel Holland completed a 16-day trek through Pakistan’s Karakoram mountains, reaching the base camps of Broad Peak & K2 in support of the Foundation & Cash for Kids

Read their story below👇
www.myname5doddie.co.uk/whats-on/art...
November 4, 2025 at 9:12 AM
mndoddie5.bsky.social
Hall of Fame status for two true legends! 👏

We want to say a huge congratulations to our friends Rob Wainwright and Scott Hastings on being inducted into Scottish Rugby’s Hall of Fame 🏉

We’re all raising a glass to this well-deserved recognition of sportsmanship 🍾
October 31, 2025 at 1:45 PM
mndoddie5.bsky.social
Is it too early to start thinking about Christmas? 🤔🎄 We don’t think so! And our Christmas cards are now available to buy to help you spread some festive cheer. What’s more, each purchase will help support MND research 🔬

Click below to get yours 👇
www.myname5doddie.co.uk/christmas-ca...
October 30, 2025 at 11:44 AM
mndoddie5.bsky.social
What Rob said - this is why we do it 👊

Be a part of Doddie’s Triple Crown. Raise vital funds for MND research. Give hope to those living with MND.

More details below 👇
www.myname5doddie.co.uk/whats-on/eve...
October 15, 2025 at 4:19 PM
mndoddie5.bsky.social
Kevin Sinfield is once again lacing up his trainers this December to raise funds for the MND community. He’ll be running 7 ultra marathons in 7 days, across 7 different regions in the UK 💪

To learn more and see how you can support the challenge, click here: www.myname5doddie.co.uk/whats-on/art...
October 10, 2025 at 10:43 AM
mndoddie5.bsky.social
Over the last few days questions have been raised about a link between rugby and MND. Some articles published may have caused alarm, but have missed out key points regarding existing studies and data.

Our article provides more clarity on the subject: www.myname5doddie.co.uk/whats-on/art...
October 9, 2025 at 10:20 AM
mndoddie5.bsky.social
We are shocked and saddened to learn of Lewis Moody’s diagnosis with motor neuron disease (MND). Everyone at My Name’5 Doddie Foundation sends their full support to Lewis.

Full statement: www.myname5doddie.co.uk/whats-on/art...
October 6, 2025 at 11:42 AM
mndoddie5.bsky.social
Great for the Foundation to sponsor & attend the UCL Queen Square MND Centre’s sixth ALS/MND Symposium last week, in partnership with @ukmndri.bsky.social

Inspiring to see the growth of the UK's MND research community & the breadth of research we’re proud to fund!🔬
@uclqsneuromuscular.bsky.social
September 11, 2025 at 2:26 PM
mndoddie5.bsky.social
A candidate drug has been selected for testing within EXPERTS-ALS - a platform that aims to speed up identification of promising new treatments for MND.

More details below 👇
www.myname5doddie.co.uk/whats-on/art...
September 4, 2025 at 3:04 PM
mndoddie5.bsky.social
Want to be part of the adventure that is Rob’s ride in 2026?🚴

We’re calling on teams to join Rob Wainwright for Doddie’s Triple Crown - an epic 800-mile cycling challenge from Melrose to Dublin from 10-13 March, raising funds for MND research

📷: Dave Zaple, Craig Watson, Richard Ellis, Les Snowdon
September 2, 2025 at 9:08 AM
mndoddie5.bsky.social
In March, @patrickalfrynlewis.bsky.social, My Name’5 Doddie Foundation-funded researcher and Professor of Neuroscience at the Royal Veterinary College, ran the Reading Half Marathon for us.

Half marathon, full commitment to MND research 👊

Find out more 👇
www.myname5doddie.co.uk/whats-on/art...
August 7, 2025 at 3:13 PM
mndoddie5.bsky.social
The MHRA has granted marketing authorisation for tofersen, a new drug for the treatment of SOD1 MND

Alongside @mndassoc.bsky.social & @mndscotland.bsky.social, we welcome the approval of the first treatment for MND in the UK in over 30 years

Full statement👇
www.myname5doddie.co.uk/whats-on/art...
July 28, 2025 at 2:07 PM
mndoddie5.bsky.social
We’re proud to feature in the AMRC's new report on translating research for our jointly funded work with Motor Neurone Disease Association and LifeArc 🤝
@amrc-uk.bsky.social @mndassoc.bsky.social @lifearc.bsky.social

You can view the full report here 👇
bit.ly/4lTL049
July 17, 2025 at 4:05 PM
mndoddie5.bsky.social
Here, Dr Ruxandra Dafinca who is funded by the Foundation through our 2024 Catalyst Award, gives an insight on her research and its potential impact for identifying new therapeutic targets for MND 🔬

@ruxandradaf.bsky.social @mndoxford.bsky.social @ox.ac.uk
July 16, 2025 at 8:44 AM
mndoddie5.bsky.social
Today would have been Doddie's 55th birthday and the community he built is still as strong as ever 💪
July 4, 2025 at 8:08 AM
mndoddie5.bsky.social
Friday 4 July would have been Doddie’s 55th birthday and we want to use the day to celebrate the big man and raise awareness of MND by encouraging everyone to wear a little (or a lot) of tartan 💙💛

Get your friends and family involved and don’t forget to snap a pic, share it and tag us! 📸
July 3, 2025 at 1:54 PM
mndoddie5.bsky.social
At the end of May, Howard and fellow members of the MotorOn Cymru team cycled 900+ miles across France for the Foundation, and in memory of their friend Bob Gledhill.

We spoke to Howard to hear more about the ride & what it meant to him. Click below to read👇
www.myname5doddie.co.uk/whats-on/art...
July 1, 2025 at 3:27 PM
mndoddie5.bsky.social
Billy is currently taking on a mountainous challenge of climbing 90 Munros in 90 days ⛰️

He’s doing it to raise funds for My Name’5 Doddie Foundation and in memory of his school friend Malcolm, who died of MND in 2016.

Read more of Billy’s story below 👇
www.myname5doddie.co.uk/whats-on/art...
June 26, 2025 at 3:00 PM
mndoddie5.bsky.social
We’re proud to be funding the #LongitudePrizeOnALS, a £7.5m challenge prize to drive AI-led innovation to discover new drug treatments for ALS.

Find out how you can get involved here 👉 bit.ly/4dNo8QT

@mndassoc.bsky.social @challengeworks.bsky.social @longitudeprize.bsky.social
June 25, 2025 at 8:02 AM
mndoddie5.bsky.social
Today is Global MND Awareness Day. This year we're taking the opportunity to thank everyone affected by MND who has shared their story with us. You are defining the narrative of this disease.
June 21, 2025 at 10:13 AM