My Name'5 Doddie Foundation
@mndoddie5.bsky.social
Our vision: a world free of MND 💙💛
We have invested almost £3m to help MND clinical trial centres recruit the staff they need.
When Doddie was diagnosed, he was frustrated at the lack of clinical trials in the UK. Today’s landscape is significantly different and we’re proud to support that 👇
www.myname5doddie.co.uk/whats-on/art...
When Doddie was diagnosed, he was frustrated at the lack of clinical trials in the UK. Today’s landscape is significantly different and we’re proud to support that 👇
www.myname5doddie.co.uk/whats-on/art...
November 18, 2025 at 4:06 PM
We have invested almost £3m to help MND clinical trial centres recruit the staff they need.
When Doddie was diagnosed, he was frustrated at the lack of clinical trials in the UK. Today’s landscape is significantly different and we’re proud to support that 👇
www.myname5doddie.co.uk/whats-on/art...
When Doddie was diagnosed, he was frustrated at the lack of clinical trials in the UK. Today’s landscape is significantly different and we’re proud to support that 👇
www.myname5doddie.co.uk/whats-on/art...
Developing new treatments is essential for MND, but the process is lengthy and people with MND don’t have time to wait.
Repurposing means we can quickly see if any already available treatments could be effective in MND and get them into clinical trials as soon as possible.
Read more👇
Repurposing means we can quickly see if any already available treatments could be effective in MND and get them into clinical trials as soon as possible.
Read more👇
Drug development is a complex and costly process.
By using medicines approved for other conditions, we can overcome barriers in drug development.
Read our blog explaining why we believe repurposed drugs could help us find new treatments for #MND/#ALS.
ukmndri.org/2025/11/13/r...
By using medicines approved for other conditions, we can overcome barriers in drug development.
Read our blog explaining why we believe repurposed drugs could help us find new treatments for #MND/#ALS.
ukmndri.org/2025/11/13/r...
Repurposed Drugs: Accelerating MND Treatment Discovery
Discover how repurposed drugs are helping accelerate the search for effective treatments for MND through innovative UK research.
ukmndri.org
November 14, 2025 at 12:28 PM
Developing new treatments is essential for MND, but the process is lengthy and people with MND don’t have time to wait.
Repurposing means we can quickly see if any already available treatments could be effective in MND and get them into clinical trials as soon as possible.
Read more👇
Repurposing means we can quickly see if any already available treatments could be effective in MND and get them into clinical trials as soon as possible.
Read more👇
Thank you so much for coming! 💙💛
Yesterday, we attended @mndoddie5.bsky.social's Discovery Network Showcase 2025.
Researchers, clinicians, industry partners, and people affected by #MND/#ALS discussed how the network can drive forward progress in better understanding MND and the development of new treatments.
Researchers, clinicians, industry partners, and people affected by #MND/#ALS discussed how the network can drive forward progress in better understanding MND and the development of new treatments.
November 13, 2025 at 2:34 PM
Thank you so much for coming! 💙💛
It was great to visit @patrickalfrynlewis.bsky.social's lab with Nick, who lives with MND, and hear about the work that's been done with funding through our Catalyst Award.
Thank you to everyone helping us support MND research 💙💛
Read the full story here 👇
www.myname5doddie.co.uk/whats-on/art...
Thank you to everyone helping us support MND research 💙💛
Read the full story here 👇
www.myname5doddie.co.uk/whats-on/art...
November 11, 2025 at 12:12 PM
It was great to visit @patrickalfrynlewis.bsky.social's lab with Nick, who lives with MND, and hear about the work that's been done with funding through our Catalyst Award.
Thank you to everyone helping us support MND research 💙💛
Read the full story here 👇
www.myname5doddie.co.uk/whats-on/art...
Thank you to everyone helping us support MND research 💙💛
Read the full story here 👇
www.myname5doddie.co.uk/whats-on/art...
As Scottish Rugby celebrates 100 years of Murrayfield, they’re asking fans to choose the defining moment in the stadium’s history!
For us, there’s only one 💙💛 Doddie’s unforgettable match ball delivery in 2017 - a moment that inspired the nation.
Vote here 👉 scottishrugby.org/murrayfieldm...
For us, there’s only one 💙💛 Doddie’s unforgettable match ball delivery in 2017 - a moment that inspired the nation.
Vote here 👉 scottishrugby.org/murrayfieldm...
November 6, 2025 at 4:35 PM
As Scottish Rugby celebrates 100 years of Murrayfield, they’re asking fans to choose the defining moment in the stadium’s history!
For us, there’s only one 💙💛 Doddie’s unforgettable match ball delivery in 2017 - a moment that inspired the nation.
Vote here 👉 scottishrugby.org/murrayfieldm...
For us, there’s only one 💙💛 Doddie’s unforgettable match ball delivery in 2017 - a moment that inspired the nation.
Vote here 👉 scottishrugby.org/murrayfieldm...
Reposted by My Name'5 Doddie Foundation
“It’s a great example of how a relatively small and short grant has the potential to lead to significant changes in the MND field.”
Charity funding from AMRC member @mndoddie5.bsky.social, is enabling researchers to explore new ways to treat MND – from gene therapy to mini brains.🔬🧠
Charity funding from AMRC member @mndoddie5.bsky.social, is enabling researchers to explore new ways to treat MND – from gene therapy to mini brains.🔬🧠
We’ve spent £2 million on nine new MND research projects through our Advancing Treatments and Catalyst Awards, which all aim to accelerate the search for effective treatments 🔬
Find out more about the projects here 👇
www.myname5doddie.co.uk/whats-on/art...
Find out more about the projects here 👇
www.myname5doddie.co.uk/whats-on/art...
November 6, 2025 at 9:09 AM
“It’s a great example of how a relatively small and short grant has the potential to lead to significant changes in the MND field.”
Charity funding from AMRC member @mndoddie5.bsky.social, is enabling researchers to explore new ways to treat MND – from gene therapy to mini brains.🔬🧠
Charity funding from AMRC member @mndoddie5.bsky.social, is enabling researchers to explore new ways to treat MND – from gene therapy to mini brains.🔬🧠
We’ve spent £2 million on nine new MND research projects through our Advancing Treatments and Catalyst Awards, which all aim to accelerate the search for effective treatments 🔬
Find out more about the projects here 👇
www.myname5doddie.co.uk/whats-on/art...
Find out more about the projects here 👇
www.myname5doddie.co.uk/whats-on/art...
November 5, 2025 at 12:59 PM
We’ve spent £2 million on nine new MND research projects through our Advancing Treatments and Catalyst Awards, which all aim to accelerate the search for effective treatments 🔬
Find out more about the projects here 👇
www.myname5doddie.co.uk/whats-on/art...
Find out more about the projects here 👇
www.myname5doddie.co.uk/whats-on/art...
Taking My Name’5 Doddie to new heights⛰️
Father & son duo Robert and Daniel Holland completed a 16-day trek through Pakistan’s Karakoram mountains, reaching the base camps of Broad Peak & K2 in support of the Foundation & Cash for Kids
Read their story below👇
www.myname5doddie.co.uk/whats-on/art...
Father & son duo Robert and Daniel Holland completed a 16-day trek through Pakistan’s Karakoram mountains, reaching the base camps of Broad Peak & K2 in support of the Foundation & Cash for Kids
Read their story below👇
www.myname5doddie.co.uk/whats-on/art...
November 4, 2025 at 9:12 AM
Taking My Name’5 Doddie to new heights⛰️
Father & son duo Robert and Daniel Holland completed a 16-day trek through Pakistan’s Karakoram mountains, reaching the base camps of Broad Peak & K2 in support of the Foundation & Cash for Kids
Read their story below👇
www.myname5doddie.co.uk/whats-on/art...
Father & son duo Robert and Daniel Holland completed a 16-day trek through Pakistan’s Karakoram mountains, reaching the base camps of Broad Peak & K2 in support of the Foundation & Cash for Kids
Read their story below👇
www.myname5doddie.co.uk/whats-on/art...
Hall of Fame status for two true legends! 👏
We want to say a huge congratulations to our friends Rob Wainwright and Scott Hastings on being inducted into Scottish Rugby’s Hall of Fame 🏉
We’re all raising a glass to this well-deserved recognition of sportsmanship 🍾
We want to say a huge congratulations to our friends Rob Wainwright and Scott Hastings on being inducted into Scottish Rugby’s Hall of Fame 🏉
We’re all raising a glass to this well-deserved recognition of sportsmanship 🍾
October 31, 2025 at 1:45 PM
Hall of Fame status for two true legends! 👏
We want to say a huge congratulations to our friends Rob Wainwright and Scott Hastings on being inducted into Scottish Rugby’s Hall of Fame 🏉
We’re all raising a glass to this well-deserved recognition of sportsmanship 🍾
We want to say a huge congratulations to our friends Rob Wainwright and Scott Hastings on being inducted into Scottish Rugby’s Hall of Fame 🏉
We’re all raising a glass to this well-deserved recognition of sportsmanship 🍾
Is it too early to start thinking about Christmas? 🤔🎄 We don’t think so! And our Christmas cards are now available to buy to help you spread some festive cheer. What’s more, each purchase will help support MND research 🔬
Click below to get yours 👇
www.myname5doddie.co.uk/christmas-ca...
Click below to get yours 👇
www.myname5doddie.co.uk/christmas-ca...
October 30, 2025 at 11:44 AM
Is it too early to start thinking about Christmas? 🤔🎄 We don’t think so! And our Christmas cards are now available to buy to help you spread some festive cheer. What’s more, each purchase will help support MND research 🔬
Click below to get yours 👇
www.myname5doddie.co.uk/christmas-ca...
Click below to get yours 👇
www.myname5doddie.co.uk/christmas-ca...
What Rob said - this is why we do it 👊
Be a part of Doddie’s Triple Crown. Raise vital funds for MND research. Give hope to those living with MND.
More details below 👇
www.myname5doddie.co.uk/whats-on/eve...
Be a part of Doddie’s Triple Crown. Raise vital funds for MND research. Give hope to those living with MND.
More details below 👇
www.myname5doddie.co.uk/whats-on/eve...
October 15, 2025 at 4:19 PM
What Rob said - this is why we do it 👊
Be a part of Doddie’s Triple Crown. Raise vital funds for MND research. Give hope to those living with MND.
More details below 👇
www.myname5doddie.co.uk/whats-on/eve...
Be a part of Doddie’s Triple Crown. Raise vital funds for MND research. Give hope to those living with MND.
More details below 👇
www.myname5doddie.co.uk/whats-on/eve...
Kevin Sinfield is once again lacing up his trainers this December to raise funds for the MND community. He’ll be running 7 ultra marathons in 7 days, across 7 different regions in the UK 💪
To learn more and see how you can support the challenge, click here: www.myname5doddie.co.uk/whats-on/art...
To learn more and see how you can support the challenge, click here: www.myname5doddie.co.uk/whats-on/art...
October 10, 2025 at 10:43 AM
Kevin Sinfield is once again lacing up his trainers this December to raise funds for the MND community. He’ll be running 7 ultra marathons in 7 days, across 7 different regions in the UK 💪
To learn more and see how you can support the challenge, click here: www.myname5doddie.co.uk/whats-on/art...
To learn more and see how you can support the challenge, click here: www.myname5doddie.co.uk/whats-on/art...
Over the last few days questions have been raised about a link between rugby and MND. Some articles published may have caused alarm, but have missed out key points regarding existing studies and data.
Our article provides more clarity on the subject: www.myname5doddie.co.uk/whats-on/art...
Our article provides more clarity on the subject: www.myname5doddie.co.uk/whats-on/art...
October 9, 2025 at 10:20 AM
Over the last few days questions have been raised about a link between rugby and MND. Some articles published may have caused alarm, but have missed out key points regarding existing studies and data.
Our article provides more clarity on the subject: www.myname5doddie.co.uk/whats-on/art...
Our article provides more clarity on the subject: www.myname5doddie.co.uk/whats-on/art...
We are shocked and saddened to learn of Lewis Moody’s diagnosis with motor neuron disease (MND). Everyone at My Name’5 Doddie Foundation sends their full support to Lewis.
Full statement: www.myname5doddie.co.uk/whats-on/art...
Full statement: www.myname5doddie.co.uk/whats-on/art...
October 6, 2025 at 11:42 AM
We are shocked and saddened to learn of Lewis Moody’s diagnosis with motor neuron disease (MND). Everyone at My Name’5 Doddie Foundation sends their full support to Lewis.
Full statement: www.myname5doddie.co.uk/whats-on/art...
Full statement: www.myname5doddie.co.uk/whats-on/art...
Great for the Foundation to sponsor & attend the UCL Queen Square MND Centre’s sixth ALS/MND Symposium last week, in partnership with @ukmndri.bsky.social
Inspiring to see the growth of the UK's MND research community & the breadth of research we’re proud to fund!🔬
@uclqsneuromuscular.bsky.social
Inspiring to see the growth of the UK's MND research community & the breadth of research we’re proud to fund!🔬
@uclqsneuromuscular.bsky.social
September 11, 2025 at 2:26 PM
Great for the Foundation to sponsor & attend the UCL Queen Square MND Centre’s sixth ALS/MND Symposium last week, in partnership with @ukmndri.bsky.social
Inspiring to see the growth of the UK's MND research community & the breadth of research we’re proud to fund!🔬
@uclqsneuromuscular.bsky.social
Inspiring to see the growth of the UK's MND research community & the breadth of research we’re proud to fund!🔬
@uclqsneuromuscular.bsky.social
A candidate drug has been selected for testing within EXPERTS-ALS - a platform that aims to speed up identification of promising new treatments for MND.
More details below 👇
www.myname5doddie.co.uk/whats-on/art...
More details below 👇
www.myname5doddie.co.uk/whats-on/art...
September 4, 2025 at 3:04 PM
A candidate drug has been selected for testing within EXPERTS-ALS - a platform that aims to speed up identification of promising new treatments for MND.
More details below 👇
www.myname5doddie.co.uk/whats-on/art...
More details below 👇
www.myname5doddie.co.uk/whats-on/art...
Want to be part of the adventure that is Rob’s ride in 2026?🚴
We’re calling on teams to join Rob Wainwright for Doddie’s Triple Crown - an epic 800-mile cycling challenge from Melrose to Dublin from 10-13 March, raising funds for MND research
📷: Dave Zaple, Craig Watson, Richard Ellis, Les Snowdon
We’re calling on teams to join Rob Wainwright for Doddie’s Triple Crown - an epic 800-mile cycling challenge from Melrose to Dublin from 10-13 March, raising funds for MND research
📷: Dave Zaple, Craig Watson, Richard Ellis, Les Snowdon
September 2, 2025 at 9:08 AM
Want to be part of the adventure that is Rob’s ride in 2026?🚴
We’re calling on teams to join Rob Wainwright for Doddie’s Triple Crown - an epic 800-mile cycling challenge from Melrose to Dublin from 10-13 March, raising funds for MND research
📷: Dave Zaple, Craig Watson, Richard Ellis, Les Snowdon
We’re calling on teams to join Rob Wainwright for Doddie’s Triple Crown - an epic 800-mile cycling challenge from Melrose to Dublin from 10-13 March, raising funds for MND research
📷: Dave Zaple, Craig Watson, Richard Ellis, Les Snowdon
In March, @patrickalfrynlewis.bsky.social, My Name’5 Doddie Foundation-funded researcher and Professor of Neuroscience at the Royal Veterinary College, ran the Reading Half Marathon for us.
Half marathon, full commitment to MND research 👊
Find out more 👇
www.myname5doddie.co.uk/whats-on/art...
Half marathon, full commitment to MND research 👊
Find out more 👇
www.myname5doddie.co.uk/whats-on/art...
August 7, 2025 at 3:13 PM
In March, @patrickalfrynlewis.bsky.social, My Name’5 Doddie Foundation-funded researcher and Professor of Neuroscience at the Royal Veterinary College, ran the Reading Half Marathon for us.
Half marathon, full commitment to MND research 👊
Find out more 👇
www.myname5doddie.co.uk/whats-on/art...
Half marathon, full commitment to MND research 👊
Find out more 👇
www.myname5doddie.co.uk/whats-on/art...
Specific genetic types of MND are very rare, meaning that those who could benefit from certain specialised drugs, e.g. Tofersen for SOD1-MND, could face the same challenges of drug access as those with 'rare diseases’.
Have your voice heard through @rdrukhub.bsky.social's survey below 👇
Have your voice heard through @rdrukhub.bsky.social's survey below 👇
📢 Are you involved in rare disease research in the UK? We want to hear from you!
🔎 Share your experiences with regulatory and market access pathways for rare disease — the good, the bad, and the changes that you would like to see!
📝Take the survey tinyurl.com/r-dsurvey
🔎 Share your experiences with regulatory and market access pathways for rare disease — the good, the bad, and the changes that you would like to see!
📝Take the survey tinyurl.com/r-dsurvey
July 31, 2025 at 3:17 PM
Specific genetic types of MND are very rare, meaning that those who could benefit from certain specialised drugs, e.g. Tofersen for SOD1-MND, could face the same challenges of drug access as those with 'rare diseases’.
Have your voice heard through @rdrukhub.bsky.social's survey below 👇
Have your voice heard through @rdrukhub.bsky.social's survey below 👇
The MHRA has granted marketing authorisation for tofersen, a new drug for the treatment of SOD1 MND
Alongside @mndassoc.bsky.social & @mndscotland.bsky.social, we welcome the approval of the first treatment for MND in the UK in over 30 years
Full statement👇
www.myname5doddie.co.uk/whats-on/art...
Alongside @mndassoc.bsky.social & @mndscotland.bsky.social, we welcome the approval of the first treatment for MND in the UK in over 30 years
Full statement👇
www.myname5doddie.co.uk/whats-on/art...
July 28, 2025 at 2:07 PM
The MHRA has granted marketing authorisation for tofersen, a new drug for the treatment of SOD1 MND
Alongside @mndassoc.bsky.social & @mndscotland.bsky.social, we welcome the approval of the first treatment for MND in the UK in over 30 years
Full statement👇
www.myname5doddie.co.uk/whats-on/art...
Alongside @mndassoc.bsky.social & @mndscotland.bsky.social, we welcome the approval of the first treatment for MND in the UK in over 30 years
Full statement👇
www.myname5doddie.co.uk/whats-on/art...
Reposted by My Name'5 Doddie Foundation
We're proud to partner with @mndoddie5.bsky.social, a driving force in the fight against #MND & #ALS.
As a funder of the #LongitudePrizeOnALS, they're supporting bold new ideas to transform #DrugDiscovery for one of medicine's toughest challenges.
🔗Learn more: bit.ly/457a8zo
As a funder of the #LongitudePrizeOnALS, they're supporting bold new ideas to transform #DrugDiscovery for one of medicine's toughest challenges.
🔗Learn more: bit.ly/457a8zo
July 28, 2025 at 10:17 AM
We're proud to partner with @mndoddie5.bsky.social, a driving force in the fight against #MND & #ALS.
As a funder of the #LongitudePrizeOnALS, they're supporting bold new ideas to transform #DrugDiscovery for one of medicine's toughest challenges.
🔗Learn more: bit.ly/457a8zo
As a funder of the #LongitudePrizeOnALS, they're supporting bold new ideas to transform #DrugDiscovery for one of medicine's toughest challenges.
🔗Learn more: bit.ly/457a8zo
We’re proud to feature in the AMRC's new report on translating research for our jointly funded work with Motor Neurone Disease Association and LifeArc 🤝
@amrc-uk.bsky.social @mndassoc.bsky.social @lifearc.bsky.social
You can view the full report here 👇
bit.ly/4lTL049
@amrc-uk.bsky.social @mndassoc.bsky.social @lifearc.bsky.social
You can view the full report here 👇
bit.ly/4lTL049
July 17, 2025 at 4:05 PM
We’re proud to feature in the AMRC's new report on translating research for our jointly funded work with Motor Neurone Disease Association and LifeArc 🤝
@amrc-uk.bsky.social @mndassoc.bsky.social @lifearc.bsky.social
You can view the full report here 👇
bit.ly/4lTL049
@amrc-uk.bsky.social @mndassoc.bsky.social @lifearc.bsky.social
You can view the full report here 👇
bit.ly/4lTL049
Here, Dr Ruxandra Dafinca who is funded by the Foundation through our 2024 Catalyst Award, gives an insight on her research and its potential impact for identifying new therapeutic targets for MND 🔬
@ruxandradaf.bsky.social @mndoxford.bsky.social @ox.ac.uk
@ruxandradaf.bsky.social @mndoxford.bsky.social @ox.ac.uk
July 16, 2025 at 8:44 AM
Here, Dr Ruxandra Dafinca who is funded by the Foundation through our 2024 Catalyst Award, gives an insight on her research and its potential impact for identifying new therapeutic targets for MND 🔬
@ruxandradaf.bsky.social @mndoxford.bsky.social @ox.ac.uk
@ruxandradaf.bsky.social @mndoxford.bsky.social @ox.ac.uk
Today would have been Doddie's 55th birthday and the community he built is still as strong as ever 💪
July 4, 2025 at 8:08 AM
Today would have been Doddie's 55th birthday and the community he built is still as strong as ever 💪
Friday 4 July would have been Doddie’s 55th birthday and we want to use the day to celebrate the big man and raise awareness of MND by encouraging everyone to wear a little (or a lot) of tartan 💙💛
Get your friends and family involved and don’t forget to snap a pic, share it and tag us! 📸
Get your friends and family involved and don’t forget to snap a pic, share it and tag us! 📸
July 3, 2025 at 1:54 PM
Friday 4 July would have been Doddie’s 55th birthday and we want to use the day to celebrate the big man and raise awareness of MND by encouraging everyone to wear a little (or a lot) of tartan 💙💛
Get your friends and family involved and don’t forget to snap a pic, share it and tag us! 📸
Get your friends and family involved and don’t forget to snap a pic, share it and tag us! 📸