My Name'5 Doddie Foundation
@mndoddie5.bsky.social
Our vision: a world free of MND 💙💛
As proud funders of the UK MND Research Institute, it's great to see all they have accomplished in their first three years 👏
Three years after our launch, we’ve worked tirelessly to understand how and why MND occurs, identify promising treatments, and test them in clinical trials.
Read about what we've achieved, together, in our first three years here: ukmndri.org/2025/12/17/u...
Read about what we've achieved, together, in our first three years here: ukmndri.org/2025/12/17/u...
UK MND RI: Three Years of Progress in MND Research
Celebrating three years in MND research: building infrastructure, accelerating trials, and driving progress toward effective treatments.
ukmndri.org
January 23, 2026 at 2:28 PM
As proud funders of the UK MND Research Institute, it's great to see all they have accomplished in their first three years 👏
Nigel, who is living with MND, is now one of the world’s leading disabled snooker players. He’s taking part in Doddie Aid to raise money for MND research and show that movement - in any form - counts 💙💛
Read about Nigel’s story on our website here 👇
www.myname5doddie.co.uk/whats-on/art...
Read about Nigel’s story on our website here 👇
www.myname5doddie.co.uk/whats-on/art...
January 16, 2026 at 9:14 AM
Nigel, who is living with MND, is now one of the world’s leading disabled snooker players. He’s taking part in Doddie Aid to raise money for MND research and show that movement - in any form - counts 💙💛
Read about Nigel’s story on our website here 👇
www.myname5doddie.co.uk/whats-on/art...
Read about Nigel’s story on our website here 👇
www.myname5doddie.co.uk/whats-on/art...
🚨 Our Catalyst Award is OPEN for applications!
We’re looking for bold, early-stage ideas that need catalytic funding to get off the ground.
🔵 Awards are a maximum of £100k for up to 1 year
🟡 Applications close 27 February
For more details and to apply 👇
www.myname5doddie.co.uk/whats-on/art...
We’re looking for bold, early-stage ideas that need catalytic funding to get off the ground.
🔵 Awards are a maximum of £100k for up to 1 year
🟡 Applications close 27 February
For more details and to apply 👇
www.myname5doddie.co.uk/whats-on/art...
January 13, 2026 at 9:23 AM
🚨 Our Catalyst Award is OPEN for applications!
We’re looking for bold, early-stage ideas that need catalytic funding to get off the ground.
🔵 Awards are a maximum of £100k for up to 1 year
🟡 Applications close 27 February
For more details and to apply 👇
www.myname5doddie.co.uk/whats-on/art...
We’re looking for bold, early-stage ideas that need catalytic funding to get off the ground.
🔵 Awards are a maximum of £100k for up to 1 year
🟡 Applications close 27 February
For more details and to apply 👇
www.myname5doddie.co.uk/whats-on/art...
Reposted by My Name'5 Doddie Foundation
A special edition beer, crafted in honour of the legendary rugby player Doddie Weir, has launched across Aldi stores in Scotland beertoday.co.uk/2026/01/13/c... #beer #beernews @mndoddie5.bsky.social
Cold Town and Aldi collaborate on MND research beer - Beer Today
A special edition beer, crafted in honour of the legendary rugby player Doddie Weir, has launched across Aldi stores in Scotland
beertoday.co.uk
January 13, 2026 at 8:18 AM
A special edition beer, crafted in honour of the legendary rugby player Doddie Weir, has launched across Aldi stores in Scotland beertoday.co.uk/2026/01/13/c... #beer #beernews @mndoddie5.bsky.social
Doddie Beir is now available across all Aldi Scotland stores, cheers to that! 🍻
Every can purchased helps takes us closer to our goal: a world free of MND. We’re hugely grateful for all the support from Aldi and Cold Town Beer.
Every can purchased helps takes us closer to our goal: a world free of MND. We’re hugely grateful for all the support from Aldi and Cold Town Beer.
January 12, 2026 at 2:06 PM
Doddie Beir is now available across all Aldi Scotland stores, cheers to that! 🍻
Every can purchased helps takes us closer to our goal: a world free of MND. We’re hugely grateful for all the support from Aldi and Cold Town Beer.
Every can purchased helps takes us closer to our goal: a world free of MND. We’re hugely grateful for all the support from Aldi and Cold Town Beer.
There's been plenty of snow and ice this week, thankfully 'My Name'5 Doddie Foundation' the gritter is on the case! ❄️
January 9, 2026 at 2:01 PM
There's been plenty of snow and ice this week, thankfully 'My Name'5 Doddie Foundation' the gritter is on the case! ❄️
Whilst many will be clocking up miles for Doddie Aid around their local park or in the gym, Davy, who was diagnosed with MND in 2018, will be logging his on a snowboard - as he is aiming to reach the Milan-Cortina 2026 Winter Paralympics 🏂
January 7, 2026 at 9:17 AM
Whilst many will be clocking up miles for Doddie Aid around their local park or in the gym, Davy, who was diagnosed with MND in 2018, will be logging his on a snowboard - as he is aiming to reach the Milan-Cortina 2026 Winter Paralympics 🏂
As part of our commitment to invest in innovative new approaches to MND research, our Catalyst Award is opening for applications on 13 January. We’re looking for bold, early-stage ideas that need catalytic funding to get off the ground.
More details here: www.myname5doddie.co.uk/research/fun...
More details here: www.myname5doddie.co.uk/research/fun...
December 19, 2025 at 9:28 AM
As part of our commitment to invest in innovative new approaches to MND research, our Catalyst Award is opening for applications on 13 January. We’re looking for bold, early-stage ideas that need catalytic funding to get off the ground.
More details here: www.myname5doddie.co.uk/research/fun...
More details here: www.myname5doddie.co.uk/research/fun...
We’ve just published a report to tell you all about what we’ve been up to in the second year of our research strategy ‘Catalysing a Cure’ - here are the highlights 🔬
For more details and to read the report in full, click below 👇
www.myname5doddie.co.uk/whats-on/art...
For more details and to read the report in full, click below 👇
www.myname5doddie.co.uk/whats-on/art...
December 17, 2025 at 9:26 AM
We’ve just published a report to tell you all about what we’ve been up to in the second year of our research strategy ‘Catalysing a Cure’ - here are the highlights 🔬
For more details and to read the report in full, click below 👇
www.myname5doddie.co.uk/whats-on/art...
For more details and to read the report in full, click below 👇
www.myname5doddie.co.uk/whats-on/art...
Today, we’re sharing the latest update on tofersen. NICE has confirmed the next steps in its assessment for the SOD1 form of MND.
Read all about it here 👇
www.myname5doddie.co.uk/whats-on/art...
Read all about it here 👇
www.myname5doddie.co.uk/whats-on/art...
December 16, 2025 at 1:39 PM
Today, we’re sharing the latest update on tofersen. NICE has confirmed the next steps in its assessment for the SOD1 form of MND.
Read all about it here 👇
www.myname5doddie.co.uk/whats-on/art...
Read all about it here 👇
www.myname5doddie.co.uk/whats-on/art...
It’s been two weeks since Kevin Sinfield’s epic 7 in 7 Challenge for the MND community 💪
We still can’t get over how fantastic the support was when we were in Dundee for the 6th day - everywhere Kev went, there was a sea of blue and yellow tartan cheering him on 💙💛
We still can’t get over how fantastic the support was when we were in Dundee for the 6th day - everywhere Kev went, there was a sea of blue and yellow tartan cheering him on 💙💛
December 15, 2025 at 4:58 PM
It’s been two weeks since Kevin Sinfield’s epic 7 in 7 Challenge for the MND community 💪
We still can’t get over how fantastic the support was when we were in Dundee for the 6th day - everywhere Kev went, there was a sea of blue and yellow tartan cheering him on 💙💛
We still can’t get over how fantastic the support was when we were in Dundee for the 6th day - everywhere Kev went, there was a sea of blue and yellow tartan cheering him on 💙💛
Doddie said “love, fun & hope” should be one of our key pillars. That still guides us today💗💙💛
At our Discovery Network Showcase, researchers, people living with and affected by MND, and industry partners shared what inspires them (love), makes them smile (fun) & gives them hope in MND research
At our Discovery Network Showcase, researchers, people living with and affected by MND, and industry partners shared what inspires them (love), makes them smile (fun) & gives them hope in MND research
December 11, 2025 at 3:43 PM
Doddie said “love, fun & hope” should be one of our key pillars. That still guides us today💗💙💛
At our Discovery Network Showcase, researchers, people living with and affected by MND, and industry partners shared what inspires them (love), makes them smile (fun) & gives them hope in MND research
At our Discovery Network Showcase, researchers, people living with and affected by MND, and industry partners shared what inspires them (love), makes them smile (fun) & gives them hope in MND research
Each year we recognise a number of our supporters who go the extra mile in helping us work towards our vision of a world free of MND - they are our Doddie Champions and they reflect the very best of our community💙💛
Read all about this year’s Champions here: www.myname5doddie.co.uk/whats-on/art...
Read all about this year’s Champions here: www.myname5doddie.co.uk/whats-on/art...
December 4, 2025 at 5:16 PM
Each year we recognise a number of our supporters who go the extra mile in helping us work towards our vision of a world free of MND - they are our Doddie Champions and they reflect the very best of our community💙💛
Read all about this year’s Champions here: www.myname5doddie.co.uk/whats-on/art...
Read all about this year’s Champions here: www.myname5doddie.co.uk/whats-on/art...
Sign up for Doddie Aid 2026 now‼️ doddieaid.com
December 2, 2025 at 12:11 PM
Sign up for Doddie Aid 2026 now‼️ doddieaid.com
We urgently need new treatments for MND and this analysis from the Longitude Prize on ALS demonstrates there's an economic model for developing them. We hope this helps to boost the number of companies globally working towards a world free of MND 💙💛
@ohenews.bsky.social estimates that eradicating ALS could deliver $143B+ in value over 10 years. The potential global value is huge. #ALS and #MND remain underfunded and breakthroughs are urgently needed.
Full report: lnkd.in/e3-DMaiB
Learn more about the Prize bit.ly/4nyp6nq
Full report: lnkd.in/e3-DMaiB
Learn more about the Prize bit.ly/4nyp6nq
November 27, 2025 at 10:37 AM
We urgently need new treatments for MND and this analysis from the Longitude Prize on ALS demonstrates there's an economic model for developing them. We hope this helps to boost the number of companies globally working towards a world free of MND 💙💛
Reposted by My Name'5 Doddie Foundation
'This feels like my time to step up, not just as Doddie’s son, but as someone who wants to carry on what he started'
www.heraldscotland.com/news...
IMAGES: 𝘛𝘩𝘦 𝘏𝘦𝘳𝘢𝘭𝘥 𝘗𝘪𝘤𝘵𝘶𝘳𝘦 𝘈𝘨𝘦𝘯𝘤𝘺
@mndoddie5.bsky.social
www.heraldscotland.com/news...
IMAGES: 𝘛𝘩𝘦 𝘏𝘦𝘳𝘢𝘭𝘥 𝘗𝘪𝘤𝘵𝘶𝘳𝘦 𝘈𝘨𝘦𝘯𝘤𝘺
@mndoddie5.bsky.social
November 25, 2025 at 4:06 PM
'This feels like my time to step up, not just as Doddie’s son, but as someone who wants to carry on what he started'
www.heraldscotland.com/news...
IMAGES: 𝘛𝘩𝘦 𝘏𝘦𝘳𝘢𝘭𝘥 𝘗𝘪𝘤𝘵𝘶𝘳𝘦 𝘈𝘨𝘦𝘯𝘤𝘺
@mndoddie5.bsky.social
www.heraldscotland.com/news...
IMAGES: 𝘛𝘩𝘦 𝘏𝘦𝘳𝘢𝘭𝘥 𝘗𝘪𝘤𝘵𝘶𝘳𝘦 𝘈𝘨𝘦𝘯𝘤𝘺
@mndoddie5.bsky.social
On the third anniversary of Doddie's death, we’re officially launching sign ups for Doddie Aid 2026 with the announcement that Hamish Weir is captaining Team Scotland - keeping his Dad’s legacy alive and pushing for a cure for MND.
Get signed up now 👉 app.doddieaid.com
Get signed up now 👉 app.doddieaid.com
November 26, 2025 at 8:13 AM
On the third anniversary of Doddie's death, we’re officially launching sign ups for Doddie Aid 2026 with the announcement that Hamish Weir is captaining Team Scotland - keeping his Dad’s legacy alive and pushing for a cure for MND.
Get signed up now 👉 app.doddieaid.com
Get signed up now 👉 app.doddieaid.com
We have invested almost £3m to help MND clinical trial centres recruit the staff they need.
When Doddie was diagnosed, he was frustrated at the lack of clinical trials in the UK. Today’s landscape is significantly different and we’re proud to support that 👇
www.myname5doddie.co.uk/whats-on/art...
When Doddie was diagnosed, he was frustrated at the lack of clinical trials in the UK. Today’s landscape is significantly different and we’re proud to support that 👇
www.myname5doddie.co.uk/whats-on/art...
November 18, 2025 at 4:06 PM
We have invested almost £3m to help MND clinical trial centres recruit the staff they need.
When Doddie was diagnosed, he was frustrated at the lack of clinical trials in the UK. Today’s landscape is significantly different and we’re proud to support that 👇
www.myname5doddie.co.uk/whats-on/art...
When Doddie was diagnosed, he was frustrated at the lack of clinical trials in the UK. Today’s landscape is significantly different and we’re proud to support that 👇
www.myname5doddie.co.uk/whats-on/art...
Developing new treatments is essential for MND, but the process is lengthy and people with MND don’t have time to wait.
Repurposing means we can quickly see if any already available treatments could be effective in MND and get them into clinical trials as soon as possible.
Read more👇
Repurposing means we can quickly see if any already available treatments could be effective in MND and get them into clinical trials as soon as possible.
Read more👇
Drug development is a complex and costly process.
By using medicines approved for other conditions, we can overcome barriers in drug development.
Read our blog explaining why we believe repurposed drugs could help us find new treatments for #MND/#ALS.
ukmndri.org/2025/11/13/r...
By using medicines approved for other conditions, we can overcome barriers in drug development.
Read our blog explaining why we believe repurposed drugs could help us find new treatments for #MND/#ALS.
ukmndri.org/2025/11/13/r...
Repurposed Drugs: Accelerating MND Treatment Discovery
Discover how repurposed drugs are helping accelerate the search for effective treatments for MND through innovative UK research.
ukmndri.org
November 14, 2025 at 12:28 PM
Developing new treatments is essential for MND, but the process is lengthy and people with MND don’t have time to wait.
Repurposing means we can quickly see if any already available treatments could be effective in MND and get them into clinical trials as soon as possible.
Read more👇
Repurposing means we can quickly see if any already available treatments could be effective in MND and get them into clinical trials as soon as possible.
Read more👇
Thank you so much for coming! 💙💛
Yesterday, we attended @mndoddie5.bsky.social's Discovery Network Showcase 2025.
Researchers, clinicians, industry partners, and people affected by #MND/#ALS discussed how the network can drive forward progress in better understanding MND and the development of new treatments.
Researchers, clinicians, industry partners, and people affected by #MND/#ALS discussed how the network can drive forward progress in better understanding MND and the development of new treatments.
November 13, 2025 at 2:34 PM
Thank you so much for coming! 💙💛
It was great to visit @patrickalfrynlewis.bsky.social's lab with Nick, who lives with MND, and hear about the work that's been done with funding through our Catalyst Award.
Thank you to everyone helping us support MND research 💙💛
Read the full story here 👇
www.myname5doddie.co.uk/whats-on/art...
Thank you to everyone helping us support MND research 💙💛
Read the full story here 👇
www.myname5doddie.co.uk/whats-on/art...
November 11, 2025 at 12:12 PM
It was great to visit @patrickalfrynlewis.bsky.social's lab with Nick, who lives with MND, and hear about the work that's been done with funding through our Catalyst Award.
Thank you to everyone helping us support MND research 💙💛
Read the full story here 👇
www.myname5doddie.co.uk/whats-on/art...
Thank you to everyone helping us support MND research 💙💛
Read the full story here 👇
www.myname5doddie.co.uk/whats-on/art...
As Scottish Rugby celebrates 100 years of Murrayfield, they’re asking fans to choose the defining moment in the stadium’s history!
For us, there’s only one 💙💛 Doddie’s unforgettable match ball delivery in 2017 - a moment that inspired the nation.
Vote here 👉 scottishrugby.org/murrayfieldm...
For us, there’s only one 💙💛 Doddie’s unforgettable match ball delivery in 2017 - a moment that inspired the nation.
Vote here 👉 scottishrugby.org/murrayfieldm...
November 6, 2025 at 4:35 PM
As Scottish Rugby celebrates 100 years of Murrayfield, they’re asking fans to choose the defining moment in the stadium’s history!
For us, there’s only one 💙💛 Doddie’s unforgettable match ball delivery in 2017 - a moment that inspired the nation.
Vote here 👉 scottishrugby.org/murrayfieldm...
For us, there’s only one 💙💛 Doddie’s unforgettable match ball delivery in 2017 - a moment that inspired the nation.
Vote here 👉 scottishrugby.org/murrayfieldm...
Reposted by My Name'5 Doddie Foundation
“It’s a great example of how a relatively small and short grant has the potential to lead to significant changes in the MND field.”
Charity funding from AMRC member @mndoddie5.bsky.social, is enabling researchers to explore new ways to treat MND – from gene therapy to mini brains.🔬🧠
Charity funding from AMRC member @mndoddie5.bsky.social, is enabling researchers to explore new ways to treat MND – from gene therapy to mini brains.🔬🧠
We’ve spent £2 million on nine new MND research projects through our Advancing Treatments and Catalyst Awards, which all aim to accelerate the search for effective treatments 🔬
Find out more about the projects here 👇
www.myname5doddie.co.uk/whats-on/art...
Find out more about the projects here 👇
www.myname5doddie.co.uk/whats-on/art...
November 6, 2025 at 9:09 AM
“It’s a great example of how a relatively small and short grant has the potential to lead to significant changes in the MND field.”
Charity funding from AMRC member @mndoddie5.bsky.social, is enabling researchers to explore new ways to treat MND – from gene therapy to mini brains.🔬🧠
Charity funding from AMRC member @mndoddie5.bsky.social, is enabling researchers to explore new ways to treat MND – from gene therapy to mini brains.🔬🧠
We’ve spent £2 million on nine new MND research projects through our Advancing Treatments and Catalyst Awards, which all aim to accelerate the search for effective treatments 🔬
Find out more about the projects here 👇
www.myname5doddie.co.uk/whats-on/art...
Find out more about the projects here 👇
www.myname5doddie.co.uk/whats-on/art...
November 5, 2025 at 12:59 PM
We’ve spent £2 million on nine new MND research projects through our Advancing Treatments and Catalyst Awards, which all aim to accelerate the search for effective treatments 🔬
Find out more about the projects here 👇
www.myname5doddie.co.uk/whats-on/art...
Find out more about the projects here 👇
www.myname5doddie.co.uk/whats-on/art...
Taking My Name’5 Doddie to new heights⛰️
Father & son duo Robert and Daniel Holland completed a 16-day trek through Pakistan’s Karakoram mountains, reaching the base camps of Broad Peak & K2 in support of the Foundation & Cash for Kids
Read their story below👇
www.myname5doddie.co.uk/whats-on/art...
Father & son duo Robert and Daniel Holland completed a 16-day trek through Pakistan’s Karakoram mountains, reaching the base camps of Broad Peak & K2 in support of the Foundation & Cash for Kids
Read their story below👇
www.myname5doddie.co.uk/whats-on/art...
November 4, 2025 at 9:12 AM
Taking My Name’5 Doddie to new heights⛰️
Father & son duo Robert and Daniel Holland completed a 16-day trek through Pakistan’s Karakoram mountains, reaching the base camps of Broad Peak & K2 in support of the Foundation & Cash for Kids
Read their story below👇
www.myname5doddie.co.uk/whats-on/art...
Father & son duo Robert and Daniel Holland completed a 16-day trek through Pakistan’s Karakoram mountains, reaching the base camps of Broad Peak & K2 in support of the Foundation & Cash for Kids
Read their story below👇
www.myname5doddie.co.uk/whats-on/art...