#MillionsMissing Aus
@mmissingaus.bsky.social
There are #MillionsMissing from their lives due to ME (Myalgic Encephalomyelitis or #MECFS). We're fighting to make their voices heard. Sadly, many ppl with #LongCovid meet #ME diagnostic criteria - adding many more to the ME ranks.
"Of course the latter is a much larger group ... And of course clinicians need evidence on what is helpful for patients with idiopathic chronic fatigue. But they do not need that evidence to be presented in a document that is purportedly about the illness referred to as CFS/ME." 2/2 #mecfs
September 30, 2025 at 1:58 AM
"Of course the latter is a much larger group ... And of course clinicians need evidence on what is helpful for patients with idiopathic chronic fatigue. But they do not need that evidence to be presented in a document that is purportedly about the illness referred to as CFS/ME." 2/2 #mecfs
Reposted by #MillionsMissing Aus
reverse the long-term debility so many are experiencing.
Until then, we could all use a reminder to stop, rest, and pace. It’s especially hard when there are so many things in this life we’d all like & need to do. #ME/CFS #pwME #LongCOVID #PEM #PESE
@winstonblick.bsky.social
Until then, we could all use a reminder to stop, rest, and pace. It’s especially hard when there are so many things in this life we’d all like & need to do. #ME/CFS #pwME #LongCOVID #PEM #PESE
@winstonblick.bsky.social
August 29, 2025 at 6:29 PM
reverse the long-term debility so many are experiencing.
Until then, we could all use a reminder to stop, rest, and pace. It’s especially hard when there are so many things in this life we’d all like & need to do. #ME/CFS #pwME #LongCOVID #PEM #PESE
@winstonblick.bsky.social
Until then, we could all use a reminder to stop, rest, and pace. It’s especially hard when there are so many things in this life we’d all like & need to do. #ME/CFS #pwME #LongCOVID #PEM #PESE
@winstonblick.bsky.social
Video 2: @davetuller1.bsky.social speaks with Decode ME researcher Prof Chris Ponting about the initial DecodeME findings.
youtu.be/CGUmcB_YIaA?...
youtu.be/CGUmcB_YIaA?...
Interview with Professor Chris Ponting about the DecodeME results.
YouTube video by David M Tuller
youtu.be
August 12, 2025 at 4:48 AM
Video 2: @davetuller1.bsky.social speaks with Decode ME researcher Prof Chris Ponting about the initial DecodeME findings.
youtu.be/CGUmcB_YIaA?...
youtu.be/CGUmcB_YIaA?...
Reposted by #MillionsMissing Aus
Teenagers with severe #MyalgicEncephalomyelitis lie in Australian hospitals for months and years. There is no treatment and nowhere else to go.
Young lives truncated by #MECFS. The situation is desperate.
Young lives truncated by #MECFS. The situation is desperate.
August 10, 2025 at 5:58 AM
Teenagers with severe #MyalgicEncephalomyelitis lie in Australian hospitals for months and years. There is no treatment and nowhere else to go.
Young lives truncated by #MECFS. The situation is desperate.
Young lives truncated by #MECFS. The situation is desperate.
August 5, 2025 at 9:25 AM