#MillionsMissing Aus
@mmissingaus.bsky.social
There are #MillionsMissing from their lives due to ME (Myalgic Encephalomyelitis or #MECFS). We're fighting to make their voices heard. Sadly, many ppl with #LongCovid meet #ME diagnostic criteria - adding many more to the ME ranks.
Authorities considered separating a UK mother from her daughter who was dying of malnutrition due to lack of treatments & systemic mishandling of #mecfs. A painfully similar situation here in Australia. You can change it @markbutlermp.bsky.social @mon4kooyong.bsky.social @racgppresident.bsky.social
August 10, 2025 at 4:38 AM
Authorities considered separating a UK mother from her daughter who was dying of malnutrition due to lack of treatments & systemic mishandling of #mecfs. A painfully similar situation here in Australia. You can change it @markbutlermp.bsky.social @mon4kooyong.bsky.social @racgppresident.bsky.social
If #NDIA lost 3/4 of appeals last yr, why are most applic's from ppl w #mecfs rejected? Because Aus govts, research bodies & medical educators have neglected this devastating disease for decades. Profound disability, no effective treatments, no cure. Ppl w ME/CFS vote! @markbutlermp.bsky.social
February 11, 2025 at 8:14 AM
If #NDIA lost 3/4 of appeals last yr, why are most applic's from ppl w #mecfs rejected? Because Aus govts, research bodies & medical educators have neglected this devastating disease for decades. Profound disability, no effective treatments, no cure. Ppl w ME/CFS vote! @markbutlermp.bsky.social
This directive is chilling. Does it mean researchers couldn't even do a paper on how #mecfs (for example) differs btwn men & women - even though it does? Or maybe they'd have to use the term 'sex', not 'gender'. MAGA's sniggering schoolboy mentality would love that 😫
February 1, 2025 at 11:26 PM
This directive is chilling. Does it mean researchers couldn't even do a paper on how #mecfs (for example) differs btwn men & women - even though it does? Or maybe they'd have to use the term 'sex', not 'gender'. MAGA's sniggering schoolboy mentality would love that 😫
Each Covid infection ⬆️ yr chance of developing #LongCovid. Abt 1/2 of ppl w LC will go on to develop myalgic encephalomyelitis #mecfs, a disabling chronic illness affecting the immune, metabolic, neurological & autonomic systems. 25% of ppl w ME/CFS are bedbound/housebound. Don't join our club!
December 21, 2024 at 6:12 AM
Each Covid infection ⬆️ yr chance of developing #LongCovid. Abt 1/2 of ppl w LC will go on to develop myalgic encephalomyelitis #mecfs, a disabling chronic illness affecting the immune, metabolic, neurological & autonomic systems. 25% of ppl w ME/CFS are bedbound/housebound. Don't join our club!