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milesformigraine.bsky.social
Miles for Migraine
@milesformigraine.bsky.social
32 followers 44 following 33 posts
A community hosting impactful events + programs which foster awareness + raise essential funding for migraine/headache disease.
Posts Replies Media Videos
Reposted by Miles for Migraine
migrainechat.bsky.social
Learn more about #migraine and #IBS, #MCAS, #POTS, & #hEDS at this upcoming talk hosted by @milesformigraine.bsky.social.

Dec. 12, 4:30p ET

#MigraineChat #NEISvoid
Exploring Migraine with IBS, MCAS, POTS, and hEDS (Instagram Live Event)
Learn how migraine interacts with several chronic conditions including POTS, IBS, mast cell activation syndrome, hEDS and more.
www.eventbrite.com
November 16, 2025 at 9:44 PM
Reposted by Miles for Migraine
billtheadvocate.bsky.social
The #purplemanbunproject / purple pony has solved the no pocket protector problem. @miles4migraine

bit.ly/m4mpmb
September 30, 2025 at 8:45 PM
Reposted by Miles for Migraine
billtheadvocate.bsky.social
I dyed

#purplemanbunproject
@miles4migraine

bit.ly/m4mpmb
September 24, 2025 at 9:28 PM
Reposted by Miles for Migraine
jewels3081.bsky.social
Have you supported me and @milesformigraine.bsky.social yet?

Well, get going! I'm really close to my goal! #Migraine
Help Julie raise money for participating in Miles for Migraine - Pennsylvania 2025 on September 28, 2025
Migraine changed the course of my life. I went from a young, ambitious, eager law student to a bedridden shell of myself when Migraine attacks became chronic. Through the help of Dr. Young and Jeffers...
raceroster.com
September 20, 2025 at 2:57 AM
Reposted by Miles for Migraine
billtheadvocate.bsky.social
On Tuesday September 23 hair will be bleached and dyed #purplemanbunproject
@miles4migraine
Donate bit.ly/m4mpmb 😃
September 21, 2025 at 2:19 AM
Reposted by Miles for Migraine
jewels3081.bsky.social
Hey--I went purple again to raise money for #Migraine research! I'm joining @billtheadvocate.bsky.social and @milesformigraine.bsky.social to raise funds for the #Philadelphia Run, Walk, Relax Event. Help us out by donating here: bit.ly/juliem4m25
September 15, 2025 at 8:49 PM
Reposted by Miles for Migraine
clusterbusters.bsky.social
Clusterbusters and Yale University are conducting a brief survey with those who experience cluster headache and have used a specific treatment. Eligibility criteria is on the first page.
survey.alchemer.com/s3/8319518/O...
August 2, 2025 at 5:12 PM
Reposted by Miles for Migraine
billtheadvocate.bsky.social
Dr Gottschalk and I having a “Bun-off” at @clusterbusters.bsky.social in Dallas
#purplemanbunproject
@milesformigraine.bsky.social
September 12, 2025 at 3:22 PM
Reposted by Miles for Migraine
billtheadvocate.bsky.social
Making progress toward the goal
Please help and donate:
bit.ly/m4mpmb

#purplemanbunproject
@milesformigraine.bsky.social
September 12, 2025 at 5:06 PM
milesformigraine.bsky.social
We are excited to announce the launch of our new initiative, Miles for Women’s Health, dedicated to supporting women navigating migraine + other chronic health conditions.

Learn More:

www.milesformigraine.org/migraine-edu...
Introducing Miles For Women’s Health Women living with migraine and other headache disorders are often navigating much more than one condition. Research shows that migraine frequently coexists with a range of chronic diseases, including asthma, other pain conditions, depression, anxiety, autoimmune conditions, sleep disorders, and more. This overlapping burden means women are managing not only the debilitating symptoms of migraine, but also multiple other health challenges that impact their quality of life. This becomes even more confusing because all women will experience perimenopause and menopause, and the complication of hormones and migraine is overwhelming. Despite this complexity, most women do not receive coordinated or comprehensive care. These conditions are often treated in isolation, each one addressed by a different specialist or clinic, with little to no integration. Primary care providers, though well-intentioned, are often too overwhelmed by patient volume and administrative demands to provide the coordination and continuity women need across their health conditions. To make matters worse, women are typically caregivers in their families and often work full-time. Many of the women in our community report having three or more chronic conditions—and still being expected to manage work, caregiving, and household responsibilities. They simply do not have the time or energy to navigate a fragmented and confusing healthcare system on their own. That’s why we are creating Miles for Women’s Health. To kick off this initiative, we are hosting a national Women’s Health Summit, where experts will speak on the conditions women commonly face, the barriers of fragmented care, and ways to build coordinated solutions for a more supportive healthcare journey. Our mission is to walk alongside women in their health journeys, offering the support, tools, and connection they need to feel seen, heard, and well at every stage of life.
September 11, 2025 at 4:57 PM
Reposted by Miles for Migraine
jewels3081.bsky.social
Check @billtheadvocate.bsky.social out. Donate to his #PurpleManBunProject team for the #Philadelphia @milesformigraine.bsky.social event today! bit.ly/m4mpmb
September 9, 2025 at 9:47 PM
Reposted by Miles for Migraine
jewels3081.bsky.social
#Migraine peeps--this is my doc. He has been growing his hair so he can wear a purple man bun at the #Philadelpia @milesformigraine.bsky.social Run, Walk, Relax Event. We have to raise a bunch of 💲💲! His team is the #PurpleManBunProject, & funds raised will go to Jefferson Headache Center.
August 20, 2025 at 6:02 AM
Reposted by Miles for Migraine
jewels3081.bsky.social
This is my #Migraine doc, Dr. Young.He believes in wearing his advocacy. He's been growing his hair so he can have a #PurpleManBun at Philly's @milesformigraine.bsky.social event. He's got a big goal to meet to raise $ for Migraine research, and he needs our help! Please donate. donorbox.org/billpmb
August 4, 2025 at 12:57 PM
milesformigraine.bsky.social
Join our hosts Alicia and Dino Migliazzo on Saturday, June 22 at 1pm ET for a free, virtual cooking class featuring bold, garden-fresh flavors and three of their favorite recipes:

🍅 Zesty Homemade Salsa
🍗 Creamy Pollo a La Crema
🍚 Fluffy Mexican Rice
Miles for Migraine Presents: Cooking Fresh From the Garden Cook along with us or just watch and enjoy to learn some new techniques. Virtual Social Event June 22nd at 1pm ET Free sign up!
June 13, 2025 at 11:56 AM
Reposted by Miles for Migraine
migrainecanada.bsky.social
Today was the kick off of the EMHA (European Migraine and Headache Alliance) conference in Brussels. Proud to have Canada involved with global patient organizations to share and learn. Today we visited the EU Parliament for a tour. More to come with a full day of meetings Thursday and Friday.
June 11, 2025 at 9:32 PM
Reposted by Miles for Migraine
migrainecanada.bsky.social
Join our Move for Migraine Calgary Walk! Save the date!

🗓️ June 7
⏰ 9:30 AM Mountain Time
📍 Bowness Park, in front of Seasons of Bowness Restaurant.

Option for a 5 or 7Km walk.

Remember to record your steps at: https://migrainecanada.org/move-for-migraine/
June 4, 2025 at 8:09 PM
Reposted by Miles for Migraine
migrainechat.bsky.social
#MigraineChat #NEISvoid

Please give me your favorite fragrance-free shampoos and conditioners recs. Bonus if they're very moisturizing. TY.
June 5, 2025 at 3:23 PM
milesformigraine.bsky.social
Migraine is not “just a headache”

Help us raise awareness and learn more by visiting: migraineheadacheawarenessmonth.org

#mham
Migraine, Not Just Head Pain Facial Tenderness/Sensitivity/Pain - Scalp Tenderness/Sensitivity/Pain - Neck Stiffness, Aching or Pain - Brain Fog - Gastrointestinal Changes (Nausea, Diarrhea, Constipation) - Food Cravings - Changes in Mood (Depression, Euphoria) - Irritability - Difficulty Concentrating - Increased Thirst - Increased Urination - Frequent Yawning - Fatigue - Difficulty Sleeping - Sensitivity to Light or Sound - Difficulty Reading or Speaking - Hyperactivity - Blind Spots (Outlined with Geometric Designs) - Shimmering Stars or Spots - Zigzag Lines Floating Across Vision - Flashes of Light - Temporary Vision Loss - Abdominal Pain - Smell Sensitivity - Ear Pain - Ringing in Ears - Vomiting - Nasal Congestion - Runny Nose - Pain with Light Touch - Dizziness - Motion Intolerance - Vertigo (Spinning) - Phantom Smells - Sinus Pressure/Pain - Jaw (TMJ) Pain - Tooth Pain - Difficulty Finding Words - Loss of Balance - Disorientation and Rocking - Joint Pain and Stiffness Invisible Disease, Real Symptoms. Blind Spots | Brain Fog | Mood Swings | Difficulty Concentrating | Trouble Reading Or Speaking | Insomnia | Fatigue | Facial Pain Or Tenderness | Light Flashes | Food Cravings | Frequent Yawning | Nausea Or Digestive Issues | Hyperactivity | Increased Thirst | Frequent Urination | Irritability | Neck Pain Or Stiffness | Scalp Sensitivity | Light Or Sound Sensitivity | Shimmering Spots | Temporary Vision Loss | Zigzag Lines Drifting Across Your Vision | Blind Spots | Brain Fog | Mood Swings | Difficulty Concentrating | Trouble Reading Or Speaking | Insomnia | Fatigue | Facial Pain Or Tenderness | Light Flashes | Food Cravings | Frequent Yawning | Nausea Or Digestive Issues | Hyperactivity | Increased Thirst | Frequent Urination | Irritability | Neck Pain Or Stiffness | Scalp Sensitivity | Light Or Sound Sensitivity | Shimmering Spots | Temporary Vision Loss
June 4, 2025 at 1:16 PM
milesformigraine.bsky.social
“It’s time for Congress to prioritize migraine as a national health issue—by funding research, ensuring access to diagnosis and treatment through increased screening, and supporting legislation like the HEADACHE Act.”

www.realclearhealth.com/articles/202...
The Price of Pain
Every year, millions of Americans—most of them women—suffer in silence from a disease that is often dismissed as
www.realclearhealth.com
May 30, 2025 at 6:30 PM
Reposted by Miles for Migraine
chronicmigrainecma.bsky.social
We’re honored to welcome Qasim Amin Nathari to #ComorbidityCon, where he’ll lead a powerful session on “Challenges Facing Black Men in Diagnosis and Treatment.”
Qasim brings deep insight and lived experience to the intersection of race, gender, and chronic illness.
May 26, 2025 at 2:16 PM
milesformigraine.bsky.social
Did you know that anxiety is up to five times more common in people with migraine? The uncertainty of when a migraine attack might strike often leads to tension and worry—ironically increasing the likelihood of another episode.

milesformigraine-org.zoom.us/meeting/regi...
Welcome! You are invited to join a meeting: Miles for Migraine - Unwinding Anxiety for Migraine. After registering, you will receive a confirmation email about joining the meeting.
Did you know that anxiety is up to five times more common in people with migraine? The uncertainty of when a migraine attack might strike often leads to tension and worry—ironically increasing the lik...
milesformigraine-org.zoom.us
May 18, 2025 at 5:56 PM
milesformigraine.bsky.social
Having difficulty sleeping due to migraine? Want to learn strategies for better sleep? 😴

At our upcoming event, Dr. Gregory Amatrudo will dive into the connection between sleep and migraine.

Join us online or in-person, Sunday June 8th for this free event.

www.milesformigraine.org/migraine-edu...
May 12, 2025 at 2:21 PM
milesformigraine.bsky.social
Join us for the 10th Annual Illinois Walk/Run/Relax Event in Chicago on Saturday, June 7th!

This special day is more than just a 5K — it’s a chance to connect, learn from one another, and share your story.

Walk, run, or relax — every step makes a difference.

Sign up: CHI.MilesForMigraine.Org
Two people with arms in the air standing in front of the Miles for Migraine start finish arch with their purple miles for migraine t-shirts and shades for migraine sunglasses. Text: miles for migraine Illinois, Saturday 6/7 @ 9:30am, Diversey Harbor, Chicago, CHI.MilesForMigraine.Org
May 6, 2025 at 12:15 PM
milesformigraine.bsky.social
The U.S. Food and Drug Administration (FDA) has approved a 505(b)(2) New Drug Application (NDA) for Atzumi™ (dihydroergotamine (DHE)) nasal powder for the acute treatment of migraine with or without aura in adults. Atzumi was previously known as STS101.
May 3, 2025 at 12:42 PM
milesformigraine.bsky.social
Do you live with multiple chronic conditions? If so you're not alone. Learn more:
Research & Resilience Blog — CODA
Follow CEO Amy Rochlin’s blog for personal insights, scientific discovery, and updates on CODA’s mission. Her professional experience in driving research nonprofit success collides with her personal m...
www.complexdisorders.org
May 1, 2025 at 11:22 AM