MG
@mg-10.bsky.social
Love nature, good views, crafty/arty stuff, dogs, watching cycling 🚴.
M.E. Advocacy when I’m able to. Intersectional feminist 🏳️🌈♿️
M.E. Advocacy when I’m able to. Intersectional feminist 🏳️🌈♿️
Reposted by MG
1️⃣ Visible Health has launched a local clinical trial feature. One of the first surfacing to users is an ACT (Acceptance & Commitment Therapy) trial led by Trudie Chalder, a researcher whose work has been highly controversial in ME. This raises important patient-safety concerns.
December 6, 2025 at 8:07 PM
1️⃣ Visible Health has launched a local clinical trial feature. One of the first surfacing to users is an ACT (Acceptance & Commitment Therapy) trial led by Trudie Chalder, a researcher whose work has been highly controversial in ME. This raises important patient-safety concerns.
Reposted by MG
Sporza: "You're the first one to win the Strade in the Rainbow Jersey, how does that feel?"
Pogi: "I don't know why everyone keeps saying this, because if I remember well Lotte Kopecky won here last year."
That's what we call a worthy worldchampion!!! 🌈🙏
Pogi: "I don't know why everyone keeps saying this, because if I remember well Lotte Kopecky won here last year."
That's what we call a worthy worldchampion!!! 🌈🙏
March 8, 2025 at 5:42 PM
Sporza: "You're the first one to win the Strade in the Rainbow Jersey, how does that feel?"
Pogi: "I don't know why everyone keeps saying this, because if I remember well Lotte Kopecky won here last year."
That's what we call a worthy worldchampion!!! 🌈🙏
Pogi: "I don't know why everyone keeps saying this, because if I remember well Lotte Kopecky won here last year."
That's what we call a worthy worldchampion!!! 🌈🙏
“What is equivalent to the purchase price of a house in London?
It’s the annual investment by the UK government in myalgic encephalomyelitis”
(from the article below by Hillary Johnson)
It’s the annual investment by the UK government in myalgic encephalomyelitis”
(from the article below by Hillary Johnson)
In Sympathy with the Beleaguered UK
A failed response to ME continues to play out in a country with a venerable legacy of ME research
hillaryjohnson.substack.com
February 26, 2025 at 10:34 AM
“What is equivalent to the purchase price of a house in London?
It’s the annual investment by the UK government in myalgic encephalomyelitis”
(from the article below by Hillary Johnson)
It’s the annual investment by the UK government in myalgic encephalomyelitis”
(from the article below by Hillary Johnson)
Reposted by MG
🎥 Today we’re launching our #FundThePlan campaign!
With over a month until the delivery plan is finalised, ministers can still reconsider the resources behind it.
We want to show them why it is important to #FundThePlan.
Share a video on social media using our template ⬇️
With over a month until the delivery plan is finalised, ministers can still reconsider the resources behind it.
We want to show them why it is important to #FundThePlan.
Share a video on social media using our template ⬇️
![“Script: Dear Wes & Ashley, My name is [...] and I have ME. I used to [...]. Now I can’t [...] The Delivery Plan for ME is an opportunity to invest in our future and reverse generations of neglect. So please, fund the plan.”](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:wjbaponwuqichcsh2fiwono5/bafkreiabltmz3fvjbcanakfzgyloxps5wjyzrvmgqw67mzkwte6dkyp6tu@jpeg)
February 21, 2025 at 9:04 AM
🎥 Today we’re launching our #FundThePlan campaign!
With over a month until the delivery plan is finalised, ministers can still reconsider the resources behind it.
We want to show them why it is important to #FundThePlan.
Share a video on social media using our template ⬇️
With over a month until the delivery plan is finalised, ministers can still reconsider the resources behind it.
We want to show them why it is important to #FundThePlan.
Share a video on social media using our template ⬇️
Reposted by MG
Both Giro routes & reaction condensed into a 12 minute Gruppetto special edition. No political or organisational speeches or delays here 😂 youtu.be/xQIsMTaTclo?...
Gravel goodness & a HUGE final week in Italy: 2025 Giro d'Italia Routes Revealed | The Gruppetto
YouTube video by Eurosport Cycling
youtu.be
January 14, 2025 at 9:14 PM
Both Giro routes & reaction condensed into a 12 minute Gruppetto special edition. No political or organisational speeches or delays here 😂 youtu.be/xQIsMTaTclo?...
Reposted by MG
Full Giro d'Italia men's route.
Two ITTs, two big climbing stages 19 and 20 before a sprint in Roma to conclude.
Cima Coppi on stage 20 - Colle delle Finestre ⤵️
Two ITTs, two big climbing stages 19 and 20 before a sprint in Roma to conclude.
Cima Coppi on stage 20 - Colle delle Finestre ⤵️
January 13, 2025 at 6:47 PM
Full Giro d'Italia men's route.
Two ITTs, two big climbing stages 19 and 20 before a sprint in Roma to conclude.
Cima Coppi on stage 20 - Colle delle Finestre ⤵️
Two ITTs, two big climbing stages 19 and 20 before a sprint in Roma to conclude.
Cima Coppi on stage 20 - Colle delle Finestre ⤵️
Reposted by MG
We’d like to say a HUGE thank you to everyone for helping us achieve so much this year. You have helped us create the largest cohort of ME/CFS in the world & we're now deep into analysing the data! We anticipate the DNA analysis to be complete by the middle of next year. #DecodeME #MECFS #pwME
December 13, 2024 at 12:28 PM
Reposted by MG
#MaeveInquest update! All credit to NHS Devon for innovating the first step towards an ME specific NHS pathway. For planned and unplanned hospital admissions, details are now public and available here, www.royaldevon.nhs.uk/services/mya...
NHS Royal Devon | Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS)
www.royaldevon.nhs.uk
December 11, 2024 at 5:08 PM
#MaeveInquest update! All credit to NHS Devon for innovating the first step towards an ME specific NHS pathway. For planned and unplanned hospital admissions, details are now public and available here, www.royaldevon.nhs.uk/services/mya...
A really excellent video by Adam (reposted below) detailing the history of ME. A really important watch.
November 22, 2024 at 10:05 AM
A really excellent video by Adam (reposted below) detailing the history of ME. A really important watch.
Reposted by MG
New Video: @georgemonbiot.bsky.social describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". The video explores the impact of ineffective & harmful treatments & how they were defended by the scientific & media establishment.
youtu.be/RiwX9Y0NbiQ?...
youtu.be/RiwX9Y0NbiQ?...
ME/CFS Scandal Explainer (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)
YouTube video by Broken Battery
youtu.be
November 21, 2024 at 12:42 PM
New Video: @georgemonbiot.bsky.social describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". The video explores the impact of ineffective & harmful treatments & how they were defended by the scientific & media establishment.
youtu.be/RiwX9Y0NbiQ?...
youtu.be/RiwX9Y0NbiQ?...
Happy to be here rather than … (whispers) over there 👀. Finding my way around & looking forward to connecting with other M.E. folks in particular 👋 😁
Please sign this open letter by @alexisme.bsky.social
Please sign this open letter by @alexisme.bsky.social
Letter to ME Association regarding comments made by their chairman
If you would like to sign please add your name below.
You can read the original column this is responding to here: https://bit.ly/MEAcolumn
Dear ME Association
We are writing to you as patients wi...
docs.google.com
November 19, 2024 at 12:42 PM
Happy to be here rather than … (whispers) over there 👀. Finding my way around & looking forward to connecting with other M.E. folks in particular 👋 😁
Please sign this open letter by @alexisme.bsky.social
Please sign this open letter by @alexisme.bsky.social