It’s a huge change for many and a major loss for the neurodivergent community.
It’s a huge change for many and a major loss for the neurodivergent community.
So here's an extremely brief update:
With some intense interventions and total change of medications, things are much, much better. Shockingly better.
So here's an extremely brief update:
With some intense interventions and total change of medications, things are much, much better. Shockingly better.
Which makes me think...if any of the companies I've worked for even once showed true generosity to me, I'd have likely stuck with them for life.
It's sad that work is so transactional.
Which makes me think...if any of the companies I've worked for even once showed true generosity to me, I'd have likely stuck with them for life.
It's sad that work is so transactional.
I definitely did not title that presentation correctly, but I guess then-me couldn't know what 2024 was going to be like.
I definitely did not title that presentation correctly, but I guess then-me couldn't know what 2024 was going to be like.
My son is fully out of school until further notice. I am fully off of work until at least the new year.
Things continue to get harder every day despite seeing the impacts of new medications.
We are having conversations we never wanted to even consider.
My son is fully out of school until further notice. I am fully off of work until at least the new year.
Things continue to get harder every day despite seeing the impacts of new medications.
We are having conversations we never wanted to even consider.
Couple that with the hopelessness we feel about the lack of outside support, and it's starting to feel like there is literally no way to crawl out of this.
Couple that with the hopelessness we feel about the lack of outside support, and it's starting to feel like there is literally no way to crawl out of this.
A few days ago I was advocating to have him sent to a full time mental health facility.
I never know what's right. Am often wrong. And am thankful for the good moments we have along the way.
A few days ago I was advocating to have him sent to a full time mental health facility.
I never know what's right. Am often wrong. And am thankful for the good moments we have along the way.
🖖
🖖
The hospital handed us some pamphlets and said "good luck." Unless we wanted him committed for a week with none of his supports, there was nothing for us
The hospital handed us some pamphlets and said "good luck." Unless we wanted him committed for a week with none of his supports, there was nothing for us
The father was a real ass and both parents didn't really understand autism very well.
But I felt so seen.
The father was a real ass and both parents didn't really understand autism very well.
But I felt so seen.
His BCBA there saw he was having a great day and wanted to end on a high note so he was more likely to return happily.
It's not often school staff gets it. Embrace and celebrate the ones that do.
His BCBA there saw he was having a great day and wanted to end on a high note so he was more likely to return happily.
It's not often school staff gets it. Embrace and celebrate the ones that do.
You will all fall into an echo chamber of mediocrity if BS doesn't open up. You'll slowly erode into another forgotten social platform.
You will all fall into an echo chamber of mediocrity if BS doesn't open up. You'll slowly erode into another forgotten social platform.
The lived experience in these spaces can be so isolating and overwhelming - but they don't have to be if we can just connect and share.
The lived experience in these spaces can be so isolating and overwhelming - but they don't have to be if we can just connect and share.
We both know it's misdirection and it's an unspoken agreement that we both act like it really hurts.
#PDAautism #autismparenting
We both know it's misdirection and it's an unspoken agreement that we both act like it really hurts.
#PDAautism #autismparenting
We have a plan in place for him to finally resume Thursday.
This has to work - if not, I'm worried he will be out indefinitely. 😬
We have a plan in place for him to finally resume Thursday.
This has to work - if not, I'm worried he will be out indefinitely. 😬
How do I find the neurodivergent pockets? I need my autism memes and ND parent diatribes.
My entire family is ND and I spend all of my available energy advocating for them and want to know where everyone else is doing the same!
How do I find the neurodivergent pockets? I need my autism memes and ND parent diatribes.
My entire family is ND and I spend all of my available energy advocating for them and want to know where everyone else is doing the same!