What’s frightening to me is how many deaths we don’t know about.

I think I see the most memoriam posts from Europe, but #MECFS is everywhere.

How many people are dying in countries less well represented in the ME community?

I have no words yet I feel like screaming.

We are losing so many people. Every single week I see blue hearts and candles from others in the community for those who have passed, often multiple times in a week.

These diseases KILL.

#MECFS #LongCovid

1/4

when someone tells you to go to hell but you already have myalgic encephalomyelitis

you can not just "power through" myalgic encephalomyelitis. there is no "just work through the pain". pain isn't the problem. it's energy capacity.

if you exceed your threshold, myalgic encephalomyelitis will claw back your capacity to work, your capacity to move, your capacity to speak.

the next person who calls me a parasite for not being able to work because of my disabilities is getting run over by me and my wheelchair

may every trans child grow into a trans adult

mie vihaan yleensä postata suomeks koska englanniks kirjottaminen tuntuu miulle niin paljon luonnollisemmalta tavalta kommunikoida mut en osaa sanottaa tätä millään muullakaan kielellä joten tässä pieni ketju siitä kuinka helvetin hankalaa miulla on ollu viime aikoina

i've been trying to make a zine in my bed but everything hurts so bad that crafting anything might just be too rough on my body for the time being

the indigenous struggle is real i'm getting increasingly frustrated by not being able to fully understand karelian even though i'm desperate to connect with my people and our culture but i can't afford classes not to mention studying isn't compatible with me/cfs related cognitive difficulties

not to be a killjoy but artificial intelligence generated art is deeply unethical and even just joining silly social media trends is part of the problem

currently obsessed with mask chains and other safe ways to decorate your respirator

i’ve never even visited aotearoa and i’m quite literally from the other side of the world but i still can’t stop thinking about hana-rāwhiti maipi-clarke performing the haka together with other māori lawmakers in order to protest and resist dangerous colonist bullshit in nz parliament

just a reminder that disability justice and the liberation of palestine are intertwined – you can’t fight zionism by being ableist without hurting the very people you claim to be trying to protect

born to watch horror films, forced to do things that aren’t watching horror films