MEnaced
MEnaced
@menaced.bsky.social
for when the birdapp goes down for good
(Severe ME)
Deze petitie staat nu op 975 handtekeningen en stagneert erg. Er zijn natuurlijk meer dan 975 mensen en hun geliefden geschaad door CGT en GET dus TEKEN alsjeblieft en vraag je naasten ook te tekenen. www.petitie24.nl/petitie/5706...
February 27, 2025 at 10:58 PM
Reminder for #pwME and allies to sign this petition. Around 300 signatures atm whereas over a 1000 people signed the previous one.

www.change.org/p/me-associa...
Sign the Petition
ME Association Chair Neil Riley must step down
www.change.org
December 5, 2024 at 1:19 PM
Reposted by MEnaced
Anyone concerned about the recent ME Association article can add their name to this excellent letter by @alexisme.bsky.social. #pwME #MECFS
After an article by the chairman of the ME Association I’ve drafted a letter. You can add your name to the bottom or DM me l'll add it. I've written it from patients but if you're a carer, ally or health professional, just note after your name eg (Carer for pwME etc)
docs.google.com/document/d/1...
Letter to MEA Nov 2024
If you notice any errors, please correct them but track changes so I can see them. Dear ME Association We are writing to you as patients with ME. We were shocked and offended to read the editorial...
docs.google.com
November 18, 2024 at 2:08 PM
Any #pwME in Europe tips for OTC skin cream against itchiness and irritation? (Courtesy of being bedbound)
November 17, 2024 at 8:36 AM
Reposted by MEnaced
Nederlanders met #MECVS, stuur je ervaring met CGT en/of GET in vóór 1 januari. Deze zullen als zwartboek worden aangeboden aan de Tweede Kamer.
November 14, 2024 at 1:43 PM
Nederlanders met #MECVS, stuur je ervaring met CGT en/of GET in vóór 1 januari. Deze zullen als zwartboek worden aangeboden aan de Tweede Kamer.
November 14, 2024 at 1:43 PM
Okay probably going to ditch the other app because of the constant onslaught on disabled and covid conscious people by so-called leftists, jeez
November 13, 2024 at 9:55 AM
I couldn’t find a setting to make the font smaller, is there none or is it brainfog?
Swiping here takes me much more than on the other app
October 7, 2023 at 7:51 PM
Reposted by MEnaced
Hello! We're so glad that you've joined us here. If you're new to us, we are Open Medicine Foundation (OMF). We're driving ME/CFS and Long COVID research forward with the end goal of finding effective treatments and a cure. Learn more about us at www.omf.ngo.
October 4, 2023 at 6:10 PM