Em
@medays.bsky.social
(She/her) ME, hEDS, adeno ~ surviving being housebound with birds, books, embroidery ~ still masking 😷
#pwME #MillionsMissing
#pwME #MillionsMissing
Reposted by Em
Please sign and share the petition to stop a patient with Very Severe ME being forced to take inappropriate antipsychotic meds and detained because they can’t get out of bed.
bit.ly/linepetition
bit.ly/linepetition
January 20, 2025 at 1:15 PM
Please sign and share the petition to stop a patient with Very Severe ME being forced to take inappropriate antipsychotic meds and detained because they can’t get out of bed.
bit.ly/linepetition
bit.ly/linepetition
Reposted by Em
Another thing that scares me is that among the 11,785 infected participants, 4692 (39.8%) were “ME/CFS-like, w/ at least one ME/CFS symptom.” My friends & I talk often about how we were “ME/CFS-like” for years before we got sick enough to actually meet the criteria
4.5% rate of ME/CFS post Covid infection.
If you know how bad ME/CFS is, you know that’s a terrifying statistic.
If you know how bad ME/CFS is, you know that’s a terrifying statistic.
2/
Blog post on this study "COVID-19 Triggers ME/CFS" by Suzanne D. Vernon, PhD
batemanhornecenter.org/covid-19-tri...
"531 participants met ME/CFS criteria, translating to a prevalence of 4.5% among those infected—nearly eight times higher than uninfected participants."
#CFS #PwME
Blog post on this study "COVID-19 Triggers ME/CFS" by Suzanne D. Vernon, PhD
batemanhornecenter.org/covid-19-tri...
"531 participants met ME/CFS criteria, translating to a prevalence of 4.5% among those infected—nearly eight times higher than uninfected participants."
#CFS #PwME
January 14, 2025 at 1:47 AM
Another thing that scares me is that among the 11,785 infected participants, 4692 (39.8%) were “ME/CFS-like, w/ at least one ME/CFS symptom.” My friends & I talk often about how we were “ME/CFS-like” for years before we got sick enough to actually meet the criteria
Reposted by Em
If you’re still masking - thank you.
If you’re still trying to convince others to mask - thank you.
If you understand the benefit of a well fitted respirator - you’re awesome.
Masking isn’t just a way to safeguard one’s health. It’s an act of solidarity with disabled & marginalized communities.
If you’re still trying to convince others to mask - thank you.
If you understand the benefit of a well fitted respirator - you’re awesome.
Masking isn’t just a way to safeguard one’s health. It’s an act of solidarity with disabled & marginalized communities.
January 14, 2025 at 5:16 AM
If you’re still masking - thank you.
If you’re still trying to convince others to mask - thank you.
If you understand the benefit of a well fitted respirator - you’re awesome.
Masking isn’t just a way to safeguard one’s health. It’s an act of solidarity with disabled & marginalized communities.
If you’re still trying to convince others to mask - thank you.
If you understand the benefit of a well fitted respirator - you’re awesome.
Masking isn’t just a way to safeguard one’s health. It’s an act of solidarity with disabled & marginalized communities.
Reposted by Em
2/
Blog post on this study "COVID-19 Triggers ME/CFS" by Suzanne D. Vernon, PhD
batemanhornecenter.org/covid-19-tri...
"531 participants met ME/CFS criteria, translating to a prevalence of 4.5% among those infected—nearly eight times higher than uninfected participants."
#CFS #PwME
Blog post on this study "COVID-19 Triggers ME/CFS" by Suzanne D. Vernon, PhD
batemanhornecenter.org/covid-19-tri...
"531 participants met ME/CFS criteria, translating to a prevalence of 4.5% among those infected—nearly eight times higher than uninfected participants."
#CFS #PwME
COVID-19 Triggers ME/CFS
The emergence of SARS-CoV-2, the virus responsible for COVID-19, swept across the globe with an unparalleled speed and severity. As a researcher dedicated to understanding how viral infections lead to...
batemanhornecenter.org
January 13, 2025 at 4:43 PM
2/
Blog post on this study "COVID-19 Triggers ME/CFS" by Suzanne D. Vernon, PhD
batemanhornecenter.org/covid-19-tri...
"531 participants met ME/CFS criteria, translating to a prevalence of 4.5% among those infected—nearly eight times higher than uninfected participants."
#CFS #PwME
Blog post on this study "COVID-19 Triggers ME/CFS" by Suzanne D. Vernon, PhD
batemanhornecenter.org/covid-19-tri...
"531 participants met ME/CFS criteria, translating to a prevalence of 4.5% among those infected—nearly eight times higher than uninfected participants."
#CFS #PwME
Reposted by Em
Like, PEM isn’t a feature of other conditions. It’s something we see in ME. That’s basically it. People may *screen positive for bits and pieces* of PEM in other conditions. People may have ME *and* another condition, but it’s very important we’re clear that PEM isn’t a part of other conditions.
December 19, 2024 at 3:26 AM
Like, PEM isn’t a feature of other conditions. It’s something we see in ME. That’s basically it. People may *screen positive for bits and pieces* of PEM in other conditions. People may have ME *and* another condition, but it’s very important we’re clear that PEM isn’t a part of other conditions.