Maureen Smith 🇨🇦
@maureenchats.bsky.social
Passionate about patient/citizen engagement, teacher @ heart, rare disease advocate, Adjunct Professor, U of Toronto DLSPH, Canada’s Drug Agency Board member, INFORM RARE, McMaster Health Forum Citizen Partner, IMPaCT Trials, SPOR Evidence Alliance
Great to see this update has added perspectives « It builds up on a 2014 scoping review by our team and aims to enhance the usability, completeness, and transparency of NMA reporting for diverse audiences, including patients and the public. » @sporalliance.bsky.social
Updating the PRISMA reporting guideline for network meta-analysis: a scoping review - Journal of Clinical Epidemiology www.jclinepi.com/article/S089...
Updating the PRISMA reporting guideline for network meta-analysis: a scoping review
This scoping review is the first step in updating the Preferred Reporting Items for
Systematic Reviews and Meta-Analyses (PRISMA) extension for network meta-analysis
(NMA). It builds up on a 2014 scop...
www.jclinepi.com
September 29, 2025 at 1:54 AM
Great to see this update has added perspectives « It builds up on a 2014 scoping review by our team and aims to enhance the usability, completeness, and transparency of NMA reporting for diverse audiences, including patients and the public. » @sporalliance.bsky.social
Reposted by Maureen Smith 🇨🇦
Patients are the actual end users of medical research. Patient partners improve researcher understanding of the real life priorities and impact of their work.
myheartsisters.org/2021/08/01/u...
myheartsisters.org/2021/08/01/u...
Why patients don’t have admin assistants
Are patient partners in healthcare research and education appreciated as people with varied skills and life experiences? Dr. Dawn Richards says NO. @TO_dpr @tatterededge
myheartsisters.org
August 24, 2025 at 2:28 AM
Patients are the actual end users of medical research. Patient partners improve researcher understanding of the real life priorities and impact of their work.
myheartsisters.org/2021/08/01/u...
myheartsisters.org/2021/08/01/u...
It’s never too late to join the fun! Ranking top 5 is up next.
📣 Stage 2 of #ThePeoplesReview is paused (for now)!
✅193 people voted in Round 1 🙌
🔜Next up: YOU’ll rank the top 5 questions to decide our final review question
🎥 Find out why we use two rounds: buff.ly/ApRsclN
Sign up to #ThePeoplesReview here:
👉 buff.ly/avtkBZ4
✅193 people voted in Round 1 🙌
🔜Next up: YOU’ll rank the top 5 questions to decide our final review question
🎥 Find out why we use two rounds: buff.ly/ApRsclN
Sign up to #ThePeoplesReview here:
👉 buff.ly/avtkBZ4
June 6, 2025 at 12:16 PM
It’s never too late to join the fun! Ranking top 5 is up next.
Reposted by Maureen Smith 🇨🇦
It's International #ClinicalTrials Day. Thanks to everyone who contributes to clinical trials 🙏.
And an article co-written with patients on the research ethics review in 🇨🇦 - our thoughts and hopes for the future - healthydebate.ca/2025/05/topi... @healthydebate.bsky.social
And an article co-written with patients on the research ethics review in 🇨🇦 - our thoughts and hopes for the future - healthydebate.ca/2025/05/topi... @healthydebate.bsky.social
How do patients feel about research ethics review? - Healthy Debate
Research ethics reviews in Canada have come under the media spotlight, with claims the process is exploitative and calls for innovation or reform.
healthydebate.ca
May 20, 2025 at 2:27 PM
It's International #ClinicalTrials Day. Thanks to everyone who contributes to clinical trials 🙏.
And an article co-written with patients on the research ethics review in 🇨🇦 - our thoughts and hopes for the future - healthydebate.ca/2025/05/topi... @healthydebate.bsky.social
And an article co-written with patients on the research ethics review in 🇨🇦 - our thoughts and hopes for the future - healthydebate.ca/2025/05/topi... @healthydebate.bsky.social
How about making it a family project? Kids doing The Kid’s Trial and adult family members doing thepeoplesreview.ir Great dinner table conversations!
May 13, 2025 at 12:48 PM
How about making it a family project? Kids doing The Kid’s Trial and adult family members doing thepeoplesreview.ir Great dinner table conversations!
Did you ever wonder what goes into conducting and sharing a systematic review? Everyone is welcome to this one! Topic: to be determined by the people!
🌍 Want to help shape health research? Join #ThePeoplesReview – a systematic review, powered by the public
✅Open to people worldwide
✅Everything takes place online
✅Make a difference in health research
✅Learn about systematic reviews
✅Open to people worldwide
✅Everything takes place online
✅Make a difference in health research
✅Learn about systematic reviews
April 25, 2025 at 11:29 AM
Did you ever wonder what goes into conducting and sharing a systematic review? Everyone is welcome to this one! Topic: to be determined by the people!
🚀 THE PEOPLE'S REVIEW IS OPEN NOW 🚀
We are excited to launch Stage 1 of #ThePeoplesReview
✅Open to people worldwide
✅Everything takes place online
✅Make a difference in health research
✅Learn about systematic reviews
Join now ➡️ buff.ly/WAnKUYa
We are excited to launch Stage 1 of #ThePeoplesReview
✅Open to people worldwide
✅Everything takes place online
✅Make a difference in health research
✅Learn about systematic reviews
Join now ➡️ buff.ly/WAnKUYa
April 23, 2025 at 3:46 AM
Please consider joining us - evidence synthesis is for everyone! We’d love to hear your perspectives. @sevenworldscollide.bsky.social
Register now for a webinar series hosted by ESIC for citizen-serving and citizen-led NGOs and for citizen leaders to share insights in how we can better learn from others around the world surveys.mcmaster.ca/limesurvey/i...
April 14, 2025 at 10:55 PM
Please consider joining us - evidence synthesis is for everyone! We’d love to hear your perspectives. @sevenworldscollide.bsky.social
Reposted by Maureen Smith 🇨🇦
RFK Jr’s proposal to remove public commentary from US health policy is a threat to science & public health www.bmj.com/content/389/...
"The ability to participate in regulatory decision making is not a privilege: it’s a legal requirement and a fundamental right in a democratic society."
"The ability to participate in regulatory decision making is not a privilege: it’s a legal requirement and a fundamental right in a democratic society."
Robert F Kennedy Jr’s proposal to remove public commentary from US health policy is a threat to science and public health
With confidence and trust in science and public health already under pressure, we must double down on transparency and public participation in policy decisions, write Liz Salmi and colleagues
Since ...
www.bmj.com
April 5, 2025 at 4:33 PM
RFK Jr’s proposal to remove public commentary from US health policy is a threat to science & public health www.bmj.com/content/389/...
"The ability to participate in regulatory decision making is not a privilege: it’s a legal requirement and a fundamental right in a democratic society."
"The ability to participate in regulatory decision making is not a privilege: it’s a legal requirement and a fundamental right in a democratic society."
All the credit goes to INFORM RARE’s amazing youth advisory group! We are so proud to collaborate with them. I’m the lucky adult who had the honour of submitting it. Available in English & French on informrare.ca
February 10, 2025 at 10:22 PM
All the credit goes to INFORM RARE’s amazing youth advisory group! We are so proud to collaborate with them. I’m the lucky adult who had the honour of submitting it. Available in English & French on informrare.ca
Reposted by Maureen Smith 🇨🇦
New publication!
The SPOR Evidence Alliance published a paper describing the co-creation and evaluation of two capacity-building courses on knowledge synthesis for patient and public partners.
Read more: www.jclinepi.com/article/S089...
@andreatricco.bsky.social @ktprogram.bsky.social
The SPOR Evidence Alliance published a paper describing the co-creation and evaluation of two capacity-building courses on knowledge synthesis for patient and public partners.
Read more: www.jclinepi.com/article/S089...
@andreatricco.bsky.social @ktprogram.bsky.social
January 28, 2025 at 4:14 PM
New publication!
The SPOR Evidence Alliance published a paper describing the co-creation and evaluation of two capacity-building courses on knowledge synthesis for patient and public partners.
Read more: www.jclinepi.com/article/S089...
@andreatricco.bsky.social @ktprogram.bsky.social
The SPOR Evidence Alliance published a paper describing the co-creation and evaluation of two capacity-building courses on knowledge synthesis for patient and public partners.
Read more: www.jclinepi.com/article/S089...
@andreatricco.bsky.social @ktprogram.bsky.social
Happy news to share! I’m honoured. It’s wonderful to see people with lived experience at the governance table of our Canada Drug Agency.
December 4, 2024 at 10:41 PM
Happy news to share! I’m honoured. It’s wonderful to see people with lived experience at the governance table of our Canada Drug Agency.
Reposted by Maureen Smith 🇨🇦
"When Life Happens: Being Vulnerable About Your Reality as a Research Partner" by Rae Martens explores the often-unspoken challenges faced by patients and caregivers engaged in research partnerships. Rae candidly reflects on the realities of living with illness or caring for others, including /1
November 19, 2024 at 10:51 PM
"When Life Happens: Being Vulnerable About Your Reality as a Research Partner" by Rae Martens explores the often-unspoken challenges faced by patients and caregivers engaged in research partnerships. Rae candidly reflects on the realities of living with illness or caring for others, including /1
Reposted by Maureen Smith 🇨🇦
@stirlingbryan.bsky.social Stirling is on BlueSky! So far the only SPOR Unit on is @absporu.bsky.social - Alberta SPOR SUPPORT Unit. Let's get the rest on here!
November 20, 2024 at 2:02 AM
@stirlingbryan.bsky.social Stirling is on BlueSky! So far the only SPOR Unit on is @absporu.bsky.social - Alberta SPOR SUPPORT Unit. Let's get the rest on here!
Reposted by Maureen Smith 🇨🇦
Hello Bluesky 👋 #ThePeoplesReview is a citizen science project inviting the public to get involved in a systematic review about health!
Check out this video for more info about what The People’s Review is all about - youtu.be/4OoIjJY0tbE
Check out this video for more info about what The People’s Review is all about - youtu.be/4OoIjJY0tbE
What is The People's Review?
YouTube video by The People's Review
youtu.be
November 18, 2024 at 1:16 PM
Hello Bluesky 👋 #ThePeoplesReview is a citizen science project inviting the public to get involved in a systematic review about health!
Check out this video for more info about what The People’s Review is all about - youtu.be/4OoIjJY0tbE
Check out this video for more info about what The People’s Review is all about - youtu.be/4OoIjJY0tbE
Reposted by Maureen Smith 🇨🇦
