Rae Martens ♿️
@coffeeandresearch.bsky.social
Research Knowledge Broker, speaker, knowledge mobilization, cancer, childhood disability, rare disease, spoonie, coffee drinker. Opinions are my own.
Some #patientengagement and #familyengagement Valentines for your weekend.
Are you a community-based participatory researcher? Because you know how to make every voice count.
You must be a knowledge user, because together, we’re making a real impact.
/1
Are you a community-based participatory researcher? Because you know how to make every voice count.
You must be a knowledge user, because together, we’re making a real impact.
/1
February 14, 2026 at 1:24 AM
Some #patientengagement and #familyengagement Valentines for your weekend.
Are you a community-based participatory researcher? Because you know how to make every voice count.
You must be a knowledge user, because together, we’re making a real impact.
/1
Are you a community-based participatory researcher? Because you know how to make every voice count.
You must be a knowledge user, because together, we’re making a real impact.
/1
Reposted by Rae Martens ♿️
On #IDWGS, we honour Dr. Kirsty Duncan, a scientist, leader, and lifelong advocate for fairness and representation in research.
Her work helped create lasting change in Canadian science, opening doors for women and underrepresented scholars. Her impact continues.
Her work helped create lasting change in Canadian science, opening doors for women and underrepresented scholars. Her impact continues.
February 11, 2026 at 5:52 PM
On #IDWGS, we honour Dr. Kirsty Duncan, a scientist, leader, and lifelong advocate for fairness and representation in research.
Her work helped create lasting change in Canadian science, opening doors for women and underrepresented scholars. Her impact continues.
Her work helped create lasting change in Canadian science, opening doors for women and underrepresented scholars. Her impact continues.
According to the CMA survey, people who followed health advice from AI were five times more likely to experience harm than those who did not.
What to do with this information? You are more complex and nuanced than the
rectangle in your hand. Proceed with caution.
What to do with this information? You are more complex and nuanced than the
rectangle in your hand. Proceed with caution.
February 11, 2026 at 4:33 PM
According to the CMA survey, people who followed health advice from AI were five times more likely to experience harm than those who did not.
What to do with this information? You are more complex and nuanced than the
rectangle in your hand. Proceed with caution.
What to do with this information? You are more complex and nuanced than the
rectangle in your hand. Proceed with caution.
This is what responsive disability policy looks like. They have a lot of work ahead to build the trust of families. But shout out to all the families who put in years of hard work to get there.
The move towards needs based funding rather than diagnosis based is where provinces should be heading.
The move towards needs based funding rather than diagnosis based is where provinces should be heading.
British Columbia has unveiled a revamp of its funding system for children with support needs, including those with autism, that it says will be "fairer, easier to access and better co-ordinated."
B.C. revamps funding for children with autism and other support needs
British Columbia has unveiled a revamp of its funding system for children with support needs, including those with autism, that it says will be "fairer, easier to access and better co-ordinated."
cheknews.ca
February 11, 2026 at 4:00 AM
This is what responsive disability policy looks like. They have a lot of work ahead to build the trust of families. But shout out to all the families who put in years of hard work to get there.
The move towards needs based funding rather than diagnosis based is where provinces should be heading.
The move towards needs based funding rather than diagnosis based is where provinces should be heading.
Reposted by Rae Martens ♿️
Tumbler Ridge is a small planned resource community, a winding 90 minute drive from the nearest city of at least 10,000 people.
A massive number of people are going to descend there tomorrow.
May those that arrive have respect and grace for the unimaginable grief.
A massive number of people are going to descend there tomorrow.
May those that arrive have respect and grace for the unimaginable grief.
February 11, 2026 at 2:48 AM
Tumbler Ridge is a small planned resource community, a winding 90 minute drive from the nearest city of at least 10,000 people.
A massive number of people are going to descend there tomorrow.
May those that arrive have respect and grace for the unimaginable grief.
A massive number of people are going to descend there tomorrow.
May those that arrive have respect and grace for the unimaginable grief.
This is one example of bipartisan agreement from the survey on who is responsible to take action.
Nearly all Canadians surveyed believe that the responsibility to curb the spread of false health information falls to:
GOVERNMENTS (90%)
SOCIAL MEDIA PLATFORMS (87%)
Image from @cma_docs
Nearly all Canadians surveyed believe that the responsibility to curb the spread of false health information falls to:
GOVERNMENTS (90%)
SOCIAL MEDIA PLATFORMS (87%)
Image from @cma_docs
February 11, 2026 at 3:07 AM
This is one example of bipartisan agreement from the survey on who is responsible to take action.
Nearly all Canadians surveyed believe that the responsibility to curb the spread of false health information falls to:
GOVERNMENTS (90%)
SOCIAL MEDIA PLATFORMS (87%)
Image from @cma_docs
Nearly all Canadians surveyed believe that the responsibility to curb the spread of false health information falls to:
GOVERNMENTS (90%)
SOCIAL MEDIA PLATFORMS (87%)
Image from @cma_docs
“To help reduce the misuse and misunderstanding of current science, scientific research needs to be explained in language the public can understand.
One method to do this would be to ensure that the conclusions of research are publicly accessible.”
www.statnews.com/2026/02/03/m...
One method to do this would be to ensure that the conclusions of research are publicly accessible.”
www.statnews.com/2026/02/03/m...
Plain language abstracts can help reduce misuse of science
Plain language abstracts will be a significant step toward helping those who want to understand research.
www.statnews.com
February 10, 2026 at 2:50 AM
“To help reduce the misuse and misunderstanding of current science, scientific research needs to be explained in language the public can understand.
One method to do this would be to ensure that the conclusions of research are publicly accessible.”
www.statnews.com/2026/02/03/m...
One method to do this would be to ensure that the conclusions of research are publicly accessible.”
www.statnews.com/2026/02/03/m...
Reposted by Rae Martens ♿️
Ten Years of Progress in Patient Engagement: A Foundation Built, But Time to Deliver - PubMed pubmed.ncbi.nlm.nih.gov/41601445/
Ten Years of Progress in Patient Engagement: A Foundation Built, But Time to Deliver - PubMed
It has been 10 years since the Advisory Panel on Healthcare Innovation Report (Advisory Panel on Healthcare Innovation 2015) recommended patient engagement and empowerment as one action to enhance the quality and sustainability of healthcare in Canada. Since that time, patient engagement has become …
pubmed.ncbi.nlm.nih.gov
February 7, 2026 at 4:43 PM
Ten Years of Progress in Patient Engagement: A Foundation Built, But Time to Deliver - PubMed pubmed.ncbi.nlm.nih.gov/41601445/
Reposted by Rae Martens ♿️
Sir Ian McKellen performing a monologue from Shakespeare’s Sir Thomas More on the Stephen Colbert show. Never have I heard this monologue performed with such a keen sense of prescience. Nor have I ever been in this exact historical moment.TY Sir Ian, for reaching us once again.
#Pinks #ProudBlue
#Pinks #ProudBlue
February 5, 2026 at 11:50 AM
Sir Ian McKellen performing a monologue from Shakespeare’s Sir Thomas More on the Stephen Colbert show. Never have I heard this monologue performed with such a keen sense of prescience. Nor have I ever been in this exact historical moment.TY Sir Ian, for reaching us once again.
#Pinks #ProudBlue
#Pinks #ProudBlue
Me: Why have headache?
Brain: You no drink water!
(Pause)
Brain: We go drink water now?
Me: After one more scroll.
Brain: Then headache stay. As lesson.
Brain: You no drink water!
(Pause)
Brain: We go drink water now?
Me: After one more scroll.
Brain: Then headache stay. As lesson.
February 4, 2026 at 9:42 PM
Me: Why have headache?
Brain: You no drink water!
(Pause)
Brain: We go drink water now?
Me: After one more scroll.
Brain: Then headache stay. As lesson.
Brain: You no drink water!
(Pause)
Brain: We go drink water now?
Me: After one more scroll.
Brain: Then headache stay. As lesson.
My book Joy on Joy is officially available through Indigo!
This book is a small celebration of joy in the places we don’t always think to look for it. If you’ve ever needed permission hold onto, or redefine joy in your life, this book is for you.
Link:
www.indigo.ca/en-ca/joy-on...
This book is a small celebration of joy in the places we don’t always think to look for it. If you’ve ever needed permission hold onto, or redefine joy in your life, this book is for you.
Link:
www.indigo.ca/en-ca/joy-on...
February 4, 2026 at 6:23 PM
My book Joy on Joy is officially available through Indigo!
This book is a small celebration of joy in the places we don’t always think to look for it. If you’ve ever needed permission hold onto, or redefine joy in your life, this book is for you.
Link:
www.indigo.ca/en-ca/joy-on...
This book is a small celebration of joy in the places we don’t always think to look for it. If you’ve ever needed permission hold onto, or redefine joy in your life, this book is for you.
Link:
www.indigo.ca/en-ca/joy-on...
Makes healthcare policy content.
Receives marriage proposal in the comments.
Receives marriage proposal in the comments.
a man in a suit and tie is smiling with the words that escalated very quickly below him
ALT: a man in a suit and tie is smiling with the words that escalated very quickly below him
media.tenor.com
January 29, 2026 at 9:23 PM
Makes healthcare policy content.
Receives marriage proposal in the comments.
Receives marriage proposal in the comments.
Not everyone thinks about health care until they need it.
This series looks at the fact that we all aren't starting in the same place when it comes to understanding the current state of Canadian healthcare.
#CanadianHealthcare
#HealthPolicy
#HealthSystems
This series looks at the fact that we all aren't starting in the same place when it comes to understanding the current state of Canadian healthcare.
#CanadianHealthcare
#HealthPolicy
#HealthSystems
January 25, 2026 at 12:50 AM
Not everyone thinks about health care until they need it.
This series looks at the fact that we all aren't starting in the same place when it comes to understanding the current state of Canadian healthcare.
#CanadianHealthcare
#HealthPolicy
#HealthSystems
This series looks at the fact that we all aren't starting in the same place when it comes to understanding the current state of Canadian healthcare.
#CanadianHealthcare
#HealthPolicy
#HealthSystems
Reposted by Rae Martens ♿️
Dozens of Nunavummiut braved the cold to stand in solidarity with Greenland and against threats of annexation by the United States.
About 90 per cent of its 60,000 people are Inuit.
About 90 per cent of its 60,000 people are Inuit.
Nunavummiut rally to support Greenland
Dozens of Nunavummiut gathered in Iqaluit to show their support for the people of Greenland who are under threat from the United States.
www.aptnnews.ca
January 20, 2026 at 12:36 AM
Dozens of Nunavummiut braved the cold to stand in solidarity with Greenland and against threats of annexation by the United States.
About 90 per cent of its 60,000 people are Inuit.
About 90 per cent of its 60,000 people are Inuit.
A synthesis of 43 studies in The Lancet OGW shows no meaningful association between prenatal Tylenol exposure and key neurodevelopmental disorders, aligning with current clinical recommendations for its cautious use in pregnancy. www.thelancet.com/journals/lan...
Prenatal paracetamol exposure and child neurodevelopment: a systematic review and meta-analysis
Current evidence does not indicate a clinically important increase in the likelihood
of autism spectrum disorder, ADHD, or intellectual disability in children of pregnant
individuals who use paracetam...
www.thelancet.com
January 17, 2026 at 3:16 PM
A synthesis of 43 studies in The Lancet OGW shows no meaningful association between prenatal Tylenol exposure and key neurodevelopmental disorders, aligning with current clinical recommendations for its cautious use in pregnancy. www.thelancet.com/journals/lan...
Not sure what the gift you give yourself is for your four year cancerversary, but I’m gonna say it’s tacos.
December 30, 2025 at 4:38 PM
Not sure what the gift you give yourself is for your four year cancerversary, but I’m gonna say it’s tacos.
New Canadian research sheds light on unpaid caregivers’ health and well-being
A national survey of nearly 2,000 unpaid caregivers across Canada found that many are struggling — and some groups are more affected than others. /1
A national survey of nearly 2,000 unpaid caregivers across Canada found that many are struggling — and some groups are more affected than others. /1
December 29, 2025 at 10:41 AM
New Canadian research sheds light on unpaid caregivers’ health and well-being
A national survey of nearly 2,000 unpaid caregivers across Canada found that many are struggling — and some groups are more affected than others. /1
A national survey of nearly 2,000 unpaid caregivers across Canada found that many are struggling — and some groups are more affected than others. /1
NYP article with a terribly ridiculous headline making the rounds about how a “big butt”
may be a sign of autism or ADHD. Of course that’s not what it’s about at all. A 🧵:
What it is actually referring to is anterior pelvic tilt. This is a posture or gait measurement, not a body size or body /1
may be a sign of autism or ADHD. Of course that’s not what it’s about at all. A 🧵:
What it is actually referring to is anterior pelvic tilt. This is a posture or gait measurement, not a body size or body /1
December 28, 2025 at 4:51 AM
NYP article with a terribly ridiculous headline making the rounds about how a “big butt”
may be a sign of autism or ADHD. Of course that’s not what it’s about at all. A 🧵:
What it is actually referring to is anterior pelvic tilt. This is a posture or gait measurement, not a body size or body /1
may be a sign of autism or ADHD. Of course that’s not what it’s about at all. A 🧵:
What it is actually referring to is anterior pelvic tilt. This is a posture or gait measurement, not a body size or body /1
Love these videos. Currently working on an old phonograph cabinet that’s been gutted and I’m converting to a cabinet.
i love furniture restoration videos because they show how quality is important and you can get some really beautiful, overlooked furniture if you learn certain skills
IG savedbydesign.tn
IG savedbydesign.tn
December 28, 2025 at 4:45 AM
Love these videos. Currently working on an old phonograph cabinet that’s been gutted and I’m converting to a cabinet.
I always love this time of year.
The 2025 Headline of the Year Nominees
🧵
🧵
December 22, 2025 at 11:49 PM
I always love this time of year.
Care mapping is your health story and you get to decide how it’s told.
What you share, how you share it, and when you share it matters.
Maintaining control of your care map helps protect your voice in complex health systems.
#CareMapping #PatientEngagement #DisabilityHealth #HealthEquity
What you share, how you share it, and when you share it matters.
Maintaining control of your care map helps protect your voice in complex health systems.
#CareMapping #PatientEngagement #DisabilityHealth #HealthEquity
December 22, 2025 at 6:45 PM
Care mapping is your health story and you get to decide how it’s told.
What you share, how you share it, and when you share it matters.
Maintaining control of your care map helps protect your voice in complex health systems.
#CareMapping #PatientEngagement #DisabilityHealth #HealthEquity
What you share, how you share it, and when you share it matters.
Maintaining control of your care map helps protect your voice in complex health systems.
#CareMapping #PatientEngagement #DisabilityHealth #HealthEquity
There’s been a lot of frustration expressed online about the decision in Alberta to no longer do the bell ringing in peds oncology The challenge here is that there is an important back story that’s worth understanding about this practice in many hospitals across the lifespan vt.tiktok.com/ZSPGjUacc/
TikTok - Make Your Day
vt.tiktok.com
December 22, 2025 at 3:23 AM
There’s been a lot of frustration expressed online about the decision in Alberta to no longer do the bell ringing in peds oncology The challenge here is that there is an important back story that’s worth understanding about this practice in many hospitals across the lifespan vt.tiktok.com/ZSPGjUacc/
In July 2024, the UN Special Rapporteur on contemporary forms of slavery examined Canada and concluded that sheltered work programs are incompatible with international human rights law. The recommendation was direct: replace them with inclusive employment. /1
A Quebec disability federation has filed a proposed class action challenging sheltered workshops and unpaid “training” programs.
The case raises national questions about fair pay, real choice, and what inclusion actually means. Source link in the comments.
The case raises national questions about fair pay, real choice, and what inclusion actually means. Source link in the comments.
December 18, 2025 at 3:46 AM
In July 2024, the UN Special Rapporteur on contemporary forms of slavery examined Canada and concluded that sheltered work programs are incompatible with international human rights law. The recommendation was direct: replace them with inclusive employment. /1
A Quebec disability federation has filed a proposed class action challenging sheltered workshops and unpaid “training” programs.
The case raises national questions about fair pay, real choice, and what inclusion actually means. Source link in the comments.
The case raises national questions about fair pay, real choice, and what inclusion actually means. Source link in the comments.
December 17, 2025 at 8:38 PM
A Quebec disability federation has filed a proposed class action challenging sheltered workshops and unpaid “training” programs.
The case raises national questions about fair pay, real choice, and what inclusion actually means. Source link in the comments.
The case raises national questions about fair pay, real choice, and what inclusion actually means. Source link in the comments.
New research suggests that not just foods or weather but unexpected changes in your daily routine may raise the risk of a migraine in the next 12–24 hours.
www.newsweek.com/scientists-f...
www.newsweek.com/scientists-f...
www.newsweek.com
December 17, 2025 at 1:34 AM
New research suggests that not just foods or weather but unexpected changes in your daily routine may raise the risk of a migraine in the next 12–24 hours.
www.newsweek.com/scientists-f...
www.newsweek.com/scientists-f...