Juliah
@juliahhh.bsky.social
Midwesterner. Caregiver. T1D adjacent. My son is wrong about the Oxford comma.
Reposted by Juliah
Marriage equality does not exist for everyone until disabled people can marry without losing their benefits.
November 14, 2025 at 4:59 PM
Marriage equality does not exist for everyone until disabled people can marry without losing their benefits.
Reposted by Juliah
I feel really strongly that nature is for everyone and we need to improve accessibility practices in conservation; appreciated this read on how people are doing just that.
Accessible Nature, Beyond the Pavement - Bay Nature
New kinds of access to nature are emerging for people with disabilities.
baynature.org
July 29, 2025 at 10:26 PM
I feel really strongly that nature is for everyone and we need to improve accessibility practices in conservation; appreciated this read on how people are doing just that.
Reposted by Juliah
CMMI has announced a demo to introduce more prior authorization into traditional Medicare. My latest with Don Berwick in @statnews.com on that’s bad news:
www.statnews.com/2025/07/25/m...
www.statnews.com/2025/07/25/m...
Plans to test prior authorization in traditional Medicare are deeply troubling
Preauthorization is about to enter the lives of many seniors who have chosen traditional Medicare over MA, write former CMS Administrator Don Berwick and health policy expert Andrea Ducas.
www.statnews.com
July 25, 2025 at 6:56 PM
CMMI has announced a demo to introduce more prior authorization into traditional Medicare. My latest with Don Berwick in @statnews.com on that’s bad news:
www.statnews.com/2025/07/25/m...
www.statnews.com/2025/07/25/m...
Reposted by Juliah
This moment from today’s Medicaid vigil is so powerful…
Question: What do you say to the people who voted to cut Medicaid? Be honest.
Samantha Phillis: They voted against my child’s life.
#MedicaidCutsKill
Question: What do you say to the people who voted to cut Medicaid? Be honest.
Samantha Phillis: They voted against my child’s life.
#MedicaidCutsKill
July 24, 2025 at 10:11 PM
This moment from today’s Medicaid vigil is so powerful…
Question: What do you say to the people who voted to cut Medicaid? Be honest.
Samantha Phillis: They voted against my child’s life.
#MedicaidCutsKill
Question: What do you say to the people who voted to cut Medicaid? Be honest.
Samantha Phillis: They voted against my child’s life.
#MedicaidCutsKill
Reposted by Juliah
We want to train one million Americans in the strategic logic and practice of non-cooperation, as well as the basics of community organizing and campaign design. This is how we slow down, stop, and ultimately defeat Trump’s authoritarian takeover. 👇
One Million Rising: Strategic Non-Cooperation to Fight Authoritarianism · No Kings
Across the country, authoritarian forces are getting bolder and more dangerous. Trump and his allies are not hiding their agenda: mass deportations, rollbacks of civil rights, weaponized courts, and f...
www.mobilize.us
July 5, 2025 at 2:25 AM
We want to train one million Americans in the strategic logic and practice of non-cooperation, as well as the basics of community organizing and campaign design. This is how we slow down, stop, and ultimately defeat Trump’s authoritarian takeover. 👇
Reposted by Juliah
A special thank you from Xiomara (and her mom, @elenahung.bsky.social) for the love + support
We're not giving up on this fight — we're not giving up on our kids, or anyone's kids. Please keep helping us fundraise for this urgent work by sharing:
secure.actblue.com/donate/littl...
We're not giving up on this fight — we're not giving up on our kids, or anyone's kids. Please keep helping us fundraise for this urgent work by sharing:
secure.actblue.com/donate/littl...
July 3, 2025 at 12:16 AM
A special thank you from Xiomara (and her mom, @elenahung.bsky.social) for the love + support
We're not giving up on this fight — we're not giving up on our kids, or anyone's kids. Please keep helping us fundraise for this urgent work by sharing:
secure.actblue.com/donate/littl...
We're not giving up on this fight — we're not giving up on our kids, or anyone's kids. Please keep helping us fundraise for this urgent work by sharing:
secure.actblue.com/donate/littl...
Reposted by Juliah
We have @littlelobbyists.com families on the way to Washington DC right now, they'll be on the House-side of the Capitol tomorrow. We're going to make them see us before they vote to kill disabled children.
If you can help cover the costs of this urgent action:
secure.actblue.com/donate/littl...
If you can help cover the costs of this urgent action:
secure.actblue.com/donate/littl...
I just gave to Little Lobbyists Action Network!
Show your support with a contribution.
secure.actblue.com
July 1, 2025 at 7:13 PM
We have @littlelobbyists.com families on the way to Washington DC right now, they'll be on the House-side of the Capitol tomorrow. We're going to make them see us before they vote to kill disabled children.
If you can help cover the costs of this urgent action:
secure.actblue.com/donate/littl...
If you can help cover the costs of this urgent action:
secure.actblue.com/donate/littl...
Reposted by Juliah
Disabled kids like mine rely on Medicaid to survive; this bill cuts Medicaid.
I don't know how else to say that medically complex disabled children will die as a result of this bill.
I don't know how else to say that medically complex disabled children will die as a result of this bill.
June 29, 2025 at 4:23 AM
Disabled kids like mine rely on Medicaid to survive; this bill cuts Medicaid.
I don't know how else to say that medically complex disabled children will die as a result of this bill.
I don't know how else to say that medically complex disabled children will die as a result of this bill.
Reposted by Juliah
🚨 URGENT 🚨
The Senate may vote on gutting #Medicaid soon
Little Lobbyists kids need you to call your Senator now!
☎️ (202) 224-3121
"Hi, my name is [YOUR NAME], I'm a constituent from [ZIP CODE], I'm calling to tell the Senator VOTE NO on any cuts to Medicaid!"
PLEASE SHARE
#PROTECTMEDICAID
The Senate may vote on gutting #Medicaid soon
Little Lobbyists kids need you to call your Senator now!
☎️ (202) 224-3121
"Hi, my name is [YOUR NAME], I'm a constituent from [ZIP CODE], I'm calling to tell the Senator VOTE NO on any cuts to Medicaid!"
PLEASE SHARE
#PROTECTMEDICAID
June 28, 2025 at 10:15 PM
🚨 URGENT 🚨
The Senate may vote on gutting #Medicaid soon
Little Lobbyists kids need you to call your Senator now!
☎️ (202) 224-3121
"Hi, my name is [YOUR NAME], I'm a constituent from [ZIP CODE], I'm calling to tell the Senator VOTE NO on any cuts to Medicaid!"
PLEASE SHARE
#PROTECTMEDICAID
The Senate may vote on gutting #Medicaid soon
Little Lobbyists kids need you to call your Senator now!
☎️ (202) 224-3121
"Hi, my name is [YOUR NAME], I'm a constituent from [ZIP CODE], I'm calling to tell the Senator VOTE NO on any cuts to Medicaid!"
PLEASE SHARE
#PROTECTMEDICAID
Reposted by Juliah
I rarely post personal things. But I need to talk about my 4-year-old niece, Hope.
She has a rare disease. A drug called elamipretide has helped her survive.
But the FDA recently denied its approval.
Now, her health hangs in the balance.
Please share her story & urge the FDA to reconsider. 🧵
She has a rare disease. A drug called elamipretide has helped her survive.
But the FDA recently denied its approval.
Now, her health hangs in the balance.
Please share her story & urge the FDA to reconsider. 🧵
June 23, 2025 at 9:21 PM
I rarely post personal things. But I need to talk about my 4-year-old niece, Hope.
She has a rare disease. A drug called elamipretide has helped her survive.
But the FDA recently denied its approval.
Now, her health hangs in the balance.
Please share her story & urge the FDA to reconsider. 🧵
She has a rare disease. A drug called elamipretide has helped her survive.
But the FDA recently denied its approval.
Now, her health hangs in the balance.
Please share her story & urge the FDA to reconsider. 🧵
June 15, 2025 at 12:09 AM
Reposted by Juliah
This is as good a description that I've read of what makes universities so great and worth preserving, including some concentration of scholarly activity and discovery science.
www.nytimes.com/2025/05/23/o...
www.nytimes.com/2025/05/23/o...
Opinion | Harvard Derangement Syndrome
www.nytimes.com
May 24, 2025 at 12:37 PM
This is as good a description that I've read of what makes universities so great and worth preserving, including some concentration of scholarly activity and discovery science.
www.nytimes.com/2025/05/23/o...
www.nytimes.com/2025/05/23/o...
The government intends to severely limit who can get a covid vaccination. If you want to have the choice to get vaccinated, please comment via the link below.
#Covid
#LongCovid
#Covid
#LongCovid
GUYS. The comment period for this ends in THREE DAYS. PLEASE if you have even a little bit of time, submit a comment here: www.regulations.gov/commenton/FD...
Let them know EVERYONE should be able to get COVID vaccines. They BACK DOWN when WE PUSH BACK. www.statnews.com/2025/05/20/f...
Let them know EVERYONE should be able to get COVID vaccines. They BACK DOWN when WE PUSH BACK. www.statnews.com/2025/05/20/f...
FDA will limit Covid vaccines to people over 65 or at high risk of serious illness, leaders say
The FDA announced it will limit access to Covid-19 vaccines going forward to people 65 and older and others at high risk of serious illness
www.statnews.com
May 20, 2025 at 9:15 PM
The government intends to severely limit who can get a covid vaccination. If you want to have the choice to get vaccinated, please comment via the link below.
#Covid
#LongCovid
#Covid
#LongCovid
Evansville made the Rachel Maddow Show last night. #HoosierSky
May 1, 2025 at 12:32 PM
Evansville made the Rachel Maddow Show last night. #HoosierSky
Reposted by Juliah
Evansville Hands Off rally rescheduled from April 5 to April 12 because of storms and flood warnings this weekend.
#HoosierSky
#HoosierSky
April 4, 2025 at 6:29 PM
Evansville Hands Off rally rescheduled from April 5 to April 12 because of storms and flood warnings this weekend.
#HoosierSky
#HoosierSky
www.medtechdive.com/news/dexcom-... The sensors with the changed coating “cause higher risks for users who rely on the sensors to dose insulin or make other diabetes treatment decisions,” the letter said.
Dexcom’s FDA warning letter reveals unauthorized changes to sensors
Dexcom made a significant design change to a component used in its sensors and did not adequately validate the change, according to the warning letter.
www.medtechdive.com
March 29, 2025 at 4:54 PM
www.medtechdive.com/news/dexcom-... The sensors with the changed coating “cause higher risks for users who rely on the sensors to dose insulin or make other diabetes treatment decisions,” the letter said.
Proud of the 8th District asking, "Where's Congressman Messmer?"
#HoosierSky
#HoosierSky
March 22, 2025 at 7:55 PM
Proud of the 8th District asking, "Where's Congressman Messmer?"
#HoosierSky
#HoosierSky
Thank God for the Canadians. www.news-medical.net/news/2025031...
Next-generation, inhaled COVID-19 vaccine enters phase-2 clinical trial
Researchers at McMaster University have started a phase-2 clinical trial on a next-generation, inhaled COVID-19 vaccine.
www.news-medical.net
March 11, 2025 at 2:52 AM
Thank God for the Canadians. www.news-medical.net/news/2025031...
Glad this is on Marc Elias’s radar. #HoosierSky
If this is enacted, Indiana will be sued.
NEW: Indiana already has stringent voter ID rules... & the GOP is advancing a bill right now to strip university IDs from the list of options you can use.
This would make it much harder for students to vote.
At polling site at IU Bloomington, 2/3rds of voters in November used their student IDs.
This would make it much harder for students to vote.
At polling site at IU Bloomington, 2/3rds of voters in November used their student IDs.
February 26, 2025 at 11:25 PM
Glad this is on Marc Elias’s radar. #HoosierSky
BREAKING: Federal judge in Boston broadens block on Trump's NIH grant 15% overhead limit (indirect cost rates) to all recipients nationwide. Doc: www.documentcloud.org/documents/25...
#TROpalooza ain't done
#TROpalooza ain't done
AAMCOrd021025
www.documentcloud.org
February 11, 2025 at 6:10 AM
Reposted by Juliah
USAID uses their money to buy crops from U.S. farmers and send them to kids around the world who need food.
Musk uses his money to buy ads during the Superbowl to spread anti-public health propaganda.
Musk uses his money to buy ads during the Superbowl to spread anti-public health propaganda.
Thank you to everyone who stands with USAID. Share far and wide. Unfortunately we don’t have $40 million to buy up ads during the Super Bowl. Even if we did, we’d use it to support the U.S. economy while feeding kids around the globe.
#StandWithUSAID
#SaveForeignAid
m.youtube.com/watch?v=PqUE...
#StandWithUSAID
#SaveForeignAid
m.youtube.com/watch?v=PqUE...
Save Foreign Aid
YouTube video by friendsofUSAID
m.youtube.com
February 9, 2025 at 11:31 PM
USAID uses their money to buy crops from U.S. farmers and send them to kids around the world who need food.
Musk uses his money to buy ads during the Superbowl to spread anti-public health propaganda.
Musk uses his money to buy ads during the Superbowl to spread anti-public health propaganda.
Hey @goodtroublein.bsky.social how does this effect medical research and medical care in Indiana? Can someone help with talking points for contacting our reps? Maybe examples, like current cancer research, impact on Riley?
#HoosierSky
#HoosierSky
🚨RED ALERT for 🧪:
The Trump NIH just gashed indirect costs. This is a direct attack on universities.
“Pursuant to this Supplemental Guidance, there will be a standard rate of 15% across all NIH grants for indirect costs.” 😮
Just a devastating Friday night news dump. #scicomm #academicaky
The Trump NIH just gashed indirect costs. This is a direct attack on universities.
“Pursuant to this Supplemental Guidance, there will be a standard rate of 15% across all NIH grants for indirect costs.” 😮
Just a devastating Friday night news dump. #scicomm #academicaky
February 8, 2025 at 4:07 AM
Hey @goodtroublein.bsky.social how does this effect medical research and medical care in Indiana? Can someone help with talking points for contacting our reps? Maybe examples, like current cancer research, impact on Riley?
#HoosierSky
#HoosierSky
Reposted by Juliah
Today, the Senate Elections Committee disenfranchised the nearly 400,000 Hoosier voters who voted more than 14 days before the general election last year by passing SB 284 6–3.
February 3, 2025 at 8:34 PM
Today, the Senate Elections Committee disenfranchised the nearly 400,000 Hoosier voters who voted more than 14 days before the general election last year by passing SB 284 6–3.