@judithstark.bsky.social
Reposted
Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear.
#MEKills #HumanRights
#MEKills #HumanRights
July 31, 2025 at 6:45 AM
Isla's mother has been arrested under suspicion of causing her death from ME last year (heart failure). There was no inquest. Isla's younger sister (15), who also has ME, has been removed from the only people who understand how the disease must be managed. Imagine her fear.
#MEKills #HumanRights
#MEKills #HumanRights
Reposted
"To rest in the context of chronic illness demands the endurance of immense grief"...
Another brilliant and poignant update from @thereforme.bsky.social by @oonaghcousins.bsky.social
www.thereforme.uk/p/the-import...
Another brilliant and poignant update from @thereforme.bsky.social by @oonaghcousins.bsky.social
www.thereforme.uk/p/the-import...
The importance of understanding rest
How my experience of rest as an athlete clashed with my experience of rest as a patient
www.thereforme.uk
June 10, 2025 at 9:25 AM
"To rest in the context of chronic illness demands the endurance of immense grief"...
Another brilliant and poignant update from @thereforme.bsky.social by @oonaghcousins.bsky.social
www.thereforme.uk/p/the-import...
Another brilliant and poignant update from @thereforme.bsky.social by @oonaghcousins.bsky.social
www.thereforme.uk/p/the-import...
Reposted
As a clinically vulnerable person I'm terrified of having to go into a healthcare setting as the risk of airborne infection is so great & nothing is done to prevent it. It doesn't have to be this way. Last big push for this crucial petition. Thanks so much 🙏 petition.parliament.uk/petitions/70...
Petition: Introduce new air quality and PPE rules for health and social care settings
We want the Government to set new rules on air quality and infection control in health and social care settings, to prevent and control airborne infections, with new ventilation and filtration require...
petition.parliament.uk
May 10, 2025 at 5:45 PM
As a clinically vulnerable person I'm terrified of having to go into a healthcare setting as the risk of airborne infection is so great & nothing is done to prevent it. It doesn't have to be this way. Last big push for this crucial petition. Thanks so much 🙏 petition.parliament.uk/petitions/70...
Reposted
For #MillionsMissing 2025 in #Scotland, we're raising a red alert 🚨 Spread the word!
The Scottish Budget pledged £4.5m for ME specialist support - the clock is ticking to spend it.
Email your MSPs & join us @parliament.scot or support online.
Info & template email: www.meaction.net/2025/04/27/m...
The Scottish Budget pledged £4.5m for ME specialist support - the clock is ticking to spend it.
Email your MSPs & join us @parliament.scot or support online.
Info & template email: www.meaction.net/2025/04/27/m...
May 4, 2025 at 10:36 AM
For #MillionsMissing 2025 in #Scotland, we're raising a red alert 🚨 Spread the word!
The Scottish Budget pledged £4.5m for ME specialist support - the clock is ticking to spend it.
Email your MSPs & join us @parliament.scot or support online.
Info & template email: www.meaction.net/2025/04/27/m...
The Scottish Budget pledged £4.5m for ME specialist support - the clock is ticking to spend it.
Email your MSPs & join us @parliament.scot or support online.
Info & template email: www.meaction.net/2025/04/27/m...
Reposted
Preparations are underway for the MEAction UK stand at @rcpch.bsky.social conference in Glasgow. Great work by Susan Cole of @meactnet.bsky.social and Helen Brownlie - 25% ME Group.
If you are attending the conference come and say hello. We are at stand D6.
#RCPCH25 #MyalgicEncephalomyelitis
If you are attending the conference come and say hello. We are at stand D6.
#RCPCH25 #MyalgicEncephalomyelitis
March 25, 2025 at 5:44 PM
Preparations are underway for the MEAction UK stand at @rcpch.bsky.social conference in Glasgow. Great work by Susan Cole of @meactnet.bsky.social and Helen Brownlie - 25% ME Group.
If you are attending the conference come and say hello. We are at stand D6.
#RCPCH25 #MyalgicEncephalomyelitis
If you are attending the conference come and say hello. We are at stand D6.
#RCPCH25 #MyalgicEncephalomyelitis
Reposted
Hello, It's good to be here. Please follow us as we start our Bluesky journey.
#MyalgicEncephalomyelitis #VerySevereME #SevereME #pwME #pwLC #LongCovid
#MyalgicEncephalomyelitis #VerySevereME #SevereME #pwME #pwLC #LongCovid
March 25, 2025 at 10:26 AM
Hello, It's good to be here. Please follow us as we start our Bluesky journey.
#MyalgicEncephalomyelitis #VerySevereME #SevereME #pwME #pwLC #LongCovid
#MyalgicEncephalomyelitis #VerySevereME #SevereME #pwME #pwLC #LongCovid
Reposted
@lcmebillboards.bsky.social Edinburgh leafletting action today, to raise awareness of the lives & livelihoods still being destroyed by Long Covid & ME/CFS, unforgivable lack of action by Government & failure to inform the public of continuing real risks to health. #LongCovidAwarenessDay2025
March 15, 2025 at 12:02 PM
@lcmebillboards.bsky.social Edinburgh leafletting action today, to raise awareness of the lives & livelihoods still being destroyed by Long Covid & ME/CFS, unforgivable lack of action by Government & failure to inform the public of continuing real risks to health. #LongCovidAwarenessDay2025
I was very pleased to speak for people with ME at this meeting. Thanks to @inclusivenew.bsky.social for setting it up.
Delighted to meet y’day with Social Security Scotland's CEO & Chief Medical Adviser to discuss lived experience of pandemic-disabled people (CV, Long Covid, vax injury, MECFS) & how to address assessment & delivery issues 🙏 @murtoz.bsky.social @meactionscotland.bsky.social @salwitcher.bsky.social
February 27, 2025 at 1:09 PM
I was very pleased to speak for people with ME at this meeting. Thanks to @inclusivenew.bsky.social for setting it up.
Reposted
If you believe preventative healthcare is important, if you use healthcare to make your health better, not to put it at avoidable risk, if you support workplace health & safety, please sign & share these. Thank you 🙏 petition.parliament.uk/petitions/70...; petitions.parliament.scot/petitions/PE...
Petition: Introduce new air quality and PPE rules for health and social care settings
We want the Government to set new rules on air quality and infection control in health and social care settings, to prevent and control airborne infections, with new ventilation and filtration require...
petition.parliament.uk
December 4, 2024 at 7:17 PM
If you believe preventative healthcare is important, if you use healthcare to make your health better, not to put it at avoidable risk, if you support workplace health & safety, please sign & share these. Thank you 🙏 petition.parliament.uk/petitions/70...; petitions.parliament.scot/petitions/PE...