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itreallydoes.com
MS Sucks 🎗
@itreallydoes.com
20K followers 16K following 1K posts
Web Developer #Joomla | Beekeeper | Former Grave Digger | Widow
Disabled USMC Vet | Living with #DDD & #MS
Sarcastic AF - blame the MS or the Marines 🤷🏽‍♀️

📓 MS Sucks: a snarky journal for tracking your MS bullshit → mssucks.co/links
Posts Replies Media Videos
Reposted by MS Sucks 🎗
madcatterteaparty.bsky.social
Good afternoon- lovely guests of the tea party.
I'll be hosting a Charity Stream For Multiple Sclerosis for MSTrust on the 05/12/25 along with friends, Find the details of this invitation below!
#CharityStream #MSTrust #twitch #warhammer40k #gaming #Charity #MultipleSclerosis
November 10, 2025 at 3:45 PM
itreallydoes.com
As a GenX’er this cracks me up because it’s so true 😆

youtu.be/t2uzCYPcE3I?...
Child Casino & Fight Club - Chuck E. Cheese
YouTube video by The Fat Files
youtu.be
November 8, 2025 at 10:43 PM
Reposted by MS Sucks 🎗
starriibunnii.bsky.social
Hello everybunny! My wife, Dragon will be hosting a charity stream for the MS (Multiple Sclerosis) Society! I'd really appreciate it if friends could join in and watch or even lurk during this time! www.twitch.tv/theclockwork...

#twitchstreamer #twitch #pngtuber #vtuber #audhd #disabled #ms
TheClockworkDragonTavern - Twitch
GameOver MS! Retro Weekender charity stream. !donate
www.twitch.tv
November 8, 2025 at 2:10 PM
itreallydoes.com
Justice has been served. After years of Facebook tracking my every move, which led me to close the account, I’ve finally been compensated—with a life-changing $4.01. I might retire. Or buy half a latte and reflect on my newfound wealth 🤷🏻‍♀️
November 7, 2025 at 7:05 PM
itreallydoes.com
Mia’s officially home — 3 months old, cute as hell, and already running the place. She came all the way from Mississippi, thanks to an amazing rescue that literally hopped in a van last night and drove 1037 miles to get her to me.
Mia, a 3-month-old wheat-and-white Staffordshire Terrier puppy with light blue eyes, running through the grass mid-stride. Her mouth is open in a playful grin, one paw lifted, tail up, and pure joy all over her face.
November 1, 2025 at 7:57 PM
Reposted by MS Sucks 🎗
brandon-beaber.bsky.social
10 Strange Things About Multiple Sclerosis youtu.be/FyTTRLjEpjM?...
10 Strange Things About Multiple Sclerosis
YouTube video by Dr. Brandon Beaber
youtu.be
October 29, 2025 at 7:41 PM
Reposted by MS Sucks 🎗
chikocfm.bsky.social
📚✨Explore the realities and triumphs of navigating life with an invisible chronic illness. Discover the insights and resilience within these pages. Learn More >>> amzn.to/49kKN4B
#Fibromyalgia #InvisibleIllness #SurvivalStories
Diary of A Fibromyalgia Warrior: Unseen Struggles: Navigating Life and Survival with an Invisible Chronic Illness
Buy Diary of A Fibromyalgia Warrior: Unseen Struggles: Navigating Life and Survival with an Invisible Chronic Illness by Matenda, Chiko (ISBN: 9798866136032) from Amazon's Book Store. Everyday low prices and free delivery on eligible orders.
amzn.to
February 22, 2025 at 7:05 AM
itreallydoes.com
#MS fatigue isn’t “being tired.” It’s your body burning through energy faster than a crackhead through a dime bag. Yeah, I said it.

New post → mssucks.co/k

#MSSucks #MSFatigue
Sick and Tired of Being Sick and Tired: MS Fatigue
MS fatigue isn’t “just being tired.” It’s neurological chaos that drains your battery faster than caffeine can load it. Spoiler: naps don’t fix this.
mssucks.co
October 21, 2025 at 9:00 PM
Reposted by MS Sucks 🎗
paullanger.bsky.social
Today I'm marching in NYC - No Kings!

Tomorrow I'm riding 30 miles circling Manhattan to raise money to find a cure for Multiple Sclerosis

I've been living with MS since '87 & I am extremely lucky to still be able to ride a bike

Help us find a cure

events.nationalmssociety.org/participant/...
I'm participating in Bike MS: New York City 2025!
I’m participating in Bike MS: New York City 2025 to raise funds for the National Multiple Sclerosis Society. Nearly one million people in the US are living with the challenges and uncertainty of mult...
events.nationalmssociety.org
October 18, 2025 at 1:26 PM
itreallydoes.com
For this #MSFriday some light reading and coffee. Glad it’s the last day here. Woke up this morning and my immune system choose vilonece. Ready to go back home to my own bed.
A paper cup of Starbucks coffee labeled “Sam ♥” sits on a small white table next to a book titled Close Encounters of the WTF Kind. Through the large window behind them, a sunny marina with boats, docks, and a crane is visible, with the ocean and blue sky in the distance.
October 10, 2025 at 6:07 PM
itreallydoes.com
www.youtube.com/watch?v=oxd3...

Dr. Beaber always does a great job translating the data for us medically challenged. Follow him if you already don't: @brandon-beaber.bsky.social
Multiple Sclerosis Starts Years Before Symptom Onset
YouTube video by Dr. Brandon Beaber
www.youtube.com
October 8, 2025 at 11:52 AM
Reposted by MS Sucks 🎗
kevjbyrne.bsky.social
Rest stop 1: 25 miles
Please share this special message and link: mssociety.donordrive.com/participant/...
I will personally match every donation received today to my fight, up to $10,000!
#NeverStopNeverQuitForThem #MultipleSclerosis #MS #ThisisMS #nationalmssociety #defeatmsoregon
October 7, 2025 at 12:56 PM
Reposted by MS Sucks 🎗
tinameyer.bsky.social
Interesting 👇

Yes, the need to tackle a root cause of the #MS worsening is still unmet ... As well as #remylination

FYI @itreallydoes.com

www.biospace.com/drug-develop...
Beyond BTK Inhibitors: Next Gen MS Treatments Could Transcend Symptom Management
While Bruton’s tyrosine kinase inhibitors are often hailed as the next big breakthrough in multiple sclerosis, Immunic Therapeutics and others are leveraging neuroprotective targets and remyelination ...
www.biospace.com
October 7, 2025 at 3:36 PM
itreallydoes.com
Few days in Bermuda. The sea is calm, the sky is dramatic, and my MS is currently pretending to behave. Let’s see how long that lasts, it’s early 😆 #MSLife #MSSucks
A cloudy Bermuda harbor with turquoise water, stone fort walls, and white-roofed buildings. Several tour buses line the dock while a pink and white ferry waits at the pier. The scene contrasts dark storm clouds with patches of sunlight breaking through.
October 7, 2025 at 10:47 AM
itreallydoes.com
I bet I've hidden more dead bodies than you have.

New Blog Post: When #MS becomes your crappy boss.

Read ⮕ mssucks.co/j
A close-up of a person digging into the dirt at night with a shovel. Only their boots, hands, and part of their legs are visible, lit by a spotlight against a dark background.
October 4, 2025 at 12:46 AM
Reposted by MS Sucks 🎗
paulakrebs.bsky.social
Just $70 short of my goal, in case Multiple Sclerosis research is a cause you support. #BikeMS events.nationalmssociety.org/participants...
Paula at rest stop of City to Shore ride
September 28, 2025 at 5:22 PM
Reposted by MS Sucks 🎗
pinktweets.bsky.social
@itreallydoes.com @elizabethjacobs.bsky.social @vivianofthesierras.bsky.social

www.theguardian.com/society/2025...
‘Exciting’ clinical results offer hope for new class of MS therapies
Cambridge trial suggests diabetes drug with antihistamine can partially repair damage in the nervous system
www.theguardian.com
September 26, 2025 at 1:57 PM
Reposted by MS Sucks 🎗
brandon-beaber.bsky.social
Best Multiple Sclerosis Medicine for Preventing Disability youtu.be/3wstm5izx2o?...
Best Multiple Sclerosis Medicine for Preventing Disability
YouTube video by Dr. Brandon Beaber
youtu.be
September 24, 2025 at 4:00 PM
Reposted by MS Sucks 🎗
kevjbyrne.bsky.social
Please support my fight against the devastating effects of multiple sclerosis. I WILL every donation with my blood, sweat, and smiles!
#NeverStopNeverQuitForThem #NSNQFT #MultipleSclerosis #MS #ThisisMS #nationalmssociety #defeatmsoregon

mssociety.donordrive.com/participant/...
I'm participating in Bike MS: Oregon 2025!
I’m participating in Bike MS: Oregon 2025 to raise funds for the National Multiple Sclerosis Society. Nearly one million people in the US are living with the challenges and uncertainty of multiple sc...
mssociety.donordrive.com
September 24, 2025 at 9:12 PM
itreallydoes.com
I think I figured out why they use to recommend bee stings for #MS. After 5 or 6 stings, you completely forget you have MS while being chased around the yard by a bunch of angry winged sugar junkies. My mistake thinking "Quick peek, no jacket/gloves... What could go wrong???" So, so much can.
September 13, 2025 at 11:18 AM
itreallydoes.com
Restless legs: the MS version of a rave I didn’t RSVP to. Where’s the free Molly starter pack?
September 3, 2025 at 10:29 PM
itreallydoes.com
Immunocompromised friends: Anyone use Pemgarda in addition to a COVID vax? Curious if it was useful or just another addition the the “things I injected for fun side effects” list.
August 30, 2025 at 9:45 PM
itreallydoes.com
I had a cyst removed from a tendon on my middle finger. I'm fine. The OR team did a whole "huddle" where everyone in the room explained their roll. Even asked if I thought anything could trigger my #MS. Caught me off guard how thoughtful that was. Now I'm flipping people off... more than the usual 😂
August 28, 2025 at 5:33 PM
itreallydoes.com
20 liters of bee syrup a day so far this week. My bees = sugar junkies. My immune system = myelin junkie. Nobody paces themselves at this house 😆 🐝 #MSSucks
August 26, 2025 at 9:19 PM
Reposted by MS Sucks 🎗
marcinva.bsky.social
Team Microsoft is fighting Multiple Sclerosis! We’ve raised nearly $29K—help us go further! 💙 Donate, ride, or volunteer: together we can end MS now. Every dollar matters! #BikeMS #FundraisingWeek #EndMS #CityToShore2025 @itreallydoes.com

events.nationalmssociety.org/teams/micros...
I'm participating in Bike MS: City to Shore Ride 2025!
I’m participating in Bike MS: City to Shore Ride 2025 to raise funds for the National Multiple Sclerosis Society. Nearly one million people in the US are living with the challenges and uncertainty of...
events.nationalmssociety.org
August 18, 2025 at 12:33 PM