Irish Lung Fibrosis Association
@ilfa-ireland.bsky.social
Supporting patients and the lung fibrosis community with education, advocacy, research, and direct services.
Really powerful patient stories this afternoon at USPFF Summit!
November 13, 2025 at 6:44 PM
Really powerful patient stories this afternoon at USPFF Summit!
While the exact cause of #LungFibrosis isn't fully understood, risk factors increase the likelihood:
– Smoking
- Environmental/Occupational Exposure
– Conditions like GORD
– Genetic links
Knowing the risks can help you get diagnosed earlier
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis
– Smoking
- Environmental/Occupational Exposure
– Conditions like GORD
– Genetic links
Knowing the risks can help you get diagnosed earlier
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis
September 18, 2025 at 7:47 AM
While the exact cause of #LungFibrosis isn't fully understood, risk factors increase the likelihood:
– Smoking
- Environmental/Occupational Exposure
– Conditions like GORD
– Genetic links
Knowing the risks can help you get diagnosed earlier
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis
– Smoking
- Environmental/Occupational Exposure
– Conditions like GORD
– Genetic links
Knowing the risks can help you get diagnosed earlier
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis
We are honoured to have the support of Rory and his family. Rory, Jamie and Ben are raising funds in memory of their beloved father, Michael McNeill, who passed away after a long battle with #IPF. The brothers are running the Paris-Versailles race on 28 Sept 2025. www.justgiving.com/page/michael...
September 17, 2025 at 7:13 AM
We are honoured to have the support of Rory and his family. Rory, Jamie and Ben are raising funds in memory of their beloved father, Michael McNeill, who passed away after a long battle with #IPF. The brothers are running the Paris-Versailles race on 28 Sept 2025. www.justgiving.com/page/michael...
Diagnosing #LungFibrosis isn't always straightforward but timely and accurate testing helps.
Combining diagnostic tools and evaluation methods give clinicians a clearer picture, and a clearer picture means better care.
#LFAwarenessMonth.
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis
Combining diagnostic tools and evaluation methods give clinicians a clearer picture, and a clearer picture means better care.
#LFAwarenessMonth.
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis
September 15, 2025 at 7:54 AM
Diagnosing #LungFibrosis isn't always straightforward but timely and accurate testing helps.
Combining diagnostic tools and evaluation methods give clinicians a clearer picture, and a clearer picture means better care.
#LFAwarenessMonth.
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis
Combining diagnostic tools and evaluation methods give clinicians a clearer picture, and a clearer picture means better care.
#LFAwarenessMonth.
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis
Navigating a new lung fibrosis diagnosis can be overwhelming, but you're not alone.
ILFA has lots of resources available on our website: www.ilfa.ie. Just one quick reference: ilfa.ie/wp-content/u...
#LFAwarenessMonth.
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis #LungFibrosis
ILFA has lots of resources available on our website: www.ilfa.ie. Just one quick reference: ilfa.ie/wp-content/u...
#LFAwarenessMonth.
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis #LungFibrosis
September 8, 2025 at 7:17 AM
Navigating a new lung fibrosis diagnosis can be overwhelming, but you're not alone.
ILFA has lots of resources available on our website: www.ilfa.ie. Just one quick reference: ilfa.ie/wp-content/u...
#LFAwarenessMonth.
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis #LungFibrosis
ILFA has lots of resources available on our website: www.ilfa.ie. Just one quick reference: ilfa.ie/wp-content/u...
#LFAwarenessMonth.
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis #LungFibrosis
For today's post, one of our wonderful patient advocates, Lorcan McMahon, describes his journey with #lungfibrosis www.independent.ie/regionals/wi... #LFAwarenessMonth.
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis
‘I’m now on 10 litres of oxygen a day’ – Wicklow man describes living with lung fibrosis
A former Wicklow Fine Gael local election candidate, who was hugely active in almost every sphere of community life, has described having to cope with “frightening” moments every day, due to a life-li...
www.independent.ie
September 4, 2025 at 7:01 AM
For today's post, one of our wonderful patient advocates, Lorcan McMahon, describes his journey with #lungfibrosis www.independent.ie/regionals/wi... #LFAwarenessMonth.
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis
Reposted by Irish Lung Fibrosis Association
Interstitial lung disease is a group of conditions that cause inflammation and scarring in the lungs.
This JAMA Patient Page describes types and causes of interstitial lung disease as well as its diagnosis, treatment, and prognosis.
ja.ma/47mj7hg
This JAMA Patient Page describes types and causes of interstitial lung disease as well as its diagnosis, treatment, and prognosis.
ja.ma/47mj7hg
September 1, 2025 at 12:00 PM
Interstitial lung disease is a group of conditions that cause inflammation and scarring in the lungs.
This JAMA Patient Page describes types and causes of interstitial lung disease as well as its diagnosis, treatment, and prognosis.
ja.ma/47mj7hg
This JAMA Patient Page describes types and causes of interstitial lung disease as well as its diagnosis, treatment, and prognosis.
ja.ma/47mj7hg
ILFA is fighting for "Equitable Care" where every patient gets the care they need in the community where they live. Today, care varies widely depending on how close you are to an ILD specialist centre.
Patients shouldn't have to travel to receive great care. #PFAwarenessMonth #EveryBreathMatters
Patients shouldn't have to travel to receive great care. #PFAwarenessMonth #EveryBreathMatters
September 2, 2025 at 6:45 AM
ILFA is fighting for "Equitable Care" where every patient gets the care they need in the community where they live. Today, care varies widely depending on how close you are to an ILD specialist centre.
Patients shouldn't have to travel to receive great care. #PFAwarenessMonth #EveryBreathMatters
Patients shouldn't have to travel to receive great care. #PFAwarenessMonth #EveryBreathMatters
ilfa.ie/lung-fibrosi... Today is the start of Lung Fibrosis Awareness Month 2025. Our #EveryBreathMatters campaign will highlight the everyday realities faced by lung fibrosis patients and caregivers. We hope you'll share our content and help us reach 1 million people! #PFMonth #LungFibrosis
September 1, 2025 at 6:19 AM
ilfa.ie/lung-fibrosi... Today is the start of Lung Fibrosis Awareness Month 2025. Our #EveryBreathMatters campaign will highlight the everyday realities faced by lung fibrosis patients and caregivers. We hope you'll share our content and help us reach 1 million people! #PFMonth #LungFibrosis
Free #solar installs for the medically vulnerable - help us spread the word! ilfa.ie/blog/free-so...
June 27, 2025 at 7:57 AM
Free #solar installs for the medically vulnerable - help us spread the word! ilfa.ie/blog/free-so...
We're celebrating the enactment of the Human Tissue Bill effective from today! This landmark legislation brings into effect a much‑anticipated “soft opt‑out” organ donation system, a milestone we've long supported.
More information here: ilfa.ie/blog/ilfa-we...
More information here: ilfa.ie/blog/ilfa-we...
June 17, 2025 at 6:47 AM
We're celebrating the enactment of the Human Tissue Bill effective from today! This landmark legislation brings into effect a much‑anticipated “soft opt‑out” organ donation system, a milestone we've long supported.
More information here: ilfa.ie/blog/ilfa-we...
More information here: ilfa.ie/blog/ilfa-we...
Thanks to @irishmedicaltimes.bsky.social for helping us get the word out about #lungfibrosis! www.imt.ie/news/lung-fi...
Lung Fibrosis patients demand urgent reform amid growing crisis in care
Lung Fibrosis is a progressive, life-limiting condition that causes scarring of the lungs, making breathing increasingly difficult
www.imt.ie
June 13, 2025 at 8:59 AM
Thanks to @irishmedicaltimes.bsky.social for helping us get the word out about #lungfibrosis! www.imt.ie/news/lung-fi...
We've been very busy advocating for better #lungfibrosis care this week! ilfa.ie/blog/an-advo...
An Advocacy Update from our CEO - Irish Lung Fibrosis Association
It’s been a very busy week for lung fibrosis! Pictured(left to right) K McVicker, MD […]
ilfa.ie
June 13, 2025 at 7:26 AM
We've been very busy advocating for better #lungfibrosis care this week! ilfa.ie/blog/an-advo...
ILFA Board member and CEO of EU PFF at the ERS Prevention Summit discussing lived experiences and pragmatic solutions to the challenges faced in pulmonary conditions.
June 12, 2025 at 1:34 PM
ILFA Board member and CEO of EU PFF at the ERS Prevention Summit discussing lived experiences and pragmatic solutions to the challenges faced in pulmonary conditions.
The advantages of the clinical programme. In Ireland , the respiratory programme unfortunately excludes lung fibrosis. The advantages of community care completely lost on our patients.
June 12, 2025 at 10:41 AM
The advantages of the clinical programme. In Ireland , the respiratory programme unfortunately excludes lung fibrosis. The advantages of community care completely lost on our patients.
A new way of looking at prevention. Considering the person at the centre…a systems approach. By doing this to reshape society, a population based approach, behaviour change is more successful and the interventions are more cost effective.
June 12, 2025 at 8:52 AM
A new way of looking at prevention. Considering the person at the centre…a systems approach. By doing this to reshape society, a population based approach, behaviour change is more successful and the interventions are more cost effective.
7 billion…the cost of reducing pollution vs 940 billion…the cost of the health impacts of pollution. Cleaning up pollution seems like an easy investment to make.
June 12, 2025 at 8:42 AM
7 billion…the cost of reducing pollution vs 940 billion…the cost of the health impacts of pollution. Cleaning up pollution seems like an easy investment to make.
For every euro invested in prevention, there can be a 14 euro return and yet, Ireland invests just .3% of GDP in preventing chronic lung diseases. We’re in the bottom third of OECD countries.
June 12, 2025 at 8:28 AM
For every euro invested in prevention, there can be a 14 euro return and yet, Ireland invests just .3% of GDP in preventing chronic lung diseases. We’re in the bottom third of OECD countries.
It’s cheaper to avoid disease than it is to treat it.
June 12, 2025 at 8:23 AM
It’s cheaper to avoid disease than it is to treat it.
“Prevention is a form of social justice.” Wise words from ERS President Silke Ryan at the ERS Presidential Summit on disease prevention.
June 12, 2025 at 8:05 AM
“Prevention is a form of social justice.” Wise words from ERS President Silke Ryan at the ERS Presidential Summit on disease prevention.
Thanks so much to Rob Hurley and Sean O’Shea for supporting the launch of our new strategy for equitable care for lung fibrosis this morning at Leinster House. (pictured with Maureen O’Donnell, ILFA CEO)
June 11, 2025 at 12:47 PM
Thanks so much to Rob Hurley and Sean O’Shea for supporting the launch of our new strategy for equitable care for lung fibrosis this morning at Leinster House. (pictured with Maureen O’Donnell, ILFA CEO)
Delighted to be launching our strategy today at Leinster House! Eqitable care for lung fibrsis patients ilfa.ie/blog/strateg...
Strategy Launch - Equitable Care for Lung Fibrosis Patients - Irish Lung Fibrosis Association
The Irish Lung Fibrosis Association have today launched a new strategy calling for a radical […]
ilfa.ie
June 11, 2025 at 10:21 AM
Delighted to be launching our strategy today at Leinster House! Eqitable care for lung fibrsis patients ilfa.ie/blog/strateg...
Here at the Wheel Summit 2025 and no surprise, multi-annual funding is the most urgent priority for the 500 or so charities here in the room.
May 28, 2025 at 9:26 AM
Here at the Wheel Summit 2025 and no surprise, multi-annual funding is the most urgent priority for the 500 or so charities here in the room.
Just a few weeks away from the Human Tissue Bill coming into effect. Let's hope it results in more lung transplants! www.gov.ie/en/departmen...
May 27, 2025 at 7:44 AM
Just a few weeks away from the Human Tissue Bill coming into effect. Let's hope it results in more lung transplants! www.gov.ie/en/departmen...