Irish Lung Fibrosis Association
@ilfa-ireland.bsky.social
Supporting patients and the lung fibrosis community with education, advocacy, research, and direct services.
Really powerful patient stories this afternoon at USPFF Summit!
November 13, 2025 at 6:44 PM
Really powerful patient stories this afternoon at USPFF Summit!
While the exact cause of #LungFibrosis isn't fully understood, risk factors increase the likelihood:
– Smoking
- Environmental/Occupational Exposure
– Conditions like GORD
– Genetic links
Knowing the risks can help you get diagnosed earlier
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis
– Smoking
- Environmental/Occupational Exposure
– Conditions like GORD
– Genetic links
Knowing the risks can help you get diagnosed earlier
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis
September 18, 2025 at 7:47 AM
While the exact cause of #LungFibrosis isn't fully understood, risk factors increase the likelihood:
– Smoking
- Environmental/Occupational Exposure
– Conditions like GORD
– Genetic links
Knowing the risks can help you get diagnosed earlier
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis
– Smoking
- Environmental/Occupational Exposure
– Conditions like GORD
– Genetic links
Knowing the risks can help you get diagnosed earlier
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis
We are honoured to have the support of Rory and his family. Rory, Jamie and Ben are raising funds in memory of their beloved father, Michael McNeill, who passed away after a long battle with #IPF. The brothers are running the Paris-Versailles race on 28 Sept 2025. www.justgiving.com/page/michael...
September 17, 2025 at 7:13 AM
We are honoured to have the support of Rory and his family. Rory, Jamie and Ben are raising funds in memory of their beloved father, Michael McNeill, who passed away after a long battle with #IPF. The brothers are running the Paris-Versailles race on 28 Sept 2025. www.justgiving.com/page/michael...
Diagnosing #LungFibrosis isn't always straightforward but timely and accurate testing helps.
Combining diagnostic tools and evaluation methods give clinicians a clearer picture, and a clearer picture means better care.
#LFAwarenessMonth.
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis
Combining diagnostic tools and evaluation methods give clinicians a clearer picture, and a clearer picture means better care.
#LFAwarenessMonth.
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis
September 15, 2025 at 7:54 AM
Diagnosing #LungFibrosis isn't always straightforward but timely and accurate testing helps.
Combining diagnostic tools and evaluation methods give clinicians a clearer picture, and a clearer picture means better care.
#LFAwarenessMonth.
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis
Combining diagnostic tools and evaluation methods give clinicians a clearer picture, and a clearer picture means better care.
#LFAwarenessMonth.
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis
Navigating a new lung fibrosis diagnosis can be overwhelming, but you're not alone.
ILFA has lots of resources available on our website: www.ilfa.ie. Just one quick reference: ilfa.ie/wp-content/u...
#LFAwarenessMonth.
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis #LungFibrosis
ILFA has lots of resources available on our website: www.ilfa.ie. Just one quick reference: ilfa.ie/wp-content/u...
#LFAwarenessMonth.
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis #LungFibrosis
September 8, 2025 at 7:17 AM
Navigating a new lung fibrosis diagnosis can be overwhelming, but you're not alone.
ILFA has lots of resources available on our website: www.ilfa.ie. Just one quick reference: ilfa.ie/wp-content/u...
#LFAwarenessMonth.
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis #LungFibrosis
ILFA has lots of resources available on our website: www.ilfa.ie. Just one quick reference: ilfa.ie/wp-content/u...
#LFAwarenessMonth.
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis #LungFibrosis
ILFA is fighting for "Equitable Care" where every patient gets the care they need in the community where they live. Today, care varies widely depending on how close you are to an ILD specialist centre.
Patients shouldn't have to travel to receive great care. #PFAwarenessMonth #EveryBreathMatters
Patients shouldn't have to travel to receive great care. #PFAwarenessMonth #EveryBreathMatters
September 2, 2025 at 6:45 AM
ILFA is fighting for "Equitable Care" where every patient gets the care they need in the community where they live. Today, care varies widely depending on how close you are to an ILD specialist centre.
Patients shouldn't have to travel to receive great care. #PFAwarenessMonth #EveryBreathMatters
Patients shouldn't have to travel to receive great care. #PFAwarenessMonth #EveryBreathMatters
ilfa.ie/lung-fibrosi... Today is the start of Lung Fibrosis Awareness Month 2025. Our #EveryBreathMatters campaign will highlight the everyday realities faced by lung fibrosis patients and caregivers. We hope you'll share our content and help us reach 1 million people! #PFMonth #LungFibrosis
September 1, 2025 at 6:19 AM
ilfa.ie/lung-fibrosi... Today is the start of Lung Fibrosis Awareness Month 2025. Our #EveryBreathMatters campaign will highlight the everyday realities faced by lung fibrosis patients and caregivers. We hope you'll share our content and help us reach 1 million people! #PFMonth #LungFibrosis
Free #solar installs for the medically vulnerable - help us spread the word! ilfa.ie/blog/free-so...
June 27, 2025 at 7:57 AM
Free #solar installs for the medically vulnerable - help us spread the word! ilfa.ie/blog/free-so...
We're celebrating the enactment of the Human Tissue Bill effective from today! This landmark legislation brings into effect a much‑anticipated “soft opt‑out” organ donation system, a milestone we've long supported.
More information here: ilfa.ie/blog/ilfa-we...
More information here: ilfa.ie/blog/ilfa-we...
June 17, 2025 at 6:47 AM
We're celebrating the enactment of the Human Tissue Bill effective from today! This landmark legislation brings into effect a much‑anticipated “soft opt‑out” organ donation system, a milestone we've long supported.
More information here: ilfa.ie/blog/ilfa-we...
More information here: ilfa.ie/blog/ilfa-we...
ILFA Board member and CEO of EU PFF at the ERS Prevention Summit discussing lived experiences and pragmatic solutions to the challenges faced in pulmonary conditions.
June 12, 2025 at 1:34 PM
ILFA Board member and CEO of EU PFF at the ERS Prevention Summit discussing lived experiences and pragmatic solutions to the challenges faced in pulmonary conditions.
The advantages of the clinical programme. In Ireland , the respiratory programme unfortunately excludes lung fibrosis. The advantages of community care completely lost on our patients.
June 12, 2025 at 10:41 AM
The advantages of the clinical programme. In Ireland , the respiratory programme unfortunately excludes lung fibrosis. The advantages of community care completely lost on our patients.
A new way of looking at prevention. Considering the person at the centre…a systems approach. By doing this to reshape society, a population based approach, behaviour change is more successful and the interventions are more cost effective.
June 12, 2025 at 8:52 AM
A new way of looking at prevention. Considering the person at the centre…a systems approach. By doing this to reshape society, a population based approach, behaviour change is more successful and the interventions are more cost effective.
7 billion…the cost of reducing pollution vs 940 billion…the cost of the health impacts of pollution. Cleaning up pollution seems like an easy investment to make.
June 12, 2025 at 8:42 AM
7 billion…the cost of reducing pollution vs 940 billion…the cost of the health impacts of pollution. Cleaning up pollution seems like an easy investment to make.
For every euro invested in prevention, there can be a 14 euro return and yet, Ireland invests just .3% of GDP in preventing chronic lung diseases. We’re in the bottom third of OECD countries.
June 12, 2025 at 8:28 AM
For every euro invested in prevention, there can be a 14 euro return and yet, Ireland invests just .3% of GDP in preventing chronic lung diseases. We’re in the bottom third of OECD countries.
It’s cheaper to avoid disease than it is to treat it.
June 12, 2025 at 8:23 AM
It’s cheaper to avoid disease than it is to treat it.
“Prevention is a form of social justice.” Wise words from ERS President Silke Ryan at the ERS Presidential Summit on disease prevention.
June 12, 2025 at 8:05 AM
“Prevention is a form of social justice.” Wise words from ERS President Silke Ryan at the ERS Presidential Summit on disease prevention.
Thanks so much to Rob Hurley and Sean O’Shea for supporting the launch of our new strategy for equitable care for lung fibrosis this morning at Leinster House. (pictured with Maureen O’Donnell, ILFA CEO)
June 11, 2025 at 12:47 PM
Thanks so much to Rob Hurley and Sean O’Shea for supporting the launch of our new strategy for equitable care for lung fibrosis this morning at Leinster House. (pictured with Maureen O’Donnell, ILFA CEO)
Here at the Wheel Summit 2025 and no surprise, multi-annual funding is the most urgent priority for the 500 or so charities here in the room.
May 28, 2025 at 9:26 AM
Here at the Wheel Summit 2025 and no surprise, multi-annual funding is the most urgent priority for the 500 or so charities here in the room.
Just a few weeks away from the Human Tissue Bill coming into effect. Let's hope it results in more lung transplants! www.gov.ie/en/departmen...
May 27, 2025 at 7:44 AM
Just a few weeks away from the Human Tissue Bill coming into effect. Let's hope it results in more lung transplants! www.gov.ie/en/departmen...
One week to go until the 2025 Vhi Women's Mini Marathon and the excitement is building !!! Are you running for #TeamILFA? If so, we'd love it if you'd meet us for a group photo outside The Mont Hotel, Merrion Street Lower, at 11.15 am. Looking forward to seeing you there!
May 26, 2025 at 6:32 AM
One week to go until the 2025 Vhi Women's Mini Marathon and the excitement is building !!! Are you running for #TeamILFA? If so, we'd love it if you'd meet us for a group photo outside The Mont Hotel, Merrion Street Lower, at 11.15 am. Looking forward to seeing you there!
“It’s important to acknowledge the groundbreaking transplant work done here over the last 20 years and the incredible support of donors, medical staff, patients, and everyone who has made life giving transplants possible.” Professor Jim Egan at the 20th lung transplant anniversary celebration.
May 16, 2025 at 1:20 PM
“It’s important to acknowledge the groundbreaking transplant work done here over the last 20 years and the incredible support of donors, medical staff, patients, and everyone who has made life giving transplants possible.” Professor Jim Egan at the 20th lung transplant anniversary celebration.
Waiting for the 20th anniversary of the first lung transplant ceremony to begin in one of the most gorgeous buildings in Dublin. The Mater hospital!
May 16, 2025 at 12:52 PM
Waiting for the 20th anniversary of the first lung transplant ceremony to begin in one of the most gorgeous buildings in Dublin. The Mater hospital!
It's shocking that there is no disease registry for #lungfibrosis in Ireland. As Jack Welch used to say, "You can't manage what you can't measure!". It's great to see this strategy for establishing registries published. Well done Future of Registries Taskforce! cfri.ie/wp-content/u...
May 14, 2025 at 6:45 AM
It's shocking that there is no disease registry for #lungfibrosis in Ireland. As Jack Welch used to say, "You can't manage what you can't measure!". It's great to see this strategy for establishing registries published. Well done Future of Registries Taskforce! cfri.ie/wp-content/u...
On the 17 June the Human Tissue Act 2024 will come into effect. Hopefully this will result in more #lung transplants. They've gone from 38 in 2019 to just 13 in 2024. A shocking decline! Let your family know your organ donation wishes - organ donations save lives. www.gov.ie/en/departmen...
May 12, 2025 at 7:04 AM
On the 17 June the Human Tissue Act 2024 will come into effect. Hopefully this will result in more #lung transplants. They've gone from 38 in 2019 to just 13 in 2024. A shocking decline! Let your family know your organ donation wishes - organ donations save lives. www.gov.ie/en/departmen...