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hopefoundinme.bsky.social
Penny
@hopefoundinme.bsky.social
81 followers 140 following 75 posts
#Blogger #Creative voice for #Nature & #pwME. Homebound #MEcfs c2004. Likes words, can't always read/write them. Nazareth Companion SMitf ✝️
https://hopefoundinme.com/
https://linktr.ee/hopefoundinme
Published by LADA
Love infrequent wheel adventures.
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hopefoundinme.bsky.social
Penny @hopefoundinme.bsky.social · May 12
You can tell I'm a pwME. I got the title wrong! It's ME Awareness Day. Never mind, it says what it needs to say.😎 Shares welcomed.💙 #InvisibleIllness #MEawareness  #FibromyalgiaAwareness #MultipleChemicalSensitivity #MEAwarenessDay #FundThePlan #CanYouSeeMENow

hopefoundinme.com/2025/05/12/m...
May – ME Awareness Month
I never look forward to ME Awareness Month with a sense of anticipation, more of existential dread. But I realise it is important for the many suffering with this much maligned condition, that the …
hopefoundinme.com
hopefoundinme.bsky.social
Still no reply forthcoming from my local MP. So disappointing. Must I share every minute detail of how awful it is to have one's life shredded by chronic illness? Sorry, but we all already have to live under a microscope! #TakingThePIP #StopTakingThePIP #CareNotCuts
June 17, 2025 at 8:32 AM
hopefoundinme.bsky.social
The Disability Charity Scope handed a petition with over 100,000 signatories to 10 Downing Street today. Requesting that the welfare cuts do not go ahead. www.instagram.com/p/DK9f3OjMcoj/
#StopTakingThePIP #TakingThePIP
June 16, 2025 at 1:11 PM
hopefoundinme.bsky.social
As the proposals are due to be debated imminently, I have emailed again.
#TakingThePIP #StopTakingThePIP #ChronicIllness #Disability
Text Image: Well, I have sent a SECOND email to our local MP asking him to vote against proposed cuts to PIP etc. Hopefully I will receive a reply/acknowledgement this time, as I lack capacity to send another. My soul has been laid bare, I have nothing more I can say. Over to you Sir John! #StopTakingThePIP #TakingThePIP
June 14, 2025 at 7:02 PM
hopefoundinme.bsky.social
#RoseWednesday Such a pretty bloom, very dense with a delicate perfume ⚘️
A deep pink rose in bloom in the sunshine
June 11, 2025 at 3:36 PM
Reposted by Penny
themerl.bsky.social
ChatGPT is down but The Museum of English Rural Life still stands, proving once again that Silicon Valley cannot compete with the history of rural England and its people.
June 10, 2025 at 12:41 PM
Reposted by Penny
sheldricktrust.bsky.social
In Voi, Rokka leads the orphan herd onto the vast - food filled plains - of Tsavo East.

With donor support, this is what second chances look like for orphaned elephants we rescue and raise. Be part of our mission to save individuals and support entires species; adopt or donate at: swt.bio/rokka
June 8, 2025 at 5:23 PM
Reposted by Penny
eastangliabylines.co.uk
Wendy Valentine, founder of the Hillside Animal sanctuaries in Frettenham near Norwich & in East Runton on the north Norfolk coast, has given a home to Birmingham’s free-running bull.

We wish Liam & Wendy every happiness & encourage our readers to visit & see their work.

Report via The Guardian
Birmingham’s free-running bull rehomed in Norwich animal sanctuary
The animal, thought to have escaped from an abattoir, was corralled by council staff before being offered his new home
www.theguardian.com
June 8, 2025 at 12:36 PM
hopefoundinme.bsky.social
A rose in the garden has finally bloomed.🌹...beautiful scent too.
A blush pink rose in bloom
June 4, 2025 at 2:59 PM
hopefoundinme.bsky.social
@mfairma.bsky.social thank you for sharing.
May 18, 2025 at 3:12 PM
hopefoundinme.bsky.social
#BlueSundayForME #TeaPartyForME2025
I have donated to @smileforme and @meresearchuk - two proactive voices for the ME Community.💙

Thank to Anna of @theslowlane.me for this incredible initiative which has so far raised £100,000. for ME Charities.

And enjoy your cuppa!
☕️🍰😋
May 18, 2025 at 3:06 PM
hopefoundinme.bsky.social
You can tell I'm a pwME. I got the title wrong! It's ME Awareness Day. Never mind, it says what it needs to say.😎 Shares welcomed.💙 #InvisibleIllness #MEawareness  #FibromyalgiaAwareness #MultipleChemicalSensitivity #MEAwarenessDay #FundThePlan #CanYouSeeMENow

hopefoundinme.com/2025/05/12/m...
May – ME Awareness Month
I never look forward to ME Awareness Month with a sense of anticipation, more of existential dread. But I realise it is important for the many suffering with this much maligned condition, that the …
hopefoundinme.com
May 12, 2025 at 9:17 AM
hopefoundinme.bsky.social
ME is real & takes a wrecking ball to people's lives, families, circumstances, careers, finances, hopes and dreams. Many, are not believed/supported, just belittled & gas lit. It MUST change.
#MEIsReal #BelieveME
#CanYouSeeMENow #MEAwarenessMonth #pwME #MEcfsAwareness #FundThePlan #MyalgicE #MEcfs
ME Awareness Month poster describing why with 20+ years of ME I don't enjoy this month.
May 2, 2025 at 10:31 AM
hopefoundinme.bsky.social
New on the blog. Thankful to have a space I can pour a few thoughts out.
Do pop by.

hopefoundinme.com/2025/04/23/c...

#HappyThursday
#pwME #HomeVisits #MEcfs #NeverGiveUpNeverSurrender #Homebound #MEAwareness #Equality #Disability
Comparison – the Thief of Joy
Hello again from here. It is lovely to be writing a little again. Today the letter of ‘MEcfs Street is ~ Aaaaaaggh’!! Seriously though, thank you Sesame Street for the many cheery episo…
hopefoundinme.com
April 24, 2025 at 11:14 AM
Reposted by Penny
societyofauthors.bsky.social
📢Join us tomorrow at Granary Square 1pm for a protest Meta following revelations of pirated books being used to train their large language models. More details below 👇
Meta Protest – The Society of Authors
« All Events
societyofauthors.org
April 2, 2025 at 8:45 AM
Reposted by Penny
societyofauthors.bsky.social
Thank you to everyone who has signed our petition, 6,000+! Authors deserve to have a livelihood and compensation from their work, if you haven't signed do so now 👇
Sign the Petition
Protect authors’ livelihoods from the unlicensed use of their work in AI training
www.change.org
April 2, 2025 at 12:01 PM
hopefoundinme.bsky.social
Excitement of having chronic illness like #MEcfs. My husband (my primary carer who also works) took me out for the 1st time this year, & 3rd time in around six months. All medical appointments. My last visitor was my dog walker, home help and Community Nursing. Such racey lives we lead. #CareNotCuts
March 31, 2025 at 10:45 AM
hopefoundinme.bsky.social
Spring flowers for a sunny day. Interspersing cheer inbetween some of the fog currently weighing down many in the Chronic Illness & Disability communities. #pwME #Spring #Blossom
March 30, 2025 at 10:58 AM
hopefoundinme.bsky.social
www.instagram.com/lucyclaireil...
March 30, 2025 at 7:41 AM
hopefoundinme.bsky.social
"I tried to listen to the Chancellor’s Spring Statement, but only managed about 10 minutes. Partly because it felt pretty excruciating, partly because..." 😐 #CareNotCuts #Disability #ChronicIllness #PIP #Poverty
The Chancellor's Spring Statement - Shockwaves! hopefoundinme.com/2025/03/27/t...
The Chancellor’s Spring Statement – Shockwaves!
Following on from my previous post about PIP. I tried to listen to the Chancellor’s Spring Statement yesterday, but only managed about 10 minutes. Partly because it felt pretty excruciating, …
hopefoundinme.com
March 30, 2025 at 7:34 AM
hopefoundinme.bsky.social
Already Sunday, but I enjoyed writing this piece. #Ignatius #ContemplativePrayer #NazarethCommunity Saturday Sharing hopefoundinme.com/2025/03/29/s...
Saturday Sharing
What Am I Sharing? Ideally today I should be sitting in an online listening group for Saturday Sharing with the Nazareth Companions. Unfortunately, MEcfs has other ideas. So I thought I would do a …
hopefoundinme.com
March 30, 2025 at 7:22 AM
hopefoundinme.bsky.social
I've heard nothing about how working carers aka taxpayers will be supported.
March 26, 2025 at 12:47 PM
Reposted by Penny
shrinkatlarge.bsky.social
NEW: The Equality and Human Right Commission is investigating Labour’s benefits cuts for potentially breaching the Equality Act. Spoiler alert: it is. I’m half way through all these PIP scoring forms and changing to needing 4 in one item is clearly discriminatory.
Alt text: A screenshot from The Telegraph’s website features a headline reading: “Labour benefit cuts may breach equality law, says human rights watchdog.” The subheading states: “Equality commission to consider how Liz Kendall’s £5b welfare reforms will impact disabled people.” Below the headline is a photo of Liz Kendall speaking at the dispatch box in the House of Commons. She is wearing large glasses and a dark blue suit, with a serious expression as MPs look on in the background.
March 22, 2025 at 8:45 PM
hopefoundinme.bsky.social
It is proving an ever more challenging time just coping with awareness of everyday headlines. With growing feelings of unease...government is increasing its acts of austerity..
Some thoughts on the current proposals. #MEcfs #PIP #ChronicIllness #Disability #Carers hopefoundinme.com/2025/03/24/p...
Proposed Changes to PIP – Thoughts
It is proving an ever more challenging time just coping with awareness of everyday headlines. With growing feelings of unease that perhaps our government is increasing its acts of austerity to gain…
hopefoundinme.com
March 25, 2025 at 12:08 PM
Reposted by Penny
trusselluk.bsky.social
‼️ There's still time for the Government to rethink social security cuts - and you can help.

Follow the link below to email your MP ⬇️
action.trussell.org.uk/disability-c...
March 22, 2025 at 11:21 AM