Hefzi
hefziba.bsky.social
Hefzi
@hefziba.bsky.social
My child has #longcovid. That’s it, nothing else matters anymore.
Reposted by Hefzi
100%. It's funny you reach for a financial metaphor here because I also find that's one way I have a little more success explaining the flavor of disability that ME/CFS causes -- it's like our energy budget is below minimum wage, sometimes we don't even have enough money to cover the essentials.
December 28, 2024 at 5:39 PM
Or the amount of children poisoned. How?
December 22, 2024 at 5:39 AM
I’m also surprised at the amount of children suffocating. Is this also higher in the USA? Parents should be taught how to avoid and help a suffocating child .
December 22, 2024 at 5:38 AM
It just crazy, I would almost call it criminal that these simple tests are not the first things that are being done. So much of people’s lives down the drain because of fairy tails from the past.
December 19, 2024 at 9:35 PM
Never new that. What about IBS probably also a MCAS thing?
December 9, 2024 at 9:13 AM
I started adding 2000U of natto to his medication recently, but don’t know how much can be combined with clopidogrel. He is getting older now so I am less afraid to experiment, but I used to be afraid, even though our GP took over the prescriptions we got in Germany.
December 8, 2024 at 6:07 AM
Reposted by Hefzi
Http://dbkgroup.org/longcovid/.
December 7, 2024 at 7:15 PM
Thank you. He and I started on clopidagrel since 2022 and it has made me able to work again . It has brought more room in his existence, but he stil got worse after a year . We are going to Germany to test on miclots ( again) . Maybe he needs something stronger.
December 8, 2024 at 5:45 AM