Graeme Masson
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graememasson.bsky.social
Graeme Masson
@graememasson.bsky.social
Winning some and losing some v #Parkinsons. 49ers, Aberdeen FC, only listen to bands beginning with “R”…REM, Radiohead, Rush.

I swear. A lot.
100k people on the streets of Aberdeen to celebrate the return of the Scottish Cup after 35 long years. #parkinsons may have prevented me from getting to the game, but it couldn’t stop me being 1 of the 100k 😃
May 27, 2025 at 9:15 AM
This was me after DBS surgery. A week later and the stitches are out. I get a proper shower tomorrow! 😁
April 3, 2025 at 7:38 PM
Hello. I haven’t posted in ages, so I’ve probably dropped off your radar! But I thought I’d let you know that I’m having brain surgery today…more precisely Deep Brain Stimulation (DBS). If it works well, my Parkinson’s symptoms will be reduced, at least for a while
Watch this space!
#dbs #parkinsons
March 24, 2025 at 7:53 AM
@ponderingpd.bsky.social

I’m 6 for 6 on my playoff predictions so far. If I continue to be right, you’ll be celebrating a Bills superbowl! 😀

superbowlchallenge.co.uk/predictor/sh...
NFL Super Bowl Challenge
I've predicted the Buffalo Bills to be crowned Super Bowl LVIII Champions Click above to see the rest of my playoff predictions! #SBLVIII #SuperBowlChallenge https://superbowlchallenge.co.uk/view/X1JY...
superbowlchallenge.co.uk
January 14, 2025 at 10:21 AM
@ponderingpd.bsky.social . Your Bills are looking gooood👌
December 15, 2024 at 11:44 PM
Good news . I thought I had #parkinsons
But, yesterday when I parked in a disabled parking space, blue badge on display, a man shouted out “THERE’s FUCK ALL WRONG with you!”
“What an amazing guy”, I thought.
The ability to diagnose after a single glance? I thank you, mysterious car park doctor! 👍
the word angry man is on a picture of a man
ALT: the word angry man is on a picture of a man
media.tenor.com
December 8, 2024 at 12:31 AM
Reposted by Graeme Masson
🧠 Like all surgical procedures, there are some common misconceptions around Deep Brain Stimulation for #Parkinson's.

👉 Read this thread, & discover more expert info in our interview: https://buff.ly/3MMrS8M

🧵 1/7
#DemystifyingDBS #parkinsons
In partnership with @AbbottNews @bostonsci @Medtronic
December 6, 2024 at 12:30 PM
Parkinson’s is a bastard of a disease, and its big symptoms like tremoring, rigid painful muscles, insomnia etc obviously impact QOL
But sometimes, it can be the minor symptoms that piss me off.

I now seem to be unable to eat a meal without biting the inside of my mouth.
December 3, 2024 at 1:40 AM
Reposted by Graeme Masson
@ponderingpd.bsky.social
Ouch! At least 49ers will get an early draft pick next year😬
Good luck to the Bills. Playing really well. This could be their year😀
December 2, 2024 at 10:02 AM
Reposted by Graeme Masson
November 25, 2024 at 4:54 PM
There’s nothing in the world better than an afternoon nap.

Nothing.
November 24, 2024 at 3:52 PM
Reposted by Graeme Masson
The videos have started to come through! I’m really excited to put this film together! 👍 thanks for sharing @salsbergmathews.bsky.social !! 😍
November 23, 2024 at 10:41 PM
Reposted by Graeme Masson
#pdcommunity check out this project and consider contributing your video! Your voice needs to be amplified #parkinsons #yopd #disability @davidsangster.bsky.social
Ok @bsky.app #parkinsons community here's a way to put out call, to raise the flag, to shine a light and reach out.

Would you like to help myself and @rebeccamil.bsky.social do just that. I haven't made a video like this is a while which means its definitely overdue. >>>
November 22, 2024 at 1:45 PM
Reposted by Graeme Masson
More info regarding the #parkinsonsxmaswrap video
November 22, 2024 at 3:04 PM
Had my biannual appt with neurologist today. Another med added.
So for PD symptoms, I’m taking
Co-careldopa (standard)
Co-careldopa (slow release)
Co-beneldopa (dispersible)
Rasagiline
Opicapone
Amantadine
Domperidone
Laxido
Zopiclone

I’ll have to hire a truck for my pharmacy visits 😆
a large truck is parked in front of a building that says pawel
ALT: a large truck is parked in front of a building that says pawel
media.tenor.com
November 22, 2024 at 4:57 PM
I’ve gone all in. X account deleted.
November 22, 2024 at 4:24 PM
Reposted by Graeme Masson
I want to put out a collective message, a wrap up (if you like) of 2024 and your hopes and fears in 2025! #parkinsonsxmaswrap #parkinsons OPEN TO ALL AGES please take part: deadline for submissions DECEMBER 2nd THANKS @rebeccamil.bsky.social for all your help - you rock x youtu.be/rdDvYIUAGqM
#ParkinsonsXmasWrap 2024
YouTube video by YOPD TV
youtu.be
November 22, 2024 at 1:41 AM
This has brought me to tears, not bc it’s upsetting, but bc it tells me I am not alone. That PD is the “bad guy”, not me. That the “quiet exhaustion” felt by my wife is natural and no cause for guilt for either of us.

Emma has described EXACTLY how I feel. And I’d guess many others too.
November 22, 2024 at 8:06 AM
Hello again, Parkinson’s people!

Anyone care to share their DBS success stories?

I’ve been assessed and confirmed as suitable. Op due next summer. Meds alone aren’t cutting it.

Desperate to be a more active dad for my 9 yo daughter. You don’t get the time back.

#parkinsons
November 20, 2024 at 1:02 PM