Parkinson's Europe
@parkinsonseurope.bsky.social
🌷The leading voice for #Parkinson's in Europe since 1992
🌷Supporting the 1.2m Europeans with #Parkinsons and their families
🌷Founder of #WorldParkinsonsDay
🌷Supporting the 1.2m Europeans with #Parkinsons and their families
🌷Founder of #WorldParkinsonsDay
Pinned
🚨 NEW: we're proud to launch our new Parkinson's Passport!
Planning a holiday? ✈️ The Parkinson's Passport gives you a handy record of your important medical info, making travel with #Parkinsons less stressful.
👉 Download in French, English, Italian or German: buff.ly/8IbHN0Z
#Parkinson
Planning a holiday? ✈️ The Parkinson's Passport gives you a handy record of your important medical info, making travel with #Parkinsons less stressful.
👉 Download in French, English, Italian or German: buff.ly/8IbHN0Z
#Parkinson
November is National Caregivers Month. ❤️
To recognise the diverse range of caregivers in the Parkinson's community, Canadian artist @salsbergmathews.bsky.social has created a set of illustrations placing Parkinson's carers under the spotlight.
🔗 buff.ly/jhAD9Sy #NationalCaregiversMonth
To recognise the diverse range of caregivers in the Parkinson's community, Canadian artist @salsbergmathews.bsky.social has created a set of illustrations placing Parkinson's carers under the spotlight.
🔗 buff.ly/jhAD9Sy #NationalCaregiversMonth
November 26, 2025 at 10:01 AM
November is National Caregivers Month. ❤️
To recognise the diverse range of caregivers in the Parkinson's community, Canadian artist @salsbergmathews.bsky.social has created a set of illustrations placing Parkinson's carers under the spotlight.
🔗 buff.ly/jhAD9Sy #NationalCaregiversMonth
To recognise the diverse range of caregivers in the Parkinson's community, Canadian artist @salsbergmathews.bsky.social has created a set of illustrations placing Parkinson's carers under the spotlight.
🔗 buff.ly/jhAD9Sy #NationalCaregiversMonth
An interesting short new video about genetic testing for Parkinson's from @ern-rnd.bsky.social :
ERN-RND: Genetic Testing for Parkinson's Disease - Interview David Crosiers
Genetics is transforming how we understand Parkinson’s Disease. With new genes discovered, advanced sequencing tools, and emerging genetic therapies, what is the current use in clinical practice…
buff.ly
November 25, 2025 at 11:01 AM
An interesting short new video about genetic testing for Parkinson's from @ern-rnd.bsky.social :
Reposted by Parkinson's Europe
🌍💊 It’s #MedSafetyWeek 2025!
EMA and partners worldwide are promoting medicine safety and encouraging everyone to report suspected side effects.
🔍 Find out how the EU system works to keep medicines safe.: www.ema.europa.eu/en/about-us/...
#MedSky
EMA and partners worldwide are promoting medicine safety and encouraging everyone to report suspected side effects.
🔍 Find out how the EU system works to keep medicines safe.: www.ema.europa.eu/en/about-us/...
#MedSky
November 7, 2025 at 11:23 AM
🌍💊 It’s #MedSafetyWeek 2025!
EMA and partners worldwide are promoting medicine safety and encouraging everyone to report suspected side effects.
🔍 Find out how the EU system works to keep medicines safe.: www.ema.europa.eu/en/about-us/...
#MedSky
EMA and partners worldwide are promoting medicine safety and encouraging everyone to report suspected side effects.
🔍 Find out how the EU system works to keep medicines safe.: www.ema.europa.eu/en/about-us/...
#MedSky
Great news! A new University College Cork-led project, PD Life, has received a huge €4m to create Ireland's first all-island Parkinson's research hub.
It's a massive injection of funding for PD research in Ireland and Northern Ireland. 🙌
👉 Read the story in full here: buff.ly/aRYrSpW
It's a massive injection of funding for PD research in Ireland and Northern Ireland. 🙌
👉 Read the story in full here: buff.ly/aRYrSpW
November 24, 2025 at 10:30 AM
Great news! A new University College Cork-led project, PD Life, has received a huge €4m to create Ireland's first all-island Parkinson's research hub.
It's a massive injection of funding for PD research in Ireland and Northern Ireland. 🙌
👉 Read the story in full here: buff.ly/aRYrSpW
It's a massive injection of funding for PD research in Ireland and Northern Ireland. 🙌
👉 Read the story in full here: buff.ly/aRYrSpW
📣 Today is #InternationalMensDay
To mark the day, we're proud to share @salsbergmathews.bsky.social illustrations reimagining the Five Stages of Parkinson's. These six images feature a diverse range of young men, some based on those in the public eye. @jcfoxninja.bsky.social
🔗 buff.ly/IrXMKIE
To mark the day, we're proud to share @salsbergmathews.bsky.social illustrations reimagining the Five Stages of Parkinson's. These six images feature a diverse range of young men, some based on those in the public eye. @jcfoxninja.bsky.social
🔗 buff.ly/IrXMKIE
November 19, 2025 at 10:00 AM
📣 Today is #InternationalMensDay
To mark the day, we're proud to share @salsbergmathews.bsky.social illustrations reimagining the Five Stages of Parkinson's. These six images feature a diverse range of young men, some based on those in the public eye. @jcfoxninja.bsky.social
🔗 buff.ly/IrXMKIE
To mark the day, we're proud to share @salsbergmathews.bsky.social illustrations reimagining the Five Stages of Parkinson's. These six images feature a diverse range of young men, some based on those in the public eye. @jcfoxninja.bsky.social
🔗 buff.ly/IrXMKIE
Another stark statistic from our recent survey.
A third of the almost 1,000 people with Parkinson's who took part in our survey told us the condition cost them over €20,000 per year.
Have you experienced loss of earnings due to Parkinson's? Share your experiences with us below 👇
buff.ly/rLU25t0
A third of the almost 1,000 people with Parkinson's who took part in our survey told us the condition cost them over €20,000 per year.
Have you experienced loss of earnings due to Parkinson's? Share your experiences with us below 👇
buff.ly/rLU25t0
November 18, 2025 at 10:01 AM
Another stark statistic from our recent survey.
A third of the almost 1,000 people with Parkinson's who took part in our survey told us the condition cost them over €20,000 per year.
Have you experienced loss of earnings due to Parkinson's? Share your experiences with us below 👇
buff.ly/rLU25t0
A third of the almost 1,000 people with Parkinson's who took part in our survey told us the condition cost them over €20,000 per year.
Have you experienced loss of earnings due to Parkinson's? Share your experiences with us below 👇
buff.ly/rLU25t0
We're constantly inspired by the 'yes, we can' attitude of the Parkinson's community.
As part of our celebration of 10 years of Parkinson's Life, we look back at some of the epic and awe-inspiring sporting challenges taken on by people with Parkinson's or as fundraisers.
🔗 buff.ly/9AigGaM
As part of our celebration of 10 years of Parkinson's Life, we look back at some of the epic and awe-inspiring sporting challenges taken on by people with Parkinson's or as fundraisers.
🔗 buff.ly/9AigGaM
November 17, 2025 at 10:04 AM
We're constantly inspired by the 'yes, we can' attitude of the Parkinson's community.
As part of our celebration of 10 years of Parkinson's Life, we look back at some of the epic and awe-inspiring sporting challenges taken on by people with Parkinson's or as fundraisers.
🔗 buff.ly/9AigGaM
As part of our celebration of 10 years of Parkinson's Life, we look back at some of the epic and awe-inspiring sporting challenges taken on by people with Parkinson's or as fundraisers.
🔗 buff.ly/9AigGaM
Self care is a necessity, not a luxury, especially when you have a long-term health condition like Parkinson's.
We'd love to hear how YOU practice self care in your daily lives to keep yourself mentally, physically and emotionally healthy - tell us below 👇
#Parkinsons #Parkinson
We'd love to hear how YOU practice self care in your daily lives to keep yourself mentally, physically and emotionally healthy - tell us below 👇
#Parkinsons #Parkinson
November 14, 2025 at 1:53 PM
Self care is a necessity, not a luxury, especially when you have a long-term health condition like Parkinson's.
We'd love to hear how YOU practice self care in your daily lives to keep yourself mentally, physically and emotionally healthy - tell us below 👇
#Parkinsons #Parkinson
We'd love to hear how YOU practice self care in your daily lives to keep yourself mentally, physically and emotionally healthy - tell us below 👇
#Parkinsons #Parkinson
“It takes positivity, courage, and a relentless desire to live your best life.”
🚨 Legend alert! We were lucky enough to chat with the incredible Parky advocate @matteagles.bsky.social as he marks 50 years since his childhood Parkinson's diagnosis.
Read our chat in full, here: buff.ly/pPl4pmR
🚨 Legend alert! We were lucky enough to chat with the incredible Parky advocate @matteagles.bsky.social as he marks 50 years since his childhood Parkinson's diagnosis.
Read our chat in full, here: buff.ly/pPl4pmR
November 11, 2025 at 10:01 AM
“It takes positivity, courage, and a relentless desire to live your best life.”
🚨 Legend alert! We were lucky enough to chat with the incredible Parky advocate @matteagles.bsky.social as he marks 50 years since his childhood Parkinson's diagnosis.
Read our chat in full, here: buff.ly/pPl4pmR
🚨 Legend alert! We were lucky enough to chat with the incredible Parky advocate @matteagles.bsky.social as he marks 50 years since his childhood Parkinson's diagnosis.
Read our chat in full, here: buff.ly/pPl4pmR
Reposted by Parkinson's Europe
This is upsetting to watch, but Elisabeth's emotional testimony from our visit to @europarl.europa.eu yesterday is true for so many people with Parkinson's across Europe - and their caregivers - who simply need more support. (1/2)
#Parkinsons #Parkinson #EUParliament #Carers #Caregivers
#Parkinsons #Parkinson #EUParliament #Carers #Caregivers
November 6, 2025 at 5:05 PM
This is upsetting to watch, but Elisabeth's emotional testimony from our visit to @europarl.europa.eu yesterday is true for so many people with Parkinson's across Europe - and their caregivers - who simply need more support. (1/2)
#Parkinsons #Parkinson #EUParliament #Carers #Caregivers
#Parkinsons #Parkinson #EUParliament #Carers #Caregivers
This is upsetting to watch, but Elisabeth's emotional testimony from our visit to @europarl.europa.eu yesterday is true for so many people with Parkinson's across Europe - and their caregivers - who simply need more support. (1/2)
#Parkinsons #Parkinson #EUParliament #Carers #Caregivers
#Parkinsons #Parkinson #EUParliament #Carers #Caregivers
November 6, 2025 at 5:05 PM
This is upsetting to watch, but Elisabeth's emotional testimony from our visit to @europarl.europa.eu yesterday is true for so many people with Parkinson's across Europe - and their caregivers - who simply need more support. (1/2)
#Parkinsons #Parkinson #EUParliament #Carers #Caregivers
#Parkinsons #Parkinson #EUParliament #Carers #Caregivers
Watch our Strategic Director, Amelia Hursey, in this short video about her involvement with the @ean.org Scientific Panel on Movement Disorders:
Video Interview: Amelia Hursey, Patient Representative, EAN Scientific Panel on Movement Disorders - eanNews
First in a new series of interviews with patient representatives discussing their roles on EAN Scientific Panels.
buff.ly
November 6, 2025 at 11:28 AM
Watch our Strategic Director, Amelia Hursey, in this short video about her involvement with the @ean.org Scientific Panel on Movement Disorders:
❤️ Today, we are incredibly proud to have visited @europarl.europa.eu to meet with MEP Sokol, and share our stories of the reality of life with Parkinson's. (🧵 1/2)
#Parkinsons #Parkinson #EUParliament #EUPolitics #Europe
#Parkinsons #Parkinson #EUParliament #EUPolitics #Europe
November 5, 2025 at 3:24 PM
❤️ Today, we are incredibly proud to have visited @europarl.europa.eu to meet with MEP Sokol, and share our stories of the reality of life with Parkinson's. (🧵 1/2)
#Parkinsons #Parkinson #EUParliament #EUPolitics #Europe
#Parkinsons #Parkinson #EUParliament #EUPolitics #Europe
Today was a special day for us at Parkinson's Europe - our Board had its first in-person meeting in over five years! ❤️
Here's a group shot with everyone (including our Vice President Gary, who joined remotely) - it's so wonderful to be together again.
#Parkinsons #Parkinson
Here's a group shot with everyone (including our Vice President Gary, who joined remotely) - it's so wonderful to be together again.
#Parkinsons #Parkinson
November 5, 2025 at 12:20 PM
Today was a special day for us at Parkinson's Europe - our Board had its first in-person meeting in over five years! ❤️
Here's a group shot with everyone (including our Vice President Gary, who joined remotely) - it's so wonderful to be together again.
#Parkinsons #Parkinson
Here's a group shot with everyone (including our Vice President Gary, who joined remotely) - it's so wonderful to be together again.
#Parkinsons #Parkinson
The benefits of physiotherapy – both physically and mentally – are huge for those with a Parkinson's diagnosis.
Want to know how a physiotherapist can help you? Read our handy guide (approved and co-authored by our President and Parkinson's physio Josefa Domingos) here: buff.ly/KapJEb5
Want to know how a physiotherapist can help you? Read our handy guide (approved and co-authored by our President and Parkinson's physio Josefa Domingos) here: buff.ly/KapJEb5
November 5, 2025 at 10:30 AM
The benefits of physiotherapy – both physically and mentally – are huge for those with a Parkinson's diagnosis.
Want to know how a physiotherapist can help you? Read our handy guide (approved and co-authored by our President and Parkinson's physio Josefa Domingos) here: buff.ly/KapJEb5
Want to know how a physiotherapist can help you? Read our handy guide (approved and co-authored by our President and Parkinson's physio Josefa Domingos) here: buff.ly/KapJEb5
Delighted to have our Board and team together for a very special trip to Leuven, Belgium ahead of our first face-to-face Board meeting since the pandemic! 🇧🇪
Lots of exciting things planned for this trip - keep an eye on our socials for updated. #Parkinsons
Lots of exciting things planned for this trip - keep an eye on our socials for updated. #Parkinsons
November 4, 2025 at 9:31 PM
Delighted to have our Board and team together for a very special trip to Leuven, Belgium ahead of our first face-to-face Board meeting since the pandemic! 🇧🇪
Lots of exciting things planned for this trip - keep an eye on our socials for updated. #Parkinsons
Lots of exciting things planned for this trip - keep an eye on our socials for updated. #Parkinsons
The Parkinson's Europe team is excited to be part of the World Parkinson Congress' Red Thread Project.
Together, we're celebrating the connectedness and strength of the Parkinson's community.
Here's how to get involved 👉 buff.ly/KDupUQx
@worldpdcongress.bsky.social #RedThreadProject #WPC2026
Together, we're celebrating the connectedness and strength of the Parkinson's community.
Here's how to get involved 👉 buff.ly/KDupUQx
@worldpdcongress.bsky.social #RedThreadProject #WPC2026
November 4, 2025 at 9:27 AM
The Parkinson's Europe team is excited to be part of the World Parkinson Congress' Red Thread Project.
Together, we're celebrating the connectedness and strength of the Parkinson's community.
Here's how to get involved 👉 buff.ly/KDupUQx
@worldpdcongress.bsky.social #RedThreadProject #WPC2026
Together, we're celebrating the connectedness and strength of the Parkinson's community.
Here's how to get involved 👉 buff.ly/KDupUQx
@worldpdcongress.bsky.social #RedThreadProject #WPC2026
💻 Good news! If you missed our Work and Parkinson's webinar last week, you can now watch the recording in full on our YouTube channel.
Our expert panel cover everything from your legal rights and protections at work across Europe to the workplace accommodations you can ask for.
👉 buff.ly/qKiROOg
Our expert panel cover everything from your legal rights and protections at work across Europe to the workplace accommodations you can ask for.
👉 buff.ly/qKiROOg
October 31, 2025 at 10:01 AM
💻 Good news! If you missed our Work and Parkinson's webinar last week, you can now watch the recording in full on our YouTube channel.
Our expert panel cover everything from your legal rights and protections at work across Europe to the workplace accommodations you can ask for.
👉 buff.ly/qKiROOg
Our expert panel cover everything from your legal rights and protections at work across Europe to the workplace accommodations you can ask for.
👉 buff.ly/qKiROOg
🚨 NEWS: UK-based Cure Parkinson’s has launched a £2 million funding call to test rationally designed combination therapies for disease modification in Parkinson’s.
@cureparkinsons.org.uk
👉 Read the story in full here buff.ly/LuCWWbE
@cureparkinsons.org.uk
👉 Read the story in full here buff.ly/LuCWWbE
October 29, 2025 at 12:03 PM
🚨 NEWS: UK-based Cure Parkinson’s has launched a £2 million funding call to test rationally designed combination therapies for disease modification in Parkinson’s.
@cureparkinsons.org.uk
👉 Read the story in full here buff.ly/LuCWWbE
@cureparkinsons.org.uk
👉 Read the story in full here buff.ly/LuCWWbE
Our Strategic Director Amelia Hursey is excited to be presenting at today's European Medicines Agency ( @ema.europa.eu ) ACT-EU annual meeting, talking about Innovation in patient involvement in clinical trials.
#Parkinsons #HealthResearch
#Parkinsons #HealthResearch
October 29, 2025 at 10:00 AM
Our Strategic Director Amelia Hursey is excited to be presenting at today's European Medicines Agency ( @ema.europa.eu ) ACT-EU annual meeting, talking about Innovation in patient involvement in clinical trials.
#Parkinsons #HealthResearch
#Parkinsons #HealthResearch
🗣️ Let's talk.
We spoke to the experts to find out the key conversations to have with your employer about working after a Parkinson's diagnosis. From the questions to ask, to the topics to raise with HR, colleagues and your employer, it's all here.
🔗 Click to read buff.ly/4XgYd7x
#parkinsons
We spoke to the experts to find out the key conversations to have with your employer about working after a Parkinson's diagnosis. From the questions to ask, to the topics to raise with HR, colleagues and your employer, it's all here.
🔗 Click to read buff.ly/4XgYd7x
#parkinsons
October 28, 2025 at 10:02 AM
🗣️ Let's talk.
We spoke to the experts to find out the key conversations to have with your employer about working after a Parkinson's diagnosis. From the questions to ask, to the topics to raise with HR, colleagues and your employer, it's all here.
🔗 Click to read buff.ly/4XgYd7x
#parkinsons
We spoke to the experts to find out the key conversations to have with your employer about working after a Parkinson's diagnosis. From the questions to ask, to the topics to raise with HR, colleagues and your employer, it's all here.
🔗 Click to read buff.ly/4XgYd7x
#parkinsons
"You take the good, and you seize it" ❤️
Michael J Fox opens up about the physical challenges of living with Parkinson's in an exclusive interview with People magazine people.com
👉 Find out more here buff.ly/FL3dgUj
#michaeljfox #parkinson #parkinsons #parkinsonsdisease#futureboy
Michael J Fox opens up about the physical challenges of living with Parkinson's in an exclusive interview with People magazine people.com
👉 Find out more here buff.ly/FL3dgUj
#michaeljfox #parkinson #parkinsons #parkinsonsdisease#futureboy
October 27, 2025 at 10:00 AM
"You take the good, and you seize it" ❤️
Michael J Fox opens up about the physical challenges of living with Parkinson's in an exclusive interview with People magazine people.com
👉 Find out more here buff.ly/FL3dgUj
#michaeljfox #parkinson #parkinsons #parkinsonsdisease#futureboy
Michael J Fox opens up about the physical challenges of living with Parkinson's in an exclusive interview with People magazine people.com
👉 Find out more here buff.ly/FL3dgUj
#michaeljfox #parkinson #parkinsons #parkinsonsdisease#futureboy
🗣️ Callout: we're looking for people to join a focus group about intrajejunal pump therapy for Parkinson’s (ie a pump delivering #Parkinsons medicine via a needle inserted into your abdomen) in collaboration with one of our industry partners.
🧵 1/3 #Parkinson #research #neurology
🧵 1/3 #Parkinson #research #neurology
October 23, 2025 at 6:56 PM
🗣️ Callout: we're looking for people to join a focus group about intrajejunal pump therapy for Parkinson’s (ie a pump delivering #Parkinsons medicine via a needle inserted into your abdomen) in collaboration with one of our industry partners.
🧵 1/3 #Parkinson #research #neurology
🧵 1/3 #Parkinson #research #neurology
An incredible video. ❤️
We hope Denise is recovering well from her DBS surgery and her #Parkinsons symptoms continue to improve!
We hope Denise is recovering well from her DBS surgery and her #Parkinsons symptoms continue to improve!
🎶🧠 During #BrainSurgery at King’s College Hospital, #Parkinson’s patient Denise played her clarinet enabling surgeons to see – and hear – immediate results.
Read ➡️ tinyurl.com/3xm5mh96
#TeamKings #Neurosurgery #InnovationInCare #ClarinetStory
Read ➡️ tinyurl.com/3xm5mh96
#TeamKings #Neurosurgery #InnovationInCare #ClarinetStory
October 23, 2025 at 4:57 PM
An incredible video. ❤️
We hope Denise is recovering well from her DBS surgery and her #Parkinsons symptoms continue to improve!
We hope Denise is recovering well from her DBS surgery and her #Parkinsons symptoms continue to improve!
Reposted by Parkinson's Europe
📣 THE RESULTS ARE IN:
Almost 1,000 people with Parkinson's took part in our Welcome in the Workplace survey, and the results are a damning picture of working with Parkinson’s, with careers cut short, financial loss and fear of stigma.
👉 Read the full results: buff.ly/rsSc9ay
#Parkinsons
Almost 1,000 people with Parkinson's took part in our Welcome in the Workplace survey, and the results are a damning picture of working with Parkinson’s, with careers cut short, financial loss and fear of stigma.
👉 Read the full results: buff.ly/rsSc9ay
#Parkinsons
October 22, 2025 at 12:44 PM
📣 THE RESULTS ARE IN:
Almost 1,000 people with Parkinson's took part in our Welcome in the Workplace survey, and the results are a damning picture of working with Parkinson’s, with careers cut short, financial loss and fear of stigma.
👉 Read the full results: buff.ly/rsSc9ay
#Parkinsons
Almost 1,000 people with Parkinson's took part in our Welcome in the Workplace survey, and the results are a damning picture of working with Parkinson’s, with careers cut short, financial loss and fear of stigma.
👉 Read the full results: buff.ly/rsSc9ay
#Parkinsons