Crystal
@gemzme.bsky.social
Reposted by Crystal
Living with disabilities is a masterclass in how to handle gaslighting
You get it from everyone. Doctors, family, friends, bosses, colleagues
A neverending litany of people telling you “it can’t be THAT bad” or “you should just do this”
We are the experts in our bodies. Respect us. Listen to us.
You get it from everyone. Doctors, family, friends, bosses, colleagues
A neverending litany of people telling you “it can’t be THAT bad” or “you should just do this”
We are the experts in our bodies. Respect us. Listen to us.
February 6, 2025 at 4:45 AM
Living with disabilities is a masterclass in how to handle gaslighting
You get it from everyone. Doctors, family, friends, bosses, colleagues
A neverending litany of people telling you “it can’t be THAT bad” or “you should just do this”
We are the experts in our bodies. Respect us. Listen to us.
You get it from everyone. Doctors, family, friends, bosses, colleagues
A neverending litany of people telling you “it can’t be THAT bad” or “you should just do this”
We are the experts in our bodies. Respect us. Listen to us.
Reposted by Crystal
Surely someone with a quiet spare room could use extra income (rent + carer’s allowance). Victoria, Australia.
Please share this widely. 🙏
- Urgent needs listed ⬇️ with ALT-text
- Article detailing her situation: thecanary.co/global/world...
#LongCovid #DV #Housing #Disability #HouseSharing #SaveAnna
Please share this widely. 🙏
- Urgent needs listed ⬇️ with ALT-text
- Article detailing her situation: thecanary.co/global/world...
#LongCovid #DV #Housing #Disability #HouseSharing #SaveAnna
![#SaveAnna
Needs:
• A room in a quiet home—she can pay rent. (She does require care assistance, but she has already qualified for this funding support & can provide a carer’s allowance.)
• Someone in Australia, preferably in Victoria, to help do verbal communication. Anna has everything you need documented, she just needs someone to sit on the phone.
• Funding for moving costs & aids until provision can be established.
• A way to move safely & with consideration for her ME [severe myalgic encephalomyelitis], preventing infection risk, etc.
• A disability advocate who is capable of helping complex cases.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:rfikrsh6cx7yrwhev633hr77/bafkreignndiyjwjqcm6tlaqhmbwubbe2k65uj42ml33xa5vh3kqabtvexq@jpeg)
December 23, 2024 at 8:40 PM
Surely someone with a quiet spare room could use extra income (rent + carer’s allowance). Victoria, Australia.
Please share this widely. 🙏
- Urgent needs listed ⬇️ with ALT-text
- Article detailing her situation: thecanary.co/global/world...
#LongCovid #DV #Housing #Disability #HouseSharing #SaveAnna
Please share this widely. 🙏
- Urgent needs listed ⬇️ with ALT-text
- Article detailing her situation: thecanary.co/global/world...
#LongCovid #DV #Housing #Disability #HouseSharing #SaveAnna
Reposted by Crystal
New Video: @georgemonbiot.bsky.social describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". The video explores the impact of ineffective & harmful treatments & how they were defended by the scientific & media establishment.
youtu.be/RiwX9Y0NbiQ?...
youtu.be/RiwX9Y0NbiQ?...
ME/CFS Scandal Explainer (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)
YouTube video by Broken Battery
youtu.be
November 21, 2024 at 12:42 PM
New Video: @georgemonbiot.bsky.social describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". The video explores the impact of ineffective & harmful treatments & how they were defended by the scientific & media establishment.
youtu.be/RiwX9Y0NbiQ?...
youtu.be/RiwX9Y0NbiQ?...
Reposted by Crystal
I found some time recently to sit down and write for our #ThereForMe blog.
In my day job I’ve spent a lot of time lately thinking about narratives. Some thoughts on why #ME and #LongCovid narratives matter - and how we can change them for the better.
www.thereforme.uk/p/from-yuppi...
In my day job I’ve spent a lot of time lately thinking about narratives. Some thoughts on why #ME and #LongCovid narratives matter - and how we can change them for the better.
www.thereforme.uk/p/from-yuppi...
From ‘yuppie flu' to ’anti-recovery activists’
Why narratives around ME and Long Covid matter – and how to change them
www.thereforme.uk
November 12, 2024 at 9:11 AM
I found some time recently to sit down and write for our #ThereForMe blog.
In my day job I’ve spent a lot of time lately thinking about narratives. Some thoughts on why #ME and #LongCovid narratives matter - and how we can change them for the better.
www.thereforme.uk/p/from-yuppi...
In my day job I’ve spent a lot of time lately thinking about narratives. Some thoughts on why #ME and #LongCovid narratives matter - and how we can change them for the better.
www.thereforme.uk/p/from-yuppi...
Reposted by Crystal
As Twitter spirals, there’s an effort to help get chronically ill folks moved. If you have spare codes, consider adding them to the form below.
It’s really hard for people with certain illnesses to deal with the logistics of moving. This form helps make it a little easier.
It’s really hard for people with certain illnesses to deal with the logistics of moving. This form helps make it a little easier.
BlueSky Invites for the Chronic Illness Community
Please fill out this form if you're the chronic illness community and you'd like to either (1) donate invite codes or (2) request an invite.
docs.google.com
October 7, 2023 at 12:38 AM
As Twitter spirals, there’s an effort to help get chronically ill folks moved. If you have spare codes, consider adding them to the form below.
It’s really hard for people with certain illnesses to deal with the logistics of moving. This form helps make it a little easier.
It’s really hard for people with certain illnesses to deal with the logistics of moving. This form helps make it a little easier.