Galen Warden
@galen2.bsky.social
Artist, Author, Crafter, Caregiver, Mom to Six adults, a dog, & a cat.
Pinned
Reposted by Galen Warden
Poor #MEcfs care in Sweden contributes to patients committing suicide
At least 10,000 Swedish people with ME are bedridden and unable to leave their homes. There are many who are so sick that they see no other option but to take their own lives. www.altinget.se/artikel/sver...
At least 10,000 Swedish people with ME are bedridden and unable to leave their homes. There are many who are so sick that they see no other option but to take their own lives. www.altinget.se/artikel/sver...
Sveriges usla ME-vård bidrar till att patienter begår självmord
Minst 10 000 ME-sjuka svenskar är sängbundna och kan inte lämna sina hem. Det finns många som är så sjuka att de inte ser någon annan utväg än att ta sitt liv. Det skriver Jenny Lundgren, förbundsordf...
www.altinget.se
January 12, 2025 at 3:52 PM
Poor #MEcfs care in Sweden contributes to patients committing suicide
At least 10,000 Swedish people with ME are bedridden and unable to leave their homes. There are many who are so sick that they see no other option but to take their own lives. www.altinget.se/artikel/sver...
At least 10,000 Swedish people with ME are bedridden and unable to leave their homes. There are many who are so sick that they see no other option but to take their own lives. www.altinget.se/artikel/sver...
Reposted by Galen Warden
Beautifully written by @drjogreer.bsky.social a Mum caring for a daughter with severe ME.
'The Red Tree' and M.E. - One leaf at a time
Images used with kind permission from Shaun Tan
theredtreeandme.substack.com
December 16, 2024 at 8:43 AM
Beautifully written by @drjogreer.bsky.social a Mum caring for a daughter with severe ME.
In case you’re wondering whether you have ME, or whether your long COVID has progressed to become ME, here is a fantastic short explanation from the Bateman Horne Center. #mecfs #longcovid #myalgicencephalomyelitis
How to diagnose ME
youtu.be/8LXIXx7woCo
How to diagnose ME
youtu.be/8LXIXx7woCo
The Basics: Diagnosing ME/CFS
YouTube video by Bateman Horne Center
youtu.be
November 23, 2024 at 9:00 PM
In case you’re wondering whether you have ME, or whether your long COVID has progressed to become ME, here is a fantastic short explanation from the Bateman Horne Center. #mecfs #longcovid #myalgicencephalomyelitis
How to diagnose ME
youtu.be/8LXIXx7woCo
How to diagnose ME
youtu.be/8LXIXx7woCo
Reposted by Galen Warden
Newsweek: 'Map Shows US States With Highest Levels Of Long COVID'
'Around 400 million people worldwide are believed to have long COVID, and 17.8 million of those are in the U.S., according to medical journal JAMA.'
www.newsweek.com/map-shows-us...
'Around 400 million people worldwide are believed to have long COVID, and 17.8 million of those are in the U.S., according to medical journal JAMA.'
www.newsweek.com/map-shows-us...
Map shows US states with highest levels of Long COVID
Worldwide, the condition is estimated to have an annual economic impact of approximately $1 trillion, around 1 percent of the global economy.
www.newsweek.com
November 22, 2024 at 2:26 PM
Newsweek: 'Map Shows US States With Highest Levels Of Long COVID'
'Around 400 million people worldwide are believed to have long COVID, and 17.8 million of those are in the U.S., according to medical journal JAMA.'
www.newsweek.com/map-shows-us...
'Around 400 million people worldwide are believed to have long COVID, and 17.8 million of those are in the U.S., according to medical journal JAMA.'
www.newsweek.com/map-shows-us...
Reposted by Galen Warden
The History of ME.
How a serious physical disease was hijacked by powerful influential psychiatrists leading to neglect and abuse of an entire patient population. Deaths. Collusion with government. A story that urgently needs telling.
#ME #MECFS #LongCovid #journalists
medium.com/@abrokenbatt...
How a serious physical disease was hijacked by powerful influential psychiatrists leading to neglect and abuse of an entire patient population. Deaths. Collusion with government. A story that urgently needs telling.
#ME #MECFS #LongCovid #journalists
medium.com/@abrokenbatt...
ME/CFS Scandal Explainer
https://youtu.be/e0FNw0z3PVw
medium.com
November 22, 2024 at 9:52 AM
The History of ME.
How a serious physical disease was hijacked by powerful influential psychiatrists leading to neglect and abuse of an entire patient population. Deaths. Collusion with government. A story that urgently needs telling.
#ME #MECFS #LongCovid #journalists
medium.com/@abrokenbatt...
How a serious physical disease was hijacked by powerful influential psychiatrists leading to neglect and abuse of an entire patient population. Deaths. Collusion with government. A story that urgently needs telling.
#ME #MECFS #LongCovid #journalists
medium.com/@abrokenbatt...
Encephalogirl has published a chapter from my forthcoming book to educate about Severe Myalgic Encephalomyelitis. #myalgicencephalomyelitis #severeme #severemecfs
open.substack.com/pub/encephal...
open.substack.com/pub/encephal...
Galen & James, a life of very severe ME
Caregiver and advocate, Galen's upcoming book shares it all
open.substack.com
November 22, 2024 at 4:29 PM
Encephalogirl has published a chapter from my forthcoming book to educate about Severe Myalgic Encephalomyelitis. #myalgicencephalomyelitis #severeme #severemecfs
open.substack.com/pub/encephal...
open.substack.com/pub/encephal...
My son James with #verysevereME is doing poorly. We’ve begun communicating with hand signals assigned to just a handful of his needs.
My little sister is visiting me now, which gives me an emotional lift. Here we are walking my dog and cat in Sunday.
My little sister is visiting me now, which gives me an emotional lift. Here we are walking my dog and cat in Sunday.
November 18, 2024 at 6:08 PM
My son James with #verysevereME is doing poorly. We’ve begun communicating with hand signals assigned to just a handful of his needs.
My little sister is visiting me now, which gives me an emotional lift. Here we are walking my dog and cat in Sunday.
My little sister is visiting me now, which gives me an emotional lift. Here we are walking my dog and cat in Sunday.
Learning Bluesky. My first video post.
November 14, 2024 at 5:05 AM
Learning Bluesky. My first video post.
Is there a group here of people with Severe or Very Severe ME?
I’d like to follow it, if so.
I’d like to follow it, if so.
November 14, 2024 at 4:47 AM
Is there a group here of people with Severe or Very Severe ME?
I’d like to follow it, if so.
I’d like to follow it, if so.