One of the best pieces I’ve read on becoming a parent-carer. We didn’t have the same sliding doors moment (my daughter has Rett - the “loss” stretched out over a couple of years) but I identify with a lot of this.
What an extraordinary piece by my Guardian colleague @archiebland.bsky.social
www.theguardian.com/lifeandstyle...
www.theguardian.com/lifeandstyle...
The boy who came back: the near-death, and changed life, of my son Max
It was, we were told, a case of sudden infant death syndrome interrupted. What followed would transform my understanding of parenting, disability and the breadth of what makes a meaningful life
www.theguardian.com
May 24, 2025 at 9:30 AM
One of the best pieces I’ve read on becoming a parent-carer. We didn’t have the same sliding doors moment (my daughter has Rett - the “loss” stretched out over a couple of years) but I identify with a lot of this.
Reposted by Gael Gordon
May 18, 2025 at 2:37 PM
Reposted by Gael Gordon
The chancellor of the exchequer Rachel Reeves has outlined plans to cut several billion from the UK's welfare budget.
Cuts to disability benefits will worsen health and the economy
www.bmj.com/content/388/...
Cuts to disability benefits will worsen health and the economy
www.bmj.com/content/388/...
March 25, 2025 at 4:30 PM
The chancellor of the exchequer Rachel Reeves has outlined plans to cut several billion from the UK's welfare budget.
Cuts to disability benefits will worsen health and the economy
www.bmj.com/content/388/...
Cuts to disability benefits will worsen health and the economy
www.bmj.com/content/388/...
Reposted by Gael Gordon
NEW: Our post today is dedicated to remembering AMY, @catrionamoore.bsky.social and @edreyesjourno.bsky.social “fierce, funny and fabulous” daughter whose funeral is today. You can donate to Amy’s hospice #DemelzaCharity at the link in the post:
www.specialneedsjungle.com/r...
www.specialneedsjungle.com/r...
March 24, 2025 at 6:02 AM
NEW: Our post today is dedicated to remembering AMY, @catrionamoore.bsky.social and @edreyesjourno.bsky.social “fierce, funny and fabulous” daughter whose funeral is today. You can donate to Amy’s hospice #DemelzaCharity at the link in the post:
www.specialneedsjungle.com/r...
www.specialneedsjungle.com/r...
Reposted by Gael Gordon
This is shocking. ITV reporting that even those with extreme disabilities in the unfit to work category are likely to lose money under new government plans. Charities have branded the move catastrophic
March 7, 2025 at 11:56 PM
This is shocking. ITV reporting that even those with extreme disabilities in the unfit to work category are likely to lose money under new government plans. Charities have branded the move catastrophic
An update - social care, in Scotland, is not working for young disabled people
rettisa4letterword.wordpress.com/2025/01/29/w...
#socialcare #AccessAllAreas #rageblogging
rettisa4letterword.wordpress.com/2025/01/29/w...
#socialcare #AccessAllAreas #rageblogging
Whither Social Care
Ok. So its been a while. I am returning because, only now, in R’s adulthood, have we come to experience a whole new set of horrors which are visited on disabled people (and – lets be ho…
rettisa4letterword.wordpress.com
January 29, 2025 at 2:26 PM
An update - social care, in Scotland, is not working for young disabled people
rettisa4letterword.wordpress.com/2025/01/29/w...
#socialcare #AccessAllAreas #rageblogging
rettisa4letterword.wordpress.com/2025/01/29/w...
#socialcare #AccessAllAreas #rageblogging
If we have reached the point where the threshold for social care is no longer whether you will be able to live a good life without support, but whether you would actually die, then we are in a very poor place indeed. But that seems to be where we are now: www.traceycampbellact.com/post/social-...
Social care in 2024
Social care is a hot topic globally right now, particularly in East Renfrewshire. But what is it? Essentially it is the support that people need to be an active and respected member of their community...
www.traceycampbellact.com
December 4, 2024 at 5:26 PM
If we have reached the point where the threshold for social care is no longer whether you will be able to live a good life without support, but whether you would actually die, then we are in a very poor place indeed. But that seems to be where we are now: www.traceycampbellact.com/post/social-...
Reposted by Gael Gordon
EXCL: The majority of Scots with learning disabilities are NOT being offered promised annual NHS health checks, new data from @scottishlabour.bsky.social shows. The checks were a key SNP post-pandemic pledge to reduce health inequalities, but those waiting say its another "broken promise." STV 6pm
November 20, 2024 at 5:46 PM
EXCL: The majority of Scots with learning disabilities are NOT being offered promised annual NHS health checks, new data from @scottishlabour.bsky.social shows. The checks were a key SNP post-pandemic pledge to reduce health inequalities, but those waiting say its another "broken promise." STV 6pm
Reposted by Gael Gordon
New analysis published by Carers Scotland last week shows that in 2022 carers in Scotland saved the public purse £15.9 billion. This is almost equivalent to the Scottish NHS budget (£17.8 billion) in the same year.
It's an astonishing figure, but not one that any of us should be proud of...
🧵
It's an astonishing figure, but not one that any of us should be proud of...
🧵
November 24, 2024 at 9:41 AM
New analysis published by Carers Scotland last week shows that in 2022 carers in Scotland saved the public purse £15.9 billion. This is almost equivalent to the Scottish NHS budget (£17.8 billion) in the same year.
It's an astonishing figure, but not one that any of us should be proud of...
🧵
It's an astonishing figure, but not one that any of us should be proud of...
🧵
Reposted by Gael Gordon
In Scotland, people with support needs pay over £40 million every year in social care charges.
This is putting many disabled people and their unpaid carers at risk of poverty.
We are asking for an end to non residential social care charging in Scotland!
#CarersCantWait
This is putting many disabled people and their unpaid carers at risk of poverty.
We are asking for an end to non residential social care charging in Scotland!
#CarersCantWait
November 21, 2024 at 9:24 AM
In Scotland, people with support needs pay over £40 million every year in social care charges.
This is putting many disabled people and their unpaid carers at risk of poverty.
We are asking for an end to non residential social care charging in Scotland!
#CarersCantWait
This is putting many disabled people and their unpaid carers at risk of poverty.
We are asking for an end to non residential social care charging in Scotland!
#CarersCantWait
The most accessible venue we have ever been to is the ABBA Voyage arena. Low, wide ramps throughout. Great views (not stuck at the back behind a pillar, off at the side, or under the balcony with a view of only half the set). Changing places toilets. And well-trained staff. A joy.
Without naming names, when we were looking for a venue for the premier of our film 'The Whip' - because one of our cast members uses wheelchair - we couldn't book a number of cinemas because they lacked any sort of accessibility
November 20, 2024 at 8:57 AM
The most accessible venue we have ever been to is the ABBA Voyage arena. Low, wide ramps throughout. Great views (not stuck at the back behind a pillar, off at the side, or under the balcony with a view of only half the set). Changing places toilets. And well-trained staff. A joy.