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franhaddock.bsky.social
Fran H
@franhaddock.bsky.social
210 followers 86 following 43 posts
Severe ME | Activism from bed | Small joys
She/her
Posts Replies Media Videos
Reposted by Fran H
nlizaki.bsky.social
The same post exists on FB, Twitter, Instagram, B$ky, and TikTok, so please consider boosting there so we can get out of the echo chamber! All hands on deck! #pwME
www.gofundme.com/f/save-nevra
August 28, 2025 at 5:48 PM
Reposted by Fran H
rose-mary-x.bsky.social
Thank you @natashadevon.bsky.social for hosting another excellent segment on #MECFS 💙
And thank you to @swastrosarah.bsky.social , @franhaddock.bsky.social & the other contributors for getting our stories out there.
#MyalgicEncephalomyelitis is a serious disease that can happen to anyone.
abrokenbattery.bsky.social Adam @abrokenbattery.bsky.social · Aug 9
Natasha Devon’s LBC phone-in on #MECFS (38 mins).

Callers discuss their experience, including stigma and medical gaslighting, as well as their thoughts on the largest genetic study to date. @natashadevon.bsky.social

youtu.be/-2XxcsUXRJs?...
LBC - Natasha Devon Phone In - DecodeME Results
YouTube video by Broken Battery
youtu.be
August 10, 2025 at 11:54 AM
franhaddock.bsky.social
Community video for Severe ME awareness day, please share and tag politicians and public figures who need to see this!

All participants IG handles tagged at the end 💙💙

#SevereME #SevereMEAwarenessDay #MECFS #MillionsMissing #UnitedForME
August 8, 2025 at 10:15 AM
Reposted by Fran H
nlizaki.bsky.social
🚨 I have 10 days before August rent is due, I need 832.33£ or $1,131.18

This is an emergency, so few people have donated recently, I’m at risk of homelessness, I could not survive that

Please boost/engage with this! 🚨

Rent PayPal: www.paypal.com/paypalme/Sav...

GFM: www.gofundme.com/f/save-nevra
July 21, 2025 at 4:22 PM
franhaddock.bsky.social
Please support my friend Esam
esambannar.bsky.social esambannar.bsky.social @esambannar.bsky.social · Apr 17
These are my three children who need your donations to stay alive. Please do something to help me or I promise to publish if you can't help.
💔
www.paypal.com/paypalme/Esa...

gofund.me/e2edd02f
April 18, 2025 at 3:04 PM
Reposted by Fran H
francesryan.bsky.social
“In 2025, long Covid is the public health crisis no one wants to talk about, taking a wrecking ball to people’s lives, the economy and NHS while those with power pretend there’s nothing to see.”

5 years on, I wrote about long Covid and national denial. www.theguardian.com/commentisfre...
Long Covid is the pandemic’s dark shadow. Why does no one in power in Britain want to talk about it? | Frances Ryan
Five years after the first lockdown, millions of lives are still being ruined by this debilitating disease. You wouldn’t know it, says Guardian columnist Frances Ryan
www.theguardian.com
March 17, 2025 at 10:25 AM
franhaddock.bsky.social
#IsItOk for @alastaircampbell2.bsky.social to complain about how many disabled people are not working on #TheLastLeg without questioning why? Have you heard of #LongCovid Alastair? And the pandemic which is an ongoing mass disabled event? And that there’s no cure and virtually zero support?
March 14, 2025 at 10:54 PM
franhaddock.bsky.social
A few days ago we heard the UK’s government delivery plan for ME will contain NO additional funding. How will this make a meaningful difference to #pwME?

So @wesstreeting.bsky.social and @ashleydaltonmp.bsky.social , please listen our lived experiences, and #FundThePlan

@thereforme.bsky.social
February 21, 2025 at 2:51 PM
Reposted by Fran H
abrokenbattery.bsky.social
Highlights from yesterday's ITV News Calendar segment on #LongCovid on the 5 year anniversary of the first case of Covid in the UK. Fran Haddock talks about how her life has been "decimated" by the condition.
February 1, 2025 at 8:59 AM
franhaddock.bsky.social
I don’t want my friends to keep getting sicker
🖤❤️‍🩹🖤
Words on existing in the severe ME community, TW severe illness ⬇️
January 28, 2025 at 4:50 PM
franhaddock.bsky.social
A few photos from our @rspb.bsky.social Big Garden Birdwatch yesterday. Before I had severe ME I was an avid environmentalist and nature enthusiast. The prior 2 years I’ve been too sick to look out of the window, or sit up, or look through binoculars, or open the curtain. So this was a joy
January 27, 2025 at 4:36 PM
franhaddock.bsky.social
Please sign and share this petition for Line in Denmark, who is being threatened with involuntary psychiatric hospitalization if she doesn’t push through her very severe ME. Absolutely barbaric and could be life threatening www.change.org/p/prevent-fo... #SaveLine #SevereME
Sign the Petition
Prevent forced psychiatric hospitalisation of Very Severe ME patient in Denmark
www.change.org
January 20, 2025 at 8:26 PM
franhaddock.bsky.social
I was able to spend an hour or so with my 2 year old nephew yesterday for the first time in over a year (due to a combo of me being too sick, him have Covid last time and them living the other side of the UK).

It was so sweet and magical. He’d been told all about Auntie Fran and Uncle Dan so
Fran a white woman with brown hair and a tie due hoody on, opens a bag with the 2 year old nephew who has blonde hair and a pink jumper
January 19, 2025 at 10:17 AM
Reposted by Fran H
alexisme.bsky.social
Despite being severely unwell @katiamek.bsky.social spent her precious energy to speak out about this negligent treatment she’s been through in an effort to stop others experiencing the same. time.com/7206080/long...
A screenshot of the article with the text: Katiana Mekka, a 26-year-old Long COVID patient from Greece, says education is especially needed outside the U.S. Last fall, she says, she was involuntarily committed to a psychiatric ward and held for three days, until she passed a thorough screening test for mental-health disorders. The ordeal worsened her already severe illness, leaving her virtually unable to eat, move, or talk for days after. "These illnesses are so mistreated and misdiagnosed," Mekka says, adding that so few doctors in Greece know about Long COVID that she has been forced to seek virtual support from specialists in other countries. "The patients that I know, we all have so much will to live and so many dreams. This is not a mental issue. We have severe symptoms."
January 15, 2025 at 11:07 AM
Reposted by Fran H
francesryan.bsky.social
The Guardian has spent a year with Darren - one of about 2 million people living with Covid in England and Scotland.

Watch it in 7 minutes.

V. important from my video colleagues.

www.theguardian.com/society/vide...
‘The pandemic isn’t over’: my year of long Covid – video
Darren Parkinson is one of about 2 million people living with long Covid in England and Scotland. The illness is having a detrimental impact on his life, stopping him from being the kind of active and...
www.theguardian.com
January 15, 2025 at 10:49 AM
franhaddock.bsky.social
Urgent callout for local support (individual/group/mutual aid orgs) from ME allies in *Manitoba, Canada* - please repost. TW DV ⬇️
January 14, 2025 at 11:19 AM
franhaddock.bsky.social
Thanks so much to everyone who responded re my very severe friend in the Netherlands’. An update is that her dietician has supported the idea of her having an NG tube placed at home by a home care company. However the GP needs to support this and is so far declining to /1
January 7, 2025 at 11:36 AM
franhaddock.bsky.social
Callout for advice for very severe pwME in the Netherlands (my best friend) pls RT. Main concern is not currently able to keep food down and is too nauseous to eat. Not kept down anything significant since Sunday 29th. Severe nausea continues even when not attempting to eat. 1/
January 2, 2025 at 2:36 PM
franhaddock.bsky.social
The @MEAssociation have not provided any adequate response to @alexisme.bsky.social’s open letter, therefore a collaborative of severe ME advocates have sent a follow up letter as well as creating a petition for Neil Riley to step down. Please sign and share:

www.change.org/p/me-associa...
Sign the Petition
ME Association Chair Neil Riley must step down
www.change.org
December 4, 2024 at 10:01 PM
Reposted by Fran H
diatoma.bsky.social
(1/3)🧵 Check out this winter raffle created by #pwME to support @nlizaki.bsky.social!
Organized by @franhaddock.bsky.social & other beautiful folks on IG. You can DM me a screenshot of donation here & say if you’re in UK or EU & I’ll pass on your info! Enter by Dec.22! #SevereME Part 1/2 of video 💜
December 4, 2024 at 2:55 AM