European MS Platform
@emspofficial.bsky.social
Advocacy and expertise for over 1 million people living with #MultipleSclerosis and related disorders in Europe.
Join us at the #EMSP2025 Conference in Prague. http://bit.ly/4gXrVLL
Join us at the #EMSP2025 Conference in Prague. http://bit.ly/4gXrVLL
Most debilitating MS symptoms are often invisible.
Join our webinar exploring #IMSS survey findings & discuss how to better address these hidden challenges.
Featuring Prof. Peter Feys, Prof. Daphne Kos & EMSP Community Manager Anna Revilla.
Register: bit.ly/3XbbJyZ
Join our webinar exploring #IMSS survey findings & discuss how to better address these hidden challenges.
Featuring Prof. Peter Feys, Prof. Daphne Kos & EMSP Community Manager Anna Revilla.
Register: bit.ly/3XbbJyZ
November 25, 2025 at 1:51 PM
Most debilitating MS symptoms are often invisible.
Join our webinar exploring #IMSS survey findings & discuss how to better address these hidden challenges.
Featuring Prof. Peter Feys, Prof. Daphne Kos & EMSP Community Manager Anna Revilla.
Register: bit.ly/3XbbJyZ
Join our webinar exploring #IMSS survey findings & discuss how to better address these hidden challenges.
Featuring Prof. Peter Feys, Prof. Daphne Kos & EMSP Community Manager Anna Revilla.
Register: bit.ly/3XbbJyZ
Science moves faster when we move together. These meetings proved just how powerful these partnerships can be when researchers and the MS community work side by side.
#MSResearch #PatientEngagement #EUHealth #HorizonEU
#MSResearch #PatientEngagement #EUHealth #HorizonEU
November 21, 2025 at 9:36 AM
Science moves faster when we move together. These meetings proved just how powerful these partnerships can be when researchers and the MS community work side by side.
#MSResearch #PatientEngagement #EUHealth #HorizonEU
#MSResearch #PatientEngagement #EUHealth #HorizonEU
🏃♀️ 2 DAYS TO GO!
This Sunday, Nov 2nd, runners worldwide are taking on the EMSP MS Awareness Run at the Brussels Airport Marathon.
💙 Support them by contributing to their fundraisers
📣 Come cheer them on in Brussels
🌍 Help spread the word
Learn more: bit.ly/4hzcStq
See you there!
#MSRun
This Sunday, Nov 2nd, runners worldwide are taking on the EMSP MS Awareness Run at the Brussels Airport Marathon.
💙 Support them by contributing to their fundraisers
📣 Come cheer them on in Brussels
🌍 Help spread the word
Learn more: bit.ly/4hzcStq
See you there!
#MSRun
October 31, 2025 at 12:13 PM
🏃♀️ 2 DAYS TO GO!
This Sunday, Nov 2nd, runners worldwide are taking on the EMSP MS Awareness Run at the Brussels Airport Marathon.
💙 Support them by contributing to their fundraisers
📣 Come cheer them on in Brussels
🌍 Help spread the word
Learn more: bit.ly/4hzcStq
See you there!
#MSRun
This Sunday, Nov 2nd, runners worldwide are taking on the EMSP MS Awareness Run at the Brussels Airport Marathon.
💙 Support them by contributing to their fundraisers
📣 Come cheer them on in Brussels
🌍 Help spread the word
Learn more: bit.ly/4hzcStq
See you there!
#MSRun
EMSP mourns the passing of Klaus Knops, our former Treasurer and Executive Committee member.
His wise leadership and dedication left a lasting legacy for the European MS community.
Our deepest condolences to his family, friends and loved ones. bit.ly/4p2ACsz
His wise leadership and dedication left a lasting legacy for the European MS community.
Our deepest condolences to his family, friends and loved ones. bit.ly/4p2ACsz
October 29, 2025 at 10:45 AM
EMSP mourns the passing of Klaus Knops, our former Treasurer and Executive Committee member.
His wise leadership and dedication left a lasting legacy for the European MS community.
Our deepest condolences to his family, friends and loved ones. bit.ly/4p2ACsz
His wise leadership and dedication left a lasting legacy for the European MS community.
Our deepest condolences to his family, friends and loved ones. bit.ly/4p2ACsz
MS diagnosis changes entire families—not just patient's. Yet across Europe, caregivers remain unseen & unsupported.
Only 15 countries consult MS communities on policy. Just 16/35 support child MS caregivers.
It's time to close the gaps.
#EurocarersDay
Only 15 countries consult MS communities on policy. Just 16/35 support child MS caregivers.
It's time to close the gaps.
#EurocarersDay
October 6, 2025 at 12:59 PM
MS diagnosis changes entire families—not just patient's. Yet across Europe, caregivers remain unseen & unsupported.
Only 15 countries consult MS communities on policy. Just 16/35 support child MS caregivers.
It's time to close the gaps.
#EurocarersDay
Only 15 countries consult MS communities on policy. Just 16/35 support child MS caregivers.
It's time to close the gaps.
#EurocarersDay
FINAL REMINDER: Movement with MS starts in 6 HOURS!
🕐 17:00-18:15 CEST
Join our experts to learn: ✅Safe movement strategies for MS ✅ Exercise tips from specialists
✅ Real success stories
Register- bit.ly/4moU297
🕐 17:00-18:15 CEST
Join our experts to learn: ✅Safe movement strategies for MS ✅ Exercise tips from specialists
✅ Real success stories
Register- bit.ly/4moU297
September 16, 2025 at 8:45 AM
FINAL REMINDER: Movement with MS starts in 6 HOURS!
🕐 17:00-18:15 CEST
Join our experts to learn: ✅Safe movement strategies for MS ✅ Exercise tips from specialists
✅ Real success stories
Register- bit.ly/4moU297
🕐 17:00-18:15 CEST
Join our experts to learn: ✅Safe movement strategies for MS ✅ Exercise tips from specialists
✅ Real success stories
Register- bit.ly/4moU297
Webinar- Movement with MS: Strategies for Staying Active
📅 Registration closes Friday!
Whether you live with MS or just love fitness, this webinar is packed with tips to keep you moving.
🎟️ Limited spots—register now: bit.ly/4mdXHqi
#MSAwareness #FitnessForAll
📅 Registration closes Friday!
Whether you live with MS or just love fitness, this webinar is packed with tips to keep you moving.
🎟️ Limited spots—register now: bit.ly/4mdXHqi
#MSAwareness #FitnessForAll
September 10, 2025 at 9:59 AM
Webinar- Movement with MS: Strategies for Staying Active
📅 Registration closes Friday!
Whether you live with MS or just love fitness, this webinar is packed with tips to keep you moving.
🎟️ Limited spots—register now: bit.ly/4mdXHqi
#MSAwareness #FitnessForAll
📅 Registration closes Friday!
Whether you live with MS or just love fitness, this webinar is packed with tips to keep you moving.
🎟️ Limited spots—register now: bit.ly/4mdXHqi
#MSAwareness #FitnessForAll
💙 September is Pain Awareness Month
Did you know?
73% of people with #MS experience pain, yet only 5% have access to pain specialists.
Pain is real, overlooked, and deserves better care! #PainAwarenessMonth
Did you know?
73% of people with #MS experience pain, yet only 5% have access to pain specialists.
Pain is real, overlooked, and deserves better care! #PainAwarenessMonth
September 8, 2025 at 8:38 AM
💙 September is Pain Awareness Month
Did you know?
73% of people with #MS experience pain, yet only 5% have access to pain specialists.
Pain is real, overlooked, and deserves better care! #PainAwarenessMonth
Did you know?
73% of people with #MS experience pain, yet only 5% have access to pain specialists.
Pain is real, overlooked, and deserves better care! #PainAwarenessMonth
Living with MS doesn't mean slowing down
Join our FREE webinar: Movement with MS: Strategies for Staying Active and discover how to make movement your powerful ally.
📅 Sept 16, 5-6:15 PM
🎯 For everyone - MS warriors, supporters & healthcare pros
🔗 Register: bit.ly/4os3daV
@braincouncil.eu @efna.net
Join our FREE webinar: Movement with MS: Strategies for Staying Active and discover how to make movement your powerful ally.
📅 Sept 16, 5-6:15 PM
🎯 For everyone - MS warriors, supporters & healthcare pros
🔗 Register: bit.ly/4os3daV
@braincouncil.eu @efna.net
August 12, 2025 at 11:32 AM
Living with MS doesn't mean slowing down
Join our FREE webinar: Movement with MS: Strategies for Staying Active and discover how to make movement your powerful ally.
📅 Sept 16, 5-6:15 PM
🎯 For everyone - MS warriors, supporters & healthcare pros
🔗 Register: bit.ly/4os3daV
@braincouncil.eu @efna.net
Join our FREE webinar: Movement with MS: Strategies for Staying Active and discover how to make movement your powerful ally.
📅 Sept 16, 5-6:15 PM
🎯 For everyone - MS warriors, supporters & healthcare pros
🔗 Register: bit.ly/4os3daV
@braincouncil.eu @efna.net
45% of Europeans worry about health data privacy, yet only 8% understand how their data is used.
Take the More Europa training 📚
7 bite-sized modules on how your real-world data improves treatments.
Because Knowledge = Power 💪
🔗 bit.ly/4mcolR3
Take the More Europa training 📚
7 bite-sized modules on how your real-world data improves treatments.
Because Knowledge = Power 💪
🔗 bit.ly/4mcolR3
August 12, 2025 at 10:32 AM
45% of Europeans worry about health data privacy, yet only 8% understand how their data is used.
Take the More Europa training 📚
7 bite-sized modules on how your real-world data improves treatments.
Because Knowledge = Power 💪
🔗 bit.ly/4mcolR3
Take the More Europa training 📚
7 bite-sized modules on how your real-world data improves treatments.
Because Knowledge = Power 💪
🔗 bit.ly/4mcolR3
Living with #MS? Your active lifestyle doesn't have to stop!
Join our webinar "Movement with MS: Strategies for Staying Active".
Learn:
✅ Exercise tips for every fitness level
✅ Safe training for sporting events
✅ Expert guidance from fitness coaches
Register- bit.ly/4os3daV
Join our webinar "Movement with MS: Strategies for Staying Active".
Learn:
✅ Exercise tips for every fitness level
✅ Safe training for sporting events
✅ Expert guidance from fitness coaches
Register- bit.ly/4os3daV
August 8, 2025 at 12:16 PM
Living with #MS? Your active lifestyle doesn't have to stop!
Join our webinar "Movement with MS: Strategies for Staying Active".
Learn:
✅ Exercise tips for every fitness level
✅ Safe training for sporting events
✅ Expert guidance from fitness coaches
Register- bit.ly/4os3daV
Join our webinar "Movement with MS: Strategies for Staying Active".
Learn:
✅ Exercise tips for every fitness level
✅ Safe training for sporting events
✅ Expert guidance from fitness coaches
Register- bit.ly/4os3daV
Join us at the @ECTRIMS Patient Community Day
Sept 26, 2025 | Barcelona + Online
Designed for people with MS, related neurological diseases & caregivers. #ECTRIMS4me
✅ Get latest treatment breakthroughs
✅ Connect with community
✅ Expert knowledge from leading researchers
Sept 26, 2025 | Barcelona + Online
Designed for people with MS, related neurological diseases & caregivers. #ECTRIMS4me
✅ Get latest treatment breakthroughs
✅ Connect with community
✅ Expert knowledge from leading researchers
July 23, 2025 at 8:49 AM
Join us at the @ECTRIMS Patient Community Day
Sept 26, 2025 | Barcelona + Online
Designed for people with MS, related neurological diseases & caregivers. #ECTRIMS4me
✅ Get latest treatment breakthroughs
✅ Connect with community
✅ Expert knowledge from leading researchers
Sept 26, 2025 | Barcelona + Online
Designed for people with MS, related neurological diseases & caregivers. #ECTRIMS4me
✅ Get latest treatment breakthroughs
✅ Connect with community
✅ Expert knowledge from leading researchers
Still figuring summer plans?
Make it matter! 🏃♀️
Join inspiring MS warriors like Eline-Sofie at EMSP's MS Awareness Run - November 2nd. Push your limits while fundraising for MS
Register: emsp.org/events/msrun...
#MSRun #RunForACause #MSAwareness #EMSP #FitnessGoals
Make it matter! 🏃♀️
Join inspiring MS warriors like Eline-Sofie at EMSP's MS Awareness Run - November 2nd. Push your limits while fundraising for MS
Register: emsp.org/events/msrun...
#MSRun #RunForACause #MSAwareness #EMSP #FitnessGoals
July 18, 2025 at 10:25 AM
Still figuring summer plans?
Make it matter! 🏃♀️
Join inspiring MS warriors like Eline-Sofie at EMSP's MS Awareness Run - November 2nd. Push your limits while fundraising for MS
Register: emsp.org/events/msrun...
#MSRun #RunForACause #MSAwareness #EMSP #FitnessGoals
Make it matter! 🏃♀️
Join inspiring MS warriors like Eline-Sofie at EMSP's MS Awareness Run - November 2nd. Push your limits while fundraising for MS
Register: emsp.org/events/msrun...
#MSRun #RunForACause #MSAwareness #EMSP #FitnessGoals
Invisible ≠ insignificant
MS fatigue isn't "just tired" — it's crushing exhaustion that steals independence & quality of life. Brain fog, pain, depression... all real, all unseen.
We must recognise #InvisibleSymptoms & support ALL aspects of #MS
How has invisible illness impacted you?
#IMSS
MS fatigue isn't "just tired" — it's crushing exhaustion that steals independence & quality of life. Brain fog, pain, depression... all real, all unseen.
We must recognise #InvisibleSymptoms & support ALL aspects of #MS
How has invisible illness impacted you?
#IMSS
July 3, 2025 at 8:25 AM
Invisible ≠ insignificant
MS fatigue isn't "just tired" — it's crushing exhaustion that steals independence & quality of life. Brain fog, pain, depression... all real, all unseen.
We must recognise #InvisibleSymptoms & support ALL aspects of #MS
How has invisible illness impacted you?
#IMSS
MS fatigue isn't "just tired" — it's crushing exhaustion that steals independence & quality of life. Brain fog, pain, depression... all real, all unseen.
We must recognise #InvisibleSymptoms & support ALL aspects of #MS
How has invisible illness impacted you?
#IMSS
Family Planning & Pregnancy webinar for MS healthcare professionals!
Join us:
🗓️July 4th 🕑 15:00 CEST
Learn:
✅Evidence-based strategies
✅Care coordination tips
✅Person-centered approaches
Speaker:
Laetitia della Faille, NMSC Melbroek
Register: bit.ly/3FZTbwz
#MSCare
Join us:
🗓️July 4th 🕑 15:00 CEST
Learn:
✅Evidence-based strategies
✅Care coordination tips
✅Person-centered approaches
Speaker:
Laetitia della Faille, NMSC Melbroek
Register: bit.ly/3FZTbwz
#MSCare
June 23, 2025 at 9:47 AM
Family Planning & Pregnancy webinar for MS healthcare professionals!
Join us:
🗓️July 4th 🕑 15:00 CEST
Learn:
✅Evidence-based strategies
✅Care coordination tips
✅Person-centered approaches
Speaker:
Laetitia della Faille, NMSC Melbroek
Register: bit.ly/3FZTbwz
#MSCare
Join us:
🗓️July 4th 🕑 15:00 CEST
Learn:
✅Evidence-based strategies
✅Care coordination tips
✅Person-centered approaches
Speaker:
Laetitia della Faille, NMSC Melbroek
Register: bit.ly/3FZTbwz
#MSCare
65% of people with #MS experience bladder control issues—ranking among the top 5 most debilitating symptoms.
For 23%, these invisible symptoms cause severe daily limitations.
Time to break the silence. Invisible ≠ insignificant.
#WorldContinenceWeek #MultipleSclerosis @MS International Federation
For 23%, these invisible symptoms cause severe daily limitations.
Time to break the silence. Invisible ≠ insignificant.
#WorldContinenceWeek #MultipleSclerosis @MS International Federation
June 19, 2025 at 7:28 AM
65% of people with #MS experience bladder control issues—ranking among the top 5 most debilitating symptoms.
For 23%, these invisible symptoms cause severe daily limitations.
Time to break the silence. Invisible ≠ insignificant.
#WorldContinenceWeek #MultipleSclerosis @MS International Federation
For 23%, these invisible symptoms cause severe daily limitations.
Time to break the silence. Invisible ≠ insignificant.
#WorldContinenceWeek #MultipleSclerosis @MS International Federation
🚨 Only 52% of people with #MultipleSclerosis are satisfied with symptom management despite using 6+ treatments. 99% experience symptoms (avg. 14 at once!).
We can do better. Learn more🔽
emsp.org/projects/imp...
#MSAwareness #Healthcare
We can do better. Learn more🔽
emsp.org/projects/imp...
#MSAwareness #Healthcare
June 6, 2025 at 8:47 AM
🚨 Only 52% of people with #MultipleSclerosis are satisfied with symptom management despite using 6+ treatments. 99% experience symptoms (avg. 14 at once!).
We can do better. Learn more🔽
emsp.org/projects/imp...
#MSAwareness #Healthcare
We can do better. Learn more🔽
emsp.org/projects/imp...
#MSAwareness #Healthcare
3 years.
That's how long people wait on average for a #MultipleSclerosis diagnosis.
3 years of uncertainty without the right treatment.
On #WorldMSDay, we're focusing on Navigating Diagnosis. Early diagnosis = better outcomes.
#IMSS
That's how long people wait on average for a #MultipleSclerosis diagnosis.
3 years of uncertainty without the right treatment.
On #WorldMSDay, we're focusing on Navigating Diagnosis. Early diagnosis = better outcomes.
#IMSS
May 30, 2025 at 9:08 AM
3 years.
That's how long people wait on average for a #MultipleSclerosis diagnosis.
3 years of uncertainty without the right treatment.
On #WorldMSDay, we're focusing on Navigating Diagnosis. Early diagnosis = better outcomes.
#IMSS
That's how long people wait on average for a #MultipleSclerosis diagnosis.
3 years of uncertainty without the right treatment.
On #WorldMSDay, we're focusing on Navigating Diagnosis. Early diagnosis = better outcomes.
#IMSS
Living with Multiple Sclerosis doesn't mean giving up motherhood dreams
✅MS doesn't affect fertility
✅Most MS medications have pregnancy planning protocols
Planning a family with MS? Talk to your healthcare team.
Check our Essential Guide on Pregnancy with MS👇
#MothersDay
✅MS doesn't affect fertility
✅Most MS medications have pregnancy planning protocols
Planning a family with MS? Talk to your healthcare team.
Check our Essential Guide on Pregnancy with MS👇
#MothersDay
May 9, 2025 at 12:55 PM
Living with Multiple Sclerosis doesn't mean giving up motherhood dreams
✅MS doesn't affect fertility
✅Most MS medications have pregnancy planning protocols
Planning a family with MS? Talk to your healthcare team.
Check our Essential Guide on Pregnancy with MS👇
#MothersDay
✅MS doesn't affect fertility
✅Most MS medications have pregnancy planning protocols
Planning a family with MS? Talk to your healthcare team.
Check our Essential Guide on Pregnancy with MS👇
#MothersDay
Our Programme Coordinator, presented our #IMSS Survey findings at the Neurological Congress, Belgium.
Key findings:
Major gaps in service access across Europe
Alignment with WHO health initiatives needed
MS Nurses crucial as care coordinators & advocates
Learn more- emsp.org/projects/imp...
Key findings:
Major gaps in service access across Europe
Alignment with WHO health initiatives needed
MS Nurses crucial as care coordinators & advocates
Learn more- emsp.org/projects/imp...
May 9, 2025 at 12:45 PM
Our Programme Coordinator, presented our #IMSS Survey findings at the Neurological Congress, Belgium.
Key findings:
Major gaps in service access across Europe
Alignment with WHO health initiatives needed
MS Nurses crucial as care coordinators & advocates
Learn more- emsp.org/projects/imp...
Key findings:
Major gaps in service access across Europe
Alignment with WHO health initiatives needed
MS Nurses crucial as care coordinators & advocates
Learn more- emsp.org/projects/imp...
We've launched our Scientific Advisory Committee, bringing together Europe's top MS experts to strengthen the scientific foundation of our advocacy work.
This accomplished team will ensure our initiatives are evidence-based and truly reflect the needs of people living with #MS
This accomplished team will ensure our initiatives are evidence-based and truly reflect the needs of people living with #MS
April 29, 2025 at 3:13 PM
We've launched our Scientific Advisory Committee, bringing together Europe's top MS experts to strengthen the scientific foundation of our advocacy work.
This accomplished team will ensure our initiatives are evidence-based and truly reflect the needs of people living with #MS
This accomplished team will ensure our initiatives are evidence-based and truly reflect the needs of people living with #MS
Join our first Best Practice Series on- Tackling Fatigue in MS
🗓️ Tuesday, April 22
🕝14:30 CEST
This session BY nurses, FOR nurses - features creative approaches, remote follow-up strategies & self-monitoring tools to help your MS patients
Register now: bit.ly/4lCWTfg
🗓️ Tuesday, April 22
🕝14:30 CEST
This session BY nurses, FOR nurses - features creative approaches, remote follow-up strategies & self-monitoring tools to help your MS patients
Register now: bit.ly/4lCWTfg
April 18, 2025 at 10:29 AM
Join our first Best Practice Series on- Tackling Fatigue in MS
🗓️ Tuesday, April 22
🕝14:30 CEST
This session BY nurses, FOR nurses - features creative approaches, remote follow-up strategies & self-monitoring tools to help your MS patients
Register now: bit.ly/4lCWTfg
🗓️ Tuesday, April 22
🕝14:30 CEST
This session BY nurses, FOR nurses - features creative approaches, remote follow-up strategies & self-monitoring tools to help your MS patients
Register now: bit.ly/4lCWTfg
This week we welcomed, Lydia Makaroff, CEO of MS International Federation, to EMSP.
We discussed aligning global & European MS initiatives, the evolving role of patient orgs, and addressing critical healthcare gaps for the MS community.
Together, we're stronger for everyone affected by MS!
We discussed aligning global & European MS initiatives, the evolving role of patient orgs, and addressing critical healthcare gaps for the MS community.
Together, we're stronger for everyone affected by MS!
April 15, 2025 at 2:56 PM
This week we welcomed, Lydia Makaroff, CEO of MS International Federation, to EMSP.
We discussed aligning global & European MS initiatives, the evolving role of patient orgs, and addressing critical healthcare gaps for the MS community.
Together, we're stronger for everyone affected by MS!
We discussed aligning global & European MS initiatives, the evolving role of patient orgs, and addressing critical healthcare gaps for the MS community.
Together, we're stronger for everyone affected by MS!
Let's Talk MS Podcast returns with new hosts, fresh perspectives, and conversations you won't want to miss!
Guest lineup & release dates coming soon 👀
Know the perfect guest? Drop names below!
#LetsTalkMS #MSCommunity #MSPodcast
Guest lineup & release dates coming soon 👀
Know the perfect guest? Drop names below!
#LetsTalkMS #MSCommunity #MSPodcast
April 3, 2025 at 9:03 AM
Let's Talk MS Podcast returns with new hosts, fresh perspectives, and conversations you won't want to miss!
Guest lineup & release dates coming soon 👀
Know the perfect guest? Drop names below!
#LetsTalkMS #MSCommunity #MSPodcast
Guest lineup & release dates coming soon 👀
Know the perfect guest? Drop names below!
#LetsTalkMS #MSCommunity #MSPodcast
⏰ FINAL CALL: Abstract submissions for #EMSP2025 closing soon!
Present your #MSResearch on prevention. Accepted posters gain visibility at our Annual Conference.
Submission Deadline-Monday, March 24
bit.ly/41J0iS5
#MultipleSclerosis #MSResearch #MSPrevention
Present your #MSResearch on prevention. Accepted posters gain visibility at our Annual Conference.
Submission Deadline-Monday, March 24
bit.ly/41J0iS5
#MultipleSclerosis #MSResearch #MSPrevention
March 20, 2025 at 9:41 AM
⏰ FINAL CALL: Abstract submissions for #EMSP2025 closing soon!
Present your #MSResearch on prevention. Accepted posters gain visibility at our Annual Conference.
Submission Deadline-Monday, March 24
bit.ly/41J0iS5
#MultipleSclerosis #MSResearch #MSPrevention
Present your #MSResearch on prevention. Accepted posters gain visibility at our Annual Conference.
Submission Deadline-Monday, March 24
bit.ly/41J0iS5
#MultipleSclerosis #MSResearch #MSPrevention