European MS Platform
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European MS Platform
@emspofficial.bsky.social
Advocacy and expertise for over 1 million people living with #MultipleSclerosis and related disorders in Europe.
Join us at the #EMSP2025 Conference in Prague. http://bit.ly/4gXrVLL
📬 EMSP Newsletter: Latest updates in European MS Community

🔹Advocacy for equitable access & care across Europe 🔹Breakthrough research on walking fatigability & personalised rehabilitation
🔹 Award-winning patient programs & MS nurse insights

Read the full newsletter bit.ly/4pB5TDd
EMSP Newsletter Oct-Dec 2025 Edition
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November 18, 2025 at 9:34 AM
🧠 70% of people with MS experience walking fatigability—where walking becomes harder over time.
Felipe Santinelli, PhD candidate at University of Hasselt, is using brain imaging & motion sensors to develop personalised MS rehabilitation programs.

Read more 👇
bit.ly/49OxzQ8
How Brain Imaging and Motion Sensors Are Unlocking Potential For Personalised MS Rehabilitation - EMSP
For many people living with multiple sclerosis, walking becomes increasingly difficult over prolonged periods due to a phenomenon called “walking...
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November 14, 2025 at 12:51 PM
⏰EU budget consultation closes TODAY (Nov 12)

COVID-19 showed us: without health, everything fails.

Yet health risks being sidelined again in the next EU budget.

We're demanding a dedicated EU health budget that puts patients first.

📄Speak up NOW: bit.ly/49glsLs
European Commission - Have your say
European Commission - Have your say
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November 12, 2025 at 10:27 AM
🏃♀️ 2 DAYS TO GO!
This Sunday, Nov 2nd, runners worldwide are taking on the EMSP MS Awareness Run at the Brussels Airport Marathon.

💙 Support them by contributing to their fundraisers
📣 Come cheer them on in Brussels
🌍 Help spread the word

Learn more: bit.ly/4hzcStq
See you there!

#MSRun
October 31, 2025 at 12:13 PM
EMSP mourns the passing of Klaus Knops, our former Treasurer and Executive Committee member.

His wise leadership and dedication left a lasting legacy for the European MS community.

Our deepest condolences to his family, friends and loved ones. bit.ly/4p2ACsz
October 29, 2025 at 10:45 AM
MS diagnosis changes entire families—not just patient's. Yet across Europe, caregivers remain unseen & unsupported.
Only 15 countries consult MS communities on policy. Just 16/35 support child MS caregivers.
It's time to close the gaps.
#EurocarersDay
October 6, 2025 at 12:59 PM
🌟 Major news for the #MS community!
The EU is committing to 500 MORE clinical trials annually + faster trial starts through ACT EU initiative.

What this means: More treatment options, better access, less waiting for MS patients across Europe. Learn more: www.ema.europa.eu/en/news/new-...
New targets for clinical trials in Europe | European Medicines Agency (EMA)
500 authorised multinational clinical trials to be added over five years
www.ema.europa.eu
October 1, 2025 at 9:32 AM
FINAL REMINDER: Movement with MS starts in 6 HOURS!
🕐 17:00-18:15 CEST
Join our experts to learn: ✅Safe movement strategies for MS ✅ Exercise tips from specialists
✅ Real success stories
Register- bit.ly/4moU297
September 16, 2025 at 8:45 AM
Webinar- Movement with MS: Strategies for Staying Active
📅 Registration closes Friday!

Whether you live with MS or just love fitness, this webinar is packed with tips to keep you moving.

🎟️ Limited spots—register now: bit.ly/4mdXHqi

#MSAwareness #FitnessForAll
September 10, 2025 at 9:59 AM
🎙️New on Let’s Talk MS:

Meet Aida Fuentes Picazo—a young mother navigating life with Neuromyelitis Optica (NMO). Diagnosed after giving birth, her story is one of resilience, adaptation, and invisible strength.

🎧Listen now: bit.ly/3HNCFkg
#RareDisease #PatientVoices
S01E08 | Aida's Story: Strength, Positivity, Challenges and NMOSD
Welcome to Let's Talk MS, proudly presented by the European Multiple Sclerosis Platform (EMSP). After introducing NMOSD and MOGAD in our previous episode, today we take a more personal approach. We&rs...
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September 9, 2025 at 9:36 AM
💙 September is Pain Awareness Month
Did you know?
73% of people with #MS experience pain, yet only 5% have access to pain specialists.

Pain is real, overlooked, and deserves better care! #PainAwarenessMonth
September 8, 2025 at 8:38 AM
Living with MS doesn't mean slowing down
Join our FREE webinar: Movement with MS: Strategies for Staying Active and discover how to make movement your powerful ally.
📅 Sept 16, 5-6:15 PM
🎯 For everyone - MS warriors, supporters & healthcare pros
🔗 Register: bit.ly/4os3daV
@braincouncil.eu @efna.net
August 12, 2025 at 11:32 AM
45% of Europeans worry about health data privacy, yet only 8% understand how their data is used.

Take the More Europa training 📚
7 bite-sized modules on how your real-world data improves treatments.

Because Knowledge = Power 💪
🔗 bit.ly/4mcolR3
August 12, 2025 at 10:32 AM
Living with #MS? Your active lifestyle doesn't have to stop!

Join our webinar "Movement with MS: Strategies for Staying Active".
Learn:
✅ Exercise tips for every fitness level
✅ Safe training for sporting events
✅ Expert guidance from fitness coaches

Register- bit.ly/4os3daV
August 8, 2025 at 12:16 PM
Join us at the @ECTRIMS Patient Community Day
Sept 26, 2025 | Barcelona + Online

Designed for people with MS, related neurological diseases & caregivers. #ECTRIMS4me
✅ Get latest treatment breakthroughs
✅ Connect with community
✅ Expert knowledge from leading researchers
July 23, 2025 at 8:49 AM
Still figuring summer plans?
Make it matter! 🏃‍♀️
Join inspiring MS warriors like Eline-Sofie at EMSP's MS Awareness Run - November 2nd. Push your limits while fundraising for MS
Register: emsp.org/events/msrun...
#MSRun #RunForACause #MSAwareness #EMSP #FitnessGoals
July 18, 2025 at 10:25 AM
NMO and MOGAD are rare conditions, often misdiagnosed as MS, leading to wrong treatments and delayed care.

Our latest #LetsTalkMS episode dives into:
What NMOSD & MOGAD really are
Why is it misdiagnosised
How patient communities drive change

Tune in now: bit.ly/4eI8HtS
S01E07 | Facing NMOSD and MOGAD: More than a diagnosis
Welcome to Let's Talk MS, proudly presented by the European Multiple Sclerosis Platform (EMSP). In this episode, we explore what it truly means to live with NMOSD and MOGAD, explaining what these cond...
lets-talk-ms.castos.com
July 10, 2025 at 2:55 PM
Invisible ≠ insignificant
MS fatigue isn't "just tired" — it's crushing exhaustion that steals independence & quality of life. Brain fog, pain, depression... all real, all unseen.
We must recognise #InvisibleSymptoms & support ALL aspects of #MS
How has invisible illness impacted you?
#IMSS
July 3, 2025 at 8:25 AM
Our JUNE newsletter is HERE!
✨ EMSP 2025 Conference highlights
🎙️New podcast episodes on mental health & stigma
🏃‍♀️MS Awareness Run registration open
🌍 World MS Day celebrations worldwide

Plus new courses, research updates
Read: bit.ly/46ihro9
Newsletter: Innovative MS initiatives from across Europe, RWD training launch, EU Pharma Package hot take & more
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June 27, 2025 at 8:11 AM
Family Planning & Pregnancy webinar for MS healthcare professionals!

Join us:
🗓️July 4th 🕑 15:00 CEST

Learn:
✅Evidence-based strategies
✅Care coordination tips
✅Person-centered approaches

Speaker:
Laetitia della Faille, NMSC Melbroek
Register: bit.ly/3FZTbwz
#MSCare
June 23, 2025 at 9:47 AM
65% of people with #MS experience bladder control issues—ranking among the top 5 most debilitating symptoms.
For 23%, these invisible symptoms cause severe daily limitations.
Time to break the silence. Invisible ≠ insignificant.
#WorldContinenceWeek #MultipleSclerosis @MS International Federation
June 19, 2025 at 7:28 AM
📍 @ECTRIMS 2025, Barcelona 🗓️ 24 September

Session on cutting-edge research on EBV & #MS development + therapeutic interventions

🔗 Register: bit.ly/4kIda1U

Visit EMSP booth #11 at #ECTRIMS2025 to learn more about our projects.
ECTRIMS 2025 - HOME
ECTRIMS 2025 is the premier meeting place to collaborate on the next life-changing research and treatment options for people with MS and related diseases.
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June 13, 2025 at 12:02 PM
The 11th Congress of the EANeurology is coming to Helsinki
📅 June 21-24, 2025 📍 Helsinki, Finland + Online
Theme: "Neurology within Society"
Latest advances in neurological care & research—including key developments for the #MS community.
Register: bit.ly/4mZmSyj
11th Congress of the European Academy of Neurology - Helsinki 2025
The 11th European Academy of Neurology congress will be on 21-24 June 2025, in Helsinki, Finland
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June 13, 2025 at 10:14 AM
🚨 Only 52% of people with #MultipleSclerosis are satisfied with symptom management despite using 6+ treatments. 99% experience symptoms (avg. 14 at once!).
We can do better. Learn more🔽
emsp.org/projects/imp...

#MSAwareness #Healthcare
June 6, 2025 at 8:47 AM