European MS Platform
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European MS Platform
@emspofficial.bsky.social
Advocacy and expertise for over 1 million people living with #MultipleSclerosis and related disorders in Europe.
Join us at the #EMSP2025 Conference in Prague. http://bit.ly/4gXrVLL
🎯 REGISTRATION OPEN: #EMSP2026 Annual Conference📍April 24-25 | Berlin

🧠MS • NMOSD • MOGAD

Day 1: McDonald 2024 criteria, diagnostic biomarkers, clinical trial equity

Day 2: CAR-T therapy, stem cell research, menopause & MS, policy action

Register- bit.ly/4a7jGMK
February 10, 2026 at 11:05 AM
🎙️New Let's Talk MS: Moving abroad with MS, NMOSD & MOGAD
Navigating healthcare systems, personal experiences, and real talk about the challenges and rewards of relocating internationally with a neurological condition.
🔗https://bit.ly/3MiAbMG
February 5, 2026 at 1:39 PM
How are treatment decisions made in Europe? And how can YOUR voice shape them? Understanding #HTA gives patients real power in shaping treatment access.

Join this @ec.europa.eu webinar to learn how YOU can participate in consultations.

🔗http://bit.ly/3MoMV4z
February 4, 2026 at 11:02 AM
🎉 We're thrilled to welcome Nele Vanbilsen as our new Project Coordinator at EMSP!
With a PhD in auditory-motor coupling in progressive MS and expertise in neurological research, Nele brings valuable skills to support our MS, NMO & MOGAD communities across Europe.
Welcome to the team, Nele! 👋
January 26, 2026 at 1:53 PM
How can MS nurses transform daily symptom management?

Join our free webinar 🗓️ Jan 27, 16:00 CET to discover evidence-based care approaches:

Must attend for Researchers, MS nurses & patients

Register- bit.ly/4qaranF
Unseen but not Unfelt: MS symptom management and the role of nurses - EMSP
Join us on January 27th for an evidence-based exploration of symptom management and nurse-led support in the MS journey Living...
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January 9, 2026 at 12:48 PM
1/3: EMSP President Herbert Temmes presented #IMSS findings from Germany at the DACH Neurorehabilitation conference—bringing patient voices to clinical practice. This matters.
December 5, 2025 at 10:37 AM
#LetsTalkMS New Episode Drop
Only 48% of people with MS are employed.
We are changing that conversation.
Tune in to learn about:
Employability, disclosure & workplace strategies for young people with #MS #NMOSD #MOGAD

Listen now: bit.ly/4pCQBh3
S02E03 | Working with MS: challenges, resilience and practical tips
Welcome to Let's Talk MS, proudly presented by the European Multiple Sclerosis Platform (EMSP). Today's conversation is a hot topic for young people living with MS and related conditions. According to...
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November 27, 2025 at 11:30 AM
Most debilitating MS symptoms are often invisible.
Join our webinar exploring #IMSS survey findings & discuss how to better address these hidden challenges.

Featuring Prof. Peter Feys, Prof. Daphne Kos & EMSP Community Manager Anna Revilla.
Register: bit.ly/3XbbJyZ
November 25, 2025 at 1:51 PM
The past 2 weeks reinforced why collaboration matters. EMSP participated in EBV-MS and Behind-MS consortium meetings in Norway and Heidelberg respectively—two major EU projects exploring how Epstein-Barr virus triggers multiple sclerosis. 🧬
November 21, 2025 at 9:36 AM
📬 EMSP Newsletter: Latest updates in European MS Community

🔹Advocacy for equitable access & care across Europe 🔹Breakthrough research on walking fatigability & personalised rehabilitation
🔹 Award-winning patient programs & MS nurse insights

Read the full newsletter bit.ly/4pB5TDd
EMSP Newsletter Oct-Dec 2025 Edition
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November 18, 2025 at 9:34 AM
🧠 70% of people with MS experience walking fatigability—where walking becomes harder over time.
Felipe Santinelli, PhD candidate at University of Hasselt, is using brain imaging & motion sensors to develop personalised MS rehabilitation programs.

Read more 👇
bit.ly/49OxzQ8
How Brain Imaging and Motion Sensors Are Unlocking Potential For Personalised MS Rehabilitation - EMSP
For many people living with multiple sclerosis, walking becomes increasingly difficult over prolonged periods due to a phenomenon called “walking...
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November 14, 2025 at 12:51 PM
⏰EU budget consultation closes TODAY (Nov 12)

COVID-19 showed us: without health, everything fails.

Yet health risks being sidelined again in the next EU budget.

We're demanding a dedicated EU health budget that puts patients first.

📄Speak up NOW: bit.ly/49glsLs
European Commission - Have your say
European Commission - Have your say
bit.ly
November 12, 2025 at 10:27 AM
🏃♀️ 2 DAYS TO GO!
This Sunday, Nov 2nd, runners worldwide are taking on the EMSP MS Awareness Run at the Brussels Airport Marathon.

💙 Support them by contributing to their fundraisers
📣 Come cheer them on in Brussels
🌍 Help spread the word

Learn more: bit.ly/4hzcStq
See you there!

#MSRun
October 31, 2025 at 12:13 PM
EMSP mourns the passing of Klaus Knops, our former Treasurer and Executive Committee member.

His wise leadership and dedication left a lasting legacy for the European MS community.

Our deepest condolences to his family, friends and loved ones. bit.ly/4p2ACsz
October 29, 2025 at 10:45 AM
MS diagnosis changes entire families—not just patient's. Yet across Europe, caregivers remain unseen & unsupported.
Only 15 countries consult MS communities on policy. Just 16/35 support child MS caregivers.
It's time to close the gaps.
#EurocarersDay
October 6, 2025 at 12:59 PM
🌟 Major news for the #MS community!
The EU is committing to 500 MORE clinical trials annually + faster trial starts through ACT EU initiative.

What this means: More treatment options, better access, less waiting for MS patients across Europe. Learn more: www.ema.europa.eu/en/news/new-...
New targets for clinical trials in Europe | European Medicines Agency (EMA)
500 authorised multinational clinical trials to be added over five years
www.ema.europa.eu
October 1, 2025 at 9:32 AM
FINAL REMINDER: Movement with MS starts in 6 HOURS!
🕐 17:00-18:15 CEST
Join our experts to learn: ✅Safe movement strategies for MS ✅ Exercise tips from specialists
✅ Real success stories
Register- bit.ly/4moU297
September 16, 2025 at 8:45 AM
Webinar- Movement with MS: Strategies for Staying Active
📅 Registration closes Friday!

Whether you live with MS or just love fitness, this webinar is packed with tips to keep you moving.

🎟️ Limited spots—register now: bit.ly/4mdXHqi

#MSAwareness #FitnessForAll
September 10, 2025 at 9:59 AM
🎙️New on Let’s Talk MS:

Meet Aida Fuentes Picazo—a young mother navigating life with Neuromyelitis Optica (NMO). Diagnosed after giving birth, her story is one of resilience, adaptation, and invisible strength.

🎧Listen now: bit.ly/3HNCFkg
#RareDisease #PatientVoices
S01E08 | Aida's Story: Strength, Positivity, Challenges and NMOSD
Welcome to Let's Talk MS, proudly presented by the European Multiple Sclerosis Platform (EMSP). After introducing NMOSD and MOGAD in our previous episode, today we take a more personal approach. We&rs...
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September 9, 2025 at 9:36 AM
💙 September is Pain Awareness Month
Did you know?
73% of people with #MS experience pain, yet only 5% have access to pain specialists.

Pain is real, overlooked, and deserves better care! #PainAwarenessMonth
September 8, 2025 at 8:38 AM
Living with MS doesn't mean slowing down
Join our FREE webinar: Movement with MS: Strategies for Staying Active and discover how to make movement your powerful ally.
📅 Sept 16, 5-6:15 PM
🎯 For everyone - MS warriors, supporters & healthcare pros
🔗 Register: bit.ly/4os3daV
@braincouncil.eu @efna.net
August 12, 2025 at 11:32 AM
45% of Europeans worry about health data privacy, yet only 8% understand how their data is used.

Take the More Europa training 📚
7 bite-sized modules on how your real-world data improves treatments.

Because Knowledge = Power 💪
🔗 bit.ly/4mcolR3
August 12, 2025 at 10:32 AM
Living with #MS? Your active lifestyle doesn't have to stop!

Join our webinar "Movement with MS: Strategies for Staying Active".
Learn:
✅ Exercise tips for every fitness level
✅ Safe training for sporting events
✅ Expert guidance from fitness coaches

Register- bit.ly/4os3daV
August 8, 2025 at 12:16 PM
Join us at the @ECTRIMS Patient Community Day
Sept 26, 2025 | Barcelona + Online

Designed for people with MS, related neurological diseases & caregivers. #ECTRIMS4me
✅ Get latest treatment breakthroughs
✅ Connect with community
✅ Expert knowledge from leading researchers
July 23, 2025 at 8:49 AM