Emma Gore-Lloyd
@emmagl.bsky.social
Co-founder #ThereForME | Calling for an NHS that's there for Long Covid & ME | https://www.thereforme.uk/
Linguist, DELTA-qualified English 2nd lang teacher | https://hiveofactivities.wordpress.com
Design | https://emmarubystudio.com/
She / her
Linguist, DELTA-qualified English 2nd lang teacher | https://hiveofactivities.wordpress.com
Design | https://emmarubystudio.com/
She / her
Reposted by Emma Gore-Lloyd
Our latest @thereforme.bsky.social blog includes our reflections on the Final Delivery Plan for ME and a rundown of some of the media coverage.
We’re taking a short campaign break in August to give our team time to rest and regroup. We’ll be back on it in September!
We’re taking a short campaign break in August to give our team time to rest and regroup. We’ll be back on it in September!
Today’s #ThereForME blog is our last update before a short pause (we’ll be back in September 😎).
We unpack the Delivery Plan, the media coverage and why it matters.
Link in next post 👇
We unpack the Delivery Plan, the media coverage and why it matters.
Link in next post 👇
July 29, 2025 at 8:29 AM
Our latest @thereforme.bsky.social blog includes our reflections on the Final Delivery Plan for ME and a rundown of some of the media coverage.
We’re taking a short campaign break in August to give our team time to rest and regroup. We’ll be back on it in September!
We’re taking a short campaign break in August to give our team time to rest and regroup. We’ll be back on it in September!
Reposted by Emma Gore-Lloyd
After 3+ years of waiting the Final Delivery Plan for ME is being released today.
Our comment 👇
Our comment 👇
July 22, 2025 at 8:09 AM
After 3+ years of waiting the Final Delivery Plan for ME is being released today.
Our comment 👇
Our comment 👇
I'm so grateful for the support of the other carers I know. It means the world to be understood and to be able to be there for each other. I'm a little less lost with them in my life 🙏💙
Today’s #ThereForME blog is from our very own @emmagl.bsky.social 💙
Emma shares her memories of becoming a carer, with reflections from an A-Z she wrote in 2023.
Link in next post 👇
Emma shares her memories of becoming a carer, with reflections from an A-Z she wrote in 2023.
Link in next post 👇
May 27, 2025 at 9:05 AM
I'm so grateful for the support of the other carers I know. It means the world to be understood and to be able to be there for each other. I'm a little less lost with them in my life 🙏💙
Reposted by Emma Gore-Lloyd
It’s official: the @libdems.org.uk are #ThereForME ! 🧡
Incredible to see every single one of the Lib Dems’ 72 MPs signing this letter led by @tessamunt.bsky.social ahead of World ME Day.
They’ve joined our call to @rthonwesstreeting.bsky.social and @ashleydaltonmp.bsky.social to #FundThePlan
Incredible to see every single one of the Lib Dems’ 72 MPs signing this letter led by @tessamunt.bsky.social ahead of World ME Day.
They’ve joined our call to @rthonwesstreeting.bsky.social and @ashleydaltonmp.bsky.social to #FundThePlan
So delighted that all 72 LibDem MPs signed this letter to @rthonwesstreeting.bsky.social @ashleydaltonmp.bsky.social asking the govt to back the ME/CFS Delivery Plan with the resources it deserves. May this be a huge encouragement to the ME community and the start of meaningful change. #WorldMEDay
May 8, 2025 at 4:36 PM
It’s official: the @libdems.org.uk are #ThereForME ! 🧡
Incredible to see every single one of the Lib Dems’ 72 MPs signing this letter led by @tessamunt.bsky.social ahead of World ME Day.
They’ve joined our call to @rthonwesstreeting.bsky.social and @ashleydaltonmp.bsky.social to #FundThePlan
Incredible to see every single one of the Lib Dems’ 72 MPs signing this letter led by @tessamunt.bsky.social ahead of World ME Day.
They’ve joined our call to @rthonwesstreeting.bsky.social and @ashleydaltonmp.bsky.social to #FundThePlan
Was hoping to see my MP on this list.
Here’s the full letter to Keir Starmer from MPs - they are both new intake and veterans and from the left and right of the party
“Without a change of direction, the Green Paper will be impossible to support”
“Without a change of direction, the Green Paper will be impossible to support”
May 8, 2025 at 2:57 PM
Was hoping to see my MP on this list.
Reposted by Emma Gore-Lloyd
EXC - 42 MPs have signed a letter to Keir Starmer saying the disability cuts are “impossible to support”
PM is facing biggest rebellion of the parliament over welfare vote
MPs call for pause and rethink until fuller impact assessments can be done in autumn and warn disabled people are frightened
PM is facing biggest rebellion of the parliament over welfare vote
MPs call for pause and rethink until fuller impact assessments can be done in autumn and warn disabled people are frightened
May 8, 2025 at 12:47 PM
EXC - 42 MPs have signed a letter to Keir Starmer saying the disability cuts are “impossible to support”
PM is facing biggest rebellion of the parliament over welfare vote
MPs call for pause and rethink until fuller impact assessments can be done in autumn and warn disabled people are frightened
PM is facing biggest rebellion of the parliament over welfare vote
MPs call for pause and rethink until fuller impact assessments can be done in autumn and warn disabled people are frightened
Reposted by Emma Gore-Lloyd
If you're in England, Wales, or Northern Ireland, living (or caring for someone) with Long Covid or ME/CFS and receiving PIP, UC, or ESA, we want to hear from you.
👉 Take our 5-10 min survey: forms.gle/rrvNm7G1bDRn...
👉 Take our 5-10 min survey: forms.gle/rrvNm7G1bDRn...
The new proposed welfare reforms: understanding the impact on people with Long Covid and ME/CFS
This survey is for individuals with Long Covid (LC) or Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) who are receiving benefits affected by the government's proposed reforms. If the pers...
forms.gle
April 16, 2025 at 11:08 AM
If you're in England, Wales, or Northern Ireland, living (or caring for someone) with Long Covid or ME/CFS and receiving PIP, UC, or ESA, we want to hear from you.
👉 Take our 5-10 min survey: forms.gle/rrvNm7G1bDRn...
👉 Take our 5-10 min survey: forms.gle/rrvNm7G1bDRn...
Reposted by Emma Gore-Lloyd
The UK government is proposing significant changes to welfare benefits. These reforms could profoundly impact individuals with Long Covid and ME/CFS.
We've launched a survey to gather your insight 👇
We've launched a survey to gather your insight 👇
April 16, 2025 at 11:07 AM
The UK government is proposing significant changes to welfare benefits. These reforms could profoundly impact individuals with Long Covid and ME/CFS.
We've launched a survey to gather your insight 👇
We've launched a survey to gather your insight 👇
Reposted by Emma Gore-Lloyd
Great to hear our @oonagh_cousins and #ThereForME Ambassador @binitakane.bsky.social on @bbc5live.bsky.social this morning!
Clip here courtesy of @abrokenbattery.bsky.social👇
youtu.be/9Wh6lIEYZcg?...
Clip here courtesy of @abrokenbattery.bsky.social👇
youtu.be/9Wh6lIEYZcg?...
BBC 5 Live - Long COVID 5 years on
YouTube video by Broken Battery
youtu.be
March 19, 2025 at 9:27 AM
Great to hear our @oonagh_cousins and #ThereForME Ambassador @binitakane.bsky.social on @bbc5live.bsky.social this morning!
Clip here courtesy of @abrokenbattery.bsky.social👇
youtu.be/9Wh6lIEYZcg?...
Clip here courtesy of @abrokenbattery.bsky.social👇
youtu.be/9Wh6lIEYZcg?...
Reposted by Emma Gore-Lloyd
Powerful story on @bbclooknorth.bsky.social about Dr Alexis Gilbert.
“"I've lived like this for two or three years and the thought of living like this for another two or three years is completely overwhelming, never mind a decade or longer,"
www.bbc.com/news/article...
“"I've lived like this for two or three years and the thought of living like this for another two or three years is completely overwhelming, never mind a decade or longer,"
www.bbc.com/news/article...
Leeds doctor still 'bedbound' three years after Covid infection
Dr Alexis Gilbert was working in public health when he fell ill and now struggles with daily tasks.
www.bbc.com
March 20, 2025 at 9:24 AM
Powerful story on @bbclooknorth.bsky.social about Dr Alexis Gilbert.
“"I've lived like this for two or three years and the thought of living like this for another two or three years is completely overwhelming, never mind a decade or longer,"
www.bbc.com/news/article...
“"I've lived like this for two or three years and the thought of living like this for another two or three years is completely overwhelming, never mind a decade or longer,"
www.bbc.com/news/article...
Reposted by Emma Gore-Lloyd
📢 MEDIA OPPORTUNITY
Do we know anyone who has borrowed money, taken on debt or sacrificed basics to finance private care for ME or Long Covid - and who would be able to talk to media about it?
We can share more details by DM.
Do we know anyone who has borrowed money, taken on debt or sacrificed basics to finance private care for ME or Long Covid - and who would be able to talk to media about it?
We can share more details by DM.
March 20, 2025 at 10:22 AM
📢 MEDIA OPPORTUNITY
Do we know anyone who has borrowed money, taken on debt or sacrificed basics to finance private care for ME or Long Covid - and who would be able to talk to media about it?
We can share more details by DM.
Do we know anyone who has borrowed money, taken on debt or sacrificed basics to finance private care for ME or Long Covid - and who would be able to talk to media about it?
We can share more details by DM.
Reposted by Emma Gore-Lloyd
We’ve been so moved seeing the #FundThePlan videos over the past few weeks.
Now, we want to get our call to #FundThePlan out far and wide. Here’s a little something we’ve put together for the campaign.
We’d love your help making some noise with it 🙏
Now, we want to get our call to #FundThePlan out far and wide. Here’s a little something we’ve put together for the campaign.
We’d love your help making some noise with it 🙏
March 12, 2025 at 9:04 AM
We’ve been so moved seeing the #FundThePlan videos over the past few weeks.
Now, we want to get our call to #FundThePlan out far and wide. Here’s a little something we’ve put together for the campaign.
We’d love your help making some noise with it 🙏
Now, we want to get our call to #FundThePlan out far and wide. Here’s a little something we’ve put together for the campaign.
We’d love your help making some noise with it 🙏
Reposted by Emma Gore-Lloyd
Today's #ThereForME blog post is from @nickbenton.bsky.social, who has experienced some improvement from Very Severe ME.
He shares his various experiences with health care and talks about the need to be #ThereForME for those too sick to advocate for themselves.
www.thereforme.uk/p/stuck-at-t...
He shares his various experiences with health care and talks about the need to be #ThereForME for those too sick to advocate for themselves.
www.thereforme.uk/p/stuck-at-t...
Stuck at the bottom of a well
Me, very severe ME and the NHS
www.thereforme.uk
March 4, 2025 at 9:36 AM
Today's #ThereForME blog post is from @nickbenton.bsky.social, who has experienced some improvement from Very Severe ME.
He shares his various experiences with health care and talks about the need to be #ThereForME for those too sick to advocate for themselves.
www.thereforme.uk/p/stuck-at-t...
He shares his various experiences with health care and talks about the need to be #ThereForME for those too sick to advocate for themselves.
www.thereforme.uk/p/stuck-at-t...
Reposted by Emma Gore-Lloyd
We’d love your help asking allies in your life, and the wider world, to get involved and stand with people with ME as we ask the government to #FundThePlan.
We’ve even got a new template script for the occasion 👇
We’ve even got a new template script for the occasion 👇
![Script: Dear Wes & Ashley,
My name is [...] & I’m [...]. (Say why this matters to you.) In the coming months, the government is due to publish a new delivery plan for ME, aiming to boost research and strengthen care. But so far, no additional funding has been allocated to it. Public finances are tight - but in the world of government spending we are talking about modest sums. Just £20m a year behind the plan would make an enormous difference. People with ME are calling on the government to invest in their future and reverse generations of neglect. I’m standing with them to say please, fund the plan.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:wjbaponwuqichcsh2fiwono5/bafkreig2fltpxn3gkldyxtb34naof2t36s6tqmvsyxyjkc6qnko3qmlgri@jpeg)
February 26, 2025 at 5:45 PM
We’d love your help asking allies in your life, and the wider world, to get involved and stand with people with ME as we ask the government to #FundThePlan.
We’ve even got a new template script for the occasion 👇
We’ve even got a new template script for the occasion 👇
Reposted by Emma Gore-Lloyd
We’ve been amazed watching the incredibly powerful #FundThePlan videos being shared by people with ME and carers.
It’s clear PwME want change. Now we’re asking allies, whether friends, healthcare workers or public figures, to join us.
It’s time for #FundThePlan: Ally edition
It’s clear PwME want change. Now we’re asking allies, whether friends, healthcare workers or public figures, to join us.
It’s time for #FundThePlan: Ally edition
February 26, 2025 at 5:44 PM
We’ve been amazed watching the incredibly powerful #FundThePlan videos being shared by people with ME and carers.
It’s clear PwME want change. Now we’re asking allies, whether friends, healthcare workers or public figures, to join us.
It’s time for #FundThePlan: Ally edition
It’s clear PwME want change. Now we’re asking allies, whether friends, healthcare workers or public figures, to join us.
It’s time for #FundThePlan: Ally edition
Dear @wesstreeting.bsky.social and @ashleydaltonmp.bsky.social. My partner is missing from his life.
Please, #FundThePlan 💙
#MyalgicEncephalomyelitis
#LongCovid
#lyme
@thereforme.bsky.social
Please, #FundThePlan 💙
#MyalgicEncephalomyelitis
#LongCovid
#lyme
@thereforme.bsky.social
February 26, 2025 at 5:51 PM
Dear @wesstreeting.bsky.social and @ashleydaltonmp.bsky.social. My partner is missing from his life.
Please, #FundThePlan 💙
#MyalgicEncephalomyelitis
#LongCovid
#lyme
@thereforme.bsky.social
Please, #FundThePlan 💙
#MyalgicEncephalomyelitis
#LongCovid
#lyme
@thereforme.bsky.social
Reposted by Emma Gore-Lloyd
New #ThereForME blog out today highlighting some of the community campaigning work going on for #ME and #LongCovid - from #FundThePlan to Long Covid Awareness Day.
Read more and learn how you can get involved 👇
www.thereforme.uk/p/campaign-u...
Read more and learn how you can get involved 👇
www.thereforme.uk/p/campaign-u...
February 25, 2025 at 9:30 AM
New #ThereForME blog out today highlighting some of the community campaigning work going on for #ME and #LongCovid - from #FundThePlan to Long Covid Awareness Day.
Read more and learn how you can get involved 👇
www.thereforme.uk/p/campaign-u...
Read more and learn how you can get involved 👇
www.thereforme.uk/p/campaign-u...
Reposted by Emma Gore-Lloyd
Yesterday’s news was disappointing but not unexpected.
With over a month until the plan is finalised there’s still time for ministers to change course. And every bit of pressure helps.
More from us tomorrow on how you can fight back 💪
#FundThePlan
With over a month until the plan is finalised there’s still time for ministers to change course. And every bit of pressure helps.
More from us tomorrow on how you can fight back 💪
#FundThePlan
February 20, 2025 at 1:52 PM
Yesterday’s news was disappointing but not unexpected.
With over a month until the plan is finalised there’s still time for ministers to change course. And every bit of pressure helps.
More from us tomorrow on how you can fight back 💪
#FundThePlan
With over a month until the plan is finalised there’s still time for ministers to change course. And every bit of pressure helps.
More from us tomorrow on how you can fight back 💪
#FundThePlan
Reposted by Emma Gore-Lloyd
Support for ME isn’t just for Christmas!
Brilliant to see #ThereForME advent calendar supporter & @libdems.org.uk health spokesperson @helenmorganlibdem.bsky.social writing in @thetimes.com today.
www.thetimes.com/comment/colu...
Brilliant to see #ThereForME advent calendar supporter & @libdems.org.uk health spokesperson @helenmorganlibdem.bsky.social writing in @thetimes.com today.
www.thetimes.com/comment/colu...
Plan to help ME sufferers has been delayed for too long
Ministers must show that care and research for these neglected patients is a priority
www.thetimes.com
February 19, 2025 at 7:45 AM
Support for ME isn’t just for Christmas!
Brilliant to see #ThereForME advent calendar supporter & @libdems.org.uk health spokesperson @helenmorganlibdem.bsky.social writing in @thetimes.com today.
www.thetimes.com/comment/colu...
Brilliant to see #ThereForME advent calendar supporter & @libdems.org.uk health spokesperson @helenmorganlibdem.bsky.social writing in @thetimes.com today.
www.thetimes.com/comment/colu...
Reposted by Emma Gore-Lloyd
The piece also quotes today’s op-ed from @libdems.org.uk health spokesperson @helenmorganlibdem.bsky.social on the need for an ambitious delivery plan 💛
bsky.app/profile/ther...
bsky.app/profile/ther...
Support for ME isn’t just for Christmas!
Brilliant to see #ThereForME advent calendar supporter & @libdems.org.uk health spokesperson @helenmorganlibdem.bsky.social writing in @thetimes.com today.
www.thetimes.com/comment/colu...
Brilliant to see #ThereForME advent calendar supporter & @libdems.org.uk health spokesperson @helenmorganlibdem.bsky.social writing in @thetimes.com today.
www.thetimes.com/comment/colu...
Plan to help ME sufferers has been delayed for too long
Ministers must show that care and research for these neglected patients is a priority
www.thetimes.com
February 19, 2025 at 7:51 AM
The piece also quotes today’s op-ed from @libdems.org.uk health spokesperson @helenmorganlibdem.bsky.social on the need for an ambitious delivery plan 💛
bsky.app/profile/ther...
bsky.app/profile/ther...
Reposted by Emma Gore-Lloyd
Our co-founder @karenlhargrave.bsky.social quoted in @thetimes.com today on news this week that no additional funds are planned for the new ME delivery plan.
www.thetimes.com/uk/healthcar...
www.thetimes.com/uk/healthcar...
February 19, 2025 at 7:47 AM
Our co-founder @karenlhargrave.bsky.social quoted in @thetimes.com today on news this week that no additional funds are planned for the new ME delivery plan.
www.thetimes.com/uk/healthcar...
www.thetimes.com/uk/healthcar...
Reposted by Emma Gore-Lloyd
Today’s #ThereForME blog is from an anonymous healthcare worker
She shares her experiences of developing #ME following a Covid infection and ideas for what an NHS that’s #ThereForME would look like.
www.thereforme.uk/p/designing-...
She shares her experiences of developing #ME following a Covid infection and ideas for what an NHS that’s #ThereForME would look like.
www.thereforme.uk/p/designing-...
February 18, 2025 at 9:55 AM
Today’s #ThereForME blog is from an anonymous healthcare worker
She shares her experiences of developing #ME following a Covid infection and ideas for what an NHS that’s #ThereForME would look like.
www.thereforme.uk/p/designing-...
She shares her experiences of developing #ME following a Covid infection and ideas for what an NHS that’s #ThereForME would look like.
www.thereforme.uk/p/designing-...
Reposted by Emma Gore-Lloyd
February 14, 2025 at 7:12 PM
Reposted by Emma Gore-Lloyd
Today we’ve written to @ashleydaltonmp.bsky.social - sharing congratulations on the new role and asking for commitment that the new delivery plan for ME/CFS will remain a ministerial priority.
Our #ThereForME campaign would welcome the opportunity to meet to discuss our recommendations.
Our #ThereForME campaign would welcome the opportunity to meet to discuss our recommendations.
February 11, 2025 at 3:36 PM
Today we’ve written to @ashleydaltonmp.bsky.social - sharing congratulations on the new role and asking for commitment that the new delivery plan for ME/CFS will remain a ministerial priority.
Our #ThereForME campaign would welcome the opportunity to meet to discuss our recommendations.
Our #ThereForME campaign would welcome the opportunity to meet to discuss our recommendations.
Reposted by Emma Gore-Lloyd
Our latest #ThereForME campaign update is out today!
Read to find out how we’ve been keeping busy, some updates from friends of the campaign and details for how you can help us keep up the momentum 👇
www.thereforme.uk/p/campaign-u...
Read to find out how we’ve been keeping busy, some updates from friends of the campaign and details for how you can help us keep up the momentum 👇
www.thereforme.uk/p/campaign-u...
February 11, 2025 at 10:04 AM
Our latest #ThereForME campaign update is out today!
Read to find out how we’ve been keeping busy, some updates from friends of the campaign and details for how you can help us keep up the momentum 👇
www.thereforme.uk/p/campaign-u...
Read to find out how we’ve been keeping busy, some updates from friends of the campaign and details for how you can help us keep up the momentum 👇
www.thereforme.uk/p/campaign-u...