elzza 🏳️‍🌈🏳️‍⚧️🏴‍☠️
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elzzadoll.bsky.social
elzza 🏳️‍🌈🏳️‍⚧️🏴‍☠️
@elzzadoll.bsky.social
Neurospicy Spoonie, interdisciplinary Artist, Witch

Parent to one young adult human, and one young adult dog

Genderqueer Goblin
they/them

In my sweatpants era
You just died.

The 6th picture in your gallery is what killed you.

Death by cute. Predictable.
November 27, 2025 at 6:39 AM
Update: my pcp agrees that all signs still point to POTS, between my history, and the fact my heart rate was still rising after 10 minutes of standing. So, I get to do it again, but next time she's gonna ask the nurse to monitor hr and BP the whole time instead of checking them at intervals. Yay
November 26, 2025 at 4:12 PM
Got my referrals in the mail. Phew
Now to find out if any of the chiropractors have experience with #hEDS and #fibromyalgia patients and also offer massage.

And hope the old executive dysfunction doesn't get in the way of making all these various appts that continue to spring forth from each appt
Had a phone appt w Kaiser's Spine Program yest, gatekeeper for acupuncture & chiropractic referrals, it was mostly pain scale questions as expected. A nightmare of arbitrary interpretation for any chronic pain patient. Gonna spend all day 2nd guessing my answers, worried they were too low...
#hEDS
November 25, 2025 at 3:51 AM
Me (noticing my breathing had gotten slow and deep the longer the standing test went on): oh that's a sure sign my heart rate's going up, gonna ace this POTS test

Nurse: your HR only increased 16 bmp, 20 is the minimum. You don't have POTS

#chronicillness #NEISvoid
(1/2)
November 25, 2025 at 3:30 AM
Had a phone appt w Kaiser's Spine Program yest, gatekeeper for acupuncture & chiropractic referrals, it was mostly pain scale questions as expected. A nightmare of arbitrary interpretation for any chronic pain patient. Gonna spend all day 2nd guessing my answers, worried they were too low...
#hEDS
November 20, 2025 at 5:43 PM
Final 2 blocks of my rainbow crumb quilt! 9 months of incremental progress. I can't wait to play with layout next, and I wish I had a blank wall to pin them to.

#rainbowcrumbquilt #queerquilter #fibrofiberartist
November 20, 2025 at 6:10 AM
Well, after all these years of struggle, medical trauma & gas lighting, it turned out to be incredibly easy to get a positive assessment for EDS.
I love that the treatment plan printed out for me suggests therapy for medical trauma and neurodivergence

#chronicpain #ehlersdanlos #hypermobility
November 18, 2025 at 3:28 AM
Finished my last green crumb quilt block last night. Only 2 blocks left to go, then I can decide how I want to arrange them all, and get to assembling this rainbow lap quilt!
November 17, 2025 at 6:17 PM
According to my Dr, my brain waking me up at 6 or 7 am consistently and not being able to fall back asleep, does not count as insomnia and I am just old now
November 11, 2025 at 3:43 PM
Me (an xennial w/ years of medical trauma from dismissive gen x & boomer Drs): goes into Dr appt all spooked with a list of points to defend the validity of my symptoms

My millennial Dr: asks questions and orders what tests she can to confirm the comorbidities I came to get dxed with

Me: ...?
November 11, 2025 at 4:37 AM
About to jump on a zoom Dr appt. Really wish it didn't make me so anxious I'm shaking. But years of being dismissed and gaslit will do that to a person.
I already sent her a list of all the symptoms I want to talk about. And I have all my notes ready in front of me...
November 10, 2025 at 9:55 PM
I've never found a hobby yet that wasn't hard on my joints.
And yes I'm saying I have hurt myself reading books...

#chronicpain #fibromyalgia #HSD #hypermobility #fibrofiberartist
November 10, 2025 at 12:22 AM
Honestly, stacking tasks I'm likely to forget, like taking my supplements, on top of routines I won't forget, like morning animal care, is one of my best adhd hacks.
November 8, 2025 at 4:56 AM
My back is pretty mad that my hyperfocus called me back to finish a second block. But that's turquoise done.
And I feel more emotionally regulated
#rainbowcrumbquilt #queerquilter #quiltsky #fibrofiberartist
November 6, 2025 at 3:17 AM
I feel emotionally hung over today. Lost in the fog.
Maybe I'll do some crumb quilting about it...
November 5, 2025 at 8:51 PM
Took the opportunity of my dad's phone call on my birthday to tell him why I think he's autistic, and his alcoholic dad probably was too. As a little treat.
November 5, 2025 at 12:58 AM
Happy Halloween to all my fellow spooky spoonies.
I don't have any plans this year, and honestly don't want them after the horrible flu I caught going out to a crowded drag show last year despite being masked, and half the audience also being masked.
Nevermind my birthday in a few days...
October 31, 2025 at 4:35 PM
One of the things I love about quilting solely with scraps saved from many decades worth of clothing and costume construction is the memories associated with each item made from those fabrics, and how magical it feels to stitch them into a quilt. Tho the garments may be long gone, outgrown, worn out
October 30, 2025 at 10:19 PM
I tried to rest all day. But then the game came on and I retreated to my work room, where I ended up squeezing out 2 last crumb quilt blocks from my meager supply of yellow scraps

#rainbowquilt #useeveryscrap #queerquilter #chronicpain #fibrofiberartist
October 30, 2025 at 3:19 AM
How do I create a career out of handing out a handful of small good ideas per day to a handful of people on the internet?

Don't say content creator
October 29, 2025 at 11:17 PM
So close to finishing all the crumb quilt blocks I can taste it. But cranking out 6 in the past 2 days may have been more than my chronic pain can take. Might have to force myself to rest today.
Only 11 more to go!
October 29, 2025 at 7:13 PM
Reposted by elzza 🏳️‍🌈🏳️‍⚧️🏴‍☠️
Right-wing agitators at the Portland ICE facility appear to have committed multiple illegal acts on Saturday night.

Not included in this video is the crowd going to a resident’s apartment across from the ICE facility and live-streaming their harassment.
October 27, 2025 at 4:35 PM
As a former vegetarian I wish I didn't have to rely on meat for protein, and miss when we could afford buying humanely raised & local from the farmers market.
But gods, the list of foods I can't eat is long now.
We're not even on SNAP anymore cuz keeping up with all the paperwork was overwhelming
“Just eat rice & beans! It’s cheap & healthy!”

I’m allergic to both rice & beans. I’m not alone

Some people lack the physical capacity to cook

Sometimes the most affordable option isn’t an option.

Food isn’t one size fits all & disabilities are complicated.

Believe us when we say we need help
October 26, 2025 at 6:12 PM
I've not been sharing my progress, but here's yesterday's effort, 61 done. Only 19 more blocks to go!
#queerquilter #rainbowquilt #quiltsky #crumbquilt #UseEveryScrap
October 26, 2025 at 5:07 PM
Well, if I've learned one thing today, it's that I can't treat the feeds I follow on here like my groups back on fb.
Even tho I've made some "friends" thru random engagement, I'm just as likely to cock things up with good ol fashioned 'tism bluntness and overfamiliarity
October 17, 2025 at 11:29 PM