Chiara Merritt Linden
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chiaraml.bsky.social
Chiara Merritt Linden
@chiaraml.bsky.social
150 followers 110 following 77 posts
Multiple Sclerosis 💉 PPI/co-pro
Applied Social Research PGR 📖 Third-party monitoring
Posts Replies Media Videos
Reposted by Chiara Merritt Linden
jenibaykoca.bsky.social
Such an energising session!🤗

I'm so grateful for this amazing, thoughtful group. Your insights are truly shaping the app into something meaningful and practical for people living with MS.

Every conversation moves us a step closer to creating tools that support, empower and make a real difference👊
November 16, 2025 at 11:04 AM
Reposted by Chiara Merritt Linden
jeremycorbyn.bsky.social
I am sickened by the relentless demonisation of refugees.

No refugee underfunded a school.

No refugee closed a hospital.

No refugee took away support from the sick and disabled.

We need solutions not scapegoats. Stop blaming refugees and tax the rich instead!
August 27, 2025 at 9:11 AM
Reposted by Chiara Merritt Linden
drcrmatthews.bsky.social
Someone who supports my work has paid for 3 books for me to give away! I'll double that - so I have *six* to give away!!! To enter just repost & comment below. I'll announce the winners on friday (1st Aug). Please do share, thanks. 🙏🤟🍻 More info on the book here - www.routledge.com/Doing-Good-S....
July 30, 2025 at 8:25 AM
chiaraml.bsky.social
Interesting stuff. I am quite glad I had a carefree teens and 20s and not sure I would have liked to know about my diagnosis earlier 🤷
advantageaustria.org ADVANTAGE AUSTRIA @advantageaustria.org · Jul 17
Researchers at the @meduniwien.ac.at have developed a blood test that can detect MS years before symptoms, by identifying antibodies linked to EBV. Early diagnosis could improve treatment.
Read more about health progress being made in Austria: bit.ly/4ky8WsB
#MS #Research #advantageaustria #ATHealth
July 18, 2025 at 8:35 AM
Reposted by Chiara Merritt Linden
sgsss.bsky.social
Check it out! SGSSS student, Claire Robertson, has created a comic to highlight the hidden symptoms of MS and make information regarding the disease more approachable.

See more in her interview with BBC News: www.bbc.co.uk/news/article...

Read the comic: abdn.elsevierpure.com/en/publicati...
Aberdeen student creates comic to highlight hidden MS symptoms
Claire Robertson at the University of Aberdeen created the comic as her father lives with the condition.
www.bbc.co.uk
July 17, 2025 at 12:14 PM
chiaraml.bsky.social
I started my doctorate remotely during the pandemic. I then got MS and my progress has been slow (thanks immunosuppression, wobbliness, fatigue). I am grateful for all the online resources I have access to but today I visited a university library for the first (!) time. Absolute bliss 📚 #MS #PhDSky
July 8, 2025 at 2:56 PM
Reposted by Chiara Merritt Linden
francesryan.bsky.social
The extra cost of being disabled in the UK will rise by almost 12% in five years, says Scope. That means having to find another £15k a year just to live at the same standard as non-disabled people.

But MPs should cut PIP tomorrow, right? Seems logical and humane? www.theguardian.com/politics/202...
Extra cost of being disabled in UK to rise by almost 12% in five years, says Scope report
Estimate by disability charity published on eve of MPs’ vote on restricting welfare payments for new claimants
www.theguardian.com
June 30, 2025 at 7:44 AM
chiaraml.bsky.social
@francesryan.bsky.social putting it so well, as always
open.spotify.com/episode/1EyZ...
“It’ll push disabled people into poverty”: Labour’s controversial welfare bill
Today in Focus · Episode
open.spotify.com
June 27, 2025 at 10:51 AM
chiaraml.bsky.social
Exciting things to come 🤞
June 20, 2025 at 4:29 PM
chiaraml.bsky.social
Does anyone else feel awful during and after their #ocrevus infusions? Mostly I see people saying they feel great afterwards so wondering why I never do... #MS
June 5, 2025 at 10:41 AM
Reposted by Chiara Merritt Linden
quahrc.bsky.social
With the news this week on cuts to #DisabilityBenefits , we thought we'd share some #qualitative work on the impacts of welfare reform:
March 20, 2025 at 11:54 AM
chiaraml.bsky.social
Labour mollifies the rich, targets disabled people and claims moral justification. There isn’t any | Frances Ryan www.theguardian.com/commentisfre...
Labour mollifies the rich, targets disabled people and claims moral justification. There isn’t any | Frances Ryan
Ministers run away from a wealth tax and then concoct a punitive benefits system. They have made that choice and it’s immoral, says Guardian columnist Frances Ryan
www.theguardian.com
March 11, 2025 at 11:05 AM
chiaraml.bsky.social
Pesky brainstem lesions 🤬 #ms multiplesclerosisnewstoday.com/ms-lesions/#...
MS Lesions | Symptoms and Diagnosis
MS is defined by the presence of lesions in the nervous system. Learn more about MS lesions and view a picture of what brain lesions look like on an MRI.
multiplesclerosisnewstoday.com
March 3, 2025 at 12:16 AM
chiaraml.bsky.social
#MS #multiplesclerosis
jenibaykoca.bsky.social Jeni Baykoca @jenibaykoca.bsky.social · Feb 12
📢 🔬 Seeking PPI participants with MS! Help us design a mobile app for pain, psychological distress and sexual difficulties.

Your voice matters 📱🌟
February 24, 2025 at 5:22 PM
chiaraml.bsky.social
MSers, what have you found helps with neuropathic pain? #multiplesclerosis #MS
February 21, 2025 at 11:09 AM
chiaraml.bsky.social
Took a fall today, which I'm not happy about 🤬 Think I might need some light winter-suitable trainers. Any suggestions #MS crew?
January 25, 2025 at 5:19 PM
Reposted by Chiara Merritt Linden
annamazz.bsky.social
Four years since my son wrote the best opening to a mystery novel ever written.
January 12, 2025 at 10:33 AM
chiaraml.bsky.social
Ocrevusers, has anyone been told by their neuro that Ocrevus could be discontinued after 2 years of therapy? #ms #dmt
December 30, 2024 at 6:58 PM
Reposted by Chiara Merritt Linden
christheowl.bsky.social
I’m doing research into the experiences of disabled people looking for employment. I’d be grateful if you could share this survey with people it might be of interest to. The survey is at:

cambridge.eu.qualtrics.com/jfe/form/SV_...

#Disability #AcademicSky
Thank you
Information Sheet Disability Employment: Perspectives of Disabled People Before you decide to take part in this study it is important for you to understand why the research is being done and what it will involve. Please take time to read the following information carefully and discuss it with others if you wish. A member of the team can be contacted if there is anything that is not clear or if you would like more information. Take time to decide whether or not you wish to take part. Purpose of the study The study aims to find out more about the experiences of disabled people when they are looking for employment. The study is focussed on people who are physically disabled. It is recognised that people may have multiple impairments. Why have I been chosen? You have been approached as you may have experiences that you wish to share on finding employment as a disabled person. Do I have to take part? Taking part is entirely voluntary and that refusal or withdrawal will involve no penalty or loss, now or in the future. What do I have to do? There will be a survey with questions on finding employment as a disabled person which will take approximately 20 minutes to complete. Are there possible disadvantages and/or risks in taking part? The survey asks about experiences of finding employment. It is understood that finding work may be a difficult process. The survey also asks you to talk about any experiences of discrimination that you may have had, and barriers that you may have experienced in finding work. Each question is entirely voluntary, and it is important to keep yourself safe if you choose to complete the survey. Only complete the questions that you feel able to. What are the possible benefits of taking part? There are no intended benefits of taking part. Will my taking part in this project be kept confidential? All data will be identified only by a code, with personal details kept in a locked file or secure computer with access only by the immediate research team. The following link is general information about how the University uses personal data: https://www.information- compliance.admin.cam.ac.uk/data-protection/research-participant-data. What will happen to the results of the research project? Results will be presented at conferences and written up in journals. Results are normally presented in terms of groups of individuals. If any individual data are presented, the data will be totally anonymous, without any means of identifying the individuals involved. The data collected during the project might be used for additional or subsequent research. The results of this study will be available in Spring 2025, and participants can request a copy of the research project. Who is organising and funding the research? This research is being organised by Dr Chris Whitaker for part of his Executive Masters in Business Administration. It does not have any external funding. Contact for further information The researcher, Chris Whitaker can be contacted at cmw55@jbs.cam.ac.uk, or their supervisor j.martin@jbs.cam.ac.uk at any time. Additional sources of support Further information and support with disability employment is available via the following links: -ACAS- Disability at Work - https://www.acas.org.uk/disability-at- work -EHRC - Information on disability discrimination - https://www.equalityhumanrights.com/equality/equality-act- 2010/your-rights-under-equality-act-2010/disability-discrimination
December 22, 2024 at 12:08 PM
chiaraml.bsky.social
Choose 20 books that have stayed with you or influenced you. One book per day for 20 days, in no particular order. No explanations, no reviews, just covers.

#Booksky
#BookChallenge

Day 1
December 21, 2024 at 10:26 PM
chiaraml.bsky.social
Annual neuro appointment coming up. How to fit a year in the life of an MSer in to one appointment? I'm sure I'll waffle and not cover half the things I need to 🥱 #MS
December 16, 2024 at 10:20 AM
Reposted by Chiara Merritt Linden
rosedwards.bsky.social
Let me know if you’d like to be added (or want to come out)
go.bsky.app/7YAhtdD
September 25, 2024 at 6:28 AM
chiaraml.bsky.social
Absolutely loved seeing Bright Places @sohotheatre.bsky.social – moved to laugh and cry in equal measure. Thank you Rae Mainwaring for writing something so honest, so relatable #MS
December 8, 2024 at 4:21 PM
Reposted by Chiara Merritt Linden
aaronbostermd.bsky.social
Risk of severe infections in PwMS on B cell depleting medications and role of monitoring IgG levels: pubmed.ncbi.nlm.nih.gov/39616774/
Hypogammaglobulinemia and severe infections in Multiple Sclerosis patients on anti-CD20 agents: A multicentre study - PubMed
IgG and IgM HG occurred in a considerable proportion of patients. IgG HG increased the risk of SI, which were, nevertheless, relatively infrequent. Our results highlight the importance of monitoring i...
pubmed.ncbi.nlm.nih.gov
December 7, 2024 at 5:02 PM