Chiara Merritt Linden
chiaraml.bsky.social
Chiara Merritt Linden
@chiaraml.bsky.social
Multiple Sclerosis 💉 PPI/co-pro
Applied Social Research PGR 📖 Third-party monitoring
Yep! My internal earthquakes. I always have to check my water glass to make sure it isn't an actual earthquake
October 12, 2025 at 10:08 AM
Was the best Patient Community Day yet. Much improved format and engagement with the online attendees 👍
September 27, 2025 at 9:11 AM
Absolutely! Appreciate your positivity 😊 and hope you're feeling a bit better
September 27, 2025 at 8:34 AM
Noo I actually thought it was much better than previous Ectrims patient events, heard lots more from us with lived experience. I was referring to the results from the trial you mentioned - think some on panel said they were underwhelming. I'm always desperate for remyelination news 😵‍💫🤞
September 27, 2025 at 8:06 AM
Were you attending Patient Community Day? Kinda got the impression that the v modest results were disappointing 🤔
September 26, 2025 at 7:39 PM
Shit man, really sorry to hear this. We missed you in today's PAG - hope you are managing in what I can imagine is a bloody difficult time.
August 27, 2025 at 4:06 PM
I've been doing this for a while. My neuro said that Ocrevus could be seen as similar to an induction therapy after 2 years and probably doesn't need redosing. Couldn't find anything published supporting this so am sticking to extended interval for now
August 21, 2025 at 7:19 AM
All of the above here, facial numbness just on the left side 😵
August 2, 2025 at 11:27 AM
It's really rough, isn't it. Do you find anything helps or is it just time?
August 2, 2025 at 8:10 AM
Congratulations! I'm in the thesis stage of the same programme and I really enjoyed the taught elements. Good luck for the next stage
July 30, 2025 at 3:22 PM
I would also love to read it. Cheers
July 30, 2025 at 3:17 PM
Jeez, sounds really rough. Hope you're on the mend now?
July 12, 2025 at 1:52 PM
It doesn't seem ethical to start newly diagnosed patients on low efficacy DMTs in 2025 🤷
July 8, 2025 at 6:52 AM
Thanks a lot! Feels great to be part of something positive 👍
June 20, 2025 at 4:28 PM
Ocrevus hangover from hell with an Uhthoff and tinnitus chaser 🤢🤬 fuck you very much, MS
June 19, 2025 at 8:52 AM