cbme-mark.bsky.social
@cbme-mark.bsky.social
Severe ME/CFS with added Long Covid. Running a support group in Cambridge, UK.
Pronouns: depends how the day pans out
Pronouns: depends how the day pans out
Reposted by cbme-mark.bsky.social
Benefits
There has barely been any increase in the number of people claiming benefits if you take into account population growth, aging population, increase in morbidity & pension age rising so it include more people
Not the narrative you hear in media
obr.uk/wtr/welfare-...
There has barely been any increase in the number of people claiming benefits if you take into account population growth, aging population, increase in morbidity & pension age rising so it include more people
Not the narrative you hear in media
obr.uk/wtr/welfare-...
June 30, 2025 at 9:38 AM
Benefits
There has barely been any increase in the number of people claiming benefits if you take into account population growth, aging population, increase in morbidity & pension age rising so it include more people
Not the narrative you hear in media
obr.uk/wtr/welfare-...
There has barely been any increase in the number of people claiming benefits if you take into account population growth, aging population, increase in morbidity & pension age rising so it include more people
Not the narrative you hear in media
obr.uk/wtr/welfare-...
John McDonnell is great.
Big thank you to MP John McDonnell for engaging with our Long Covid clinical team and briefing Parliament on the science and solutions. Please share x
🧪
@sunny-rae1.bsky.social
@johnmcdonnellmp.bsky.social
Thank you
Rae for the briefing on #LongCovid you gave John and
John for putting it forward in today’s debate on the Pandemic
@sunny-rae1.bsky.social
@johnmcdonnellmp.bsky.social
Thank you
Rae for the briefing on #LongCovid you gave John and
John for putting it forward in today’s debate on the Pandemic
June 20, 2025 at 7:20 PM
John McDonnell is great.
Reposted by cbme-mark.bsky.social
I’ve been making my way through the Welfare Reform Bill and this paragraph on the gov.uk website is genuinely disgusting.
Receiving a decent disability benefits rate “encourages sickness”, does it? Funny, I thought it just enabled severely ill and disabled people to eat.
Receiving a decent disability benefits rate “encourages sickness”, does it? Funny, I thought it just enabled severely ill and disabled people to eat.
June 20, 2025 at 10:17 AM
I’ve been making my way through the Welfare Reform Bill and this paragraph on the gov.uk website is genuinely disgusting.
Receiving a decent disability benefits rate “encourages sickness”, does it? Funny, I thought it just enabled severely ill and disabled people to eat.
Receiving a decent disability benefits rate “encourages sickness”, does it? Funny, I thought it just enabled severely ill and disabled people to eat.
Reposted by cbme-mark.bsky.social
If we want change, we need to fundraise for it.
Around half of medical research is funded through the charity sector.
Many people won't be able to donate, but for those who can, I cannot think of a more deserving cause than driving change for people with ME.
Around half of medical research is funded through the charity sector.
Many people won't be able to donate, but for those who can, I cannot think of a more deserving cause than driving change for people with ME.
1/2
Another Summer Appeal video in 📹
@mediumwhite.bsky.social has long-campaigned for people with ME, calling for an urgent increase in medical research funding.
Thank you, Peter, for sharing and supporting our Appeal 🌻
⬇️
Another Summer Appeal video in 📹
@mediumwhite.bsky.social has long-campaigned for people with ME, calling for an urgent increase in medical research funding.
Thank you, Peter, for sharing and supporting our Appeal 🌻
⬇️
June 20, 2025 at 2:46 PM
If we want change, we need to fundraise for it.
Around half of medical research is funded through the charity sector.
Many people won't be able to donate, but for those who can, I cannot think of a more deserving cause than driving change for people with ME.
Around half of medical research is funded through the charity sector.
Many people won't be able to donate, but for those who can, I cannot think of a more deserving cause than driving change for people with ME.
Reposted by cbme-mark.bsky.social
Great presentation made by Prof Chris Ponting (@cgatist.bsky.social) to the UK APPGs on ME & Long Covid about the ongoing failure to fund research into ME.
UKRI is failing #pwME and #LongCovid
Time for Wes Streeting to step in: @tessamunt.bsky.social
Please share.
Pt2 in next post.
UKRI is failing #pwME and #LongCovid
Time for Wes Streeting to step in: @tessamunt.bsky.social
Please share.
Pt2 in next post.
June 18, 2025 at 8:28 AM
Great presentation made by Prof Chris Ponting (@cgatist.bsky.social) to the UK APPGs on ME & Long Covid about the ongoing failure to fund research into ME.
UKRI is failing #pwME and #LongCovid
Time for Wes Streeting to step in: @tessamunt.bsky.social
Please share.
Pt2 in next post.
UKRI is failing #pwME and #LongCovid
Time for Wes Streeting to step in: @tessamunt.bsky.social
Please share.
Pt2 in next post.
Awareness Month petition - final call
If you haven't signed yet, please do - and just as importantly, share the link with everyone you know. You can do this from the petition web page. Thanks!!
you.38degrees.org.uk/petitions/ri...
If you haven't signed yet, please do - and just as importantly, share the link with everyone you know. You can do this from the petition web page. Thanks!!
you.38degrees.org.uk/petitions/ri...
Ring-fence funds for research into ME/CFS
Hundreds of thousands of people were already living with the chronic post-viral illness ME/CFS before the covid pandemic. COVID turned out to be highly effective at producing chronic post-acute illnes...
you.38degrees.org.uk
June 18, 2025 at 9:07 AM
Awareness Month petition - final call
If you haven't signed yet, please do - and just as importantly, share the link with everyone you know. You can do this from the petition web page. Thanks!!
you.38degrees.org.uk/petitions/ri...
If you haven't signed yet, please do - and just as importantly, share the link with everyone you know. You can do this from the petition web page. Thanks!!
you.38degrees.org.uk/petitions/ri...
An excellent response to recent opinion in the BMJ that behavioural treatments address the right approach to ME/CFS. www.bmj.com/content/389/...
The risk of blaming patients for their lack of recovery
www.bmj.com
May 17, 2025 at 3:42 PM
An excellent response to recent opinion in the BMJ that behavioural treatments address the right approach to ME/CFS. www.bmj.com/content/389/...
Reposted by cbme-mark.bsky.social
👏👏👏
The BMJ has now published my rapid response to Miller et al's Opinion piece.
www.bmj.com/content/389/...
www.bmj.com/content/389/...
May 16, 2025 at 9:44 AM
👏👏👏
Me too - first generation Englishman
My grandmas were immigrants, my mum & sisters in law are immigrants; my sister & nephews are migrants. My kids study maths, Shakespeare, dance, act & score tries alongside the kids of immigrants. My dad’s life was saved by immigrants. Immigrants have made us richer, wiser, stronger
Win the fight
Win the fight
May 13, 2025 at 10:11 AM
Me too - first generation Englishman
Reposted by cbme-mark.bsky.social
My grandmas were immigrants, my mum & sisters in law are immigrants; my sister & nephews are migrants. My kids study maths, Shakespeare, dance, act & score tries alongside the kids of immigrants. My dad’s life was saved by immigrants. Immigrants have made us richer, wiser, stronger
Win the fight
Win the fight
May 13, 2025 at 9:02 AM
My grandmas were immigrants, my mum & sisters in law are immigrants; my sister & nephews are migrants. My kids study maths, Shakespeare, dance, act & score tries alongside the kids of immigrants. My dad’s life was saved by immigrants. Immigrants have made us richer, wiser, stronger
Win the fight
Win the fight
Ely Cathedral Octagon Tower illuminated in blue for Cambridge ME and Long Covid Support, on World ME Day
May 13, 2025 at 10:09 AM
Ely Cathedral Octagon Tower illuminated in blue for Cambridge ME and Long Covid Support, on World ME Day
This proposal, backed by some of the major charities, is to establish a national-funded research consortium on ME.
Please sign the open letter calling on public Funders to back it.
A proposal for an ME/CFS, Long Covid and Post-Infectious Disease research platform
organise.network/s/167c15ca80c0
Please sign the open letter calling on public Funders to back it.
A proposal for an ME/CFS, Long Covid and Post-Infectious Disease research platform
organise.network/s/167c15ca80c0
A proposal for an ME/CFS, Long Covid and Post-Infectious Disease research platform
Add your name:
organise.network
May 10, 2025 at 8:46 AM
This proposal, backed by some of the major charities, is to establish a national-funded research consortium on ME.
Please sign the open letter calling on public Funders to back it.
A proposal for an ME/CFS, Long Covid and Post-Infectious Disease research platform
organise.network/s/167c15ca80c0
Please sign the open letter calling on public Funders to back it.
A proposal for an ME/CFS, Long Covid and Post-Infectious Disease research platform
organise.network/s/167c15ca80c0
Text of an open letter by Disability organisations to our Cambridge MP Daniel Zeichner MP (Cambridge)
May 5, 2025 at 11:01 AM
Text of an open letter by Disability organisations to our Cambridge MP Daniel Zeichner MP (Cambridge)
The #MECFS community should be concerned about this. A right-wing bias is likely to play into the hands of powerful vested interests who betray ME/CFS as a psychological problem.
The BBC is institutionally biased towards the right and the far right, and here's the proof: the results of an almost perfect before-and-after experiment.
My column today.
www.theguardian.com/commentisfre...
My column today.
www.theguardian.com/commentisfre...
The BBC is utterly beholden to the right. Why else would it fear a podcast about heat pumps? | George Monbiot
The broadcaster behaves like Starmer’s government: suppress the left, cave to your critics, and undermine your own survival, writes Guardian columnist George Monbiot
www.theguardian.com
May 1, 2025 at 6:47 AM
The #MECFS community should be concerned about this. A right-wing bias is likely to play into the hands of powerful vested interests who betray ME/CFS as a psychological problem.
Reposted by cbme-mark.bsky.social
If we really want to take on chronic diseases....
by @virusesimmunity.bsky.social and @hmkyale.bsky.social
#LongCovid, post-infection syndromes, immune system assessment and intervention
gift link www.wsj.com/opinion/how-...
by @virusesimmunity.bsky.social and @hmkyale.bsky.social
#LongCovid, post-infection syndromes, immune system assessment and intervention
gift link www.wsj.com/opinion/how-...
April 30, 2025 at 12:42 PM
If we really want to take on chronic diseases....
by @virusesimmunity.bsky.social and @hmkyale.bsky.social
#LongCovid, post-infection syndromes, immune system assessment and intervention
gift link www.wsj.com/opinion/how-...
by @virusesimmunity.bsky.social and @hmkyale.bsky.social
#LongCovid, post-infection syndromes, immune system assessment and intervention
gift link www.wsj.com/opinion/how-...
Reposted by cbme-mark.bsky.social
New @science.org
Exposomics. We're not doing nearly enough to understand and mitigate our toxic environmental exposures. A very insightful perspective
www.science.org/doi/10.1126/...
Exposomics. We're not doing nearly enough to understand and mitigate our toxic environmental exposures. A very insightful perspective
www.science.org/doi/10.1126/...
April 24, 2025 at 6:23 PM
New @science.org
Exposomics. We're not doing nearly enough to understand and mitigate our toxic environmental exposures. A very insightful perspective
www.science.org/doi/10.1126/...
Exposomics. We're not doing nearly enough to understand and mitigate our toxic environmental exposures. A very insightful perspective
www.science.org/doi/10.1126/...
