Cassandra Dinius
cassandradinius.bsky.social
Cassandra Dinius
@cassandradinius.bsky.social
Passionate about promoting science accessibility for all. 🤓🧠 Collaborates with patient and community groups on health and ageing research. From rainy Portland, now living in rainy Dublin.
Reposted by Cassandra Dinius
Our PPI Liaison Officer and a RDCTN PPI Partner were delighted to attend the HSE Patient & Public Partnership conference today. They presented a poster reflecting on the 'many hats' that PPI Partners wear, and how this enriches involvement and encourages an inclusive approach.
September 17, 2025 at 1:51 PM
Reposted by Cassandra Dinius
We're delighted to see the work of Dr Rebecca Ahrens-Nicklas, a gene therapy expert at the Children's Hospital of Philadelphia (CHOP), being highlighted in this piece. news.sky.com/story/baby-g... Dr Ahrens Nicklas was previously funded via the HRCI HRB Joint Funding Scheme and MSD Action Foundation
Baby gets world's first personalised gene therapy treatment
Nine-and-a-half-month-old KJ Muldoon has a rare metabolic condition that meant he spent the first months of his life in hospital on a very restrictive diet.
news.sky.com
June 24, 2025 at 1:57 PM
Reposted by Cassandra Dinius
Big ideas need a little help to grow... 🌿

We’re getting ready to launch our 2025 Seed Funding Award — €10,000 for emerging and early career researchers!

It’s our third year running, and we can't wait to see what this next round will spark. Watch this space for details!
June 19, 2025 at 1:35 PM
Reposted by Cassandra Dinius
A brilliant day at the Irish Health Research Forum! The theme, "Is it time to get serious about patient registries?" sparked rich conversations and the RDCat and RDCTN teams were thrilled to be part of it last week. Huge thanks to HRCI for a valuable event! #HealthResearchMatters
May 19, 2025 at 9:58 AM
Reposted by Cassandra Dinius
Are you delivering #PPI training? If you’d like to evaluate the effectiveness and impact of your training, the PPI Ignite Network WP1 team has developed a tool for evaluating PPI training, with survey bank, facilitator's guide and templates. You can find it here: ppinetwork.ie/resource/eva...
Evaluating PPI Training: A Resource for Facilitators • PPI Ignite Network
ppinetwork.ie
April 4, 2025 at 10:07 AM
Reposted by Cassandra Dinius
We are delighted to announce a short extension to the deadline for abstracts for the Rare Disease Research Conference 2025! Don't miss the chance to submit your case study or rare disease research for consideration for poster presentation by 24th February! docs.google.com/form...
February 11, 2025 at 12:44 PM
Reposted by Cassandra Dinius
🥳DRNI are thrilled that @alzheimersocirl.bsky.social Dementia Trials Ireland & @neuroscienceirl.bsky.social are offering travel bursaries supporting ECR's attending DRNI ECR Day in @CPH_QUB on 04 March!

To find out more:
ASI: tinyurl.com/3zvf9tvh
NSI: tinyurl.com/52hssrb5
DTI: tinyurl.com/37y5dfyt
February 7, 2025 at 1:57 PM
Reposted by Cassandra Dinius
Happy International Day of Women and Girls in Science!
Today, we celebrate the brilliant women and girls pushing the boundaries of discovery, innovation, and progress. Their contributions shape our world in ways both seen and unseen. #HealthResearchMatters
February 11, 2025 at 2:13 PM
Reposted by Cassandra Dinius
Whether it's the research you fund, your support for PPI, events you organise, or other research initiatives, understanding and demonstrating impact is important and valuable. HRCI members are invited to register for our Mastering Impact workshop on March 13th www.eventbrite.ie/e/hrci-membe...
February 12, 2025 at 11:03 AM
Reposted by Cassandra Dinius
Career Advice | No Research About Us Without Us

Research labs benefit if faculty are inclusive of students with disabilities, a group of scholars and students committed to inclusive lab practices write. #HigherEd #EDUSky #AcademicSky bit.ly/3QeNAUt
How to include disabled students in research labs (opinion)
Research labs benefit if faculty are inclusive of students with disabilities, a group of scholars and students committed to inclusive lab practices write.
bit.ly
February 12, 2025 at 2:02 PM
Reposted by Cassandra Dinius
🌟 RARE DISEASE RESEARCH CONFERENCE 2025 🌟

📅 When: 10th April 2025
📍 Where: UCD O’Reilly Hall, Dublin, Ireland
✨ Free registration, all welcome!

A huge thank you to our partners at HRB-TMRN for hosting registration. Register here: www.eventbrite.ie/e/rare-disea...
January 14, 2025 at 2:25 PM
Reposted by Cassandra Dinius
HSE National Policy for Consent in Health & Social Care Research V2.0-addressing the age of consent for young people (16 & 17 years) is now available-It acknowledges their autonomy to participate in health & social care research
Thanks to all involved 👏🏽
hseresearch.ie/consent/
January 8, 2025 at 11:47 AM
Reposted by Cassandra Dinius
"Social media has resulted in a shift in focus from health to aesthetics."

UL's Dr Catherine Norton, explains why taking health advice from social media influencers over qualified dietitians could potentially be dangerous for your health
www.rte.ie/brainstorm/2...
#StudyatUL
January 8, 2025 at 2:13 PM
Reposted by Cassandra Dinius
If you want to get better at public and patient involvement #PPI in clinical research, this is probably the best 15 minutes you could spend. Some impressive video editing too @dobe1.bsky.social!
#HealthResearchMatters
My talk for the Edinburgh Clinical Trials Managers Course about PPI in Research SD 480p youtu.be/J3OQq3BGxnM?si… via @YouTube @ThePeoplesRev @decdevane @EvidSynIRL @hrbireland @shauntrewee#ECTMC2424
20241121 Clinical Trials Managers Conf Derek SD 480p
YouTube video by Derek Stewart
https://youtu.be/J3OQq3BGxnM?si…
November 26, 2024 at 10:06 AM
Reposted by Cassandra Dinius