🦋 MySeveralWorlds.com
👩🦼 #DisabilityAdvocate
🤝 Team Fibro & Spondylitis
🎨 DISABLED ARTIST
🌴 https://linktr.ee/myseveralworlds
#AxSpA #PsA #Fibromyalgia #ChronicPain
"When you interact w. a disabled person who is 'being demanding' - look again. Maybe all they are asking for is basics that will allow them to function, to be part of society, & to not get worse."
🔗
www.stickmancommunications.co.uk/post/disable...
#disability
"When you interact w. a disabled person who is 'being demanding' - look again. Maybe all they are asking for is basics that will allow them to function, to be part of society, & to not get worse."
🔗
www.stickmancommunications.co.uk/post/disable...
#disability
“When you have a decrease in estrogen, you can have hot flashes, night sweats, anxiety, other emotional symptoms, insomnia, changes in your sex drive, & a host of symptoms. It's individual to the patient."
🔗
www.ama-assn.org/delivering-c...
“When you have a decrease in estrogen, you can have hot flashes, night sweats, anxiety, other emotional symptoms, insomnia, changes in your sex drive, & a host of symptoms. It's individual to the patient."
🔗
www.ama-assn.org/delivering-c...
🔗
english.news.cn/20240904/ad8...
🔗
english.news.cn/20240904/ad8...
THINGS PEOPLE DON'T TALK ABOUT WITH #ChronicIllness...
👉 Grief for your "old life"
👉 Having to rely on benefits or loved ones
👉 Constantly feeling behind in life
👉 The impact our physical health has on our mental health
👉 How expensive it is
@the_migraine_life
THINGS PEOPLE DON'T TALK ABOUT WITH #ChronicIllness...
👉 Grief for your "old life"
👉 Having to rely on benefits or loved ones
👉 Constantly feeling behind in life
👉 The impact our physical health has on our mental health
👉 How expensive it is
@the_migraine_life
@achronicvoice.com
#AntiphospholipidSyndrome
@achronicvoice.com
#AntiphospholipidSyndrome
"No two patients are the same. Clara likened her #pain to numbness crawling from her neck. Daisy struggles with #BrainFog. Jin Jie endures a deep-seated ache. Rina, a stabbing sensation.
www.channelnewsasia.com/cna-insider/...
"No two patients are the same. Clara likened her #pain to numbness crawling from her neck. Daisy struggles with #BrainFog. Jin Jie endures a deep-seated ache. Rina, a stabbing sensation.
www.channelnewsasia.com/cna-insider/...
🔗
buff.ly/41cRnqp
via @fibrobloggers #FibromyalgiaAwareness
🔗
buff.ly/41cRnqp
via @fibrobloggers #FibromyalgiaAwareness
#ChronicIllness #MySeveralWorlds
#ChronicIllness #MySeveralWorlds
While it may feel impolite to ask after someone’s ill-health, for those living with chronic conditions never being asked can feel ruder still."
🔗
www.theguardian.com/lifeandstyle...
While it may feel impolite to ask after someone’s ill-health, for those living with chronic conditions never being asked can feel ruder still."
🔗
www.theguardian.com/lifeandstyle...
🔗
buff.ly/2Lvfo5n
I’ve lived w. #ChronicIllness for 20 years & have gone through flares that are so disabling that I imagine this is what hell feels like. IMO, one cannot deal w. #ChronicPain when they’re defeated mentally.
@achronicvoice.com
🔗
buff.ly/2Lvfo5n
I’ve lived w. #ChronicIllness for 20 years & have gone through flares that are so disabling that I imagine this is what hell feels like. IMO, one cannot deal w. #ChronicPain when they’re defeated mentally.
@achronicvoice.com
My Brain Lesion and Me
🔗
Read it: www.brainlesionandme.com/reliving-hea...
@serenebutterfly.bsky.social
#Spoonie #ChronicIllness #ChronicPain #Disability #ChronicLife
My Brain Lesion and Me
🔗
Read it: www.brainlesionandme.com/reliving-hea...
@serenebutterfly.bsky.social
#Spoonie #ChronicIllness #ChronicPain #Disability #ChronicLife
"Diseases that cause chronic inflammation can lead to damage to the clotting process which can block blood flow in the veins. Common inflammatory diseases include
Lupus
Cancer
Cystic fibrosis
Asthma
Psoriasis
MS
Diabetes
Infection
IBD"
🔗
thrombosis.org/2024/10/infl...
"Diseases that cause chronic inflammation can lead to damage to the clotting process which can block blood flow in the veins. Common inflammatory diseases include
Lupus
Cancer
Cystic fibrosis
Asthma
Psoriasis
MS
Diabetes
Infection
IBD"
🔗
thrombosis.org/2024/10/infl...
by @Carriekellenberger.bsky.social
#disability
by @Carriekellenberger.bsky.social
#disability
HYDRATION: 3+ liters of water daily
SALT INTAKE: 7-10 grams per day
COMPRESSION: Waist-high garments/ abdominal binders
DIET: Individualized diets based on specific symptoms/food sensitives
SLEEP: Elevate head by 3-6 inches
Via: MERC
#Dysautonomia #POTSAwareness
HYDRATION: 3+ liters of water daily
SALT INTAKE: 7-10 grams per day
COMPRESSION: Waist-high garments/ abdominal binders
DIET: Individualized diets based on specific symptoms/food sensitives
SLEEP: Elevate head by 3-6 inches
Via: MERC
#Dysautonomia #POTSAwareness
Mild: no one
believed me.
Moderate: life shrank
quietly.
#SevereME : even sitting up was a loss.
Very severe: I disappeared. Couldn't even whisper.
I've lived through every version of this disease, while not being believed. I carry all of them in my bones."
Credit: @La2Arceri
when I wanted to die."
-Juliette Lewis
#MentalHealthMatters #CPTSD #PTSDAwareness #SuicideAwareness #MySeveralWorlds #Depression #YouAreNotAlone #KeepOnGoing
when I wanted to die."
-Juliette Lewis
#MentalHealthMatters #CPTSD #PTSDAwareness #SuicideAwareness #MySeveralWorlds #Depression #YouAreNotAlone #KeepOnGoing
#MobilityAids
🔗
spondylitis.org/patient-stor...
#MobilityAids
🔗
spondylitis.org/patient-stor...
🔗
buff.ly/46vXYyv
@KimberlyJPenix
#Spoonie
🔗
buff.ly/46vXYyv
@KimberlyJPenix
#Spoonie
"To provide insight into life with #ChronicIllness is to put your vulnerabilities on public display. It means showing fragments of a broken body, and wounds that will never heal." Read it: buff.ly/3C3SVZ7
Via @achronicvoice.com
"To provide insight into life with #ChronicIllness is to put your vulnerabilities on public display. It means showing fragments of a broken body, and wounds that will never heal." Read it: buff.ly/3C3SVZ7
Via @achronicvoice.com
I always feel guilty.
I always feel like I'm alone.
I'm almost always in pain.
I don't look sick.
Not all doctors understand.
I feel like a failure.
#ChronicIllness #LifeWithIllness #ChronicTruths #MySeveralWorlds #TheChronicLife
I always feel guilty.
I always feel like I'm alone.
I'm almost always in pain.
I don't look sick.
Not all doctors understand.
I feel like a failure.
#ChronicIllness #LifeWithIllness #ChronicTruths #MySeveralWorlds #TheChronicLife
Credit: @mindfullyevie (The one and only! 💜)
#pwME #MillionsMissing #TheChronicLife #MySeveralWorlds #FibroNerds
Credit: @mindfullyevie (The one and only! 💜)
#pwME #MillionsMissing #TheChronicLife #MySeveralWorlds #FibroNerds
#MastCellActivationSyndrome
✔️ Skin rash or flushing
✔️ Itching or hives
✔️ Runny nose, sneezing,
congestion, or watery eyes
✔️ Abdominal cramping, nausea, or vomiting
✔️ Diarrhea or constipation
✔️ Low blood pressure, dizziness, or fainting
...
Crwdit: Not Just Bendy
#MCAS #POTS #EDS
#MastCellActivationSyndrome
✔️ Skin rash or flushing
✔️ Itching or hives
✔️ Runny nose, sneezing,
congestion, or watery eyes
✔️ Abdominal cramping, nausea, or vomiting
✔️ Diarrhea or constipation
✔️ Low blood pressure, dizziness, or fainting
...
Crwdit: Not Just Bendy
#MCAS #POTS #EDS