Carrie - MySeveralWorlds - Artist, Author, Advocate
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carriekellenberger.bsky.social
Carrie - MySeveralWorlds - Artist, Author, Advocate
@carriekellenberger.bsky.social
410 followers 240 following 1.3K posts
✒️ I write about life with severe #ChronicPain related to #SpA #PsA #MEcfs #fibromyalgia #APS
🦋 MySeveralWorlds.com
👩‍🦼 #DisabilityAdvocate
🤝 Team Fibro & Spondylitis
🎨 DISABLED ARTIST
🌴 https://linktr.ee/myseveralworlds
Posts Replies Media Videos
carriekellenberger.bsky.social
Managing #OrthostaticIntolerance

HYDRATION: 3+ liters of water daily
SALT INTAKE: 7-10 grams per day
COMPRESSION: Waist-high garments/ abdominal binders
DIET: Individualized diets based on specific symptoms/food sensitives
SLEEP: Elevate head by 3-6 inches
Via: MERC
#Dysautonomia #POTSAwareness
#POTSAwareness 👉 ❗I'm adding a disclosure for the salt recommendation as I feel this graphic is misleading slightly. The kind of salt you use is important! You must use Himalayan or Celtic Sea Salt. There are no risks with these salts and they help you hydrate appropriately. DO NOT USE IODIZED TABLE SALT. Salt is an essential element for human health via its role as an electrolyte. Celtic salt has more magnesium and moisture Himalayan salt contains more iron and potassium. Magnesium supports muscle function and hydration, while iron contributes to pink salt's hue. 💙 Managing Orthostatic Intolerance 💙 HYDRATION: Drink at least 3 liters of water daily. SALT INTAKE: 7-10 grams per day (consult with a healthcare provider). COMPRESSION GARMENTS: Waist-high garments or abdominal binders. DIETARY CONSIDERATIONS: Consider individualized diets based on specific symptoms and food sensitives. SLEEP: Elevate the head of the bed by 3-6 inches. Credit: MERC #Dysautonomia #MySeveralWorlds #POTSAwareness #ChronicIllness #OrthostaticIntolerance
November 22, 2025 at 3:43 AM
carriekellenberger.bsky.social
28 years with #MECFS.
Mild: no one
believed me.
Moderate: life shrank
quietly.
#SevereME : even sitting up was a loss.
Very severe: I disappeared. Couldn't even whisper.
I've lived through every version of this disease, while not being believed. I carry all of them in my bones."
Credit: @La2Arceri
"28 years with ME/CFS. I've been mild - where no one believed me. Moderate where life shrank quietly. Severe where even sitting up was a loss. Very severe - where I disappeared completely. Couldn't even whisper. I've lived through every version of this disease, while not being believed. And I carry all of them in my bones." Credit: @La2Arceri #MECFS #SevereME
November 21, 2025 at 3:48 AM
carriekellenberger.bsky.social
"The bravest thing I ever did was continuing my life
when I wanted to die."
-Juliette Lewis

#MentalHealthMatters #CPTSD #PTSDAwareness #SuicideAwareness #MySeveralWorlds #Depression #YouAreNotAlone #KeepOnGoing
"The bravest thing I ever did was continuing my life when I wanted to die." -Juliette Lewis #MentalHealthMatters #CPTSD #PTSDAwareness #SuicideAwareness #MySeveralWorlds #Depression #YouAreNotAlone #KeepOnGoing
November 20, 2025 at 4:05 PM
carriekellenberger.bsky.social
6 CONFESSIONS OF LIVING WITH A CHRONIC ILLNESS

I always feel guilty.
I always feel like I'm alone.
I'm almost always in pain.
I don't look sick.
Not all doctors understand.
I feel like a failure.

#ChronicIllness #LifeWithIllness #ChronicTruths #MySeveralWorlds #TheChronicLife
6 CONFESSIONS OF LIVING WITH A CHRONIC ILLNESS I always feel guilty. I always feel like I'm alone. I'm almost always in pain. I don't look sick. Not all doctors understand. I feel like a failure. #ChronicIllness #LifeWithIllness #ChronicTruths #MySeveralWorlds #TheChronicLife
November 20, 2025 at 4:53 AM
carriekellenberger.bsky.social
"The grief of carrying all the years you've been sick on your shoulders."

Credit: @mindfullyevie (The one and only! 💜)

#pwME #MillionsMissing #TheChronicLife #MySeveralWorlds #FibroNerds
"The grief of carrying all the years you've been sick on your shoulders." Credit: @mindfullyevie (The one and only! 💜) #pwME #MillionsMissing #TheChronicLife #MySeveralWorlds #FibroNerds
November 19, 2025 at 4:14 AM
carriekellenberger.bsky.social
Symptoms of
#MastCellActivationSyndrome

✔️ Skin rash or flushing
✔️ Itching or hives
✔️ Runny nose, sneezing,
congestion, or watery eyes
✔️ Abdominal cramping, nausea, or vomiting
✔️ Diarrhea or constipation
✔️ Low blood pressure, dizziness, or fainting
...

Crwdit: Not Just Bendy

#MCAS #POTS #EDS
Symptoms of #MastCellActivationSyndrome ✔️ Skin rash or flushing ✔️ Itching or hives ✔️ Runny nose, sneezing, congestion, or watery eyes ✔️ Abdominal cramping, nausea, or vomiting ✔️ Diarrhea or constipation ✔️ Low blood pressure, dizziness, or fainting ✔️ Facial swelling ✔️ Shortness of breath or wheezing ✔️ Bloating or abdominal pain ✔️ Joint pain or swelling ✔️ Generalised widespread pain ✔️ Headaches ✔️ Palpitations or irregular heart rate ✔️ Excessive fatigue ✔️ Anxiety or panic attacks ✔️ Cognitive impairment or memory loss ✔️ Night sweats ✔️ Fever ✔️ Hair loss ✔️ Unexplained weight gain or loss ✔️ Unexplained bruising or bleeding ✔️ Heavy & painful periods Crwdit: Not Just Bendy #MCAS #POTS #EDS
November 18, 2025 at 4:19 AM
carriekellenberger.bsky.social
"When you first become ill, they will show you sympathy. They'll be understanding when you have trouble keeping up.

But once your illness becomes a chronic condition, they show impatience and frustration."

@ mast_cell_activation_syndrome

#TheChronicLife #MCAS #POTS #MySeveralWorlds #PainWarrior
People Get Tired Of You Being Sick "When you first become ill, they will show you sympathy. They'll send you cards and hope you "get well soon." They'll call or text to check in and see how you're doing. They'll cut you slack. They'll be understanding when you have trouble keeping up. But once your illness becomes a chronic condition, they wonder why you can't get better. They show impatience and frustration. They stop trying to include you in plans. They ask why you aren't "trying harder." They don't get it. They just want you to be abled again so that you're not inconveniencing them. People get tired of you being sick, but they don't stop to think that you're probably fucking tired of being sick, too. They don't take the time to think about how you'd love to "just get over it." They don't care enough to realize you didn't choose this." Credit: mast_cell_activation_syndrome #TheChronicLife #MCAS #POTS #MySeveralWorlds #PainWarrior
November 17, 2025 at 4:46 AM
carriekellenberger.bsky.social
Reasons why chronically ill people are so tired

✔️ They're chronically ill
✔️ 4,014 doc appts
✔️ Taking a shower = marathon
✔️ Medical admin is a part-time job
✔️ blood
✔️ #MedicalTrauma drains your energy
✔️ Masking & advocating are exhausting
✔️ #ChronicPain drains your energy
@ Spoonie Saga
Reasons why chronically ill people are so tired ✔️ They're chronically ill ✔️ 4,014 doctor appointments ✔️ Taking a shower = running a marathon ✔️ Medical admin is at least a part-time job ✔️ Doctors keep taking all their blood lol ✔️ #MedicalTrauma drains your energy ✔️ Masking your illness is exhausting ✔️ Did I mention they're ill? ✔️ Advocating for yourself is also exhausting ✔️ #ChronicPain drains your energy too Credit: Spoonie Saga Not medical advice. #ChronicIllnessAwareness #MySeveralWorlds
November 16, 2025 at 4:18 AM
carriekellenberger.bsky.social
"If you are feeling like a failure because you are unable to accomplish something due to health issues, poverty, or even lack of time and energy remember that you did not fail. The system failed you! You are NOT a failure."

Via theferalmountainwitch

#DisabilityAwareness #MySeveralWorlds
"If you are feeling like a failure because you are unable to accomplish something due to health issues, poverty, or even lack of time and energy remember that you did not fail. The system failed you! You are NOT a failure. We should have a system that supports people that are struggling, not one that leaves them to drown and then labels it an individual failure to distract from the fact that the system is built to benefit the few at the expense of the many." Credit: theferalmountainwitch #DisabilityAwareness #DisabilityInclusion #MySeveralWorlds
November 15, 2025 at 4:08 AM
carriekellenberger.bsky.social
" #ChronicIllness can cause angry mood swings where you're just pissed off at the whole fact that your sick Then there are the needy mood swings where you just need someone to listen and to tell you they care."
@LupieLinda
#ChronicTruths #MentalHealth #anxiety #depression #MentalHealthMatters
"Chronic illness can cause angry mood swings where you're just pissed off at the whole fact that your sick, you're pissed off that you can't do everything you want, you're pissed off that some doctors and people are idiots about your illness and you're pissed off basically at the world and everything in it. Then there are the needy mood swings where you just desperately need someone to listen to you talk and to tell you they care about you and to coddle you and just be lovey with you. These mood swings happen partly because of lots of medication but mostly just from fighting to survive." Credit: @LupieLinda #ChronicTruths #ChronicIllness #MentalHealth #anxiety #depression #MentalHealthMatters
November 14, 2025 at 4:40 AM
carriekellenberger.bsky.social
15 signs my #MentalHealth is getting bad again: Irritable, unable to focus, mood changes, anxiety, suicidal thinking, physical tension in the body, crying all the time...

What's a sign your mental health is getting bad?

#MentalHealthAwareness #PTSD #depression #MySeveralWorlds #NERVEmber
15 signs my #MentalHealth Is getting bad again *Irritable *Unable to focus *Racing thoughts & mood changes *Endless scrolling *Extreme anxiety *Suicidal thinking *Feeling not good enough or a burden *Easy to anger *Feeling numb *Zoning out *Loss of appetite *Intrusive thoughts *Physical tension in the body and headaches *Inability to cope with daily problems or stress *Crying all the time *Unable to get out of bed *Unable to sleep *Stop cleaning up after yourself *Never-ending to-do list What's a sign for you that your mental health is getting bad again?
November 13, 2025 at 3:36 AM
carriekellenberger.bsky.social
HERE'S WHAT LIVING WITH #ChronicIllness HAS TAUGHT ME

Some days you'll crash after a 5 min walk, other days you'll do more
People will misunderstand
Rest is part of care
No one's opinion is more important than your own
Credit @ARTHRITISMEGGIE

#ChronicTruths #LifeWithArthritis #MySeveralWorlds
HERE'S WHAT LIVING WITH CHRONIC ILLNESS HAS TAUGHT ME You can't always predict your limits. Some days you'll crash after a five-minute walk, other days you'll do more than you thought possible. Guilt is inevitable, but it doesn't have to control you. Canceling plans doesn't make you unreliable- it makes you human. People will misunderstand or judge. That's on them, not you. Learning who deserves your explanation and who doesn't is key. Rest isn't a luxury or a punishment. It's a necessary part of the care plan. No one's advice or opinion is more important than your own experience with your body. Trust it. Credit @ARTHRITISMEGGIE #ChronicIllness #ChronicTruths #LifeWithArthritis #MySeveralWorlds #FibroNerds #ASWarrior #PsoriaticArthritis
November 12, 2025 at 4:36 AM
carriekellenberger.bsky.social
"Me trying to swallow all the new
info that my doctor just gave me."

Credit: MySeveralWorlds.com

#MySeveralWorlds #ChronicIllnessConfessions #ChronicMemes #ChronicHumor
"Me trying to swallow all the new info that my doctor just gave me." Credit: MySeveralWorlds.com #MySeveralWorlds #ChronicIllnessConfessions #ChronicMemes #ChronicHumor Image of a chipmunk stuffing a nut into his mouth.
November 11, 2025 at 3:55 AM
carriekellenberger.bsky.social
"Normal platitudes, which can mostly be summed up as "This too shall pass", don't apply when you have a treatment-resistant, severely disabling disease that will last your entire life."
Credit @alexandrite113
#DisablingDisease #LifeWithDisability
#ProgressiveIllness #DisabledLife #MySeveralWorlds
"Normal platitudes, which can mostly be summed up as "This too shall pass", don't apply when you have a treatment-resistant, severely disabling disease that will last your entire life." Credit @alexandrite113 #DisablingDisease #LifeWithDisability #ProgressiveIllness #DisabledLife #MySeveralWorlds
November 10, 2025 at 3:39 AM
carriekellenberger.bsky.social
"People talk about budgeting for rent, groceries, travel. #ChronicIllness budgeting looks like: meds, doctor copays, emergency appointments, delivery food on flare days, heating pads, supplements, backup plans. All of it just to function."

Credit @chronic.resources
#ChronicTruths #MySeveralWorlds
"People talk about budgeting for rent, groceries, travel. #ChronicIllness budgeting looks like: meds, doctor copays, emergency appointments, delivery food on flare days, heating pads, supplements, backup plans. All of it just to function." Credit @chronic.resources #ChronicTruths #MySeveralWorlds #ChronicPainWarrior #ChronicLife
November 9, 2025 at 3:39 AM
carriekellenberger.bsky.social
What people think PTSD is

👉 Not being able to move on after a traumatic event

❗What #PTSD actually is
MANY THINGS YOU NEVER REALIZE until you start addressing it.

Credit: @what.is.mental.illness

#MySeveralWorlds #MentalHealthMatters
What people think PTSD is 👉Not being able to move on after a traumatic event ❗What #PTSD actually is ✔️ Unwanted memories ✔️ Anxiety/depression ✔️ Negative self-image ✔️ Excessive blame ✔️ Hypervigilance ✔️ Dissociation ✔️ Emotional distress ✔️ Easily scared ✔️ Sense of threat ✔️ Intrusive thoughts ✔️ Avoidance/isolation ✔️ Memory problems ✔️ Anger, guilt & shame ✔️ Flashbacks ✔️ Nightmares ✔️ Sleeping problems ✔️ Self-destructive behaviors Credit: @what.is.mental.illness #MySeveralWorlds #MentalHealthMatters
November 8, 2025 at 3:46 AM
carriekellenberger.bsky.social
That feeling you get when you know your fans are just as happy with your art as you are. Thank you, Sue! I love you!

I have ONE postcard set (6) left. It's a Taiwan orchids set. Let me know if you want it. They sold out fast this year!
#TaiwanArtist #TaiwanArt #FloralArt #Ikebana #MySeveralWorlds
Three women in Taiwan are holding up my Taiwan orchid and Taiwan ikebana postcards sets from MySeveralWorlds.com
November 7, 2025 at 6:59 AM
carriekellenberger.bsky.social
When you've experienced all of it and people don't understand how much it effed you up...

SOME POSSIBLE CAUSES OF MEDICAL TRAUMA...

Credit to the amazing
@chronicloveclub.bsky.social ❤️

#MedicalGaslighing #MedicalTrauma #CPTSD #PTSD
When you've experienced all of it and people don't understand how much it effed you up... SOME POSSIBLE CAUSES OF MEDICAL TRAUMA... ✔️ Near death experiences ✔️ Distressing hospitalizations ✔️ Repeated mistreatment by medical professionals ✔️ Receiving a life-changing diagnosis ✔️ Aggressive treatments ✔️ Having your symptoms repeatedly ignored or dismissed ✔️ Repeated invasive procedures ✔️ Unexpected complications ✔️ Being discriminated against due to your age, ethnicity, or appearance ✔️ Being gaslit or misdiagnosed ✔️ Being intubated ✔️ Major surgeries and ICU stays ✔️ Prolonged illness ✔️Emergency medical interventions #MedicalGaslighing #MedicalTrauma #CPTSD #PTSD
November 7, 2025 at 3:40 AM
carriekellenberger.bsky.social
#Fibromyalgia is
Noise Sensitivity
Smell Sensitivity
Chemical Sensitivity
Envionment Sensitivity
Weather Sensitivity
Sensory Sensitivity Medication Sensitivity
Skin Sensitivity
Touch Sensitivity
Taste Sensitivity
Food Sensitivity
Credit Unknown
#MySeveralWorlds #LifeWithPain #FibroNerds
#ChronicPain
#Fibromyalgia is Noise Sensitivity Smell Sensitivity Chemical Sensitivity Envionment Sensitivity Weather Sensitivity Sensory Sensitivity Medication Sensitivity Skin Sensitivity Touch Sensitivity Taste Sensitivity Food Sensitivity Credit Unknown #MySeveralWorlds #LifeWithPain #ChronicPainIs #SupportFibro #TeamFibro #FibroNerds
November 6, 2025 at 2:59 AM
carriekellenberger.bsky.social
#ChronicPain Changes You

"Pain is not weakness. Pain is toughing it out each day when you feel your worst. It’s humbling to live w #pain. We adapt & grow in the darkest corners of our lives. Getting through each day IS the miracle. YOU are the miracle!"
🔗
www.myseveralworlds.com/2022/09/24/8...
8 Ways Chronic Pain Changes You There are many ways chronic pain changes you, but today I’m focusing on eight basic facts about life with pain. "Pain is not weakness. Pain is toughing it out each day when you feel your worst. It’s humbling to live w #pain. We adapt & grow in the darkest corners of our lives. Getting through each day IS the miracle. YOU are the miracle!" 8 Ways #ChronicPain Changes You 🔗 https://www.myseveralworlds.com/2022/09/24/8-ways-chronic-pain-changes-you/
November 6, 2025 at 2:51 AM
carriekellenberger.bsky.social
👉 Yes I have. Housebound for 10 years. The only person I see regularly is my doctor.

"Have you ever thought of what it would feel like to be stuck in your house for 10 years, and the only people you get to see, you have absolutely nothing in common with?" Via @tink_ina
#MEAwarenessHour #MEAwareness
👉 Yes I have. Housebound for 10 years. The only person I see regularly is my doctor. "Have you ever thought of what it would feel like to be stuck in your house for 10 years, and the only people you get to see, you have absolutely nothing in common with? No new thoughts, no new ideas, nothing new you haven't heard before. Everything is grey. Everything is frozen. The same day repeats 10,000 times over. You are still the same, and nothing changes." Credit: @tink_ina #pwME #MEAwarenessHour #MEAwareness #MySeveralWorlds
November 5, 2025 at 3:59 AM
carriekellenberger.bsky.social
"I paint my own reality. The only thing I know is that I paint because I need to, and I paint whatever passes through my head without any other consideration." ~Frida Kahlo

Credit: #MySeveralWorlds

#ArtTherapy #PainReliefTips #FridaKahlo
Frida painting her torso cast. "I paint my own reality. The only thing I know is that I paint because I need to, and I paint whatever passes through my head without any other consideration." ~Frida Kahlo Credit: #MySeveralWorlds #ArtTherapy #PainReliefTips #FridaKahlo
November 4, 2025 at 5:02 PM
carriekellenberger.bsky.social
"If arthritis could be cured with diet and supplements, 1 in 5 of us would NOT be living with the exquisite agony of arthritis!" ~Carrie, #MySeveralWorlds

Did you know I've got apparel for arthritis, fibro & Spoonie folks? I love wearing this t-shirt! Get it here: www.redbubble.com/i/t-shirt/Ar...
"If arthritis could be cured with diet and supplements, 1 in 5 of us would NOT be living with the exquisite agony of arthritis!" ~Carrie Kellenberger, My Several Worlds Did you know I've got an apparel collection for arthritis, fibro and Spoonie folks? Check out my back to school duds in the comment section. I love wearing this t-shirt. People always stop to read it. Get yours here: https://www.redbubble.com/i/t-shirt/Arthritis-Be-Cured-by-MySeveralWorlds/156276725.K3JRX
November 4, 2025 at 5:39 AM
carriekellenberger.bsky.social
Yup. And they are all popping off at high intensity today. It started late last night.

"Most painful points in
fibromyalgia:

Credit Unknown

👉 They forgot the tears on my face! 😭

#FibromyalgiaAwareness #CPP #ChronicPainIs #MySeveralWorlds
#SupportFibro
Yup. And they are all popping off at high intensity today. It started late last night. "Most painful points in fibromyalgia: [neck, brain, hands, hips, front of skull, behind the knees, SI joints and lower back, feet, elbows, shoulders, in front of the knees, sternum and chest] Credit Unknown 👉 They forgot the tears on my face! 😭 #FibromyalgiaAwareness #CPP #ChronicPainIs #MySeveralWorlds #SupportFibro
November 4, 2025 at 3:48 AM
carriekellenberger.bsky.social
Having fun with garden kitty zentangles. Doodling.
Garden kitty zentaglss
November 2, 2025 at 3:34 PM