She has a rare disease. A drug called elamipretide has helped her survive.
But the FDA recently denied its approval.
Now, her health hangs in the balance.
Please share her story & urge the FDA to reconsider. 🧵
She has a rare disease. A drug called elamipretide has helped her survive.
But the FDA recently denied its approval.
Now, her health hangs in the balance.
Please share her story & urge the FDA to reconsider. 🧵
Hope was born with an ultra-rare genetic disorder called MLS syndrome.
She is deaf and blind.
She also has a heart condition called cardiomyopathy, which makes it difficult for her heart to pump blood.
Hope was born with an ultra-rare genetic disorder called MLS syndrome.
She is deaf and blind.
She also has a heart condition called cardiomyopathy, which makes it difficult for her heart to pump blood.
Her heart function stabilized and her quality-of-life dramatically improved.
She went from sleeping 17 hours per day...to running, dancing, and playing like any other 4-year-old.
Her heart function stabilized and her quality-of-life dramatically improved.
She went from sleeping 17 hours per day...to running, dancing, and playing like any other 4-year-old.
They didn’t just deport him—they sent him to CECOT in El Salvador.
Agelviz came here legally through the refugee resettlement program—fully vetted. But when he landed in Houston, CBP snatched him over a tattoo: a clock and a rose.
No charges. No record. Just a suspicion.
They didn’t just deport him—they sent him to CECOT in El Salvador.
Agelviz came here legally through the refugee resettlement program—fully vetted. But when he landed in Houston, CBP snatched him over a tattoo: a clock and a rose.
No charges. No record. Just a suspicion.
For those wondering why due process is essential for EVERYONE. This is why!
For those wondering why due process is essential for EVERYONE. This is why!
newrepublic.com/article/1948...
newrepublic.com/article/1948...
New piece from me with lots of fresh reporting on this case:
newrepublic.com/article/1948...
New piece from me with lots of fresh reporting on this case:
newrepublic.com/article/1948...
Here’s the first s2 podcast, with Tramell Tillman…
#severance
podcasts.apple.com/us/podcast/t...
Here’s the first s2 podcast, with Tramell Tillman…
#severance
podcasts.apple.com/us/podcast/t...
It’s never finished till you engage with it. So excited for the dialogue to begin.
Praise Kier
It’s never finished till you engage with it. So excited for the dialogue to begin.
Praise Kier
Put your face on it.
severanceballoon.com
Put your face on it.
severanceballoon.com