CAPRIN1 Foundation
@caprin1-foundation.bsky.social
Supporting families affected by CAPRIN1-related disorders through research, education and community connection.
Connect with us: https://linktr.ee/Caprin1
Connect with us: https://linktr.ee/Caprin1
• Early intervention: Speech/OT therapy, special education • Hearing support: Aids/cochlear implants if required • Routine & communication: Visual schedules, devices (AAC) • Emotional support: Celebrate small wins, advocate for inclusion • Join communities: Support groups, networks can be lifelines
July 5, 2025 at 5:36 PM
• Early intervention: Speech/OT therapy, special education • Hearing support: Aids/cochlear implants if required • Routine & communication: Visual schedules, devices (AAC) • Emotional support: Celebrate small wins, advocate for inclusion • Join communities: Support groups, networks can be lifelines
CAPRIN1 mutations are rare but can cause CAPRIN1-related neurodevelopmental disorder, affecting• Learning development• Speech• Movement/coordination• Behavior• Hearing, vision or other bodily functions. It’s crucial in early brain development, so a mutation can show effects in childhood or infancy.
June 7, 2025 at 3:46 PM
CAPRIN1 mutations are rare but can cause CAPRIN1-related neurodevelopmental disorder, affecting• Learning development• Speech• Movement/coordination• Behavior• Hearing, vision or other bodily functions. It’s crucial in early brain development, so a mutation can show effects in childhood or infancy.