CAPRIN1 Foundation
@caprin1-foundation.bsky.social
Supporting families affected by CAPRIN1-related disorders through research, education and community connection.
Connect with us: https://linktr.ee/Caprin1
Connect with us: https://linktr.ee/Caprin1
As we get closer to the festive season, consider gifting a donation which will give hope to people with #CAPRIN1 variants.
Your donation powers cutting-edge research, bringing us closer to understanding the gene & developing life changing support.
Every gift matters 🙏 caprin1foundation.org/donate/
Your donation powers cutting-edge research, bringing us closer to understanding the gene & developing life changing support.
Every gift matters 🙏 caprin1foundation.org/donate/
December 23, 2025 at 10:01 AM
As we get closer to the festive season, consider gifting a donation which will give hope to people with #CAPRIN1 variants.
Your donation powers cutting-edge research, bringing us closer to understanding the gene & developing life changing support.
Every gift matters 🙏 caprin1foundation.org/donate/
Your donation powers cutting-edge research, bringing us closer to understanding the gene & developing life changing support.
Every gift matters 🙏 caprin1foundation.org/donate/
🧬 Genetic testing can unlock answers about CAPRIN1
If you or a loved one has a suspected CAPRIN1 variant, consider genetic testing which will help researchers move closer to treatments for people worldwide.
Learn more: caprin1foundation.org/participate-...
#GeneticTesting #RareDiseaseResearch
If you or a loved one has a suspected CAPRIN1 variant, consider genetic testing which will help researchers move closer to treatments for people worldwide.
Learn more: caprin1foundation.org/participate-...
#GeneticTesting #RareDiseaseResearch
December 22, 2025 at 1:02 PM
🧬 Genetic testing can unlock answers about CAPRIN1
If you or a loved one has a suspected CAPRIN1 variant, consider genetic testing which will help researchers move closer to treatments for people worldwide.
Learn more: caprin1foundation.org/participate-...
#GeneticTesting #RareDiseaseResearch
If you or a loved one has a suspected CAPRIN1 variant, consider genetic testing which will help researchers move closer to treatments for people worldwide.
Learn more: caprin1foundation.org/participate-...
#GeneticTesting #RareDiseaseResearch
CAPRIN1 helps brain cells communicate and develop. When this gene doesn’t work as expected, it can impact language, learning, movement, behavior, and sensory processing.
The more we understand #CAPRIN1, the better we can support those affected.
💙 Learn more or get involved at caprin1foundation.org
The more we understand #CAPRIN1, the better we can support those affected.
💙 Learn more or get involved at caprin1foundation.org
December 18, 2025 at 12:04 PM
CAPRIN1 helps brain cells communicate and develop. When this gene doesn’t work as expected, it can impact language, learning, movement, behavior, and sensory processing.
The more we understand #CAPRIN1, the better we can support those affected.
💙 Learn more or get involved at caprin1foundation.org
The more we understand #CAPRIN1, the better we can support those affected.
💙 Learn more or get involved at caprin1foundation.org
Can you help us raise vital funds for #CAPRIN1 research?
Our research team needs specialty equipment to continue their work to better understand CAPRIN1 variants & possible treatment.
🌟 Every donation counts: caprin1foundation.org/donate/
#CAPRIN1Awareness #RareDiseaseFunding #Donate
Our research team needs specialty equipment to continue their work to better understand CAPRIN1 variants & possible treatment.
🌟 Every donation counts: caprin1foundation.org/donate/
#CAPRIN1Awareness #RareDiseaseFunding #Donate
December 16, 2025 at 10:01 AM
Can you help us raise vital funds for #CAPRIN1 research?
Our research team needs specialty equipment to continue their work to better understand CAPRIN1 variants & possible treatment.
🌟 Every donation counts: caprin1foundation.org/donate/
#CAPRIN1Awareness #RareDiseaseFunding #Donate
Our research team needs specialty equipment to continue their work to better understand CAPRIN1 variants & possible treatment.
🌟 Every donation counts: caprin1foundation.org/donate/
#CAPRIN1Awareness #RareDiseaseFunding #Donate
Possible signs of a #CAPRIN1 variant may include:
🗣️ Developmental/speech delays
⚡ Unexplained seizures
🧩 Autism-like traits
🧬 Family history of neurological conditions
These signs can have many causes, but learning about CAPRIN1 can help families find clarity.
💙 Learn more at caprin1foundation.org
🗣️ Developmental/speech delays
⚡ Unexplained seizures
🧩 Autism-like traits
🧬 Family history of neurological conditions
These signs can have many causes, but learning about CAPRIN1 can help families find clarity.
💙 Learn more at caprin1foundation.org
December 14, 2025 at 3:02 PM
Possible signs of a #CAPRIN1 variant may include:
🗣️ Developmental/speech delays
⚡ Unexplained seizures
🧩 Autism-like traits
🧬 Family history of neurological conditions
These signs can have many causes, but learning about CAPRIN1 can help families find clarity.
💙 Learn more at caprin1foundation.org
🗣️ Developmental/speech delays
⚡ Unexplained seizures
🧩 Autism-like traits
🧬 Family history of neurological conditions
These signs can have many causes, but learning about CAPRIN1 can help families find clarity.
💙 Learn more at caprin1foundation.org
Parents. Adults. Caregivers. Clinicians. Researchers.
No matter your connection to #CAPRIN1, you belong here.
Join the CAPRIN1 Community today: caprin1foundation.org/join-our-com...
#InclusiveCommunity #RareDiseaseSupport #CAPRIN1Foundation
No matter your connection to #CAPRIN1, you belong here.
Join the CAPRIN1 Community today: caprin1foundation.org/join-our-com...
#InclusiveCommunity #RareDiseaseSupport #CAPRIN1Foundation
December 11, 2025 at 12:01 PM
Parents. Adults. Caregivers. Clinicians. Researchers.
No matter your connection to #CAPRIN1, you belong here.
Join the CAPRIN1 Community today: caprin1foundation.org/join-our-com...
#InclusiveCommunity #RareDiseaseSupport #CAPRIN1Foundation
No matter your connection to #CAPRIN1, you belong here.
Join the CAPRIN1 Community today: caprin1foundation.org/join-our-com...
#InclusiveCommunity #RareDiseaseSupport #CAPRIN1Foundation
Your involvement today fuels tomorrow’s breakthroughs.
We're passionate about building hope for people with #CAPRIN1 variants and we need you to help us further our efforts! Sign up, donate, or participate — together we can create change.
#HopeForRare #CAPRIN1Foundation #RareDiseaseSupport
We're passionate about building hope for people with #CAPRIN1 variants and we need you to help us further our efforts! Sign up, donate, or participate — together we can create change.
#HopeForRare #CAPRIN1Foundation #RareDiseaseSupport
December 10, 2025 at 10:01 AM
Your involvement today fuels tomorrow’s breakthroughs.
We're passionate about building hope for people with #CAPRIN1 variants and we need you to help us further our efforts! Sign up, donate, or participate — together we can create change.
#HopeForRare #CAPRIN1Foundation #RareDiseaseSupport
We're passionate about building hope for people with #CAPRIN1 variants and we need you to help us further our efforts! Sign up, donate, or participate — together we can create change.
#HopeForRare #CAPRIN1Foundation #RareDiseaseSupport
CAPRIN1 variants are rare — with only 24 reported cases. In order to get vital funding for research we're trying to get as many people possible tested to reflect true prevalence.
🌍 Do you have a confirmed variant? Get in touch: caprin1foundation.org/participate-...
#RareDisease #SupportRare
🌍 Do you have a confirmed variant? Get in touch: caprin1foundation.org/participate-...
#RareDisease #SupportRare
December 8, 2025 at 11:01 AM
CAPRIN1 variants are rare — with only 24 reported cases. In order to get vital funding for research we're trying to get as many people possible tested to reflect true prevalence.
🌍 Do you have a confirmed variant? Get in touch: caprin1foundation.org/participate-...
#RareDisease #SupportRare
🌍 Do you have a confirmed variant? Get in touch: caprin1foundation.org/participate-...
#RareDisease #SupportRare
CAPRIN1 plays a key role in brain development. Variants in this gene can impact speech, motor skills, behavior, hearing, and more.
Find out more about CAPRIN1 and variants on our website: caprin1foundation.org
#Genetics #Neurodevelopment #CAPRIN1Education
Find out more about CAPRIN1 and variants on our website: caprin1foundation.org
#Genetics #Neurodevelopment #CAPRIN1Education
December 5, 2025 at 12:03 PM
CAPRIN1 plays a key role in brain development. Variants in this gene can impact speech, motor skills, behavior, hearing, and more.
Find out more about CAPRIN1 and variants on our website: caprin1foundation.org
#Genetics #Neurodevelopment #CAPRIN1Education
Find out more about CAPRIN1 and variants on our website: caprin1foundation.org
#Genetics #Neurodevelopment #CAPRIN1Education
CAPRIN1 Foundation was founded by parents who wanted answers, support & connection. If you or someone you love is affected by a CAPRIN1 variant, we're here for you!
Join our supportive community: caprin1foundation.org/join-our-com...
#FamilySupport #CAPRIN1Foundation #RareDisease
Join our supportive community: caprin1foundation.org/join-our-com...
#FamilySupport #CAPRIN1Foundation #RareDisease
December 3, 2025 at 11:02 AM
CAPRIN1 Foundation was founded by parents who wanted answers, support & connection. If you or someone you love is affected by a CAPRIN1 variant, we're here for you!
Join our supportive community: caprin1foundation.org/join-our-com...
#FamilySupport #CAPRIN1Foundation #RareDisease
Join our supportive community: caprin1foundation.org/join-our-com...
#FamilySupport #CAPRIN1Foundation #RareDisease
Sharing your journey helps researchers understand how CAPRIN1 affects development, communication and everyday life.
💙 Join the research community and sign up to participate in a study today: caprin1foundation.org/participate-...
#PatientVoices #ResearchImpact #CAPRIN1Community
💙 Join the research community and sign up to participate in a study today: caprin1foundation.org/participate-...
#PatientVoices #ResearchImpact #CAPRIN1Community
December 1, 2025 at 10:01 AM
Sharing your journey helps researchers understand how CAPRIN1 affects development, communication and everyday life.
💙 Join the research community and sign up to participate in a study today: caprin1foundation.org/participate-...
#PatientVoices #ResearchImpact #CAPRIN1Community
💙 Join the research community and sign up to participate in a study today: caprin1foundation.org/participate-...
#PatientVoices #ResearchImpact #CAPRIN1Community
CAPRIN1 plays a key role in brain development. Variants in this gene can impact speech, motor skills, behavior, hearing, and more.
Find out more about #CAPRIN1 and variants on our website: caprin1foundation.org
#Genetics #Neurodevelopment #CAPRIN1Education
Find out more about #CAPRIN1 and variants on our website: caprin1foundation.org
#Genetics #Neurodevelopment #CAPRIN1Education
November 28, 2025 at 12:01 PM
CAPRIN1 plays a key role in brain development. Variants in this gene can impact speech, motor skills, behavior, hearing, and more.
Find out more about #CAPRIN1 and variants on our website: caprin1foundation.org
#Genetics #Neurodevelopment #CAPRIN1Education
Find out more about #CAPRIN1 and variants on our website: caprin1foundation.org
#Genetics #Neurodevelopment #CAPRIN1Education
Stay up to date on CAPRIN1 research, family stories and new opportunities to get involve by signing up to join our community.
📬 Sign up on our website: caprin1foundation.org/join-our-com...
#Newsletter #CAPRIN1Updates #StayConnected
📬 Sign up on our website: caprin1foundation.org/join-our-com...
#Newsletter #CAPRIN1Updates #StayConnected
November 26, 2025 at 6:02 PM
Stay up to date on CAPRIN1 research, family stories and new opportunities to get involve by signing up to join our community.
📬 Sign up on our website: caprin1foundation.org/join-our-com...
#Newsletter #CAPRIN1Updates #StayConnected
📬 Sign up on our website: caprin1foundation.org/join-our-com...
#Newsletter #CAPRIN1Updates #StayConnected
Your donation funds #CAPRIN1 research and awareness efforts worldwide!
💛 Help us accelerate discoveries and bring hope to families by donating today.
👉 Donate at caprin1foundation.org/donate/
#DonateForGood #CAPRIN1Foundation #RareDiseaseAwareness
💛 Help us accelerate discoveries and bring hope to families by donating today.
👉 Donate at caprin1foundation.org/donate/
#DonateForGood #CAPRIN1Foundation #RareDiseaseAwareness
November 24, 2025 at 10:00 AM
Your donation funds #CAPRIN1 research and awareness efforts worldwide!
💛 Help us accelerate discoveries and bring hope to families by donating today.
👉 Donate at caprin1foundation.org/donate/
#DonateForGood #CAPRIN1Foundation #RareDiseaseAwareness
💛 Help us accelerate discoveries and bring hope to families by donating today.
👉 Donate at caprin1foundation.org/donate/
#DonateForGood #CAPRIN1Foundation #RareDiseaseAwareness
Every research participant brings us closer to answers families have waited for. If you or your child has a CAPRIN1 variant, we’d love to hear from you.
🔬 Sign up to participate in research today: caprin1foundation.org/participate-...
#RareDiseaseResearch #CAPRIN1 #ScienceForGood #GeneticResearch
🔬 Sign up to participate in research today: caprin1foundation.org/participate-...
#RareDiseaseResearch #CAPRIN1 #ScienceForGood #GeneticResearch
November 21, 2025 at 10:00 AM
Every research participant brings us closer to answers families have waited for. If you or your child has a CAPRIN1 variant, we’d love to hear from you.
🔬 Sign up to participate in research today: caprin1foundation.org/participate-...
#RareDiseaseResearch #CAPRIN1 #ScienceForGood #GeneticResearch
🔬 Sign up to participate in research today: caprin1foundation.org/participate-...
#RareDiseaseResearch #CAPRIN1 #ScienceForGood #GeneticResearch
You are not alone. Join a global network of families, advocates and researchers working to understand CAPRIN1-related conditions.
💙 Connect, learn and grow with us.
👉 Sign up at caprin1foundation.org/join-our-com...
#CAPRIN1 #RareDiseaseCommunity #Genetics #SupportFamilies #JoinUs
💙 Connect, learn and grow with us.
👉 Sign up at caprin1foundation.org/join-our-com...
#CAPRIN1 #RareDiseaseCommunity #Genetics #SupportFamilies #JoinUs
November 19, 2025 at 10:00 AM
You are not alone. Join a global network of families, advocates and researchers working to understand CAPRIN1-related conditions.
💙 Connect, learn and grow with us.
👉 Sign up at caprin1foundation.org/join-our-com...
#CAPRIN1 #RareDiseaseCommunity #Genetics #SupportFamilies #JoinUs
💙 Connect, learn and grow with us.
👉 Sign up at caprin1foundation.org/join-our-com...
#CAPRIN1 #RareDiseaseCommunity #Genetics #SupportFamilies #JoinUs
If your child has been diagnosed with autism, speech delay, or developmental challenges, there could be an underlying genetic reason, like a rare CAPRIN1 mutation. Learn the signs, why it matters, and how genetic testing could give you answers.
July 26, 2025 at 2:02 PM
If your child has been diagnosed with autism, speech delay, or developmental challenges, there could be an underlying genetic reason, like a rare CAPRIN1 mutation. Learn the signs, why it matters, and how genetic testing could give you answers.
When CAPRIN1 doesn’t work properly, the brain and nervous system might not develop or function normally.
You can think of this gene like an instruction manual. If there’s a mutation (a change or “typo” in the instructions), the body might not make the protein correctly, or at all.
You can think of this gene like an instruction manual. If there’s a mutation (a change or “typo” in the instructions), the body might not make the protein correctly, or at all.
June 7, 2025 at 3:43 PM
When CAPRIN1 doesn’t work properly, the brain and nervous system might not develop or function normally.
You can think of this gene like an instruction manual. If there’s a mutation (a change or “typo” in the instructions), the body might not make the protein correctly, or at all.
You can think of this gene like an instruction manual. If there’s a mutation (a change or “typo” in the instructions), the body might not make the protein correctly, or at all.
CAPRIN1 is the name of a gene that helps make a protein important for brain function and communication between brain cells. We’re still learning, hence your voice matters. Share, support, and connect—because awareness is powerful. #CAPRIN1 #RareDiseaseAwareness #GeneticSupport #Neurodevelopment
June 7, 2025 at 3:42 PM
CAPRIN1 is the name of a gene that helps make a protein important for brain function and communication between brain cells. We’re still learning, hence your voice matters. Share, support, and connect—because awareness is powerful. #CAPRIN1 #RareDiseaseAwareness #GeneticSupport #Neurodevelopment
Our Goals
Spread Awareness And Education
Encourage Genetic Testing
Support Research
Build Community
How You Can Help
Follow & Share: Spread the word
Join Our Foundation: caprin1foundation.org
Engage & Discuss: Participate & share experiences
Consider Genetic Testing: To provide valuable insights
Spread Awareness And Education
Encourage Genetic Testing
Support Research
Build Community
How You Can Help
Follow & Share: Spread the word
Join Our Foundation: caprin1foundation.org
Engage & Discuss: Participate & share experiences
Consider Genetic Testing: To provide valuable insights
March 30, 2025 at 7:11 PM
Our Goals
Spread Awareness And Education
Encourage Genetic Testing
Support Research
Build Community
How You Can Help
Follow & Share: Spread the word
Join Our Foundation: caprin1foundation.org
Engage & Discuss: Participate & share experiences
Consider Genetic Testing: To provide valuable insights
Spread Awareness And Education
Encourage Genetic Testing
Support Research
Build Community
How You Can Help
Follow & Share: Spread the word
Join Our Foundation: caprin1foundation.org
Engage & Discuss: Participate & share experiences
Consider Genetic Testing: To provide valuable insights
Welcome to Our CAPRIN1 Awareness Page!
CAPRIN1 is a crucial protein that plays a significant role in cellular function and neurological health. Our mission is to raise awareness, share research and build a supportive community for those affected by CAPRIN1-related conditions.
CAPRIN1 is a crucial protein that plays a significant role in cellular function and neurological health. Our mission is to raise awareness, share research and build a supportive community for those affected by CAPRIN1-related conditions.
March 30, 2025 at 6:57 PM
Welcome to Our CAPRIN1 Awareness Page!
CAPRIN1 is a crucial protein that plays a significant role in cellular function and neurological health. Our mission is to raise awareness, share research and build a supportive community for those affected by CAPRIN1-related conditions.
CAPRIN1 is a crucial protein that plays a significant role in cellular function and neurological health. Our mission is to raise awareness, share research and build a supportive community for those affected by CAPRIN1-related conditions.